[BlindTlk] You are a fall risk because you are blind
Judy Jones
sonshines59 at gmail.com
Sat Sep 2 19:51:39 UTC 2023
I actually corrected a doctor when I viewed his notes on the MyChart app. He was gracious and made the corrections.
Judy
“Embrace each day with His mercies and blessings.”
-----Original Message-----
From: BlindTlk <blindtlk-bounces at nfbnet.org> On Behalf Of Jody ianuzzi via BlindTlk
Sent: Saturday, September 2, 2023 9:06 AM
To: Blind Talk Mailing List <blindtlk at nfbnet.org>
Cc: Jody ianuzzi <thunderwalker321 at gmail.com>
Subject: Re: [BlindTlk] You are a fall risk because you are blind
This is my point exactly. We were all lumped together in one category They never bother to get to know us as individuals I like the good old days when a doctor spent more time talking with you than they did entering information into the computer.
JODY
To Boldly Go 🖖🏻
thunderwalker321 at gmail.com
"What's within you is stronger than what's in your way." NO BARRIERS Erik Weihenmayer
> On Sep 2, 2023, at 11:55 AM, Jude DaShiell via BlindTlk <blindtlk at nfbnet.org> wrote:
>
> In the southern states those hunting turkeys with shotguns get sent
> to Lions World International to rehabilitate once they join the blind club.
> These people have not yet adjusted to blindness and are at a higher
> fall risk. Some elderly people loose their sight and do not go
> through adjustment to blindness programs and for as long as they're
> alive remain a fall risk. Medical and social workers having looked at
> you before reading your chart react more toward safety for those in
> their care. If the information on your chart with regard to blindness
> isn't accurate for whatever reason then even if those workers look at
> your chart they'll not be correctly informed either. It wasn't until
> after 2013 and my retirement I learned what really caused my blindness
> and that I had never seen anything. Doctors and parents earlier
> weren't completely truthful with themselves or me which is why I
> learned the real diagnosis as late as I did. By the way, I was able
> to give that information to 23andme which may help genetic research.
>
>
> -- Jude <jdashiel at panix dot com> "There are four boxes to be used
> in defense of liberty: soap, ballot, jury, and ammo. Please use in
> that order." Ed Howdershelt 1940.
>
>> On Sat, 2 Sep 2023, The Braille Cat via BlindTlk wrote:
>>
>> Man?? These folks with their total inability to think outside of the Box really make me tired! I mean it's not like we went blind five minutes ago now is it??
>> Jack and Bex
>>
>> Sent from my iPod
>>
>> On Sep 2, 2023, at 8:58 AM, Pamela Dominguez via BlindTlk <blindtlk at nfbnet.org> wrote:
>>
>>
>> It might be different now, but the last time I was hospitalized in 2012, I got up when I wanted to, and went and used the bathroom and whatever. I didn’t even know they didn’t want me to until I was almost ready to go home. But the reason I say it might be different now is, I go to see my doctor in a hospital-type setting, and I complained that the security guard didn’t want me to practically move, not to go out by myself to get my ride, not to come down from the other floor myself, not anything, and everybody I complained to said that he was doing the right thing, because he was looking out for my safety because I can’t see. Access-a-ride wants you outside ten minutes before the ride, and it didn’t matter what I said, he would not let me. He said they had to come in and get me. Pam.
>>
>> Sent from Mail for Windows
>>
>> From: Mama Otter via BlindTlk
>> Sent: Friday, September 1, 2023 8:03 PM
>> To: Judy Jones via BlindTlk
>> Cc: Mama Otter
>> Subject: Re: [BlindTlk] You are a fall risk because you are blind
>>
>> Hello. I can attest to this. I have also been totally blind since birth.
>> I have been hospitalized 3 times this year and all 3 times was told I
>> could not get out of bed by myself because I was blind and I was a
>> big fall risk. This was infuriating and degrading to say the least. I
>> complained to various doctors and nurses with no result. So it is
>> definitely rampant among medical professionals which is wrong in my
>> opinion. I do have balance issues but they are not related to my
>> sight or lack thereof and I do know how to compensate for them and
>> have not fallen ever in my home. And believe me with 2 cats underfoot
>> there are enough fall risks.
>>
>> Charlotte
>>
>>
>>> On 9/1/2023 6:35 PM, Judy Jones via BlindTlk wrote:
>>> Hi, Jody,
>>>
>>> No, I haven't gotten that, at this point.
>>>
>>> In fact, the PT for my torn meniscus stated that blindness doesn't
>>> affect my balance, as it has been a life-long condition, but thought
>>> I might have something vistibular going on since I also have been in Covid long-haul.
>>>
>>> His respect for you should have run up a notch when you mentioned
>>> your martial arts expertise hahahaha.
>>>
>>> It may either be time to shop for a new doc, or start him on an "education"
>>> program.
>>>
>>> Judy
>>> sent from my Samsung Galaxy phone
>>>
>>> On Fri, Sep 1, 2023, 4:25 PM Jody ianuzzi via BlindTlk
>>> <blindtlk at nfbnet.org>
>>> wrote:
>>>
>>>> The last time I went to see my doctor he really made me angry. He
>>>> told me that he was concerned that I might fall because of my
>>>> visual impairment. I said that if I just lost my site that there
>>>> would be a period of adjustment where I would have to learn
>>>> alternative techniques to be more confident. I told him that I
>>>> have been blind my entire life I had no more chance of falling
>>>> than he did and that since I started learning the martial arts 52 years ago, I could probably teach him how to fall without getting hurt!
