[blParent] BlParent Digest, Vol 243, Issue 1

Fri Dec 6 14:12:21 UTC 2024

Clayton,
 I couldn’t agree more with your email and frustrations. Pharmaceutical
companies and pharmacists shouldn’t assume we aren’t on our own. I am a
single Mom of an early elementary aged boy and do not have another adult in
the home with me on a daily basis for the basics of running the household.
I do it on my own with the exception of my folks help me get to
appointments and all with him. I found this also true for services that
transport to appointments, it’s very stressful at times finding rides and
all that for myself and my son. I’m in PA and many won’t allow him to
travel with me. It makes life that more isolating and or stressful finding
alternatives and Uber/Lyft are very expensive where I am so that option I
save for emergencies only. There’s a lot that could be accomplished if
people would take time to put themselves in our shoes, as many of us, if
not all had no control on how vision loss even happened and showed
compassion and empathy. I think we’d see a much more connected and loving
world.  I’ve been in places where I was made to feel guilty for even having
a child- it’s not cool!  For me my eyesight loss started after my child was
born, but even so, I’d still have wanted to have him and believe anyone
should be able to have children if and when they want to. Disability does
not prevent us from living or growing a family. Shame on those that make it
hard in any way possible. All the best.
Your fellow blind parent of a child,
Christina

On Fri, Dec 6, 2024 at 8:07 AM Esoteric Quality via BlParent <
blparent at nfbnet.org> wrote:

> As a blind parent who has had to measure out liquid medications via a
> syringe, I am beyond frustrated with the approach taken here. For one, we
> don't need another piece of adaptive equipment to make something accessible
> that the pharmaceutical companies should already be doing. For us. It is
> very easy to put tactile markings into a syringe but with the correct
> dosages. However, the pharmaceutical companies, who are very well aware of
> what the issues are when it comes to measuring. Medications, have refused
> to make this possible accessible to us as blind parents. To add insult to
> injury, when I request. Pharmacies to put tactile markings into the
> syringes, I am often met with. Don't you have someone who can see at home
> who can do this for you? When we have. Tactile measuring devices already.
> That can measure. The volume of something, it isn't that hard. To implement
> those same techniques into a syringe. This is more high-tech than what is
> needed and. I'm sure it will also have quite the price tag. Again, this is
> something that the national federation of the Blind should be doing and if
> necessary should be suing all of the pharmaceutical companies to require
> this.
>
> Clayton Jacobs
>
> On Fri, Dec 6, 2024, 5:00 AM <blparent-request at nfbnet.org> wrote:
>
> > Send BlParent mailing list submissions to
> >         blparent at nfbnet.org
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> >         http://nfbnet.org/mailman/listinfo/blparent_nfbnet.org
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> >
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> >
> > When replying, please edit your Subject line so it is more specific
> > than "Re: Contents of BlParent digest..."
> >
> >
> > Today's Topics:
> >
> >    1. Latest Future Reflections (dandrews920 at comcast.net)
> >    2. Fwd: See-Rynge Information (Stacie Leap)
> >    3. Re: Fwd: See-Rynge Information (Judy Jones)
> >    4. Re: Fwd: See-Rynge Information (Judy Jones)
> >
> >
> > ----------------------------------------------------------------------
> >
> > Message: 1
> > Date: Thu, 5 Dec 2024 12:13:23 -0600
> > From: <dandrews920 at comcast.net>
> > To: <nobe-l at nfbnet.org>, "'Blind Parents Mailing List'"
> >         <blparent at nfbnet.org>, <pibe-division at nfbnet.org>,
> >         <mn-parents at nfbnet.org>, <rehab at nfbnet.org>
> > Subject: [blParent] Latest Future Reflections
> > Message-ID: <000f01db4741$6d4e0e80$47ea2b80$@comcast.net>
> > Content-Type: text/plain;       charset="us-ascii"
> >
> >
> >
> > The convention issue of Future Reflections is now available online. This
> > issue includes highlights from the NOPBC conference, presentations from
> > General Sessions, impressions of first-time convention attendees, and
> much
> > more, including a talk given by our own Denise Avant at the NOPBC board
> > meeting. You can find the convention issue at
> > https://nfb.org/images/nfb/publications/fr/fr43/4/fr4304.htm. Enjoy!
