[Blindtlk] Who Bathes You?
Chasity Jackson
chasityvanda at charter.net
Fri Mar 4 20:09:42 UTC 2011
What really gets me is this. I was at a concert last year around February.
One of the people I met there happened to be a fan that I had on my
facebook. She knew that I traveled there by myself. So she asks me, "Who
takes care of you? Who is supposed to be taking care of you tonight?" I
said, "I take care of myself." She said, "Oh come on seriously. Who takes
care of you? I mean, someone has to be doing that. I know I would want
someone taking care of me if I were blind." Seriously, if you are going to
ask someone a question and you really want a realistic answer, at least be
ready to trust the information you are given, otherwise what is the point of
asking the question.
Another person, who also had an idea that I travel independently made a
comment that, "We all know you have adapted to your disability and being
blind, but not enough to navigate up and down a hotel hall by yourself."
Mind you, this person has never met me in person or seen me walk
independently on my own, but that comment was made on my facebook page last
year. Some of the stuff people say is just deplorable and apalling. No
matter what you say to educate them, they think you're just acting cute or
something. I think she thought I was being funny when I said I take care of
myself. The problem I face when this happens is that demeaning comments like
that quickly get me in a very nasty mood and I'm afraid that if I respond
too quickly, I will say something really nasty and cause tention between
people.
----- Original Message -----
From: "Michelle Medina" <michellem86 at gmail.com>
To: "Blind Talk Mailing List" <blindtlk at nfbnet.org>
Sent: Friday, March 04, 2011 1:09 PM
Subject: Re: [Blindtlk] Who Bathes You?
> Lol! It could be titled the top 10 most shocking *or dumb, or
> whatever* questions we've been asked.
>
> On 3/4/11, Michelle Medina <michellem86 at gmail.com> wrote:
>> Lol David, love that!
>>
>> On 3/4/11, David Evans <drevans at bellsouth.net> wrote:
>>>
>>> Dear All,
>>>
>>> I have had my share of "How do you" questions in my life.
>>> I have been asked how do I drive and get around as an example. I have
>>> answered many times that I just roll the passenger side window down and
>>> drag
>>> my cane tip along the curb. Curb feelers are legal you know."
>>>
>>> I have kidded that I have a guide dog that is cross bread with a
>>> greyhound
>>> and runs along side the car on the drivers side when I drive on the
>>> freeway.
>>>
>>> I have had a guy ask me how I use that cane to find my way around and I
>>> joked that it works like a "divining rod" to find my way to where I want
>>> to
>>> go by smelling where other people have walked. An assistant to Doctor
>>> Carl
>>> Sagan, from the Nova TV show, once ask me how I knew where I was going
>>> and
>>> how I knew when I arrived. I teased him by saying that it was simple
>>> physics. I just followed a path where nothing got in my way and I
>>> stopped
>>> when something did. He said that he thought that was logical.
>>>
>>> I tend to give smart lick answers to such questions, but at most times
>>> give
>>> people a good straight answer with the logic behind it depending on the
>>> person and my mood.
>>>
>>> David Evans, NFBF and GD Jack
>>> Former Nuclear/Aerospace Materials Engineer and builder of the Lunar
>>> Rovers
>>> and the F-117 Stealth Fighter
>>> ----- Original Message -----
>>> From: "Michelle Medina" <michellem86 at gmail.com>
>>> To: "Blind Talk Mailing List" <blindtlk at nfbnet.org>
>>> Sent: Friday, March 04, 2011 10:31 AM
>>> Subject: Re: [Blindtlk] Who Bathes You?
>>>
>>>
>>>> OMG!!!! Depending on how one looked at that, it'd be either hilarious
>>>> or not so hilarious *say the person who was asked that question is
>>>> super sensitive about the fact that they can't drive* for example.
>>>> Again, I am stunned!
>>>>
>>>> On 3/4/11, Marsha Drenth <marsha.drenth at gmail.com> wrote:
>>>>> I have actually had that question too. Yesterday I think topped that
>>>>> though.
>>>>> I was at my college, walking with my guide dog. I mean actually
>>>>> holding
>>>>> on
>>>>> to the harness handle and all. I got a bit lost, or turned around. And
>>>>> stopped to ask directions. So a nice lady started to walk the way I
>>>>> did.
