[Blindtlk] Is it my duty? was Non 24, Sleep Problems, and how our blindness weighs in
justin williams
justin.williams2 at gmail.com
Tue Jan 12 22:32:26 UTC 2016
He sure did; when I saw that, I was in shock. A doctor is not supposed to
tell anyone about their client unless the person has signed for their info
to be released.
Justin
-----Original Message-----
From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of Ericka via
blindtlk
Sent: Tuesday, January 12, 2016 2:51 PM
To: Blind Talk Mailing List <blindtlk at nfbnet.org>
Cc: Ericka <dotwriter1 at gmail.com>
Subject: Re: [Blindtlk] Is it my duty? was Non 24, Sleep Problems, and how
our blindness weighs in
I think the doctor actually broke the confidentiality laws by telling her
that she needs to take care of him and make him do something. Any good
doctor would talk to the patient and find out why they're not making the
choice to do so. The doctor couldn't solve the transportation or touchscreen
problem but he should know the truth from the patient not assuming. I'm
guessing there's more reasons why the girlfriend was dropped than this.
Ericka Short
"Friends are like flowers in the garden of life"
Sent from my iPhone
> On Jan 11, 2016, at 9:33 PM, Cindy Ray via blindtlk <blindtlk at nfbnet.org>
wrote:
>
> Blind or sighted, it is not anybody's "wifely duty" to make a guy
exercise.
> If you would want to, fine. Otherwise, none of the doc's business. If
> the doctor had something to say about it, it would necessarily be to
> the person who wasn't exercising. People have told me I needed to make
> my husband eat less, exercise, whatever. I said he is an adult.
>
>
> -----Original Message-----
> From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of Mark
> Tardif via blindtlk
> Sent: Monday, January 11, 2016 8:03 PM
> To: S L Johnson <SLJohnson25 at comcast.net>; Blind Talk Mailing List
> <blindtlk at nfbnet.org>
> Cc: Mark Tardif <markspark at roadrunner.com>
> Subject: Re: [Blindtlk] Non 24, Sleep Problems, and how our blindness
> weighs in
>
> Pardon me, but it sounds like your complex really sucks when
> considering the needs of tenants. I am lucky enough to have bought a
> treadmill which I keep in my apartment, and the person who sold it to
> me worked with me and developed tactile cues on the numbers and other
buttons I would likely use.
> By the way, Sandra and the rest of us, this leads to another problem
> with uneducated so-called medical professionals who incidentally don't
> appear to live in the real world that we inhabit. My former
> girlfriend and I were living together and had the same so-called
> doctor and I found out from my friend that the doctor had told her I
> was "recalcitrient" about exercise and that my girlfriend should "do
> her wifely duty" in getting me to exercise more. This, without
> knowing that I worked fulltime and that getting to a gymn regularly
> was difficult because transportation in our town really sucked, and
> that once I got there I would likely have to wrestle with touch screen
> equipment. This was kind of the last straw with her and I quickly
> found a real doctor, but I really was tempted to go after this
> witch-bitch for what I perceived as ethical violations. But it seemed
easier to just find another doctor.
>
>
>
> Mark Tardif
> Nuclear arms will not hold you.
> -----Original Message-----
> From: S L Johnson via blindtlk
> Sent: Monday, January 11, 2016 8:29 PM
> To: Blind Talk Mailing List
> Cc: S L Johnson
> Subject: Re: [Blindtlk] Non 24, Sleep Problems,and how our blindness
> weighs in
>
> Bob,
>
> I suppose a good exercise program could help regulate sleep. You were
> very lucky to have been exposed to physical activity. I know I was
> not given the chance once I lost all my vision. I fought at least I
> could do gymnastics and other things that could be done without sight
> but, my public school refused. After high school, I was not given
> access to the gym at my college. As many other blind adults, I cannot
afford a gym membership.
> Even if we do go to a gym, most of the equipment have touch screens
> and are not accessible to the blind. I live in a senior citizen
> housing development. We have an exercise room in the clubhouse.
> Although when I rented my house, I paid for the key card to allow me
> to enter, I have not been able to operate any of the equipment. The
> instructions are in a big large print notebook for the low vision
> seniors and the equipment is all touch screens. I've tried to talk to
> management and the owners but they say they do not have any way to
> give any access to anyone with no vision. Oh, by the way, all the
> house numbers and signs are in huge print and that is supposed to meet
> accessibility requirements. What about someone like me who is totally
> blind? There are not any tactile landmarks even allowing me to know
> where I am in a maze of twisting winding sidewalks with no regular
> corners or street crossings. They even refused to obtain a talking
> sign so I could find the crosswalk leading to the clubhouse. So, now
> people can stop wondering why so many blind people don't get enough
> exercise. Now to bring this back to sleep disorders, I know that a good
exercise program might help better regulate sleep but, it just isn't
possible for most of us.
> Sandra
>
>
> -----Original Message-----
> From: Bob Hachey via blindtlk
> Sent: Monday, January 11, 2016 8:00 PM
> To: 'Blind Talk Mailing List'
> Cc: Bob Hachey
> Subject: Re: [Blindtlk] Non 24, Sleep Problems,and how our blindness
> weighs in
>
> Hello Chaim,
> I hear you loud and clear about how badly the medical profession is in
> need of educating when it come to dealing with us blind folks.
> That is a shame about no gym class for something like two years of
> school. I was very fortunate living in Reading Massachusetts. Our
> public school gym teachers were very good about including me in gym
> classes. When the class did things like Soccer, I lifted weights and
> ran the ttrakc with a student volunteer. IN flag football, I played
> center, though it was hard to get the hang of blocking an opponent.
