[Blindtlk] ernestly seeking advice about sleep irregularities

[Peter Donahue]

Good evening again everyone,

    This is exactly the kind of so-called "Research" I'm talking about." If 
the researchers fail to screen their blind subjects for sleep disorders 
before doing the rest of the study this project has big-time problems. One 
should avoid it like the plague!

Peter Donahue

----- Original Message ----- 
From: "Steve Johnson" <stevencjohnson at centurytel.net>
To: "'Blind Talk Mailing List'" <blindtlk at nfbnet.org>
Sent: Monday, May 24, 2010 6:45 PM
Subject: Re: [Blindtlk] ernestly seeking advice about sleep irregularities


Hi Robert,

Although I don't recall not having this issue, I am however passing along an
article one of my friends recently sent from the latest newsletter from the
ACB.

ANNOUNCING UPCOMING SLEEP STUDIES

IN TOTALLY BLIND INDIVIDUALS

            Are you blind with no light perception? Do you have problems
sleeping or trouble with daytime sleepiness?

            Non-24-hour sleep wake disorder occurs in some individuals who
are totally blind and lack the photic sensitivity necessary to reset the
body clock via light exposure. This can lead to problems with sleep and/or
daytime excessive sleepiness.

            You can help researchers understand non-24-hour sleep wake
disorder by taking a brief phone survey. In addition, you will have the
opportunity to be informed of upcoming clinical studies recruiting in your
area.

            Survey participants need to:

.           be over 18 years of age

.           be blind with no light perception

.           have sleep problems and/or daytime sleepiness

            Collected information will be kept strictly confidential.

            For each completed survey, a donation of $25 up to $50,000 will
be made to the American Council of the Blind.

            If you want to participate in the survey, please call
1-877-314-5002 Monday-Friday between 9:00 a.m. and 5:00 p.m. Eastern time.
Thank you!"




-----Original Message-----
From: blindtlk-bounces at nfbnet.org [mailto:blindtlk-bounces at nfbnet.org] On
Behalf Of Robert J Smith
Sent: Monday, May 24, 2010 3:12 PM
To: blindtlk at nfbnet.org
Subject: [Blindtlk] ernestly seeking advice about sleep irregularities

Hi all.  I am a person who is totally blind with prosthetic eyes.  You will
see why I mention this right at the beginning later in this message.
I am ernestly seeking advice from other totally blind persons who suffer, or
have suffered from sleep irregularities.  I take Melatonin which helps the
problem somewhat but it could be better.  Without Melatonin, I would sleep
for two maybe three hours per night, wake up, and stay awake the rest of the
night.  With Melatonin, I sleep about five hours a night but still get
sleepy sometimes during the day.  Any ideas as to how I can improve my
alertness during the entire day?  Cafinated coffee doesn't do it.  I can sit
and yawn and get drowsy while drinking it.  I take one Melatonin tablet at
night.  Should I possibly take two?  Should I take something to keep me
alert during the day instead of focusing on the night?  I am open to all
suggestions!  Of course I know that nobody can prescribe anything on this
list.  I have heard that blind persons who have no light perception have
been known to have sleep irregularity problems.
This seems to follow with me because when I was a kid I had light
perception.  I would sit in front of a lamp in my bedroom when doing my
homework first to be just like my sighted younger brother when he did his
homework, second because I liked actually seeing something since I had both
real eyes at that point.  When I was a kid, I did not have sleep and
alertness troubles.

Thanks much in advance,

Robert Smith

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