[Blindtlk] non 24

Carly Mihalakis carlymih at comcast.net
Wed Jan 6 06:35:11 UTC 2016


Very true, Judy, it's not only a lack of light perception, but can 
you explain how this condition seens  to turn up in blind people?
Car At 05:14 PM 1/4/2016, you wrote:
>I do believe it exists, but there are other triggers that can affect 
>the body clock's timing, not just blindness.
>
>Judy
>
>
>-----Original Message----- From: Jason Polansky via blindtlk
>Sent: Monday, January 4, 2016 4:54 PM
>To: Blind Talk Mailing List
>Cc: Jason Polansky
>Subject: Re: [Blindtlk] non 24
>
>I am totally blind and have anophthalmia, and I do think non-24 does 
>exist and am one of the small percentage of blind people who have 
>it. However, melatonin works fine for me, so the Vanda 
>Pharmaseuticals drug is not needed for my personal situation. I 
>agree with the previous posters about the commercial. The product 
>should be marketed toard blind people who have eye conditions in 
>which non-24 is more prevalent. The commercial almost makes it sound 
>like all blind people have it, causing more misconceptions.
>
>Sent from my iPhone
>
>>On Jan 4, 2016, at 6:23 PM, Ray Foret Jr via blindtlk 
>><blindtlk at nfbnet.org> wrote:
>>
>>Bryan, a few points for your sober and careful consideration.
>>
>>
>>1.  This condition called "Non 24" really does exist.  When I first 
>>heard of it, I just thought it was a bunch of ACB generated 
>>crap.  However, actual personal experience and that of many blind 
>>people for whom I have much respect has shown me differently.
>>2.  It isn't a matter of a blind person not knowing when to go to 
>>bed. That assumption is total crap.  You can't make the assumption 
>>that everything and everyone out there is against us so we always 
>>have to assume the worst.
>>3.  The reality is this.  Non 24 does exist.  There is a drug to 
>>combat it:  but, I myself will have nothing to do with it.  This is 
>>largely because most of my life right now has no set skedual.  Were 
>>this otherwise, I might look in to it.
>>4.  In fairness to your point, I do take some issue with the tone 
>>of the commercials.  I thinkk they could present blind people in a 
>>more positive light while pointing out the serousness of the 
>>condition.  My suspition is that this is where your complain really 
>>lies.  But Bryan,. always assuming the worst is not an outlook I 
>>find very helpful to us either.
>>
>>
>>
>>
>>!
>>
>>Sent from my Mac, The Only computer with full accessibility for the 
>>blind built-in
>>
>>Sincerely, The Constantly Barefooted Ray,
>>
>>Still a very happy Comcast XFinity Voice Guidance, Mac, Verizon 
>>Wireless iPhone6+ and Apple TV user!
>>
>>>On Jan 4, 2016, at 5:01 PM, Bryan Schulz via blindtlk 
>>><blindtlk at nfbnet.org> wrote:
>>>
>>>Hi,
>>>
>>>I've been hearing commercials about the non 24 drug on the radio and don't
>>>appreciate how it makes blind people sound.
>>>I'm wondering if there are really blind people that don't know when it is
>>>time to sleep or go to work?
>>>The commercials imo make blind people sound like idiots and it's hard enough
>>>to be employed already.
>>>Bryan
>>>
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>>
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>
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