> >
> >
> >
> > Debbie S.
> >
> >
> >
> >
> >
> >
> >
> > --
> > This email has been checked for viruses by Avast antivirus software.
> > www.avast.com
> > _______________________________________________
> >
> >
> >
> >
> > ------------------------------
> >
> > Message: 2
> > Date: Fri, 6 Dec 2024 04:51:49 -0500
> > From: Stacie Leap <stacie.leap at gmail.com>
> > To: undisclosed-recipients:;
> > Subject: [blParent] Fwd: See-Rynge Information
> > Message-ID:
> >         <
> > CAERE8Vb+hfgSAV4S-zHe6e0SOA15ebRPHaLZ_0J2RiMdfEzD4g at mail.gmail.com>
> > Content-Type: text/plain; charset="UTF-8"
> >
> > Hello everybody:
> >
> > Please see below a forwarded email concerning how blind parents can
> measure
> > liquid medications for their children.  Chiadika presented her possible
> > medical device at our 2024 NFB of PA state convention. Please connect
> with
> > her if you need more information.
> >
> > Thanks,
> > Stacie
> >
> > *Stacie Leap*
> > stacie.leap at gmail.com | 215.776.6741
> >
> >
> > ---------- Forwarded message ---------
> > From: See-Rynge Team <seerynge at gmail.com>
> > Date: Fri, Nov 8, 2024 at 12:29?PM
> > Subject: See-Rynge Information
> > To: Stacie Leap <stacie.leap at gmail.com>
> >
> >
> > Hello Stacy,
> >
> > This is Chiadika from See-Rynge. So sorry for missing today's meeting
> but I
> > would love it if you could share this short blurb with your constituents.
> >
> > "Accurate liquid measurement can be a significant challenge for the blind
> > and low-vision community, particularly for blind parents who need to dose
> > their infants with liquid medication. In response to this issue, two
> > bioengineering alumni from the University of Pennsylvania are developing
> a
> > liquid measurement device designed specifically for individuals with low
> > vision. The device features automated liquid extraction, audio feedback,
> > tactile buttons, and an accessible mobile app, all aimed at reintroducing
> > independence in the liquid measurement process. Although originally
> > designed with medication dosing in mind, this device has significant
> > potential for use in various careers, home activities, and for other
> > disability groups.
> >
> > If you are interested in this device, please indicate your interest
> through
> > their form here
> > <
> >
> https://docs.google.com/forms/d/e/1FAIpQLSenl3O15QQKmQMhU7Us-Gbm9OQ_UZ6kX-HW-p7LP6GqoSguGA/viewform?usp=send_form
> > >
> >  (
> >
> >
> https://docs.google.com/forms/d/e/1FAIpQLSenl3O15QQKmQMhU7Us-Gbm9OQ_UZ6kX-HW-p7LP6GqoSguGA/viewform?usp=send_form
> > ),
> > and find more information on their website here
> > <https://seerynge.wixsite.com/seerynge> (
> > https://seerynge.wixsite.com/seerynge). For any questions or feedback,
> > feel
> > free to contact them at seerynge at gmail.com."
> >
> > Best,
> >
> > Chiadika
> >
> >
> > ------------------------------
> >
> > Message: 3
> > Date: Fri, 6 Dec 2024 03:04:17 -0800 (PST)
> > From: Judy Jones <sonshines59 at gmail.com>
> > To: blparent at nfbnet.org
> > Subject: Re: [blParent] Fwd: See-Rynge Information
> > Message-ID: <212260374.0.1733483054653 at localhost>
> > Content-Type: text/plain;charset=utf-8
> >
> > Hi, Stacie,
> >
> > Do most blind parents know about the low-tech solution of having the
> > syringe notched by someone at the correct dose level?
