[blparent] update on our lives.

Jo Elizabeth Pinto jopinto at msn.com
Thu Jan 31 19:21:21 UTC 2013


Don't start that again.  Just don't.  I'm working right now, proofreading a 
novel for a braille production house out of Philadelphia.  You have no way 
to know what I do or don't do, so keep your remarks about my personal life 
to yourself, please.

Jo Elizabeth

Truth is tough. It will not break, like a bubble, at a touch; nay, you may 
kick it about all day like a football, and it will be round and full at 
evening.--Oliver Wendell Holmes, Sr.
-----Original Message----- 
From: Gabe Vega
Sent: Thursday, January 31, 2013 12:17 PM
To: Blind Parents Mailing List
Subject: Re: [blparent] update on our lives.

now lets be honest here dear, you don't work.
Gabe Vega
CEO
Commtech LLC
Web: http://commtechusa.net
FaceBook: http://facebook.com/commtechllc
Twitter: http://twitter.com/commtechllc
Email: info at commtechusa.net
Phone: (623) 565-9357

On Jan 31, 2013, at 12:13 PM, "Jo Elizabeth Pinto" <jopinto at msn.com> wrote:

> Of course not.  That's a stupid comment.  I work and raise my daughter, 
> I've changed plenty of nasty diapers and cleaned up my body weight in 
> barf. Shannon never said she denied her son anything.  She just said it 
> was unsavory, which I'm sure it is.  Most people will deal with body 
> fluids and solids as they have to, but I don't know anybody who likes it. 
> And you can't say she's complained about every little thing when she 
> hasn't even posted for eons.
>
> Jo Elizabeth
>
> Truth is tough. It will not break, like a bubble, at a touch; nay, you may 
> kick it about all day like a football, and it will be round and full at 
> evening.--Oliver Wendell Holmes, Sr.
> -----Original Message----- From: Gabe Vega
> Sent: Thursday, January 31, 2013 11:58 AM
> To: Blind Parents Mailing List
> Subject: Re: [blparent] update on our lives.
>
> not it at all. its just that those of us who live life, while working and 
> raising our kids, some times even as a single parent. don't sit here and 
> complain about the littlest things. there is nothing wrong with changing 
> your own kids no matter how big they get. 2 months or 4 years. if they 
> need changing and they can't do it themselves, who are we as parents to 
> deny them the help? so if your daughter/son, threw up all over you when 
> they had the flue, would you get mad at them? make them clean up their own 
> Barf?
> Gabe Vega
> CEO
> Commtech LLC
> Web: http://commtechusa.net
> FaceBook: http://facebook.com/commtechllc
> Twitter: http://twitter.com/commtechllc
> Email: info at commtechusa.net
> Phone: (623) 565-9357
>
> On Jan 31, 2013, at 11:35 AM, "Dianna Alley" <dianna24 at earthlink.net> 
> wrote:
>
>> Well it is disgusting I mean we love our kids but as they get older it 
>> gets harder to change and nastier that does not mean she has an issue 
>> with her child or his body.  He should be trained by now accept for maybe 
>> an accident or two.  I think some of you all just like to find issue with 
>> people.
>> ----- Original Message ----- From: "Gabe Vega" <theblindtech at gmail.com>
>> To: "Blind Parents Mailing List" <blparent at nfbnet.org>
>> Sent: Thursday, January 31, 2013 12:19 PM
>> Subject: Re: [blparent] update on our lives.
>>
>>
>>> I'll be honest, I kind of scratched my head in wonder about that 
>>> statement as well, about her not liking changing her son. yes, I 
>>> understand he's big, and yes I understand the potential underlining 
>>> issues, but, just weird to here a mother say that. thats all.
>>> Gabe Vega
>>> CEO
>>> Commtech LLC
>>> Web: http://commtechusa.net
>>> FaceBook: http://facebook.com/commtechllc
>>> Twitter: http://twitter.com/commtechllc
>>> Email: info at commtechusa.net
>>> Phone: (623) 565-9357
>>>
>>> On Jan 31, 2013, at 8:09 AM, "Pickrell, Rebecca M (TASC)" 
>>> <REBECCA.PICKRELL at tasc.com> wrote:
>>>
>>>> Shannon,
>>>> I'm concerned when you say you are disgusted by your son's diapers. 
>>>> You're his mother and of all people his body shouldn't disgust you.
>>>> I get that you wish he'd be potty trained already.  I get that he's 
>>>> probably produced some nasty poops. What I don't get is continual 
>>>> disgust. I would understand if you said "Wow that diaper sure was 
>>>> gross" or "that poop should go into the toxic waste disposal system" 
>>>> but not continual disgust.
>>>>
>>>> I'm wondering if some of your disgust is due to other issues, or if you 
>>>> haven't learned techniques to deal with his diapers effectively.  You 
>>>> say your vision is very limited. I'm wondering if you thought "My kid 
>>>> will be out of diapers, I don't need to even think about how to change 
>>>> a diaper and not see while I do it".
>>>> You have many other issues in your post. Your sitter needs to go if 