>>>>> So
>>>>> here I am walking with my guide, can't see a bit in the world, and she
>>>>> asks
>>>>> me if I can drive? Oh and my guide dog has a sign on it saying, I am a
>>>>> working dog do not pet. My harness says Seeing eye. Hello? LOL
>>>>>
>>>>> I was very polite, but thought afterwards, wow. Hope she wasn't a
>>>>> professor
>>>>> LOL
>>>>>
>>>>> marsha
>>>>>
>>>>>
>>>>> -----Original Message-----
>>>>> From: blindtlk-bounces at nfbnet.org [mailto:blindtlk-bounces at nfbnet.org]
>>>>> On
>>>>> Behalf Of Jeanette Fortin
>>>>> Sent: Friday, March 04, 2011 9:38 AM
>>>>> To: Blind Talk Mailing List
>>>>> Subject: Re: [Blindtlk] Who Bathes You?
>>>>>
>>>>> WELL I have had folks ask me who cooks for my kids and how much help
>>>>> do
>>>>> i
>>>>> have come in to help, none, when we lived on the island we had a maid
>>>>> but
>>>>>
>>>>> it
>>>>>
>>>>> was in support of the local islanders who needed work on the island to
>>>>> support families, i also homeschooled my kids and folks couldn't
>>>>> imagine
>>>>> how
>>>>>
>>>>> a blind person could teach anything, really?
>>>>> just amazing, jeanette
>>>>> ----- Original Message -----
>>>>> From: "Marion Gwizdala" <blind411 at verizon.net>
>>>>> To: "Blind Talk Mailing List" <blindtlk at nfbnet.org>
>>>>> Sent: Friday, March 04, 2011 5:11 AM
>>>>> Subject: [Blindtlk] Who Bathes You?
>>>>>
>>>>>
>>>>>>I went to see a dermatologist once who said, You're really clean! Who
>>>>>>bathes you?" I expressed my dismay that a well educated person like a
>>>>>>doctor would ask such an offensively stereotypical question, as I took
>>>>>>out
>>>>>>my business card and handed it to him.Then I asked him "Who bathes
>>>>>> you?"
>>>>>>He
>>>>>
>>>>>>apologized profusely, sharing that he understands how I feel because
>>>>>>he
>>>>>>has
>>>>>
>>>>>>a clubbed foot! There's no accounting for convoluted logic! In the
>>>>>> words
>>>>>>of
>>>>>
>>>>>>Archie Bunker, "That's the kind of straight thinking we need
>>>>>>nowadays!"
>>>>>>
>>>>>> Fraternally yours,
>>>>>> Marion
>>>>>>
>>>>>>
>>>>>>
>>>>>> ----- Original Message -----
>>>>>> From: "Michelle Medina" <michellem86 at gmail.com>
>>>>>> To: "Blind Talk Mailing List" <blindtlk at nfbnet.org>
>>>>>> Sent: Thursday, March 03, 2011 12:05 PM
>>>>>> Subject: Re: [Blindtlk] Responses of Medical Professionals.
>>>>>>
>>>>>>
>>>>>>> I'd have been absolutely furious!!!! In fact, I must confess, I may
>>>>>>> have accidentally *purposely* stabbed her hand or arm as my food was
>>>>>>> spinning by.
>>>>>>> Chelle
>>>>>>>
>>>>>>> On 3/3/11, Hyde, David W. (ESC) <david.hyde at wcbvi.k12.wi.us> wrote:
>>>>>>>> When I was a kid in Oregon, most blind children were treated at the
>>>>>>>> University of Oregon Medical School. Being an RLF (now ROP,
>>>>>>>> nothing's
>>>>>>>> changed but the initials) child, all the interns took a look at me.
>>>>>>>> Looking
>>>>>>>> back, I don't remember any of them introducing themselves, but they
>>>>>>>> sure
>>>>>>>> loved working with the pressure gage and the slit lamp.
>>>>>>>>
>>>>>>>> My best medical story, though, comes from eye surgery in the
>>>>>>>> seventies.
>>>>>>>> I
>>>>>>>> was in the hospital after surgery, and was getting my first real
>>>>>>>> meal.
>>>>>>>>
>>>>>>>> I
>>>>>>>> know that there was something on my chart that said I was blind,
>>>>>>>> since,
>>>>>>>> after all, the bandages over the eyes wouldn't give any clue. The
>>>>>>>> service
>>>>>>>> staff came in, and put the food tray on the table over the bed, and
>>>>>>>> I
>>>>>>>> thanked her, assuming our interaction was done. She looked at me,
>>>>>>>> looked
>>>>>
>>>>>>>> at
>>>>>>>> my wife who was in the room, and turned the tray 180 degrees. I
>>>>>>>> thanked
>>>>>>>> her
>>>>>>>> again. She looked back at me, back at my wife and turned it again.
