[Blindtlk] Is it my duty? was Non 24, Sleep Problems, and how our blindness weighs in

Wed Jan 13 02:09:08 UTC 2016

I agree, Cindy.  And if she were a professional, she would have spoken 
directly to me about this issue and maybe done a lot more listening, too.  I 
do believe in a strong relationship it is perfectly appropriate for a 
partner to encourage exercise and proper eating and to lead by example, but 
this needs to be done directly and with love.  It was certainly not her 
"wifely duty" to get me to do this, and she recognized that.

Mark Tardif
Nuclear arms will not hold you.
-----Original Message----- 
From: Cindy Ray via blindtlk
Sent: Monday, January 11, 2016 10:33 PM
To: 'Blind Talk Mailing List'
Cc: Cindy Ray
Subject: Re: [Blindtlk] Is it my duty? was Non 24, Sleep Problems,and how 
our blindness weighs in

Blind or sighted, it is not anybody's "wifely duty" to make a guy exercise.
If you would want to, fine. Otherwise, none of the doc's business. If the
doctor had something to say about it, it would necessarily be to the person
who wasn't exercising. People have told me I needed to make my husband eat
less, exercise, whatever. I said he is an adult.

-----Original Message-----
From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of Mark Tardif
via blindtlk
Sent: Monday, January 11, 2016 8:03 PM
To: S L Johnson <SLJohnson25 at comcast.net>; Blind Talk Mailing List
<blindtlk at nfbnet.org>
Cc: Mark Tardif <markspark at roadrunner.com>
Subject: Re: [Blindtlk] Non 24, Sleep Problems, and how our blindness weighs
in

Pardon me, but it sounds like your complex really sucks when considering the
needs of tenants.  I am lucky enough to have bought a treadmill which I keep
in my apartment, and the person who sold it to me worked with me and
developed tactile cues on the numbers and other buttons I would likely use.
By the way, Sandra and the rest of us, this leads to another problem with
uneducated so-called medical professionals who incidentally don't appear to
live in the real world that we inhabit.  My former girlfriend and I were
living together and had the same so-called doctor and I found out from my
friend that the doctor had told her I was "recalcitrient" about exercise and
that my girlfriend should "do her wifely duty" in getting me to exercise
more.  This, without knowing that I worked fulltime and that getting to a
gymn regularly was difficult because transportation in our town really
sucked, and that once I got there I would likely have to wrestle with touch
screen equipment.  This was kind of the last straw with her and I quickly
found a real doctor, but I really was tempted to go after this witch-bitch
for what I perceived as ethical violations.  But it seemed easier to just
find another doctor.

Mark Tardif
Nuclear arms will not hold you.
-----Original Message-----
From: S L Johnson via blindtlk
Sent: Monday, January 11, 2016 8:29 PM
To: Blind Talk Mailing List
Cc: S L Johnson
Subject: Re: [Blindtlk] Non 24, Sleep Problems,and how our blindness weighs
in

Bob,

I suppose a good exercise program could help regulate sleep.  You were very
lucky to have been exposed to physical activity.  I know I was not given the
chance once I lost all my vision.  I fought at least I could do gymnastics
and other things that could be done without sight but, my public school
refused.  After high school, I was not given access to the gym at my
college.  As many other blind adults, I cannot afford a gym membership.
Even if we do go to a gym, most of the equipment have touch screens and are
not accessible to the blind.  I live in a senior citizen housing
development.  We have an exercise room in the clubhouse.  Although when I
rented my house, I paid for the key card to allow me to enter, I have not
been able to operate any of the equipment.  The instructions are in a big
large print notebook for the low vision seniors and the equipment is all
touch screens.  I've tried to talk to management and the owners but they say
they do not have any way to give any access to anyone with no vision.  Oh,
by the way, all the house numbers and signs are in huge print and that is
supposed to meet accessibility requirements.  What about someone like me who
is totally blind?  There are not any tactile landmarks even allowing me to
know where I am in a maze of twisting winding sidewalks with no regular
corners or street crossings.  They even refused to obtain a talking sign so
I could find the crosswalk leading to the clubhouse.  So, now people can
stop wondering why so many blind people don't get enough exercise.  Now to
bring this back to sleep disorders, I know that a good exercise program
might help better regulate sleep but, it just isn't possible for most of us.
Sandra

-----Original Message-----
From: Bob Hachey via blindtlk
Sent: Monday, January 11, 2016 8:00 PM
To: 'Blind Talk Mailing List'
Cc: Bob Hachey
Subject: Re: [Blindtlk] Non 24, Sleep Problems,and how our blindness weighs
in

Hello Chaim,
I hear you loud and clear about how badly the medical profession is in need
of educating when it come to dealing with us blind folks.
That is a shame about no gym class for something like two years of school. I
was very fortunate living in Reading Massachusetts. Our public school gym
teachers were very good about including me in gym classes. When the class
did things like Soccer, I lifted weights and ran the ttrakc with a student
volunteer. IN flag football, I played center, though it was hard to get the
hang of blocking an opponent. They put sounders on the basketball hoops and
I tried using a beep basketball but I had trouble trying to get the hang of
both sounds at once and tracking the ball.
I did calesthenics, gymnastics and wrestiling along with the group.
WE must be ever vigilant so as to ensure that all of our brothers and
sisters get proper physical education.
Bob Hachey

