[Blindtlk] Is it my duty? was Non 24, Sleep Problems, and how our blindness weighs in

Wed Jan 13 02:47:20 UTC 2016

That is certainly true.  And again, I got the impression that this doctor 
was not living in the real world, nicely sheltered in her glass office 
tower.  But a number of things she said to us suggested that she needed to 
really wake up and "smell the coffee" so to speak.

Mark Tardif
Nuclear arms will not hold you.
-----Original Message----- 
From: Ericka via blindtlk
Sent: Tuesday, January 12, 2016 2:51 PM
To: Blind Talk Mailing List
Cc: Ericka
Subject: Re: [Blindtlk] Is it my duty? was Non 24, Sleep Problems,and how 
our blindness weighs in

I think the doctor actually broke the confidentiality laws by telling her 
that she needs to take care of him and make him do something. Any good 
doctor would talk to the patient and find out why they're not making the 
choice to do so. The doctor couldn't solve the transportation or touchscreen 
problem but he should know the truth from the patient not assuming. I'm 
guessing there's more reasons why the girlfriend was dropped than this.

Ericka Short
"Friends are like flowers in the garden of life"

Sent from my iPhone

> On Jan 11, 2016, at 9:33 PM, Cindy Ray via blindtlk <blindtlk at nfbnet.org> 
> wrote:
>
> Blind or sighted, it is not anybody's "wifely duty" to make a guy 
> exercise.
> If you would want to, fine. Otherwise, none of the doc's business. If the
> doctor had something to say about it, it would necessarily be to the 
> person
> who wasn't exercising. People have told me I needed to make my husband eat
> less, exercise, whatever. I said he is an adult.
>
>
> -----Original Message-----
> From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of Mark 
> Tardif
> via blindtlk
> Sent: Monday, January 11, 2016 8:03 PM
> To: S L Johnson <SLJohnson25 at comcast.net>; Blind Talk Mailing List
> <blindtlk at nfbnet.org>
> Cc: Mark Tardif <markspark at roadrunner.com>
> Subject: Re: [Blindtlk] Non 24, Sleep Problems, and how our blindness 
> weighs
> in
>
> Pardon me, but it sounds like your complex really sucks when considering 
> the
> needs of tenants.  I am lucky enough to have bought a treadmill which I 
> keep
> in my apartment, and the person who sold it to me worked with me and
> developed tactile cues on the numbers and other buttons I would likely 
> use.
> By the way, Sandra and the rest of us, this leads to another problem with
> uneducated so-called medical professionals who incidentally don't appear 
> to
> live in the real world that we inhabit.  My former girlfriend and I were
> living together and had the same so-called doctor and I found out from my
> friend that the doctor had told her I was "recalcitrient" about exercise 
> and
> that my girlfriend should "do her wifely duty" in getting me to exercise
> more.  This, without knowing that I worked fulltime and that getting to a
> gymn regularly was difficult because transportation in our town really
> sucked, and that once I got there I would likely have to wrestle with 
> touch
> screen equipment.  This was kind of the last straw with her and I quickly
> found a real doctor, but I really was tempted to go after this witch-bitch
> for what I perceived as ethical violations.  But it seemed easier to just
> find another doctor.
>
>
>
> Mark Tardif
> Nuclear arms will not hold you.
> -----Original Message-----
> From: S L Johnson via blindtlk
> Sent: Monday, January 11, 2016 8:29 PM
> To: Blind Talk Mailing List
> Cc: S L Johnson
> Subject: Re: [Blindtlk] Non 24, Sleep Problems,and how our blindness 
> weighs
> in
>
> Bob,
>
> I suppose a good exercise program could help regulate sleep.  You were 
> very
> lucky to have been exposed to physical activity.  I know I was not given 
> the
> chance once I lost all my vision.  I fought at least I could do gymnastics
> and other things that could be done without sight but, my public school
> refused.  After high school, I was not given access to the gym at my
> college.  As many other blind adults, I cannot afford a gym membership.
> Even if we do go to a gym, most of the equipment have touch screens and 
> are
> not accessible to the blind.  I live in a senior citizen housing
> development.  We have an exercise room in the clubhouse.  Although when I