>>>>
>>>> Since this happened I have relayed the story to many people have
>>>> told me that they are also considered a fall risk by medical
>>>> professionals. So is this a new protocol? Are we all incompetent at
>>>> walking without having
>>>>
>>>> Since this happened I have relayed the story to many people who
>>>> have told me that they are also considered a fall risk by medical
>>>> professionals. So is this a new protocol? Are we all incompetent at
>>>> walking without having to worry about falling? I think it is so
>>>> much of a coincidence that I have heard the story from many places
>>>> around the country. I think I think we really have to educate the medical profession as well as everyone else!
>>>>
>>>> JODY
>>>>
>>>> To Boldly Go 🖖🏻
>>>>
>>>>
>>>> thunderwalker321 at gmail.com
>>>>
>>>> "What's within you is stronger than what's in your way." NO
>>>> BARRIERS Erik Weihenmayer
>>>>
>>>>> On Sep 1, 2023, at 6:55 PM, Raul Gallegos - NAGDU via BlindTlk <
>>>> blindtlk at nfbnet.org> wrote:
>>>>> Hello Mark. That’s a new one for sure.
>>>>>
>>>>> On a different but slightly related note, I went on a cruise
>>>>> earlier
>>>> this year.
>>>>> Upon my re-entry back onboard the ship after indulging a nice and
>>>>> long
>>>> day of sun and adult beverages, the security folks wanted to check
>>>> my cane before letting me on the ship. I politely declined and told
>>>> the nice security person that my cane posed no threat and that I
>>>> could just walk through the gate and that I have done this many
>>>> times. He was rather insistent, however. So, the compromise was to
>>>> let me walk through, then they would check the cane anyway.
>>>> Considering I was tired, and a little, well, happy, and I didn’t
>>>> want my good mood to be ruined, I let the security folks check my
>>>> cane after I walked through. Here is where the funny part comes in.
>>>>> As I am standing in front of the nice security person while my
>>>>> cane is
>>>> getting checked for contraband, he puts his hands under mine and
>>>> tells me that it is all going to be okay, and I can just lean
>>>> forward on him, and he will make sure I do not fall. I instantly
>>>> figured out that he honestly thought my cane was for balance, not
>>>> guiding. Instead of educating him further, I grabbed his hands and
>>>> started dancing with him. We twirled around a few times, and as we
>>>> danced, I educated him that my balance was better than fine, and
>>>> that my cane made a great dance partner when my wife was not around and when my cane wasn’t doing its real job of guiding me.
>>>>> In the end, it was a funny time, and hopefully, this nice security
>>>> cruise ship person received a little education in a positive way.
>>>>>
>>>>>
>>>>> --
>>>>>
>>>>> Raul Gallegos
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>> From: nFB-Talk <nfb-talk-bounces at nfbnet.org> On Behalf Of Mark
>>>>> Tardif
>>>> via nFB-Talk
>>>>> Sent: Friday, September 1, 2023 5:25 PM
>>>>> To: Blind Talk Mailing List <blindtlk at nfbnet.org>
>>>>> Cc: Mark Tardif <markspark at roadrunner.com>; NFB of Florida
>>>>> Internet
>>>> Mailing List <nfbf-l at nfbnet.org>; NFB Talk Mailing List <
>>>> nfb-talk at nfbnet.org>
>>>>> Subject: [NFB-Talk] Strange Stuff
>>>>>
>>>>>
>>>>>
>>>>> Alright, friends. I’m going to tell you something that will
>>>>> either
>>>> leave you laughing or crying, and it is to demonstrate that no
>>>> matter how well educated you are, if you are not familiar with
>>>> blindness, well, you can still come across as, to put it politely,
>>>> not the brightest light in the room. The other day I saw a doctor
>>>> I had never met before. He had never spoken with someone who was
>>>> born blind, and I suspect he had never spoken with any blind
>>>> person. Anyway, he saw my long white cane and, get this, asked if
>>>> this was my “eye stick.” Yes, that was the term he actually used,
>>>> “eye stick.” I wasn’t sure whether to laugh or to just moan with
>>>> sadness, but one does need to remember manners in this situation,
>>>> so I told him that we call it a long white cane and told him what
>>>> it was for. He actually asked a number of good questions about
>>>> blindness, which I thought was good, but it was clear that he
>>>> needed much educating. He seemed surprised I can actually walk
>>>> around town independently. I guess we have a lot of work to do,
>>>> still, to put it mildly. Also, I must say that while people up
>>>> here are often extremely nice and courteous, they seem to pride
>>>> themselves on being quite insular, even more than the rest of
>>>> Maine, which is my state incidentally. I say that because along
>>>> with the term “eye stick,” I’ve often heard some very strange and,
>>>> frankly, primitive ideas that I won’t actually go into here, but I do often think that holds us back in a lot of ways. Anyway, I just thought I would share that bit of strangeness.
>>>>> Mark Tardif
>>>>> Nuclear arms will not hold you.
>>>>>
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>>
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