[Blindtlk] Is it my duty? was Non 24, Sleep Problems, and how our blindness weighs in

Tue Jan 12 22:39:42 UTC 2016

Yes. It was a nice combo of ableism and sexism, with a side of
confidentiality breach.
Arielle

On 1/12/16, justin williams via blindtlk <blindtlk at nfbnet.org> wrote:
> He sure did; when I saw that, I was in shock.  A doctor is not supposed to
> tell anyone about their client unless the person has signed for their info
> to be released.
>  Justin
>
> -----Original Message-----
> From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of Ericka via
> blindtlk
> Sent: Tuesday, January 12, 2016 2:51 PM
> To: Blind Talk Mailing List <blindtlk at nfbnet.org>
> Cc: Ericka <dotwriter1 at gmail.com>
> Subject: Re: [Blindtlk] Is it my duty? was Non 24, Sleep Problems, and how
> our blindness weighs in
>
> I think the doctor actually broke the confidentiality laws by telling her
> that she needs to take care of him and make him do something. Any good
> doctor would talk to the patient and find out why they're not making the
> choice to do so. The doctor couldn't solve the transportation or
> touchscreen
> problem but he should know the truth from the patient not assuming. I'm
> guessing there's more reasons why the girlfriend was dropped than this.
>
> Ericka Short
> "Friends are like flowers in the garden of life"
>
> Sent from my iPhone
>
>> On Jan 11, 2016, at 9:33 PM, Cindy Ray via blindtlk <blindtlk at nfbnet.org>
> wrote:
>>
>> Blind or sighted, it is not anybody's "wifely duty" to make a guy
> exercise.
>> If you would want to, fine. Otherwise, none of the doc's business. If
>> the doctor had something to say about it, it would necessarily be to
>> the person who wasn't exercising. People have told me I needed to make
>> my husband eat less, exercise, whatever. I said he is an adult.
>>
>>
>> -----Original Message-----
>> From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of Mark
>> Tardif via blindtlk
>> Sent: Monday, January 11, 2016 8:03 PM
>> To: S L Johnson <SLJohnson25 at comcast.net>; Blind Talk Mailing List
>> <blindtlk at nfbnet.org>
>> Cc: Mark Tardif <markspark at roadrunner.com>
>> Subject: Re: [Blindtlk] Non 24, Sleep Problems, and how our blindness
>> weighs in
>>
>> Pardon me, but it sounds like your complex really sucks when
>> considering the needs of tenants.  I am lucky enough to have bought a
>> treadmill which I keep in my apartment, and the person who sold it to
>> me worked with me and developed tactile cues on the numbers and other
> buttons I would likely use.
>> By the way, Sandra and the rest of us, this leads to another problem
>> with uneducated so-called medical professionals who incidentally don't
>> appear to live in the real world that we inhabit.  My former
>> girlfriend and I were living together and had the same so-called
>> doctor and I found out from my friend that the doctor had told her I
>> was "recalcitrient" about exercise and that my girlfriend should "do
>> her wifely duty" in getting me to exercise more.  This, without
>> knowing that I worked fulltime and that getting to a gymn regularly
>> was difficult because transportation in our town really sucked, and
>> that once I got there I would likely have to wrestle with touch screen
>> equipment.  This was kind of the last straw with her and I quickly
>> found a real doctor, but I really was tempted to go after this
>> witch-bitch for what I perceived as ethical violations.  But it seemed
> easier to just find another doctor.
>>
>>
>>
>> Mark Tardif
>> Nuclear arms will not hold you.
>> -----Original Message-----
>> From: S L Johnson via blindtlk
>> Sent: Monday, January 11, 2016 8:29 PM
>> To: Blind Talk Mailing List
>> Cc: S L Johnson
>> Subject: Re: [Blindtlk] Non 24, Sleep Problems,and how our blindness
>> weighs in
>>
>> Bob,
>>
>> I suppose a good exercise program could help regulate sleep.  You were
>> very lucky to have been exposed to physical activity.  I know I was
>> not given the chance once I lost all my vision.  I fought at least I
>> could do gymnastics and other things that could be done without sight
>> but, my public school refused.  After high school, I was not given
>> access to the gym at my college.  As many other blind adults, I cannot
> afford a gym membership.
