[Blindtlk] non 24

[Judy Jones]

I do believe it exists, but there are other triggers that can affect the 
body clock's timing, not just blindness.

Judy


-----Original Message----- 
From: Jason Polansky via blindtlk
Sent: Monday, January 4, 2016 4:54 PM
To: Blind Talk Mailing List
Cc: Jason Polansky
Subject: Re: [Blindtlk] non 24

I am totally blind and have anophthalmia, and I do think non-24 does exist 
and am one of the small percentage of blind people who have it. However, 
melatonin works fine for me, so the Vanda Pharmaseuticals drug is not needed 
for my personal situation. I agree with the previous posters about the 
commercial. The product should be marketed toard blind people who have eye 
conditions in which non-24 is more prevalent. The commercial almost makes it 
sound like all blind people have it, causing more misconceptions.

Sent from my iPhone

> On Jan 4, 2016, at 6:23 PM, Ray Foret Jr via blindtlk 
> <blindtlk at nfbnet.org> wrote:
>
> Bryan, a few points for your sober and careful consideration.
>
>
> 1.  This condition called "Non 24" really does exist.  When I first heard 
> of it, I just thought it was a bunch of ACB generated crap.  However, 
> actual personal experience and that of many blind people for whom I have 
> much respect has shown me differently.
> 2.  It isn't a matter of a blind person not knowing when to go to bed. 
> That assumption is total crap.  You can't make the assumption that 
> everything and everyone out there is against us so we always have to 
> assume the worst.
> 3.  The reality is this.  Non 24 does exist.  There is a drug to combat 
> it:  but, I myself will have nothing to do with it.  This is largely 
> because most of my life right now has no set skedual.  Were this 
> otherwise, I might look in to it.
> 4.  In fairness to your point, I do take some issue with the tone of the 
> commercials.  I thinkk they could present blind people in a more positive 
> light while pointing out the serousness of the condition.  My suspition is 
> that this is where your complain really lies.  But Bryan,. always assuming 
> the worst is not an outlook I find very helpful to us either.
>
>
>
>
> !
>
> Sent from my Mac, The Only computer with full accessibility for the blind 
> built-in
>
> Sincerely, The Constantly Barefooted Ray,
>
> Still a very happy Comcast XFinity Voice Guidance, Mac, Verizon Wireless 
> iPhone6+ and Apple TV user!
>
>> On Jan 4, 2016, at 5:01 PM, Bryan Schulz via blindtlk 
>> <blindtlk at nfbnet.org> wrote:
>>
>> Hi,
>>
>> I've been hearing commercials about the non 24 drug on the radio and 
>> don't
>> appreciate how it makes blind people sound.
>> I'm wondering if there are really blind people that don't know when it is
>> time to sleep or go to work?
>> The commercials imo make blind people sound like idiots and it's hard 
>> enough
>> to be employed already.
>> Bryan
>>
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