[blparent] update: preg, ultrasound, etc.
Erin Rumer
erinrumer at gmail.com
Fri Aug 12 23:29:00 UTC 2011
No problem! LCA stands for Lebers Congenital Amourosis. It's a genetic
retinal disorder.
Erin
-----Original Message-----
From: blparent-bounces at nfbnet.org [mailto:blparent-bounces at nfbnet.org] On
Behalf Of sharon howerton
Sent: Friday, August 12, 2011 4:24 PM
To: NFBnet Blind Parents Mailing List
Subject: Re: [blparent] update: preg, ultrasound, etc.
Jan and Erin, pardon my ignorance, but what is LCA?
Good luck to you new moms! I was so blessed to have babysitters who either
picked my sons up at home or that I could take by walking a couple of blocks
to them and for school that was within walking distance. How many moms and
young children I used to notice on my way to work on the busses! You ladies
have some long days, and you stay at home moms have my utmost admiration!
Sharon
----- Original Message -----
From: "Erin Rumer" <erinrumer at gmail.com>
To: "'NFBnet Blind Parents Mailing List'" <blparent at nfbnet.org>
Sent: Friday, August 12, 2011 6:13 PM
Subject: Re: [blparent] update: preg, ultrasound, etc.
> Jan, congrats on a healthy pregnancy. I have LCA and got genetic
> testing for myself for a study that is being done for RPE65 but this
> was two years before I got pregnant with Dawson. I did ask the
> geneticist about my children out of curiosity and she literally told
> me that if my baby was born with LCA then go get a lottery ticket
> because that's how unlikely it was that my child be born with a visual
> impairment. It wouldn't have mattered to me either way and to be
> honest I was more concerned about scoliosis since my sister has a bad
> case of that and I've watched her go through a lot of physical pane.
> Dawson is a carrier of LCA of course but we might not see someone with
> active LCA in our family for generations. It's all in God's hands and
> he'll bless us no matter what.
>
> Take care of yourself. Are you having any funny cravings right now?
> The only strange thing that I couldn't get enough of while I was
> pregnant was hard boiled eggs and peanut butter together.
>
> Erin
>
> -----Original Message-----
> From: blparent-bounces at nfbnet.org [mailto:blparent-bounces at nfbnet.org]
> On Behalf Of Veronica Smith
> Sent: Friday, August 12, 2011 4:04 PM
> To: 'NFBnet Blind Parents Mailing List'
> Subject: Re: [blparent] update: preg, ultrasound, etc
>
> Jan, I am glad you and baby are doing well, Gab sat on the placenta
> the entire pregnancy, thus my pregnancy was call privia. I hope your
> baby boy moves over and lets the placenta move over. V
>
> -----Original Message-----
> From: blparent-bounces at nfbnet.org [mailto:blparent-bounces at nfbnet.org]
> On Behalf Of jan wright
> Sent: Friday, August 12, 2011 10:25 AM
> To: blparent
> Subject: [blparent] update: preg, ultrasound, etc
>
> Hi All,
> Remember, I am 42, now and preg. The docs tried to get me to do
> genetic testing -- partly, probably because I am an older parent and
> partly because DH and I are both blind.
> mine is not genetic, but he and his sister both have LCA.
> I said "no."
> they told me that an ultrasound would tell if there was any
> abnormalities, just to prepare us. We would not have terminated, even
> if there were, so we opted out of the not-so-accurate expensive tests.
> Now,
> I just had my ultrasound at 22wks today. the placenta is between me
> and baby which is why I have not been feeling much movement -- which
> made me worry for a while. i am carrying quite low which explains why
> i still have to go to bathroom often, although research/books say that
> my bladder should be feeling better from the first trimester.
> It was very hard to see the face, the baby was laying in awkward
> positions.
> But, we did get some good skelital pics. And, the ultrasound tech said
> that i did not need to worry about anything.
> Of course, from a genetic standpoint, the worry was about Downs Syndrome.
> My 80+ yo grandma wanted us to find out the sex because "bless her heart,"
> she is making a baby blanket. This is her way of saying that she
> accepts the baby -- and she has not done this for every baby in the
> family. I think that this is also her way of saying that she accepts
> my new husband.
> (culture, religion and all). But, I could be making too much out of it.
> Anyway, if my 80+yo grandma wants to know, then, against my
> obstenance, I'll find out.
> And, I did.
> Let's just say, i have to start seriously looking for good boy
> Pakistani first names that will go well with a good American middle name.
>
> the hunt is on.
> and, i was so sure that it would be a girl.
> (smile)
> thanks for reading the long post.
> Jan
>
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