[blparent] update: preg, ultrasound, etc.

[Erin Rumer]

No problem!  LCA stands for Lebers Congenital Amourosis.  It's a genetic
retinal disorder.

Erin

-----Original Message-----
From: blparent-bounces at nfbnet.org [mailto:blparent-bounces at nfbnet.org] On
Behalf Of sharon howerton
Sent: Friday, August 12, 2011 4:24 PM
To: NFBnet Blind Parents Mailing List
Subject: Re: [blparent] update: preg, ultrasound, etc.

Jan and Erin, pardon my ignorance, but what is LCA?
Good luck to you new moms! I was so blessed to have babysitters who either
picked my sons up at home or that I could take by walking a couple of blocks
to them and for school that was within walking distance. How many moms and
young children I used to notice on my way to work on the busses! You ladies
have some long days, and you stay at home moms have my utmost admiration!
Sharon
----- Original Message -----
From: "Erin Rumer" <erinrumer at gmail.com>
To: "'NFBnet Blind Parents Mailing List'" <blparent at nfbnet.org>
Sent: Friday, August 12, 2011 6:13 PM
Subject: Re: [blparent] update: preg, ultrasound, etc.


> Jan, congrats on a healthy pregnancy.  I have LCA and got genetic 
> testing for myself for a study that is being done for RPE65 but this 
> was two years before I got pregnant with Dawson.  I did ask the 
> geneticist about my children out of curiosity and she literally told 
> me that if my baby was born with LCA then go get a lottery ticket 
> because that's how unlikely it was that my child be born with a visual 
> impairment.  It wouldn't have mattered to me either way and to be 
> honest I was more concerned about scoliosis since my sister has a bad 
> case of that and I've watched her go through a lot of physical pane.  
> Dawson is a carrier of LCA of course but we might not see someone with 
> active LCA in our family for generations.  It's all in God's hands and 
> he'll bless us no matter what.
>
> Take care of yourself.  Are you having any funny cravings right now?  
> The only strange thing that I couldn't get enough of while I was 
> pregnant was hard boiled eggs and peanut butter together.
>
> Erin
>
> -----Original Message-----
> From: blparent-bounces at nfbnet.org [mailto:blparent-bounces at nfbnet.org] 
> On Behalf Of Veronica Smith
> Sent: Friday, August 12, 2011 4:04 PM
> To: 'NFBnet Blind Parents Mailing List'
> Subject: Re: [blparent] update: preg, ultrasound, etc
>
> Jan, I am glad you and baby are doing well, Gab sat on the placenta 
> the entire pregnancy, thus my pregnancy was call privia.  I hope your 
> baby boy moves over and lets the placenta move over. V
>
> -----Original Message-----
> From: blparent-bounces at nfbnet.org [mailto:blparent-bounces at nfbnet.org] 
> On Behalf Of jan wright
> Sent: Friday, August 12, 2011 10:25 AM
> To: blparent
> Subject: [blparent] update: preg, ultrasound, etc
>
> Hi All,
> Remember, I am 42, now and preg. The docs tried to get me to do 
> genetic testing  -- partly, probably because I am an older parent and 
> partly because DH and I are both blind.
> mine is not genetic, but he and his sister both have   LCA.
> I said "no."
> they told me that an ultrasound would tell if there was any 
> abnormalities, just to prepare us. We would not have terminated, even 
> if there were, so we opted out of the not-so-accurate expensive tests.
> Now,
> I just had my ultrasound at 22wks today. the placenta is between me 
> and baby which is why I have not been feeling much movement -- which 
> made me worry for a while. i am carrying quite low which explains why 
> i still have to go to bathroom often, although research/books say that 
> my bladder should be feeling better from the first trimester.
> It was very hard to see the face, the baby was laying in awkward 
> positions.
> But, we did get some good skelital pics. And, the ultrasound tech said 
> that i did not need to worry about anything.
> Of course, from a genetic standpoint, the worry was about Downs Syndrome.
> My 80+ yo grandma wanted us to find out the sex because "bless her heart,"
> she is making a baby blanket. This is her way of saying that she 
> accepts the baby -- and she has not done this for every baby in the 
> family. I think that this is also her way of saying that she accepts 
> my new husband.
> (culture, religion and all).  But, I could be making too  much out of it.
> Anyway, if my 80+yo grandma wants to know, then, against my 
> obstenance, I'll find out.
> And, I did.
> Let's just say, i have to start seriously looking for good boy 
> Pakistani first names that will go well with a good American middle name.
>
> the hunt is on.
> and, i was so sure that it would be a girl.
> (smile)
> thanks for reading the long post.
> Jan
>
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