[blparent] using an S.N.S. when blind

Angie Matney angie.matney at gmail.com
Thu May 24 00:22:21 UTC 2012


Well, even if they had, it wouldn't have made a difference, since the issue 
involved getting the tube and my nipple into his mouth, and that part of an 
SNS would have been the same.

Angie


----- Original Message ----- 
From: "Erin Rumer" <erinrumer at gmail.com>
To: "'Blind Parents Mailing List'" <blparent at nfbnet.org>
Sent: Wednesday, May 23, 2012 7:51 PM
Subject: Re: [blparent] using an S.N.S. when blind


> Wow, that does sound frustrating.  I surprised the lactation nurses from 
> the
> hospital didn't hook you up with a real SNS.  Thanks for sharing your
> experience.
>
> Erin
>
> -----Original Message-----
> From: blparent-bounces at nfbnet.org [mailto:blparent-bounces at nfbnet.org] On
> Behalf Of Angie Matney
> Sent: Wednesday, May 23, 2012 5:56 AM
> To: Blind Parents Mailing List
> Subject: Re: [blparent] using an S.N.S. when blind
>
> Hi Erin,
>
> We used a "homemade" SNS, involving a syringe and tubing. It really was
> extremely frustrating, and I maybe used it twice before transitioning (for 
> a
> while) to exclusive pumping. I'm not saying I wouldn't try it again, but 
> it
> really was impractical. I don't know how much of this had to do with
> blindness vs. the shape of my breasts and Jacob's latch. I found the
> difficulty to be orders of magnitude higher than I would have expected 
> based
> on both the description of what needed to be done and the lactation
> consultants' success in helping us use it the first time. Even with help
> from my mother and sister, I struggled.
>
> Of course, your mileage may vary.
>
> Angie
>
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