[Blindtlk] Having a Problem...

[Judy Jones]

First of all, you don't have to feel ashamed. You should definitely see your doctor and have a sleep study done, then you can go from there.

I will tell you from experience that Vanda isn't the only player out there. My husband's doctor prescribed Rozerem, which is a derivative of the famous over-priced Vanda medication. After just having taken Rozerem for 2 months, he feels his body clock is where it should be now.

Also, don't assume you have non-twenty-four. There are several causes from what I understand for disrupted sleep patterns. Are you getting out for some kind of exercise? Hormone imbalances can also cause this issue as well. I would check all other options before hmpping on the Vanda band-wagon.

----- Original Message -----
From: Kerri Kosten via bltlk  <blindtlk at nfbnet.org>
To:  blindtlk at nfbnet.org,  anjelinac26 at gmail.com,  ed at eioproductions.com
CC: kerrik2006 at gmail.com
Date: Saturday, February 27, 2016 8:17 pm
Subject: [Bltlk] Having a Problem...

>
>
> Hi Everyone:
> First, I am very very ashamed and embarrassed to admit this, so please
> no judgment for this message.
> I am really really struggling with wanting to sleep all day and
> staying awake all night. No matter what I try to do though, I can't
> seem to fight it.
> For example, on Wednesday, I woke up at 10 PM.
> I was wide awake the rest of the night. On Thursday morning at around
> 8 AM, I got up and went to my couch to watch TV.
> At 10, I sat on the floor and listened to one of my favorite radio shows.
> At noon, I again went to my couch and put on the radio.
> At around 2, I began to become exhausted.
> When I try to fight it and stay awake I become increasingly exhausted
> until I get a headache.
> Unable to take it, I usually end up laying back down and falling asleep.
> Here is the thing though. Even if I manage to stay up all day when it
> is time to go to sleep I am still wide wide awake all night and don't
> get tired until like 1 or 2 the next day so have to try to fight the
> whole thing all over again.
> I can't sleep at all at night, but if I try to stay up during the day
> when the world is awake my body fights me with everything it has.
> But when it's night I am wide awake.
> This is happening every day and is making me feel really ashamed and depressed.
> I read the thread on Non 24-7. I am a member of the NFB.
> Like everyone else on this list, I hate those commercials on the
> radio. It makes me very very ashamed that I struggle to get through
> the day like those commercials say.
> I don't want to ruin any blind persons chances of employment because
> an employer hears those messages on the radio and believes them. I
> myself want to fit into the sighted world. My passion is sports, and
> so I've always wanted to do something with sports media. I want to
> show blind people can do things. I don't want to give off the message
> we can't even stay up during the day.
> I also feel ashamed because I can't really get a job or go to school
> or anything if I can't even stay up during the day. Sure I'm awake all
> night, but if I sleep all day I feel so depressed I slept through the
> day, I have no motivation to do anything.
> Even as I type this, I'm really upset. I fell asleep today at 1 PM. I
> am a huge sports fan and my favorite team had a game at 6 PM. I'll
> admit, I forgot to set an alarm for 6 PM to wake myself up. Anyway, I
> ended up waking up at 8:30 PM and missing the entire game. I found out
> my team won, but this is the first time I've ever missed an entire
> game.
> Today is also my Mother's birthday. When I was still awake this
> morning at around 11, I called her but she was out so didn't answer.
> She tried to call me back at 1:25 PM and I totally missed her call
> because I was asleep. I of course got to talk to her when I woke up
> but now I'll feel horrible the rest of the night because I have been
> asleep all day, and I missed the entire game.
> And I'll be wide awake all night and tomorrow I'll get exhausted at
> around 1 PM again.
> And yet, when I determinedly try to fight this, my body battles me
> with everything it has until I give in.
> This is out of control!!
> Does anyone else struggle with this?
> Is there anything that works or do I have to go to the doctors and
> admit these stupid ads Vanda has on the radio are true at least for
> me?
> The world is already so much about sight'''I don't want sleep to be
> about sight too!!
> How do others deal with these sleep issues?
> If I go to the doctors and say I get my nights and days mixed up will
> they automatically assume I have this non 24 thing and immediately
> contact Vanda no matter how much I protest?
> Is there any way to lessen the exhaustion or something enough to stay
> up the entire day so I can force my body to sleep at night?
> I don't know what to d...
> Thanks,
> Kerri
> 
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> m

Judy
Sent From My Braille U2 Mini