-----Original Message-----
From: blindtlk [mailto:blindtlk-bounces at nfbnet.org] On Behalf Of Chaim B.
Segal via blindtlk
Sent: Monday, January 11, 2016 6:54 PM
To: blindtlk at nfbnet.org
Cc: Chaim B. Segal
Subject: [Blindtlk] Non 24, Sleep Problems, and how our blindness weighs in

Hi Folks:

I have not posted on this list in a great number of months, as work duties
circumvented my opportunity to read as many messages from listserves as
before. I decided to start receiving mail from these nfbnet.org lists again,
because I think there is pertinent information out there I should be aware
of. Even if I end up running behind on digests, better to be informed.

When I think of the Non 24 issue, something entirely different comes to
mind. As was stated on this list a few days ago, many sighted people also
have sleep-related difficulties, which have nothing to do with blindness. My
own father, bless his memory, lost a job in his later days because he kept
falling asleep. Falling asleep on the job was the last straw which caused my
release from my previous job, but that was largely caused by stress on
account of a new order of rules-entirely different subject.

A good number of years ago, my older blind brother was diagnosed with sleep
apnea. To make a long story short, his doctor-ordered sleep study led to his
being prescribed a C-pap. Parenthetically, he was extremely overweight,
which may have been part of the cause of the sleep apnea.

I have been married, thank-God for six years and counting. Early on, I
discovered that my wife had an extremely serious problem with narcolepsy. I
don't want to make myself a laughing stock, but I'll say that she and I are
not exactly thin. I will spare unnecessary detail. I discovered on my own
that she had serious trouble breathing throughout the night, and was often
awaken by her gasping for air in her sleep. Recalling these symptoms from my
older brother, I took it upon myself to engineer her getting a referral for
a sleep study. Turned out, she also had sleep apnea. Like my brother, she
uses a C-pap, and has much more energy during the day. The sleep doctor (who
just retired) nearly insisted that she try Non 24. She and I were adamant
that this was not a matter of interest. Like a number of unfortunate sighted
folks out there, the guy was under the impression that blind people cannot
really move comfortably beyond their own space. He was, in fact, surprised
to find out how many  blind couples exist.  I am glad we had the opportunity
to set him straight. It bothers me that there is not a mandatory course in
disability awareness for doctors and nurses in medical and nursing school. I
think that anybody entering the medical field who may, at any point in their
career, treat a disabled person be notified concerning appropriate personal
etiquette in dealing with us.

I know that some of us bld do exercise and try to watch what we eat. Sadly,
a number of blind people don't. There are a number of reasons for this,
including in some cases fear among gym staff that we will get hurt on their
equipment, or their insurance does not allow it. My oldest (sighted) brother
pointed out that with a number of us not being able to see our own body
profile in the mirror, we don't realize how unhealthy we look in comparison
to other people around us. While he may have a valid point, my argument to
him is that from what I have heard, the majority of the US population is
indeed overweight. Be that as it may, you don't have to be overweight to
have sleep apnea. Maybe, a number of blind and sighted people alike have
sleep apnea, but are not being treated for it. Maybe a number of blind and
sighted people are not getting adequate exercise throughout the day and are
not eating right. Maybe, there are many factors involved.

I think that before doctors prescribe this "antidote", they ought to take a
person's daily factors into account. I also think that gyms, spas, and the
like, should be encouraged to run specials which encourage blind and
disabled folks to come and work out. I'll take it a step further. For those
blind people who attend regular mainstream school classes, there should be a
law which demands that any physical fitness instructor in a public
institution be given the means to include a blind or disabled student along
with the rest of the class.

On this note, I'll add one more comment. From mid way through my seventh
grade year through my freshman year, I received no gym instruction in my
local public school. Indeed, one reason I decided to attend the Ohio State
School For The Blind for high school was that I was told physical
instruction was taught there. During my sophomore year there, they did some
repairs on their gymnasium and there was a big ribbon-cutting ceremony. We
had been swimming in their pool in place of gym instruction. What happened
after the big fanfare? Some well-meaning folks decided that we had to have a
similar experience as sighted folks. So, they decided to teach us how to hit
a tennis ball with a tennis racket. It flopped! As soon as we were shown how
to do it and commanded to do so, the teacher(s) had to go show another blind
person the same thing. So, A would shove the ball out of his hand with the
racket, and have nothing to do until it could be retrieved. I felt it was a
complete waste. And, as  Mr. Robert Mills, one of the  best o&m instructors
in the country said, "This is a blind school! You students are blind! They
have a g d big beautiful gym! They should use it for what it is supposed to
be used for!"

Anyway, I'll be back tomorrow or next day on an entirely different subject.

Chaim

Chaim B. Segal
Contact Marketing Representative
Sinclair Community College
Dayton, Ohio

Every Man, woman, every boy and girl,
Let your love light shine, make a better world.

Daryl Hall And John Oates

Sent from my Braille Sense U2 Mini

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