[Blindtlk] Having a Problem...

Mon Feb 29 03:39:33 UTC 2016

Too many.

On Sun, 28 Feb 2016, Cindy Ray via blindtlk wrote:

> Date: Sun, 28 Feb 2016 22:29:37
> From: Cindy Ray via blindtlk <blindtlk at nfbnet.org>
> To: 'Blind Talk Mailing List' <blindtlk at nfbnet.org>
> Cc: Cindy Ray <cindyray at gmail.com>
> Subject: Re: [Blindtlk] Having a Problem...
> 
> Well, it is a rarity, but how many drugs do you hear advertised.
> Cindy
>
>
> -----Original Message-----
> From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of Jude
> DaShiell via blindtlk
> Sent: Sunday, February 28, 2016 9:02 PM
> To: Mark Tardif via blindtlk <blindtlk at nfbnet.org>
> Cc: Jude DaShiell <jdashiel at panix.com>
> Subject: Re: [Blindtlk] Having a Problem...
>
> How often have any of you heard  advertising for drugs to handle narcolepsy
> in the media, not to mention at the level this non-24 condition got
> advertised?
>
> On Sun, 28 Feb 2016, Mark Tardif via blindtlk wrote:
>
>> Date: Sun, 28 Feb 2016 21:02:49
>> From: Mark Tardif via blindtlk <blindtlk at nfbnet.org>
>> To: Blind Talk Mailing List <blindtlk at nfbnet.org>
>> Cc: Mark Tardif <markspark at roadrunner.com>
>> Subject: Re: [Blindtlk] Having a Problem...
>>
>> Kerri,
>>
>> It sounds like you are taking on a lot of unnecessary shame and guilt.
>> I used to fall asleep at work, now that's something I felt embarrassed
>> and ashamed about.  But I found out at last that I had a medical
>> issue, not the
>> non-24 necessarily, but another sleepp-related issue.  Browbeating
>> yourself with shame and self-loathing isn't going to help.  Trust me
>> on this one, I've done it too often and it only made things worse.
>> And by the way, I think anyone who is the least bit reasonable, blind
>> or sighted, would acknowledge that some of us probably have this
>> non-24 condition.  If so, it is a medical issue, not a reason for
>> shame.  Just because we don't like those commercials doesn't mean that
>> there isn't some truth for some people regarding this illness.  I have
>> said this before, but I think some times we are all ready to assume
>> that we have to get up and become adverserial because some potential
> employer might assume that because we're blind, we must have this illness.
>> If you or anyone else has this or any other medical issue regarding
>> sleep, the thing to do is to help that person, not shame them.  My
>> strong suggestion is that you make an appointment with your doctor and
>> express your concerns to him/her, don't wallow in shame.  That does
>> really bother me when we are so ashamed of a possible medical
>> condition we might have because the message we are getting is that
>> this means we are weaklings, or whatever other label you want to use.
>> Frankly it infuriates me!  So again, treat yourself right, this is not
>> your fault, get the medical help you may need, if this is a medical issue.
> I hope this helps.
>>
>>
>>
>> Mark Tardif
>> Nuclear arms will not hold you.
>> -----Original Message----- From: Kerri Kosten via blindtlk
>> Sent: Saturday, February 27, 2016 10:17 PM
>> To: Blind Talk Mailing List ; Anjelina Cruz ; Ed McDonald
>> Cc: Kerri Kosten
>> Subject: [Blindtlk] Having a Problem...
>>
>> Hi Everyone:
>> First, I am very very ashamed and embarrassed to admit this, so please
>> no judgment for this message.
>> I am really really struggling with wanting to sleep all day and
>> staying awake all night. No matter what I try to do though, I can't
>> seem to fight it.
>> For example, on Wednesday, I woke up at 10 PM.
>> I was wide awake the rest of the night. On Thursday morning at around
>> 8 AM, I got up and went to my couch to watch TV.
>> At 10, I sat on the floor and listened to one of my favorite radio shows.
>> At noon, I again went to my couch and put on the radio.
>> At around 2, I began to become exhausted.
>> When I try to fight it and stay awake I become increasingly exhausted
>> until I get a headache.
>> Unable to take it, I usually end up laying back down and falling asleep.
>> Here is the thing though. Even if I manage to stay up all day when it
>> is time to go to sleep I am still wide wide awake all night and don't
>> get tired until like 1 or 2 the next day so have to try to fight the
>> whole thing all over again.
>> I can't sleep at all at night, but if I try to stay up during the day
>> when the world is awake my body fights me with everything it has.
>> But when it's night I am wide awake.
>> This is happening every day and is making me feel really ashamed and
>> depressed.
>> I read the thread on Non 24-7. I am a member of the NFB.
>> Like everyone else on this list, I hate those commercials on the
>> radio. It makes me very very ashamed that I struggle to get through
>> the day like those commercials say.
>> I don't want to ruin any blind persons chances of employment because
>> an employer hears those messages on the radio and believes them. I
>> myself want to fit into the sighted world. My passion is sports, and
>> so I've always wanted to do something with sports media. I want to
>> show blind people can do things. I don't want to give off the message
>> we can't even stay up during the day.
>> I also feel ashamed because I can't really get a job or go to school
>> or anything if I can't even stay up during the day. Sure I'm awake all
>> night, but if I sleep all day I feel so depressed I slept through the
>> day, I have no motivation to do anything.
>> Even as I type this, I'm really upset. I fell asleep today at 1 PM. I
>> am a huge sports fan and my favorite team had a game at 6 PM. I'll
>> admit, I forgot to set an alarm for 6 PM to wake myself up. Anyway, I
>> ended up waking up at 8:30 PM and missing the entire game. I found out
>> my team won, but this is the first time I've ever missed an entire
>> game.
>> Today is also my Mother's birthday. When I was still awake this
>> morning at around 11, I called her but she was out so didn't answer.
>> She tried to call me back at 1:25 PM and I totally missed her call
>> because I was asleep. I of course got to talk to her when I woke up
>> but now I'll feel horrible the rest of the night because I have been
>> asleep all day, and I missed the entire game.
>> And I'll be wide awake all night and tomorrow I'll get exhausted at
>> around 1 PM again.
>> And yet, when I determinedly try to fight this, my body battles me
>> with everything it has until I give in.
>> This is out of control!!
>> Does anyone else struggle with this?
>> Is there anything that works or do I have to go to the doctors and
>> admit these stupid ads Vanda has on the radio are true at least for
>> me?
>> The world is already so much about sight...I don't want sleep to be
>> about sight too!!
>> How do others deal with these sleep issues?
>> If I go to the doctors and say I get my nights and days mixed up will
>> they automatically assume I have this non 24 thing and immediately
>> contact Vanda no matter how much I protest?
>> Is there any way to lessen the exhaustion or something enough to stay
>> up the entire day so I can force my body to sleep at night?
>> I don't know what to do...
>> Thanks,
>> Kerri
>>
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>>
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>
>

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