>>>> she's not behaving appropriately. Don't excuse her behavior.  Your son 
>>>> will learn boundaries, though his boundaries may not be boundaries you 
>>>> like. That's ok, he's his own person. Convey to him that he can always 
>>>> tell somebody to stop what they are doing, and that you will always 
>>>> have his back.   You won't convey this if you view his body as a 
>>>> disgusting thing that you shouldn't have to deal with.
>>>>
>>>> -----Original Message-----
>>>> From: blparent [mailto:blparent-bounces at nfbnet.org] On Behalf Of 
>>>> Jennifer Jackson
>>>> Sent: Wednesday, January 30, 2013 12:10 AM
>>>> To: 'Blind Parents Mailing List'
>>>> Subject: Re: [blparent] update on our lives.
>>>>
>>>> I think it is time to get a doctor involved. The toileting thing by 
>>>> itself
>>>> should be addressed because something is wrong. You can not move 
>>>> forward
>>>> with any kind of training or addressing it from an emotional or
>>>> psychological stand point until you rule out some kind of physical 
>>>> problem.
>>>>
>>>> Please also talk to your doctor about getting a developmental 
>>>> evaluation for
>>>> your son. I know my youngest son's audiologist has been using the 
>>>> blocks in
>>>> the bucket with his testing since he was about two. I do not want to 
>>>> worry
>>>> you, but you should move forward on this right away. Developmental 
>>>> problems
>>>> are most easy to address with younger children.
>>>>
>>>> I do have a thought on making living with the current toileting 
>>>> situation
>>>> easier to live with though. Perhaps you could routinely spend some time 
>>>> with
>>>> him just sitting on the toilet several times a day. Maybe singing or
>>>> listening to music to entertain him? If he goes in the toilet that is 
>>>> an
>>>> extra blessing because it is one less mess for someone else to clean 
>>>> up. A
>>>> little time learning to relax on the toilet may also encourage him to
>>>> physically relax and be able to go. My thought is that whatever the 
>>>> problem
>>>> is that is keeping him from becoming trained, this kind of routine will 
>>>> aid
>>>> the situation. If you know what time he normally goes in his pull up 
>>>> then
>>>> try to do this around that same time with the idea of perhaps 
>>>> preventing
>>>> having to clean it yourself.
>>>>
>>>>
>>>> Jennifer
>>>>
>>>> -----Original Message-----
>>>> From: blparent [mailto:blparent-bounces at nfbnet.org] On Behalf Of 
>>>> Shannan
>>>> Zinck
>>>> Sent: Wednesday, January 30, 2013 5:50 PM
>>>> To: blparent at nfbnet.org
>>>> Subject: [blparent] update on our lives.
>>>>
>>>> Hi all, it's been a long time. due to the condition with my eye (which 
>>>> is
>>>> still ongoing) I have had to really limit my computer time as I use 
>>>> large
>>>> print and not screen readers though if this goes on much longer I may 
>>>> have
>>>> to consider that possibility just to keep in touch. Anyway a couple
>>>> questions.
>>>>
>>>> I'm wondering if anyone has struggled with a much older child with 
>>>> potty
>>>> training. Myles just turned 4 yesterday and is still not trained. We
>>>> thought originally that he might just be stubborn but, now I'm not so 
>>>> sure.
>>>> Though he is strong willed he does listen pretty good to us. He can be
>>>> playing along like nothing is happening and all of a sudden he'll tell 
>>>> me
>>>> he peed but, that's only when his pullup is full and I mean leaking and
>>>> running down his leg full. He can have several pees and not even notice 
>>>> and
>>>> same with BM's he doesn't stop for those either. He knows how to use 
>>>> the
>>>> toilet and even goes in by himself quite often but, really it's hit and
>>>> miss even with a half hourly schedule. He says he can't tell if he 
>>>> needs to
>>>> go or not and up until today I didn't believe him but, When he lies he
>>>> changes his story constantly so he's easy to catch. He maintains the 
>>>> same
>>>> story when it comes to knowing when he needs to go or not and say he
>>>> doesn't know. I never know when he's going in his pants and he is a 
>>>> major
>>>> people person so is in my space all the time so he is rarely in a 
>>>> different
>>>> room then either his father or myself. We've been working on potty 
>>>> training
>>>> for over 2 years now and recently even have been making him change his 
>>>> own
>>>> pullup when wet. We thought this tactic would encourage him to try 
>>>> harder
>>>> but no dice. # 2  he has never tried on the toilet and no future 
>>>> prospect
>>>> is in sight for that. I'm beginning to get quite concerned given his 
>>>> age. I
>>>> know physically he is a bit behind due to the drugs in his system at 
>>>> birth
>>>> but, not enough to cause concern. He always catches up. However at his 
>>>> age
