[blparent] update: preg, ultrasound, etc.

Fri Aug 12 23:36:58 UTC 2011

Thanks, Erin. I figured as soon as I heard it I'd remember and I did. I've 
only been working in the blindness field for most of the last 40 years! :) 
(Now that's scary!"
----- Original Message ----- 
From: "Erin Rumer" <erinrumer at gmail.com>
To: "'NFBnet Blind Parents Mailing List'" <blparent at nfbnet.org>
Sent: Friday, August 12, 2011 6:29 PM
Subject: Re: [blparent] update: preg, ultrasound, etc.


> No problem!  LCA stands for Lebers Congenital Amourosis.  It's a genetic
> retinal disorder.
>
> Erin
>
> -----Original Message-----
> From: blparent-bounces at nfbnet.org [mailto:blparent-bounces at nfbnet.org] On
> Behalf Of sharon howerton
> Sent: Friday, August 12, 2011 4:24 PM
> To: NFBnet Blind Parents Mailing List
> Subject: Re: [blparent] update: preg, ultrasound, etc.
>
> Jan and Erin, pardon my ignorance, but what is LCA?
> Good luck to you new moms! I was so blessed to have babysitters who either
> picked my sons up at home or that I could take by walking a couple of 
> blocks
> to them and for school that was within walking distance. How many moms and
> young children I used to notice on my way to work on the busses! You 
> ladies
> have some long days, and you stay at home moms have my utmost admiration!
> Sharon
> ----- Original Message -----
> From: "Erin Rumer" <erinrumer at gmail.com>
> To: "'NFBnet Blind Parents Mailing List'" <blparent at nfbnet.org>
> Sent: Friday, August 12, 2011 6:13 PM
> Subject: Re: [blparent] update: preg, ultrasound, etc.
>
>
>> Jan, congrats on a healthy pregnancy.  I have LCA and got genetic
>> testing for myself for a study that is being done for RPE65 but this
>> was two years before I got pregnant with Dawson.  I did ask the
>> geneticist about my children out of curiosity and she literally told
>> me that if my baby was born with LCA then go get a lottery ticket
>> because that's how unlikely it was that my child be born with a visual
>> impairment.  It wouldn't have mattered to me either way and to be
>> honest I was more concerned about scoliosis since my sister has a bad
>> case of that and I've watched her go through a lot of physical pane.
>> Dawson is a carrier of LCA of course but we might not see someone with
>> active LCA in our family for generations.  It's all in God's hands and
>> he'll bless us no matter what.
>>
>> Take care of yourself.  Are you having any funny cravings right now?
>> The only strange thing that I couldn't get enough of while I was
>> pregnant was hard boiled eggs and peanut butter together.
>>
>> Erin
>>
>> -----Original Message-----
>> From: blparent-bounces at nfbnet.org [mailto:blparent-bounces at nfbnet.org]
>> On Behalf Of Veronica Smith
>> Sent: Friday, August 12, 2011 4:04 PM
>> To: 'NFBnet Blind Parents Mailing List'
>> Subject: Re: [blparent] update: preg, ultrasound, etc
>>
>> Jan, I am glad you and baby are doing well, Gab sat on the placenta
>> the entire pregnancy, thus my pregnancy was call privia.  I hope your
>> baby boy moves over and lets the placenta move over. V
>>
>> -----Original Message-----
>> From: blparent-bounces at nfbnet.org [mailto:blparent-bounces at nfbnet.org]
>> On Behalf Of jan wright
>> Sent: Friday, August 12, 2011 10:25 AM
>> To: blparent
>> Subject: [blparent] update: preg, ultrasound, etc
>>
>> Hi All,
>> Remember, I am 42, now and preg. The docs tried to get me to do
>> genetic testing  -- partly, probably because I am an older parent and
>> partly because DH and I are both blind.
>> mine is not genetic, but he and his sister both have   LCA.
>> I said "no."
>> they told me that an ultrasound would tell if there was any
>> abnormalities, just to prepare us. We would not have terminated, even
>> if there were, so we opted out of the not-so-accurate expensive tests.
>> Now,
>> I just had my ultrasound at 22wks today. the placenta is between me
>> and baby which is why I have not been feeling much movement -- which
>> made me worry for a while. i am carrying quite low which explains why
>> i still have to go to bathroom often, although research/books say that
>> my bladder should be feeling better from the first trimester.
>> It was very hard to see the face, the baby was laying in awkward
>> positions.
>> But, we did get some good skelital pics. And, the ultrasound tech said
>> that i did not need to worry about anything.
>> Of course, from a genetic standpoint, the worry was about Downs Syndrome.
>> My 80+ yo grandma wanted us to find out the sex because "bless her 
>> heart,"
>> she is making a baby blanket. This is her way of saying that she
>> accepts the baby -- and she has not done this for every baby in the
>> family. I think that this is also her way of saying that she accepts
>> my new husband.
>> (culture, religion and all).  But, I could be making too  much out of it.
>> Anyway, if my 80+yo grandma wants to know, then, against my
>> obstenance, I'll find out.
>> And, I did.
>> Let's just say, i have to start seriously looking for good boy
>> Pakistani first names that will go well with a good American middle name.
>>
>> the hunt is on.
>> and, i was so sure that it would be a girl.
>> (smile)
>> thanks for reading the long post.
>> Jan
>>
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