[blparent] Anyone Who Has a Child With Autism?

Fri Aug 10 04:43:26 UTC 2012

Rene, none of my boys have autism, but they do all have nuralogical issues.
The oldest two have pretty sever ADD and many sensory issues that are
sometimes part of that and also sometimes part of an autism diagnoses. My
youngest does not have a specific diagnoses, but he exhibits many of the
behaviors and an accurate diagnoses is hindered by his hearing impairment
and lack of verbal skills. All of that is to say that while I may not have
autism specific answers, I may have similar problems that we can share
information about.

Jennifer
-----Original Message-----
From: blparent-bounces at nfbnet.org [mailto:blparent-bounces at nfbnet.org] On
Behalf Of Rene Latorre
Sent: Tuesday, August 14, 2012 7:29 AM
To: Blind Parents Mailing List
Subject: Re: [blparent] Anyone Who Has a Child WithAutism?

Thank you Tatyana and jo Elizabeth for your replies. I will look into
the archives and see what I can find. Yes, it is very difficult and
it's frustrating to keep hearing from the professionals we are working
with that they've never had a blind parent of a child with autism
before. Surely, I cannot be the only one and with autism on the rise
like it is, I sure won't stay the only one if i am. My hope is that
one day I can be a blessing to others that may find themselves in the
same situation I am, but I need to figure this out for myself first.
There just has to be tips and techniques to be an effective blind
parent of a child with autism.
I wish you luck Jo Elizabeth as your stepson goes through the testing
process. It is a very broad spectrum and even if he does fall on it,
take comfort that there are a lot of support services out there and
many children are so mild that no one would even notice.

Thanks again...I appreciate the help.

Rene

On 8/13/12, Jo Elizabeth Pinto <jopinto at msn.com> wrote:
> There was a mom named Sarah who was on this list about three years ago.
She
>
> had two kids with autism.  You might search the archives for any relevant
> posts.  My stepson is getting tested for autism now, but if he has it,
then
>
> it must be quite mild because he's verbal.  I wish I had more knowledge
for
>
> you.  It must be difficult.
>
> Jo Elizabeth
>
> I am somehow less interested in the weight and convolutions of Einstein's
> brain than in the near certainty that people of equal talent have lived
and
>
> died in cotton fields and sweatshops.--Stephen Jay Gould
> -----Original Message-----
> From: Tatyana
> Sent: Monday, August 13, 2012 5:07 PM
> To: Blind Parents Mailing List
> Subject: Re: [blparent] Anyone Who Has a Child WithAutism?
>
> Rene,
> I heard  that someone who's currently working in NFB head quarters
> previously worked with autistic kids as a teacher. She is blind, so I just
> thought you might subscribe to other lists as well. And I think there is a
> blind  educators list- teachers  might have  an information you  are
> looking
> for. Just my thoughts, sorry I don't have more practical help.
>
> Tatyana.
> ----- Original Message -----
> From: "Rene Latorre" <rlatorre4 at gmail.com>
> To: <blparent at nfbnet.org>
> Sent: Monday, August 13, 2012 4:12 PM
> Subject: [blparent] Anyone Who Has a Child WithAutism?
>
>
>> Hello All,
>>
>> I've been looking for resources regarding parenting blind a child with
>> autism. I haven't found a lot of help in this area. Although I can
>> find plenty of information on autism resources, I'm just not finding a
>> lot involving a blind parent and the unique challenges this brings.
>>
>> I'm a mom of four beautiful children ages 23, 21, 9 & 6. They are all
>> sighted and typically developing other than my youngest. He is sighted
>> but was diagnosed on the spectrum at the age of 2. At first, he seemed
>> to be mild, but now as he is getting older he has been moving more
>> towards classic autism. He goes to a 6-1-1 self contained classroom
>> for children with autism and has a one to one personal aid. He is
>> mostly nonverbal although he can say 1-3 word phrases when highly
>> motivated such as when he is requesting things that he wants.  He has
>> been receiving services (speech, OT, Special Ed) since diagnosis but
>> progress has been slow. I constantly search for resources from his
>> team of professionals but I often get limited responses when asking
>> questions that are specific to my blindness parenting issues.
>>
>> I'm mainly looking for others who may also happen to have any children
>> on the spectrum.  Over the years, I have developed many tips &
>> techniques in parenting my children, but everything seems to go out
>> the window when parenting my youngest. I struggle with knowing where
>> he is, getting him to come to me when I call for him, following
>> directions, etc. Also, he is bright and he has it all figured out that
>> I cannot see and he takes full advantage of that.
>>
>> If anyone in this group can offer any support and/or information, I
>> would be very appreciative. Thanks in advance.
>>
>> Rene
>>
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