[Blindtlk] non 24

[Judy Jones]

I may have missed some of the posts, but I have not yet seen one where a 
blind person has been successful in his insurance covering the cost of 
Hetlios, or received a 100% scholarship through Vanda.

My husband has been through that process, his insurance coverage by and 
large is very good, but they had some very stiff requirements of the doctor, 
yet, when all was said and done, back-peddaled on whether they would really 
cover the Hetlios.

The neurologist my husband was referred to, very wisely recommended, after 
studying the situation, recommended a derivitive of Hetlios, called Rozerem. 
There is no problem in his insurance covering this drug, and my husband 
noticed a difference, even after just the first night's dosage, and feel his 
sleep body clock problems have now been solved.  He has been on Roserem not 
quite a month now, and is very happy.

I've heard lots of opinions but not seen any testimonies.

Vanda has so much money at its disposal, they can afford to spend a few 
thousands at our conventions.  I feel they are using the NFB as a hook, and 
I'm not in favor of that, especially on the backs of the very blind persons 
the NFB is trying to help.

How many insurances will really cover such an expensive drug, and are blind 
persons who want the drug, going to pursue lawsuits and expect the NFB to 
pay those, recuping a few dollars for the plaintiff?

Where is this really going to go?

Judy

-----Original Message----- 
From: Ericka via blindtlk
Sent: Thursday, January 21, 2016 12:12 PM
To: gwunder at earthlink.net ; Blind Talk Mailing List
Cc: Ericka
Subject: Re: [Blindtlk] non 24

Well thought out Gary. Thank you.

Ericka Short
"Friends are like flowers in the garden of life"

Sent from my iPhone

> On Jan 20, 2016, at 12:43 PM, Gary Wunder via blindtlk 
> <blindtlk at nfbnet.org> wrote:
>
> Well, it sounds like most of us have an opinion about this subject. I 
> don't
> have anything new to say about the motives of Vanda, the studies they 
> used,
> or whether we should be accepting sponsorships for the convention. I do
> think we have to ask ourselves a very hard question: what message are we
> happy with about blindness if it doesn't come from us? I'm in the business
> of putting out our message as the editor of the Braille Monitor, so I love
> that message very much, but should we turn thumbs down on a guide dog 
> school
> that decides to do radio advertising in order to give the blind greater
> mobility and that ad features a blind woman talking about the isolation 
> she
> experienced and how she now moves about in her community? If a radio ad
> decides to promote a reading machine for the blind and a blind person 
> talks
> about how it has changed her life because once she had stacks of mail that
> she didn't know how to get through and this new machine has given her
> tremendous independence, would we object on the grounds that she is 
> implying
> that blind people without the machine can't handle paperwork?
>
> Like most statements that can be made, there is some truth in almost
> everything. Does the action of one blind person affect all blind people? 
> Of
> course not. If it did, Mike Freeman's successful performance as a computer
> programmer would have meant that all discrimination against computer
> programmers who are blind would have ceased almost four decades ago. Does
> the fact that one blind person abusively swears at someone who offers help
> mean that nobody gets offered help? Of course not. Is it true that we are
> watched and that we can to some degree positively or negatively affect 
> what
> people think about others who are blind? Yes, but again, this is all a
> matter of degree.
>
> I think we should give be employers and members of the general public some
> credit for exercising the same intelligence we do when listening to
> advertisements, reading pamphlets, or being persuaded by someone with a
> definite point of view. We filter it, think about it, and we do our best 
> to
> go beyond what we are able to perceive as our biases and prejudices. I 
> think
> we have tried in our literature to answer the questions is literature
> against us, is history against us, and is the public against us. I think 
> the
> answer is no. We are not at the top of the stairs, but at least we are
> climbing, and I think that getting to the top of the stairs means being as
> honest as we can about the problems that we face and our ability to solve
> them if we work together.
>
>
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