> rented my house, I paid for the key card to allow me to enter, I have not
> been able to operate any of the equipment.  The instructions are in a big
> large print notebook for the low vision seniors and the equipment is all
> touch screens.  I've tried to talk to management and the owners but they 
> say
> they do not have any way to give any access to anyone with no vision.  Oh,
> by the way, all the house numbers and signs are in huge print and that is
> supposed to meet accessibility requirements.  What about someone like me 
> who
> is totally blind?  There are not any tactile landmarks even allowing me to
> know where I am in a maze of twisting winding sidewalks with no regular
> corners or street crossings.  They even refused to obtain a talking sign 
> so
> I could find the crosswalk leading to the clubhouse.  So, now people can
> stop wondering why so many blind people don't get enough exercise.  Now to
> bring this back to sleep disorders, I know that a good exercise program
> might help better regulate sleep but, it just isn't possible for most of 
> us.
> Sandra
>
>
> -----Original Message-----
> From: Bob Hachey via blindtlk
> Sent: Monday, January 11, 2016 8:00 PM
> To: 'Blind Talk Mailing List'
> Cc: Bob Hachey
> Subject: Re: [Blindtlk] Non 24, Sleep Problems,and how our blindness 
> weighs
> in
>
> Hello Chaim,
> I hear you loud and clear about how badly the medical profession is in 
> need
> of educating when it come to dealing with us blind folks.
> That is a shame about no gym class for something like two years of school. 
> I
> was very fortunate living in Reading Massachusetts. Our public school gym
> teachers were very good about including me in gym classes. When the class
> did things like Soccer, I lifted weights and ran the ttrakc with a student
> volunteer. IN flag football, I played center, though it was hard to get 
> the
> hang of blocking an opponent. They put sounders on the basketball hoops 
> and
> I tried using a beep basketball but I had trouble trying to get the hang 
> of
> both sounds at once and tracking the ball.
> I did calesthenics, gymnastics and wrestiling along with the group.
> WE must be ever vigilant so as to ensure that all of our brothers and
> sisters get proper physical education.
> Bob Hachey
>
>
> -----Original Message-----
> From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of Chaim B.
> Segal via blindtlk
> Sent: Monday, January 11, 2016 6:54 PM
> To: blindtlk at nfbnet.org
> Cc: Chaim B. Segal
> Subject: [Blindtlk] Non 24, Sleep Problems, and how our blindness weighs 
> in
>
> Hi Folks:
>
> I have not posted on this list in a great number of months, as work duties
> circumvented my opportunity to read as many messages from listserves as
> before. I decided to start receiving mail from these nfbnet.org lists 
> again,
> because I think there is pertinent information out there I should be aware
> of. Even if I end up running behind on digests, better to be informed.
>
> When I think of the Non 24 issue, something entirely different comes to
> mind. As was stated on this list a few days ago, many sighted people also
> have sleep-related difficulties, which have nothing to do with blindness. 
> My
> own father, bless his memory, lost a job in his later days because he kept
> falling asleep. Falling asleep on the job was the last straw which caused 
> my
> release from my previous job, but that was largely caused by stress on
> account of a new order of rules-entirely different subject.
>
> A good number of years ago, my older blind brother was diagnosed with 
> sleep
> apnea. To make a long story short, his doctor-ordered sleep study led to 
> his
> being prescribed a C-pap. Parenthetically, he was extremely overweight,
> which may have been part of the cause of the sleep apnea.
>
> I have been married, thank-God for six years and counting. Early on, I
> discovered that my wife had an extremely serious problem with narcolepsy. 
> I
> don't want to make myself a laughing stock, but I'll say that she and I 
> are
> not exactly thin. I will spare unnecessary detail. I discovered on my own
> that she had serious trouble breathing throughout the night, and was often
> awaken by her gasping for air in her sleep. Recalling these symptoms from 