>>>>>>>> After
>>>>>
>>>>>>>> the
>>>>>>>> third iteration, I confess I lost my patience and asked if I was
>>>>>>>> just
>>>>>>>> supposed to use a fork to stab something as it went by.
>>>>>>>>
>>>>>>>> It's funny now, but frustrating then.
>>>>>>>>
>>>>>>>>
>>>>>>>>
>>>>>>>> -----Original Message-----
>>>>>>>> From: blindtlk-bounces at nfbnet.org
>>>>>>>> [mailto:blindtlk-bounces at nfbnet.org]
>>>>>>>> On
>>>>>>>> Behalf Of Mary Mc Gee
>>>>>>>> Sent: Wednesday, March 02, 2011 3:11 PM
>>>>>>>> To: 'Blind Talk Mailing List'
>>>>>>>> Subject: Re: [Blindtlk] Responses of Medical Professionals.
>>>>>>>>
>>>>>>>> Dear Fellow Federationists;
>>>>>>>>
>>>>>>>> I've read with interest all the posts about experiences
>>>>>>>> at
>>>>>>>> health care providers' offices. I have some experiences I can
>>>>>>>> throw
>>>>>>>> into
>>>>>>>> the mix.
>>>>>>>>
>>>>>>>> First, I'll say that, because the cause of my blindness
>>>>>>>> is
>>>>>>>> albinism, I had a unique appearance that was impossible to hide
>>>>>>>> when
>>>>>>>> I
>>>>>>>> was
>>>>>>>> younger. I was a student at the Iowa Braille and Sight Saving
>>>>>>>> School
>>>>>>>> for
>>>>>>>> ten years and, during that time, I went to the University of Iowa
>>>>>>>> for
>>>>>>>> free
>>>>>>>> eye care-at least "they" called it eye care. It was more on the
>>>>>>>> order
>>>>>>>> of
>>>>>>>> eye study because every med student, intern, and ophthalmology
>>>>>>>> resident
>>>>>>>> had
>>>>>>>> to come examines the "albinotic eye" before I received any low
>>>>>>>> vision
>>>>>>>> glasses, etc. that would actually improve what little vision I
>>>>>>>> have.
>>>>>>>> I
>>>>>>>> felt
>>>>>>>> like a zoo or circus animal on display because I was a condition
>>>>>>>> rather
>>>>>>>> than
>>>>>>>> a person. It hurt a lot and I'm not simply talking about all the
>>>>>>>> lights
>>>>>>>> shining in my eyes, but also the emotional pain it caused.
>>>>>>>>
>>>>>>>> As an adult I've had some doctors who have been very
>>>>>>>> nice
>>>>>>>> and
>>>>>>>> some who haven't. The number of nice ones directly correlates with
>>>>>>>> my
>>>>>>>> various degrees-all doctors and staffs are nice now that I put
>>>>>>>> "Attorney" on
>>>>>>>> their intake forms.
>>>>>>>>
>>>>>>>> But, when I first came to Des Moines in 1976, visited a
>>>>>>>> neurologist because of migraine headaches. He spent more time
>>>>>>>> looking
>>>>>>>> at my
>>>>>>>> eyes than he did taking a history of the headaches. I went to one
>>>>>>>> doctor
>>>>>>>> whose office staff handed the intake form to my driver too complete
>>>>>>>> until I
>>>>>>>> complained. One time, when I went to an orthopedic surgeon's
>>>>>>>> office
>>>>>>>> for
>>>>>
>>>>>>>> an
>>>>>>>> expert consult to prepare for trial, I was greatly surprised that
>>>>>>>> she
>>>>>>>> spent
>>>>>>>> fifteen minutes asking about my vision instead of my client's
>>>>>>>> treatment.
>>>>>
>>>>>>>> I
>>>>>>>> simply told her that, if she billed for those extra minutes, she
>>>>>>>> wouldn't be
>>>>>>>> paid, because I would deduct that amount of time from my bill back
>>>>>>>> to
>>>>>>>> the
>>>>>>>> client. She didn't argue and even apologized.