> >
> > You bring up the plunger, filling the syringe a bit past the notch made
> in
> > the shaft, then slowly lowering the plunger back down to the notch,
> making
> > the dosage exact with no air bubbles..
> >
> >
> >
> > Judy
> > sent from the Selvas braille Android tablet
> >
> > ----- Original Message -----
> > From: Stacie Leap via BlParent <blparent at nfbnet.org>
> > Date: Friday, December 06, 2024 02:01 AM
> > To:
> > CC: Stacie Leap <stacie.leap at gmail.com>
> > BCC: BlParent at nfbnet.org
> > Subject: [blParent] Fwd: See-Rynge Information
> >
> > Hello everybody:
> > Please see below a forwarded email concerning how blind parents can
> measure
> > liquid medications for their children.  Chiadika presented her possible
> > medical device at our 2024 NFB of PA state convention. Please connect
> with
> > her if you need more information.
> > Thanks,
> > Stacie
> > *Stacie Leap*
> > stacie.leap at gmail.com | 215.776.6741
> >
> > ---------- Forwarded message ---------
> > From: See-Rynge Team <seerynge at gmail.com>
> > Date: Fri, Nov 8, 2024 at 12:29?PM
> > Subject: See-Rynge Information
> > To: Stacie Leap <stacie.leap at gmail.com>
> >
> > Hello Stacy,
> > This is Chiadika from See-Rynge. So sorry for missing today's meeting
> but I
> > would love it if you could share this short blurb with your constituents.
> > "Accurate liquid measurement can be a significant challenge for the blind
> > and low-vision community, particularly for blind parents who need to dose
> > their infants with liquid medication. In response to this issue, two
> > bioengineering alumni from the University of Pennsylvania are developing
> a
> > liquid measurement device designed specifically for individuals with low
> > vision. The device features automated liquid extraction, audio feedback,
> > tactile buttons, and an accessible mobile app, all aimed at reintroducing
> > independence in the liquid measurement process. Although originally
> > designed with medication dosing in mind, this device has significant
> > potential for use in various careers, home activities, and for other
> > disability groups.
> > If you are interested in this device, please indicate your interest
> through
> > their form here
> > <
> >
> https://docs.google.com/forms/d/e/1FAIpQLSenl3O15QQKmQMhU7Us-Gbm9OQ_UZ6kX-HW-p7LP6GqoSguGA/viewform?usp=send_form
> > >
> >  (
> >
> >
> https://docs.google.com/forms/d/e/1FAIpQLSenl3O15QQKmQMhU7Us-Gbm9OQ_UZ6kX-HW-p7LP6GqoSguGA/viewform?usp=send_form
> > ),
> > and find more information on their website here
> > <https://seerynge.wixsite.com/seerynge> (
> > https://seerynge.wixsite.com/seerynge). For any questions or feedback,
> > feel
> > free to contact them at seerynge at gmail.com."
> > Best,
> > Chiadika
> > _______________________________________________
> > BlParent mailing list
> > BlParent at nfbnet.org
> > http://nfbnet.org/mailman/listinfo/blparent_nfbnet.org
> > To unsubscribe, change your list options or get your account info for
> > BlParent:
> >
> >
> http://nfbnet.org/mailman/options/blparent_nfbnet.org/sonshines59%40gmail.com
> >
> >
> >
> > ------------------------------
> >
> > Message: 4
> > Date: Fri, 6 Dec 2024 03:04:17 -0800 (PST)
> > From: Judy Jones <sonshines59 at gmail.com>
> > To: blparent at nfbnet.org
> > Subject: Re: [blParent] Fwd: See-Rynge Information
> > Message-ID: <212260374.0.1733483054653 at localhost>
> > Content-Type: text/plain;charset=utf-8
> >
> > Hi, Stacie,
> >
> > Do most blind parents know about the low-tech solution of having the
> > syringe notched by someone at the correct dose level?
