[Blindtlk] non 24

Carly Mihalakis carlymih at comcast.net
Wed Jan 6 07:26:18 UTC 2016


Melitonin works for me, too.At 03:54 PM 1/4/2016, you wrote:
>I am totally blind and have anophthalmia, and I do think non-24 does 
>exist and am one of the small percentage of blind people who have 
>it. However, melatonin works fine for me, so the Vanda 
>Pharmaseuticals drug is not needed for my personal situation. I 
>agree with the previous posters about the commercial. The product 
>should be marketed toard blind people who have eye conditions in 
>which non-24 is more prevalent. The commercial almost makes it sound 
>like all blind people have it, causing more misconceptions.
>
>Sent from my iPhone
>
> > On Jan 4, 2016, at 6:23 PM, Ray Foret Jr via blindtlk 
> <blindtlk at nfbnet.org> wrote:
> >
> > Bryan, a few points for your sober and careful consideration.
> >
> >
> > 1.  This condition called "Non 24" really does exist.  When I 
> first heard of it, I just thought it was a bunch of ACB generated 
> crap.  However, actual personal experience and that of many blind 
> people for whom I have much respect has shown me differently.
> > 2.  It isn't a matter of a blind person not knowing when to go to 
> bed.  That assumption is total crap.  You can't make the assumption 
> that everything and everyone out there is against us so we always 
> have to assume the worst.
> > 3.  The reality is this.  Non 24 does exist.  There is a drug to 
> combat it:  but, I myself will have nothing to do with it.  This is 
> largely because most of my life right now has no set skedual.  Were 
> this otherwise, I might look in to it.
> > 4.  In fairness to your point, I do take some issue with the tone 
> of the commercials.  I thinkk they could present blind people in a 
> more positive light while pointing out the serousness of the 
> condition.  My suspition is that this is where your complain really 
> lies.  But Bryan,. always assuming the worst is not an outlook I 
> find very helpful to us either.
> >
> >
> >
> >
> > !
> >
> > Sent from my Mac, The Only computer with full accessibility for 
> the blind built-in
> >
> > Sincerely, The Constantly Barefooted Ray,
> >
> > Still a very happy Comcast XFinity Voice Guidance, Mac, Verizon 
> Wireless iPhone6+ and Apple TV user!
> >
> >> On Jan 4, 2016, at 5:01 PM, Bryan Schulz via blindtlk 
> <blindtlk at nfbnet.org> wrote:
> >>
> >> Hi,
> >>
> >> I've been hearing commercials about the non 24 drug on the radio and don't
> >> appreciate how it makes blind people sound.
> >> I'm wondering if there are really blind people that don't know when it is
> >> time to sleep or go to work?
> >> The commercials imo make blind people sound like idiots and it's 
> hard enough
> >> to be employed already.
> >> Bryan
> >>
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> >
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