[Blindtlk] non 24

Wed Jan 6 06:33:00 UTC 2016

Evening, Peter,

As I understand it and as my own experiencce indicates, non-24 is a 
very real condition, totally different than simple apnea. I  With 
non-24, as I understand it, the cercadian rhythm is a main player, 
and with apnea, I think breathing gets interupted?
Anyway, weverybody be careful of mis-information equating the two, 
perhaps read about both conditions?
Car Non 24 is  in At 06:08 PM 1/4/2016, Peter Donahue via blindtlk wrote:
>Good evening Mark and everyone,
>
>That's two of us. I know a number of our friends who have been diagnosed
>with Sleep Apnea or are awaiting a sleep study to screen for it. This Non-24
>stuff worries me because some blind people may be told they have Non-24
>Disorder when in fact they have Sleep Apnea, a condition that can kill if
>not properly diagnosed and treated.
>
>Peter Donahue
>
>
>
>-----Original Message-----
>From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of Mark Tardif
>via blindtlk
>Sent: Monday, January 04, 2016 7:20 PM
>To: Blind Talk Mailing List
>Cc: Mark Tardif
>Subject: Re: [Blindtlk] non 24
>
>I think that's probably true.  And I have light perception in the left eye,
>and more than once I was reprimanded in work situations about falling asleep
>in boring staff meetings, LOL.  I hate to admit it because I felt like a
>sherker.  I sometimes thought the people lecturing me were taking personal
>offense because they were the ones presenting the meeting material.  I
>finally found out that I do in fact have sleep apnea and the cpap machine
>has made a world of difference for me.  Also my tendency to drink huge
>amounts of strong coffee during the day hasn't hurt either.
>
>
>
>Mark Tardif
>Nuclear arms will not hold you.
>-----Original Message-----
>From: Judy Jones via blindtlk
>Sent: Monday, January 04, 2016 8:14 PM
>To: Blind Talk Mailing List
>Cc: Judy Jones
>Subject: Re: [Blindtlk] non 24
>
>I do believe it exists, but there are other triggers that can affect the
>body clock's timing, not just blindness.
>
>Judy
>
>
>-----Original Message-----
>From: Jason Polansky via blindtlk
>Sent: Monday, January 4, 2016 4:54 PM
>To: Blind Talk Mailing List
>Cc: Jason Polansky
>Subject: Re: [Blindtlk] non 24
>
>I am totally blind and have anophthalmia, and I do think non-24 does exist
>and am one of the small percentage of blind people who have it. However,
>melatonin works fine for me, so the Vanda Pharmaseuticals drug is not needed
>for my personal situation. I agree with the previous posters about the
>commercial. The product should be marketed toard blind people who have eye
>conditions in which non-24 is more prevalent. The commercial almost makes it
>sound like all blind people have it, causing more misconceptions.
>
>Sent from my iPhone
>
> > On Jan 4, 2016, at 6:23 PM, Ray Foret Jr via blindtlk
> > <blindtlk at nfbnet.org> wrote:
> >
> > Bryan, a few points for your sober and careful consideration.
> >
> >
> > 1.  This condition called "Non 24" really does exist.  When I first
> > heard of it, I just thought it was a bunch of ACB generated crap.
> > However, actual personal experience and that of many blind people for
> > whom I have much respect has shown me differently.
> > 2.  It isn't a matter of a blind person not knowing when to go to bed.
> > That assumption is total crap.  You can't make the assumption that
> > everything and everyone out there is against us so we always have to
> > assume the worst.
> > 3.  The reality is this.  Non 24 does exist.  There is a drug to
> > combat
> > it:  but, I myself will have nothing to do with it.  This is largely
> > because most of my life right now has no set skedual.  Were this
> > otherwise, I might look in to it.
> > 4.  In fairness to your point, I do take some issue with the tone of
> > the commercials.  I thinkk they could present blind people in a more
> > positive light while pointing out the serousness of the condition.  My
> > suspition is that this is where your complain really lies.  But
> > Bryan,. always assuming the worst is not an outlook I find very helpful to
>us either.
> >
> >
> >
> >
> > !
> >
> > Sent from my Mac, The Only computer with full accessibility for the
> > blind built-in
> >
> > Sincerely, The Constantly Barefooted Ray,
> >
> > Still a very happy Comcast XFinity Voice Guidance, Mac, Verizon
> > Wireless
> > iPhone6+ and Apple TV user!
> >
> >> On Jan 4, 2016, at 5:01 PM, Bryan Schulz via blindtlk
> >> <blindtlk at nfbnet.org> wrote:
> >>
> >> Hi,
> >>
> >> I've been hearing commercials about the non 24 drug on the radio and
> >> don't appreciate how it makes blind people sound.
> >> I'm wondering if there are really blind people that don't know when
> >> it is time to sleep or go to work?
> >> The commercials imo make blind people sound like idiots and it's hard
> >> enough to be employed already.
> >> Bryan
> >>
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