>>>>>>>>
>>>>>>>> I'm fortunate that I currently have a sensitive, caring
>>>>>>>> group of
>>>>>>>> physicians. I'll have to admit, though, that the trauma of the
>>>>>>>> past
>>>>>>>> plus my
>>>>>>>> attorney's skepticism is quite hard to eliminate when I meet a new
>>>>>>>> one.
>>>>>>>>
>>>>>>>> The Iowa Department for the Blind has been doing a PR
>>>>>>>> project
>>>>>>>> with health care providers to educate them with the hope that fewer
>>>>>>>> people
>>>>>>>> will have unpleasant experiences when they need help.
>>>>>>>>
>>>>>>>> I'd be interested in hearing if any of you, like me,
>>>>>>>> were
>>>>>>>> treated as a medical oddity at any time.
>>>>>>>> Sincerely,
>>>>>>>>
>>>>>>>> Mary L. McGee
>>>>>>>>
>>>>>>>>
>>>>>>>>
>>>>>>>>
>>>>>>>>
>>>>>>>> NOTICE: This E-mail (including attachments) is covered by the
>>>>>>>> Electronic
>>>>>>>> Communications Privacy Act, 18 U.S.C. Sections 2510-2521, is
>>>>>>>> confidential
>>>>>>>> and may be legally privileged. If you are not the intended
>>>>>>>> recipient,
>>>>>>>> you
>>>>>>>> are hereby notified that any tetention, dissemination,
>>>>>>>> distribution,
>>>>>>>> or
>>>>>>>> copying of this communication is strictly prohibited. Please reply
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>>>>>>>> sender that you have received the message in error, then delete.
>>>>>>>> Thank
>>>>>>>> you.
>>>>>>>>
>>>>>>>>
>>>>>>>>
>>>>>>>>
>>>>>>>> _______________________________________________
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>>>>>>>>
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>>>>> l.com
>>>>>>>>
>>>>>>>
>>>>>>>
>>>>>>> --
>>>>>>> "FUCK YOU FOR KILLING ME!!!!" SHAUN MORGAN - "NEEDLES"
>>>>>>> "THESE STAND FOR ME, NAME YOUR GOD AND BLEED THE FREAK!
>>>>>>> I'D LIKE TO SEE, HOW YOU ALL WOULD BLEED FOR ME!" -LAYNE STALEY -
>>>>>>> "BLEED THE FREAK"
>>>>>>>
>>>>>>> _______________________________________________
>>>>>>> blindtlk mailing list
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>>>>>>> blindtlk:
>>>>>>>
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>>>>> .net
>>>>>>
>>>>>>
>>>>>> _______________________________________________
>>>>>> blindtlk mailing list
>>>>>> blindtlk at nfbnet.org
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>>>>> http://www.nfbnet.org/mailman/options/blindtlk_nfbnet.org/jeanette%40fortin-
>>>>> home.com
>>>>>
>>>>>
>>>>> _______________________________________________
>>>>> blindtlk mailing list
>>>>> blindtlk at nfbnet.org
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>>>>> ail.com
>>>>>
>>>>>
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>>>>> _______________________________________________
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>>>>>
>>>>
>>>>
>>>> --
>>>> "FUCK YOU FOR KILLING ME!!!!" SHAUN MORGAN - "NEEDLES"
>>>> "THESE STAND FOR ME, NAME YOUR GOD AND BLEED THE FREAK!
>>>> I'D LIKE TO SEE, HOW YOU ALL WOULD BLEED FOR ME!" -LAYNE STALEY -
>>>> "BLEED THE FREAK"
>>>>
>>>> _______________________________________________
>>>> blindtlk mailing list
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>>>> blindtlk:
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>>>>
>>>
>>>
>>> _______________________________________________
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>>>
>>
>>
>> --
>> "FUCK YOU FOR KILLING ME!!!!" SHAUN MORGAN - "NEEDLES"
>> "THESE STAND FOR ME, NAME YOUR GOD AND BLEED THE FREAK!
>> I'D LIKE TO SEE, HOW YOU ALL WOULD BLEED FOR ME!" -LAYNE STALEY -
>> "BLEED THE FREAK"
>>
>
>
> --
> "FUCK YOU FOR KILLING ME!!!!" SHAUN MORGAN - "NEEDLES"
> "THESE STAND FOR ME, NAME YOUR GOD AND BLEED THE FREAK!
> I'D LIKE TO SEE, HOW YOU ALL WOULD BLEED FOR ME!" -LAYNE STALEY -
> "BLEED THE FREAK"
>
> _______________________________________________
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> blindtlk:
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