>> Even if we do go to a gym, most of the equipment have touch screens
>> and are not accessible to the blind.  I live in a senior citizen
>> housing development.  We have an exercise room in the clubhouse.
>> Although when I rented my house, I paid for the key card to allow me
>> to enter, I have not been able to operate any of the equipment.  The
>> instructions are in a big large print notebook for the low vision
>> seniors and the equipment is all touch screens.  I've tried to talk to
>> management and the owners but they say they do not have any way to
>> give any access to anyone with no vision.  Oh, by the way, all the
>> house numbers and signs are in huge print and that is supposed to meet
>> accessibility requirements.  What about someone like me who is totally
>> blind?  There are not any tactile landmarks even allowing me to know
>> where I am in a maze of twisting winding sidewalks with no regular
>> corners or street crossings.  They even refused to obtain a talking
>> sign so I could find the crosswalk leading to the clubhouse.  So, now
>> people can stop wondering why so many blind people don't get enough
>> exercise.  Now to bring this back to sleep disorders, I know that a good
> exercise program might help better regulate sleep but, it just isn't
> possible for most of us.
>> Sandra
>>
>>
>> -----Original Message-----
>> From: Bob Hachey via blindtlk
>> Sent: Monday, January 11, 2016 8:00 PM
>> To: 'Blind Talk Mailing List'
>> Cc: Bob Hachey
>> Subject: Re: [Blindtlk] Non 24, Sleep Problems,and how our blindness
>> weighs in
>>
>> Hello Chaim,
>> I hear you loud and clear about how badly the medical profession is in
>> need of educating when it come to dealing with us blind folks.
>> That is a shame about no gym class for something like two years of
>> school. I was very fortunate living in Reading Massachusetts. Our
>> public school gym teachers were very good about including me in gym
>> classes. When the class did things like Soccer, I lifted weights and
>> ran the ttrakc with a student volunteer. IN flag football, I played
>> center, though it was hard to get the hang of blocking an opponent.
>> They put sounders on the basketball hoops and I tried using a beep
>> basketball but I had trouble trying to get the hang of both sounds at
>> once
> and tracking the ball.
>> I did calesthenics, gymnastics and wrestiling along with the group.
>> WE must be ever vigilant so as to ensure that all of our brothers and
>> sisters get proper physical education.
>> Bob Hachey
>>
>>
>> -----Original Message-----
>> From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of Chaim B.
>> Segal via blindtlk
>> Sent: Monday, January 11, 2016 6:54 PM
>> To: blindtlk at nfbnet.org
>> Cc: Chaim B. Segal
>> Subject: [Blindtlk] Non 24, Sleep Problems, and how our blindness
>> weighs in
>>
>> Hi Folks:
>>
>> I have not posted on this list in a great number of months, as work
>> duties circumvented my opportunity to read as many messages from
>> listserves as before. I decided to start receiving mail from these
>> nfbnet.org lists again, because I think there is pertinent information
>> out there I should be aware of. Even if I end up running behind on
> digests, better to be informed.
>>
>> When I think of the Non 24 issue, something entirely different comes
>> to mind. As was stated on this list a few days ago, many sighted
>> people also have sleep-related difficulties, which have nothing to do
>> with blindness. My own father, bless his memory, lost a job in his
>> later days because he kept falling asleep. Falling asleep on the job
>> was the last straw which caused my release from my previous job, but
>> that was largely caused by stress on account of a new order of
> rules-entirely different subject.
>>
>> A good number of years ago, my older blind brother was diagnosed with
>> sleep apnea. To make a long story short, his doctor-ordered sleep
>> study led to his being prescribed a C-pap. Parenthetically, he was
>> extremely overweight, which may have been part of the cause of the sleep
> apnea.