> They put sounders on the basketball hoops and I tried using a beep
> basketball but I had trouble trying to get the hang of both sounds at once
and tracking the ball.
> I did calesthenics, gymnastics and wrestiling along with the group.
> WE must be ever vigilant so as to ensure that all of our brothers and
> sisters get proper physical education.
> Bob Hachey
>
>
> -----Original Message-----
> From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of Chaim B.
> Segal via blindtlk
> Sent: Monday, January 11, 2016 6:54 PM
> To: blindtlk at nfbnet.org
> Cc: Chaim B. Segal
> Subject: [Blindtlk] Non 24, Sleep Problems, and how our blindness
> weighs in
>
> Hi Folks:
>
> I have not posted on this list in a great number of months, as work
> duties circumvented my opportunity to read as many messages from
> listserves as before. I decided to start receiving mail from these
> nfbnet.org lists again, because I think there is pertinent information
> out there I should be aware of. Even if I end up running behind on
digests, better to be informed.
>
> When I think of the Non 24 issue, something entirely different comes
> to mind. As was stated on this list a few days ago, many sighted
> people also have sleep-related difficulties, which have nothing to do
> with blindness. My own father, bless his memory, lost a job in his
> later days because he kept falling asleep. Falling asleep on the job
> was the last straw which caused my release from my previous job, but
> that was largely caused by stress on account of a new order of
rules-entirely different subject.
>
> A good number of years ago, my older blind brother was diagnosed with
> sleep apnea. To make a long story short, his doctor-ordered sleep
> study led to his being prescribed a C-pap. Parenthetically, he was
> extremely overweight, which may have been part of the cause of the sleep
apnea.
>
> I have been married, thank-God for six years and counting. Early on, I
> discovered that my wife had an extremely serious problem with
> narcolepsy. I don't want to make myself a laughing stock, but I'll say
> that she and I are not exactly thin. I will spare unnecessary detail.
> I discovered on my own that she had serious trouble breathing
> throughout the night, and was often awaken by her gasping for air in
> her sleep. Recalling these symptoms from my older brother, I took it
> upon myself to engineer her getting a referral for a sleep study.
> Turned out, she also had sleep apnea. Like my brother, she uses a
> C-pap, and has much more energy during the day. The sleep doctor (who
> just retired) nearly insisted that she try Non 24. She and I were
> adamant that this was not a matter of interest. Like a number of
> unfortunate sighted folks out there, the guy was under the impression
> that blind people cannot really move comfortably beyond their own
> space. He was, in fact, surprised to find out how many blind couples
> exist. I am glad we had the opportunity to set him straight. It
> bothers me that there is not a mandatory course in disability
> awareness for doctors and nurses in medical and nursing school. I
> think that anybody entering the medical field who may, at any point in
their career, treat a disabled person be notified concerning appropriate
personal etiquette in dealing with us.
>
> I know that some of us bld do exercise and try to watch what we eat.
> Sadly, a number of blind people don't. There are a number of reasons
> for this, including in some cases fear among gym staff that we will
> get hurt on their equipment, or their insurance does not allow it. My
> oldest (sighted) brother pointed out that with a number of us not
> being able to see our own body profile in the mirror, we don't realize
> how unhealthy we look in comparison to other people around us. While
> he may have a valid point, my argument to him is that from what I have
> heard, the majority of the US population is indeed overweight. Be that
> as it may, you don't have to be overweight to have sleep apnea. Maybe,
> a number of blind and sighted people alike have sleep apnea, but are
> not being treated for it. Maybe a number of blind and sighted people
> are not getting adequate exercise throughout the day and are not eating
right. Maybe, there are many factors involved.
>
> I think that before doctors prescribe this "antidote", they ought to
> take a person's daily factors into account. I also think that gyms,
> spas, and the like, should be encouraged to run specials which
> encourage blind and disabled folks to come and work out. I'll take it
> a step further. For those blind people who attend regular mainstream
> school classes, there should be a law which demands that any physical
> fitness instructor in a public institution be given the means to
> include a blind or disabled student along with the rest of the class.
>
> On this note, I'll add one more comment. From mid way through my
> seventh grade year through my freshman year, I received no gym
> instruction in my local public school. Indeed, one reason I decided to
> attend the Ohio State School For The Blind for high school was that I
> was told physical instruction was taught there. During my sophomore
> year there, they did some repairs on their gymnasium and there was a
> big ribbon-cutting ceremony. We had been swimming in their pool in
> place of gym instruction. What happened after the big fanfare? Some
> well-meaning folks decided that we had to have a similar experience as
> sighted folks. So, they decided to teach us how to hit a tennis ball
> with a tennis racket. It flopped! As soon as we were shown how to do
> it and commanded to do so, the teacher(s) had to go show another blind
> person the same thing. So, A would shove the ball out of his hand with
> the racket, and have nothing to do until it could be retrieved. I felt
> it was a complete waste. And, as Mr. Robert Mills, one of the best
> o&m instructors in the country said, "This is a blind school! You
> students are blind! They have a g d big beautiful gym! They should use it
for what it is supposed to be used for!"
>
> Anyway, I'll be back tomorrow or next day on an entirely different
subject.
>
> Chaim
>
> Chaim B. Segal
> Contact Marketing Representative
> Sinclair Community College
> Dayton, Ohio
>
> Every Man, woman, every boy and girl,
> Let your love light shine, make a better world.
>
> Daryl Hall And John Oates
>
> Sent from my Braille Sense U2 Mini
>
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