> >
> > You bring up the plunger, filling the syringe a bit past the notch made
> in
> > the shaft, then slowly lowering the plunger back down to the notch,
> making
> > the dosage exact with no air bubbles..
> >
> >
> >
> > Judy
> > sent from the Selvas braille Android tablet
> >
> > ----- Original Message -----
> > From: Stacie Leap via BlParent <blparent at nfbnet.org>
> > Date: Friday, December 06, 2024 02:01 AM
> > To:
> > CC: Stacie Leap <stacie.leap at gmail.com>
> > BCC: BlParent at nfbnet.org
> > Subject: [blParent] Fwd: See-Rynge Information
> >
> > Hello everybody:
> > Please see below a forwarded email concerning how blind parents can
> measure
> > liquid medications for their children.  Chiadika presented her possible
> > medical device at our 2024 NFB of PA state convention. Please connect
> with
> > her if you need more information.
> > Thanks,
> > Stacie
> > *Stacie Leap*
> > stacie.leap at gmail.com | 215.776.6741
> >
> > ---------- Forwarded message ---------
> > From: See-Rynge Team <seerynge at gmail.com>
> > Date: Fri, Nov 8, 2024 at 12:29?PM
> > Subject: See-Rynge Information
> > To: Stacie Leap <stacie.leap at gmail.com>
> >
> > Hello Stacy,
> > This is Chiadika from See-Rynge. So sorry for missing today's meeting
> but I
> > would love it if you could share this short blurb with your constituents.
> > "Accurate liquid measurement can be a significant challenge for the blind
> > and low-vision community, particularly for blind parents who need to dose
> > their infants with liquid medication. In response to this issue, two
> > bioengineering alumni from the University of Pennsylvania are developing
> a
> > liquid measurement device designed specifically for individuals with low
> > vision. The device features automated liquid extraction, audio feedback,
> > tactile buttons, and an accessible mobile app, all aimed at reintroducing
> > independence in the liquid measurement process. Although originally
> > designed with medication dosing in mind, this device has significant
> > potential for use in various careers, home activities, and for other
> > disability groups.
> > If you are interested in this device, please indicate your interest
> through
> > their form here
> > <
> >
> https://docs.google.com/forms/d/e/1FAIpQLSenl3O15QQKmQMhU7Us-Gbm9OQ_UZ6kX-HW-p7LP6GqoSguGA/viewform?usp=send_form
> > >
> >  (
> >
> >
> https://docs.google.com/forms/d/e/1FAIpQLSenl3O15QQKmQMhU7Us-Gbm9OQ_UZ6kX-HW-p7LP6GqoSguGA/viewform?usp=send_form
> > ),
> > and find more information on their website here
> > <https://seerynge.wixsite.com/seerynge> (
> > https://seerynge.wixsite.com/seerynge). For any questions or feedback,
> > feel
> > free to contact them at seerynge at gmail.com."
> > Best,
> > Chiadika
> > _______________________________________________
> > BlParent mailing list
> > BlParent at nfbnet.org
> > http://nfbnet.org/mailman/listinfo/blparent_nfbnet.org
> > To unsubscribe, change your list options or get your account info for
> > BlParent:
> >
> >
> http://nfbnet.org/mailman/options/blparent_nfbnet.org/sonshines59%40gmail.com
> >
> >
> >
> > ------------------------------
> >
> > Subject: Digest Footer
> >
> > _______________________________________________
> > BlParent mailing list
> > BlParent at nfbnet.org
> > http://nfbnet.org/mailman/listinfo/blparent_nfbnet.org
> >
> >
> > ------------------------------
> >
> > End of BlParent Digest, Vol 243, Issue 1
> > ****************************************
> >
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