>>
>> I have been married, thank-God for six years and counting. Early on, I
>> discovered that my wife had an extremely serious problem with
>> narcolepsy. I don't want to make myself a laughing stock, but I'll say
>> that she and I are not exactly thin. I will spare unnecessary detail.
>> I discovered on my own that she had serious trouble breathing
>> throughout the night, and was often awaken by her gasping for air in
>> her sleep. Recalling these symptoms from my older brother, I took it
>> upon myself to engineer her getting a referral for a sleep study.
>> Turned out, she also had sleep apnea. Like my brother, she uses a
>> C-pap, and has much more energy during the day. The sleep doctor (who
>> just retired) nearly insisted that she try Non 24. She and I were
>> adamant that this was not a matter of interest. Like a number of
>> unfortunate sighted folks out there, the guy was under the impression
>> that blind people cannot really move comfortably beyond their own
>> space. He was, in fact, surprised to find out how many  blind couples
>> exist.  I am glad we had the opportunity to set him straight. It
>> bothers me that there is not a mandatory course in disability
>> awareness for doctors and nurses in medical and nursing school. I
>> think that anybody entering the medical field who may, at any point in
> their career, treat a disabled person be notified concerning appropriate
> personal etiquette in dealing with us.
>>
>> I know that some of us bld do exercise and try to watch what we eat.
>> Sadly, a number of blind people don't. There are a number of reasons
>> for this, including in some cases fear among gym staff that we will
>> get hurt on their equipment, or their insurance does not allow it. My
>> oldest (sighted) brother pointed out that with a number of us not
>> being able to see our own body profile in the mirror, we don't realize
>> how unhealthy we look in comparison to other people around us. While
>> he may have a valid point, my argument to him is that from what I have
>> heard, the majority of the US population is indeed overweight. Be that
>> as it may, you don't have to be overweight to have sleep apnea. Maybe,
>> a number of blind and sighted people alike have sleep apnea, but are
>> not being treated for it. Maybe a number of blind and sighted people
>> are not getting adequate exercise throughout the day and are not eating
> right. Maybe, there are many factors involved.
>>
>> I think that before doctors prescribe this "antidote", they ought to
>> take a person's daily factors into account. I also think that gyms,
>> spas, and the like, should be encouraged to run specials which
>> encourage blind and disabled folks to come and work out. I'll take it
>> a step further. For those blind people who attend regular mainstream
>> school classes, there should be a law which demands that any physical
>> fitness instructor in a public institution be given the means to
>> include a blind or disabled student along with the rest of the class.
>>
>> On this note, I'll add one more comment. From mid way through my
>> seventh grade year through my freshman year, I received no gym
>> instruction in my local public school. Indeed, one reason I decided to
>> attend the Ohio State School For The Blind for high school was that I
>> was told physical instruction was taught there. During my sophomore
>> year there, they did some repairs on their gymnasium and there was a
>> big ribbon-cutting ceremony. We had been swimming in their pool in
>> place of gym instruction. What happened after the big fanfare? Some
>> well-meaning folks decided that we had to have a similar experience as
>> sighted folks. So, they decided to teach us how to hit a tennis ball
>> with a tennis racket. It flopped! As soon as we were shown how to do
>> it and commanded to do so, the teacher(s) had to go show another blind
>> person the same thing. So, A would shove the ball out of his hand with
>> the racket, and have nothing to do until it could be retrieved. I felt
>> it was a complete waste. And, as  Mr. Robert Mills, one of the  best
>> o&m instructors in the country said, "This is a blind school! You
>> students are blind! They have a g d big beautiful gym! They should use it
> for what it is supposed to be used for!"
>>
>> Anyway, I'll be back tomorrow or next day on an entirely different
> subject.
>>
>> Chaim
>>
>> Chaim B. Segal
>> Contact Marketing Representative
>> Sinclair Community College
>> Dayton, Ohio
>>
>> Every Man, woman, every boy and girl,
>> Let your love light shine, make a better world.
>>
>> Daryl Hall And John Oates
>>
>> Sent from my Braille Sense U2 Mini
>>
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