>>>> we are getting to the place where babysitters are pretty much 
>>>> impossible to
>>>> get because he is huge to begin with and no one wants to change a kid 
>>>> that
>>>> age and size. He's 4 like I said and is over 3 feet tall weighing well 
>>>> over
>>>> 40lbs. I can't stand changing him and I'm his mom so I can just imagine 
>>>> how
>>>> a sitter would feel. When there is a medical issue it's easy to explain 
>>>> it
>>>> but, when there's such a gray area to what could be wrong it's not so
>>>> simple. I'm just plain discouraged and confused. I'm wondering if it's 
>>>> time
>>>> to get a doctor involved or just wait it out and see if the slow
>>>> development is the problem. I'd hate to push the issue only to find out
>>>> later that there was something wrong but, if it's just laziness on his 
>>>> part
>>>> fd hat to let it go. He can't even get involved in group activities yet
>>>> because he's not trained, it's down right embarrassing. You know it's 
>>>> funny
>>>> that before I had kids of my own I swore I'd never have a child who 
>>>> wasn't
>>>> trained by the time they were 2 and now look at us. For all the parents 
>>>> who
>>>> struggle with or have struggled with this issue I apologize whole
>>>> heartedly. I realize now that you can't choose what life will bring you 
>>>> all
>>>> you can do is work through it. Part of this is because with my eye 
>>>> problems
>>>> as bad as they have been we decided for a short while to let training 
>>>> go
>>>> because I am so limited in what I can do right now but, that lovely 
>>>> issue
>>>> has been going on so long almost 2 years now that we can no longer just
>>>> leave it alone. This past year has been a strange one for sure.
>>>> Also today we discovered that he seems to struggle with putting 2 and 2
>>>> together. figuring out simple concepts so we wonder if that has 
>>>> something
>>>> to do with potty training as well. We took him for a hearing test and 
>>>> he
>>>> can hear fine however when asked to put blocks into a bucket whenever 
>>>> he
>>>> heard a beep he couldn't do it for some reason. he wanted to and when I 
>>>> did
>>>> it with him he did it fine but, when doing it himself he couldn't. When 
>>>> the
>>>> doc asked him if he heard the beeps he said yes but, the blocks never 
>>>> went
>>>> into the bucket. He knew he had to put them in the bucket and he knew 
>>>> he
>>>> could hear the sounds but, he couldn't put the 2 things together unless
>>>> some one was doing it with him which isn't a true test since he was 
>>>> copying
>>>> me. Now he has to go back again in a few months. I would have thought 
>>>> at
>>>> his age he'd have been able to figure out how the do this. I'm 
>>>> wondering
>>>> what kids at his age should know how to do. average kids that is. It's 
>>>> been
>>>> a long few months though I finally have a follow up appointment for my 
>>>> eye
>>>> and am hoping they will finally tell me when they will get around to
>>>> removing it. About the babysitter thing also I'm concerned about 
>>>> privacy.
>>>> He is older now and though he is not trained I not so sure about how
>>>> comfortable I am with babysitters changing him. Maybe I'm being 
>>>> paranoid
>>>> but, he is my son and I want to protect him. We are very careful about 
>>>> who
>>>> babysits but, some people have different boundaries then others He's
>>>> getting to an age where he needs to understand boundaries and that hard 
>>>> to
>>>> do when everyone who looks after him has to change his butt. One of the
>>>> only sitters we have due to his age that is willing does things that 
>>>> make
>>>> me uncomfortable. She isn't intentionally doing wrong things and 
>>>> nothing
>>>> alarming just concerning like the way she tickles him and things like 
>>>> that.
>>>> She has little concept of proper boundaries and I'm not sure how to 
>>>> deal
>>>> with this. She's the only sitter I've got yet I'm not so sure she's 
>>>> good
>>>> for him. Don't get me wrong she not molesting him or anything like that
>>>> she's too childlike herself for that but, she is too touchy feely and
>>>> clingy for my liking. Just so you are aware I'm a VERY private person
>>>> overly so, so some of this could be my own paranoia as well but, I'm 
>>>> having
>>>> a hard time discerning this situation. I'm not willing to have my son 
>>>> put
>>>> in harms way so I am really stomped on what to do here. I've expressed 
>>>> this
>>>> to my husband and he isn't sure what to do either. She is 23 but, seems 
>>>> to
>>>> act like a 14 year old. not very mature at all. any ideas sorry for the
>>>> book it's been a while. I'll try to keep in touch better.
>>>>
>>>>
>>>> --
>>>> Shannan Zinck
>>>> Survival is letting GOD take over!!!
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