> my
> older brother, I took it upon myself to engineer her getting a referral 
> for
> a sleep study. Turned out, she also had sleep apnea. Like my brother, she
> uses a C-pap, and has much more energy during the day. The sleep doctor 
> (who
> just retired) nearly insisted that she try Non 24. She and I were adamant
> that this was not a matter of interest. Like a number of unfortunate 
> sighted
> folks out there, the guy was under the impression that blind people cannot
> really move comfortably beyond their own space. He was, in fact, surprised
> to find out how many  blind couples exist.  I am glad we had the 
> opportunity
> to set him straight. It bothers me that there is not a mandatory course in
> disability awareness for doctors and nurses in medical and nursing school. 
> I
> think that anybody entering the medical field who may, at any point in 
> their
> career, treat a disabled person be notified concerning appropriate 
> personal
> etiquette in dealing with us.
>
> I know that some of us bld do exercise and try to watch what we eat. 
> Sadly,
> a number of blind people don't. There are a number of reasons for this,
> including in some cases fear among gym staff that we will get hurt on 
> their
> equipment, or their insurance does not allow it. My oldest (sighted) 
> brother
> pointed out that with a number of us not being able to see our own body
> profile in the mirror, we don't realize how unhealthy we look in 
> comparison
> to other people around us. While he may have a valid point, my argument to
> him is that from what I have heard, the majority of the US population is
> indeed overweight. Be that as it may, you don't have to be overweight to
> have sleep apnea. Maybe, a number of blind and sighted people alike have
> sleep apnea, but are not being treated for it. Maybe a number of blind and
> sighted people are not getting adequate exercise throughout the day and 
> are
> not eating right. Maybe, there are many factors involved.
>
> I think that before doctors prescribe this "antidote", they ought to take 
> a
> person's daily factors into account. I also think that gyms, spas, and the
> like, should be encouraged to run specials which encourage blind and
> disabled folks to come and work out. I'll take it a step further. For 
> those
> blind people who attend regular mainstream school classes, there should be 
> a
> law which demands that any physical fitness instructor in a public
> institution be given the means to include a blind or disabled student 
> along
> with the rest of the class.
>
> On this note, I'll add one more comment. From mid way through my seventh
> grade year through my freshman year, I received no gym instruction in my
> local public school. Indeed, one reason I decided to attend the Ohio State
> School For The Blind for high school was that I was told physical
> instruction was taught there. During my sophomore year there, they did 
> some
> repairs on their gymnasium and there was a big ribbon-cutting ceremony. We
> had been swimming in their pool in place of gym instruction. What happened
> after the big fanfare? Some well-meaning folks decided that we had to have 
> a
> similar experience as sighted folks. So, they decided to teach us how to 
> hit
> a tennis ball with a tennis racket. It flopped! As soon as we were shown 
> how
> to do it and commanded to do so, the teacher(s) had to go show another 
> blind
> person the same thing. So, A would shove the ball out of his hand with the
> racket, and have nothing to do until it could be retrieved. I felt it was 
> a
> complete waste. And, as  Mr. Robert Mills, one of the  best o&m 
> instructors
> in the country said, "This is a blind school! You students are blind! They
> have a g d big beautiful gym! They should use it for what it is supposed 
> to
> be used for!"
>
> Anyway, I'll be back tomorrow or next day on an entirely different 
> subject.
>
> Chaim
>
> Chaim B. Segal
> Contact Marketing Representative
> Sinclair Community College
> Dayton, Ohio
>
> Every Man, woman, every boy and girl,
> Let your love light shine, make a better world.
>
> Daryl Hall And John Oates
>
> Sent from my Braille Sense U2 Mini
>
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