[Blindtlk] non 24

[Arielle Silverman]

But most people who are blind are not totals and I don't think there's
any evidence that partially blind people have a higher rate of non-24
than the general public. I have light perception and can see the sun
shining if I am outside, but I can't usually tell from inside my house
if it's dark or light. But I've never had any problems with my
circadian rhythms and I actually have the opposite problem (trouble
staying up much past my bedtime or going to bed/getting up much before
the time I'm accustomed to doing so). I'm not sure if that has
anything to do with my minuscule bit of light perception or if just
based on genetics or environmental cues in my early childhood, my body
figured it out.
I think those totally blind people with genuine non-24 deserve good
treatment. But I also worry that if people overestimate how common
this rare condition is, blind people (especially kids) who have sleep
issues could get erroneously diagnosed with non-24 just because
they're blind, when in fact they have a much more common condition
like sleep apnea that deserves proper diagnosis and treatment.
Arielle

On 1/4/16, Bryan Schulz via blindtlk <blindtlk at nfbnet.org> wrote:
> Hi,
>
> Thanks, that sounds much better than what is coming across the radio.
> Bryan
>
>
> -----Original Message-----
> From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of Mark
> Tardif
> via blindtlk
> Sent: Monday, January 04, 2016 6:13 PM
> To: Blind Talk Mailing List
> Cc: Mark Tardif
> Subject: Re: [Blindtlk] non 24
>
> I don't think that's really the message, at least from the television
> commercials I have heard.  Obviously, blind people know intellectually when
>
> to go to work and when to go to sleep.  I think we need to be careful about
>
> assuming that we are seen as idiots or lazy or anything like that when we
> hear those kinds of commercials.  I think what they are talking about here
> is some sort of medical evidence that light such as sunlight does something
>
> to chemicals in the body that helps people to stay awake during the day and
>
> that because a totally blind person does not have access to this light
> through the eyes, certain chemical things in the body might not be
> regulated
>
> in a way that allows us to have a normal circadian rhythm.  In other words,
>
> the circadian rhythm can be thrown off because of our not receiving light
> through the eyes.  Anyone with a medical background in this area can please
>
> feel free to correct me and perhaps make it more understandable than I just
>
> did.  It sounds to me like something similar to people who experience
> seasonal affective disorder during the darker winter months.
>
>
>
> Mark Tardif
> Nuclear arms will not hold you.
> -----Original Message-----
> From: Bryan Schulz via blindtlk
> Sent: Monday, January 04, 2016 6:01 PM
> To: 'Blind Talk Mailing List'
> Cc: Bryan Schulz
> Subject: [Blindtlk] non 24
>
> Hi,
>
> I've been hearing commercials about the non 24 drug on the radio and don't
> appreciate how it makes blind people sound.
> I'm wondering if there are really blind people that don't know when it is
> time to sleep or go to work?
> The commercials imo make blind people sound like idiots and it's hard
> enough
> to be employed already.
> Bryan
>
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