[blparent] Anyone Who Has a Child WithAutism?

[Rene Latorre]

Thank you Tatyana and jo Elizabeth for your replies. I will look into
the archives and see what I can find. Yes, it is very difficult and
it's frustrating to keep hearing from the professionals we are working
with that they've never had a blind parent of a child with autism
before. Surely, I cannot be the only one and with autism on the rise
like it is, I sure won't stay the only one if i am. My hope is that
one day I can be a blessing to others that may find themselves in the
same situation I am, but I need to figure this out for myself first.
There just has to be tips and techniques to be an effective blind
parent of a child with autism.
I wish you luck Jo Elizabeth as your stepson goes through the testing
process. It is a very broad spectrum and even if he does fall on it,
take comfort that there are a lot of support services out there and
many children are so mild that no one would even notice.

Thanks again...I appreciate the help.

Rene


On 8/13/12, Jo Elizabeth Pinto <jopinto at msn.com> wrote:
> There was a mom named Sarah who was on this list about three years ago.  She
>
> had two kids with autism.  You might search the archives for any relevant
> posts.  My stepson is getting tested for autism now, but if he has it, then
>
> it must be quite mild because he's verbal.  I wish I had more knowledge for
>
> you.  It must be difficult.
>
> Jo Elizabeth
>
> I am somehow less interested in the weight and convolutions of Einstein's
> brain than in the near certainty that people of equal talent have lived and
>
> died in cotton fields and sweatshops.--Stephen Jay Gould
> -----Original Message-----
> From: Tatyana
> Sent: Monday, August 13, 2012 5:07 PM
> To: Blind Parents Mailing List
> Subject: Re: [blparent] Anyone Who Has a Child WithAutism?
>
> Rene,
> I heard  that someone who's currently working in NFB head quarters
> previously worked with autistic kids as a teacher. She is blind, so I just
> thought you might subscribe to other lists as well. And I think there is a
> blind  educators list- teachers  might have  an information you  are
> looking
> for. Just my thoughts, sorry I don't have more practical help.
>
> Tatyana.
> ----- Original Message -----
> From: "Rene Latorre" <rlatorre4 at gmail.com>
> To: <blparent at nfbnet.org>
> Sent: Monday, August 13, 2012 4:12 PM
> Subject: [blparent] Anyone Who Has a Child WithAutism?
>
>
>> Hello All,
>>
>> I've been looking for resources regarding parenting blind a child with
>> autism. I haven't found a lot of help in this area. Although I can
>> find plenty of information on autism resources, I'm just not finding a
>> lot involving a blind parent and the unique challenges this brings.
>>
>> I'm a mom of four beautiful children ages 23, 21, 9 & 6. They are all
>> sighted and typically developing other than my youngest. He is sighted
>> but was diagnosed on the spectrum at the age of 2. At first, he seemed
>> to be mild, but now as he is getting older he has been moving more
>> towards classic autism. He goes to a 6-1-1 self contained classroom
>> for children with autism and has a one to one personal aid. He is
>> mostly nonverbal although he can say 1-3 word phrases when highly
>> motivated such as when he is requesting things that he wants.  He has
>> been receiving services (speech, OT, Special Ed) since diagnosis but
>> progress has been slow. I constantly search for resources from his
>> team of professionals but I often get limited responses when asking
>> questions that are specific to my blindness parenting issues.
>>
>> I'm mainly looking for others who may also happen to have any children
>> on the spectrum.  Over the years, I have developed many tips &
>> techniques in parenting my children, but everything seems to go out
>> the window when parenting my youngest. I struggle with knowing where
>> he is, getting him to come to me when I call for him, following
>> directions, etc. Also, he is bright and he has it all figured out that
>> I cannot see and he takes full advantage of that.
>>
>> If anyone in this group can offer any support and/or information, I
>> would be very appreciative. Thanks in advance.
>>
>> Rene
>>
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