[Blindtlk] non 24

Wed Jan 6 15:33:40 UTC 2016

We have the company at the New York State convention back in October, they
do a fine study prior to putting anyone on the meds, and not just say here
take the meds. Gary Wunder was our National Rep this year.

I am going through some testing as we speak, since I have some sleep apnea,
and he also mentioned this is not only for blind people to use but anyone
that might have been misdiagnosed with Sleep Apnea.

Cheryl Echevarria, President
National Federation of the Blind's Travel and Tourism Division
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-----Original Message-----
From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of Peter
Donahue via blindtlk
Sent: Monday, January 4, 2016 9:09 PM
To: 'Blind Talk Mailing List' <blindtlk at nfbnet.org>
Cc: Peter Donahue <pdonahue2 at satx.rr.com>
Subject: Re: [Blindtlk] non 24

Good evening Mark and everyone,

That's two of us. I know a number of our friends who have been diagnosed
with Sleep Apnea or are awaiting a sleep study to screen for it. This Non-24
stuff worries me because some blind people may be told they have Non-24
Disorder when in fact they have Sleep Apnea, a condition that can kill if
not properly diagnosed and treated.

Peter Donahue

-----Original Message-----
From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of Mark Tardif
via blindtlk
Sent: Monday, January 04, 2016 7:20 PM
To: Blind Talk Mailing List
Cc: Mark Tardif
Subject: Re: [Blindtlk] non 24

I think that's probably true.  And I have light perception in the left eye,
and more than once I was reprimanded in work situations about falling asleep
in boring staff meetings, LOL.  I hate to admit it because I felt like a
sherker.  I sometimes thought the people lecturing me were taking personal
offense because they were the ones presenting the meeting material.  I
finally found out that I do in fact have sleep apnea and the cpap machine
has made a world of difference for me.  Also my tendency to drink huge
amounts of strong coffee during the day hasn't hurt either.

Mark Tardif
Nuclear arms will not hold you.
-----Original Message-----
From: Judy Jones via blindtlk
Sent: Monday, January 04, 2016 8:14 PM
To: Blind Talk Mailing List
Cc: Judy Jones
Subject: Re: [Blindtlk] non 24

I do believe it exists, but there are other triggers that can affect the
body clock's timing, not just blindness.

Judy

-----Original Message-----
From: Jason Polansky via blindtlk
Sent: Monday, January 4, 2016 4:54 PM
To: Blind Talk Mailing List
Cc: Jason Polansky
Subject: Re: [Blindtlk] non 24

I am totally blind and have anophthalmia, and I do think non-24 does exist
and am one of the small percentage of blind people who have it. However,
melatonin works fine for me, so the Vanda Pharmaseuticals drug is not needed
for my personal situation. I agree with the previous posters about the
commercial. The product should be marketed toard blind people who have eye
conditions in which non-24 is more prevalent. The commercial almost makes it
sound like all blind people have it, causing more misconceptions.

Sent from my iPhone

> On Jan 4, 2016, at 6:23 PM, Ray Foret Jr via blindtlk 
> <blindtlk at nfbnet.org> wrote:
>
> Bryan, a few points for your sober and careful consideration.
>
>
> 1.  This condition called "Non 24" really does exist.  When I first 
> heard of it, I just thought it was a bunch of ACB generated crap.
> However, actual personal experience and that of many blind people for 
> whom I have much respect has shown me differently.
> 2.  It isn't a matter of a blind person not knowing when to go to bed. 
> That assumption is total crap.  You can't make the assumption that 
> everything and everyone out there is against us so we always have to 
> assume the worst.
> 3.  The reality is this.  Non 24 does exist.  There is a drug to 
> combat
> it:  but, I myself will have nothing to do with it.  This is largely 
> because most of my life right now has no set skedual.  Were this 
> otherwise, I might look in to it.
> 4.  In fairness to your point, I do take some issue with the tone of 
> the commercials.  I thinkk they could present blind people in a more 
> positive light while pointing out the serousness of the condition.  My 
> suspition is that this is where your complain really lies.  But 
> Bryan,. always assuming the worst is not an outlook I find very 
> helpful to
us either.
>
>
>
>
> !
>
> Sent from my Mac, The Only computer with full accessibility for the 
> blind built-in
>
> Sincerely, The Constantly Barefooted Ray,
>
> Still a very happy Comcast XFinity Voice Guidance, Mac, Verizon 
> Wireless
> iPhone6+ and Apple TV user!
>
>> On Jan 4, 2016, at 5:01 PM, Bryan Schulz via blindtlk 
>> <blindtlk at nfbnet.org> wrote:
>>
>> Hi,
>>
>> I've been hearing commercials about the non 24 drug on the radio and 
>> don't appreciate how it makes blind people sound.
>> I'm wondering if there are really blind people that don't know when 
>> it is time to sleep or go to work?
>> The commercials imo make blind people sound like idiots and it's hard 
>> enough to be employed already.
>> Bryan
>>
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