[Blindtlk] non 24

[Judy Jones]

Right, and my husband is always investigating new masks.  Over the years, 
the machines have gotten smaller and unbelievably quiet.  He has one with a 
humidifier that he can adjust, and really likes that.

Judy


-----Original Message----- 
From: Ericka via blindtlk
Sent: Tuesday, January 5, 2016 7:16 PM
To: Blind Talk Mailing List
Cc: Ericka
Subject: Re: [Blindtlk] non 24

He hasn't brought it up to the doctor yet. He plans to do it end of this 
month. I am quite aware of how a sleep study and the mask work though Judy. 
My ex husband had very bad sleep apnea and the mask has saved his life. It 
takes a while to get used to but over time it really helps. Thankfully there 
are many mask options than there used to be and the machines are some much 
smaller. They are so portable you can fly on an airplane with them. Unlike a 
lot of things these days, every insurance company covers it.

Ericka Short
"Friends are like flowers in the garden of life"

Sent from my iPhone

> On Jan 5, 2016, at 8:10 PM, Judy Jones via blindtlk <blindtlk at nfbnet.org> 
> wrote:
>
> I think there are probably other triggers that imbalance the body clock. 
> How long has it been since a sleep study has been done for your friend? 
> He may need to change masks, have the settings adjusted on his machine, 
> maybe an updated sleep study?
>
> My husband has sleep apnea, so have seen what he does.
>
> Judy
>
>
> -----Original Message----- From: Ericka via blindtlk
> Sent: Tuesday, January 5, 2016 10:03 AM
> To: Blind Talk Mailing List
> Cc: Ericka
> Subject: Re: [Blindtlk] non 24
>
> I agree cindy that everything has to be looked at, not just assuming 
> everyone has non-24. I hear commercials these days about a drug to help 
> people that work weird shifts. It seems like we're all being put into the 
> same category. Everyone in the world has to have a problem add somebody 
> has a solution to a true or a made up problem. One thing I was wondering, 
> is that you do studies think non-24 is only in people born blind or can 
> you develop it later if complete vision loss happens later in life? For 
> example people with glaucoma or RP. My boyfriend probably has sleep apnea, 
> but in the last two years he's lost his light perception and is now having 
> more problems with sleep. Just curious.
>
> Ericka Short
> "Friends are like flowers in the garden of life"
>
> Sent from my iPhone
>
>> On Jan 4, 2016, at 10:16 PM, Cindy Ray via blindtlk <blindtlk at nfbnet.org> 
>> wrote:
>>
>> Well, first off, I think they are really making the point that people 
>> have a
>> problem with sleeping during the day, which is to say the do when it 
>> isn't
>> appropriate, and they have trouble sleeping at night as in they can't.
>> People (a person) I know who takes the drug is just thrilled because for 
>> the
>> first time in her life she is sleeping better. There are other sleep
>> disorders that cause this same problem, but we will be asked about it if 
>> we
>> come into a sleep center with complaints. My husband tried to get the 
>> drug,
>> they degtermined that probably he didn't need it; on the other hand, they
>> wondered if I might have it. I suggested that probably I would have most
>> always had sleep problems if I had that, and I thought that part of my 
>> issue
>> is hormonal. Lots of people do have these same kinds of problems, but the
>> ads say that 70% of totally blind folk have it. I don't see how they 
>> could
>> know this. I think that when something like this is new, people are going 
>> to
>> make assumptions; we just have to be patient about it. I don't think the
>> commercials make us look like idiots. I think they make us look like we 
>> need
>> some kind of help, and people with these problems do whatever the problem
>> really is.
>> Cindy
>>
>>
>> -----Original Message-----
>> From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of Bryan
>> Schulz via blindtlk
>> Sent: Monday, January 4, 2016 5:01 PM
>> To: 'Blind Talk Mailing List' <blindtlk at nfbnet.org>
>> Cc: Bryan Schulz <b.schulz at sbcglobal.net>
>> Subject: [Blindtlk] non 24
>>
>> Hi,
>>
>> I've been hearing commercials about the non 24 drug on the radio and 
>> don't
>> appreciate how it makes blind people sound.
>> I'm wondering if there are really blind people that don't know when it is
>> time to sleep or go to work?
>> The commercials imo make blind people sound like idiots and it's hard 
>> enough
>> to be employed already.
>> Bryan
>>
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>>
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