[blParent] BlParent Digest, Vol 243, Issue 1

Judy Jones sonshines59 at gmail.com
Fri Dec 6 18:52:29 UTC 2024 

Hi, Clayton,

In raising our kids, whenever well-meaning people asked if we didn't have sighted help, I told them, "I have a better idea, is very easy," and would put them to work making a notch or scratch in the plunger at the right point.  They actually became excited about such a simple idea, and the way I look at it, I educated one more person, made a friend, and planted a seed.

I've had help from doctors, nurses, pharmacy personnel, and all with very positive results that would allow me to let them know there are so many common-sense ways that can be used without sight.

Judy

“Embrace each day with His mercies and blessings.”

-----Original Message-----
From: BlParent <blparent-bounces at nfbnet.org> On Behalf Of Esoteric Quality via BlParent
Sent: Friday, December 6, 2024 5:06 AM
To: blparent at nfbnet.org
Cc: Esoteric Quality <eqmusicofficial at gmail.com>
Subject: Re: [blParent] BlParent Digest, Vol 243, Issue 1

As a blind parent who has had to measure out liquid medications via a
syringe, I am beyond frustrated with the approach taken here. For one, we
don't need another piece of adaptive equipment to make something accessible
that the pharmaceutical companies should already be doing. For us. It is
very easy to put tactile markings into a syringe but with the correct
dosages. However, the pharmaceutical companies, who are very well aware of
what the issues are when it comes to measuring. Medications, have refused
to make this possible accessible to us as blind parents. To add insult to
injury, when I request. Pharmacies to put tactile markings into the
syringes, I am often met with. Don't you have someone who can see at home
who can do this for you? When we have. Tactile measuring devices already.
That can measure. The volume of something, it isn't that hard. To implement
those same techniques into a syringe. This is more high-tech than what is
needed and. I'm sure it will also have quite the price tag. Again, this is
something that the national federation of the Blind should be doing and if
necessary should be suing all of the pharmaceutical companies to require
this.

Clayton Jacobs

On Fri, Dec 6, 2024, 5:00 AM <blparent-request at nfbnet.org> wrote:

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>    1. Latest Future Reflections (dandrews920 at comcast.net)
>    2. Fwd: See-Rynge Information (Stacie Leap)
>    3. Re: Fwd: See-Rynge Information (Judy Jones)
>    4. Re: Fwd: See-Rynge Information (Judy Jones)
>
>
> ----------------------------------------------------------------------
>
> Message: 1
> Date: Thu, 5 Dec 2024 12:13:23 -0600
> From: <dandrews920 at comcast.net>
> To: <nobe-l at nfbnet.org>, "'Blind Parents Mailing List'"
>         <blparent at nfbnet.org>, <pibe-division at nfbnet.org>,
>         <mn-parents at nfbnet.org>, <rehab at nfbnet.org>
> Subject: [blParent] Latest Future Reflections
> Message-ID: <000f01db4741$6d4e0e80$47ea2b80$@comcast.net>
> Content-Type: text/plain;       charset="us-ascii"
>
>
>
> The convention issue of Future Reflections is now available online. This
> issue includes highlights from the NOPBC conference, presentations from
> General Sessions, impressions of first-time convention attendees, and much
> more, including a talk given by our own Denise Avant at the NOPBC board
> meeting. You can find the convention issue at
> https://nfb.org/images/nfb/publications/fr/fr43/4/fr4304.htm. Enjoy!
>
>
>
> Debbie S.
>
>
>
>
>
>
>
> --
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> _______________________________________________
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>
>
>
> ------------------------------
>
> Message: 2
> Date: Fri, 6 Dec 2024 04:51:49 -0500
> From: Stacie Leap <stacie.leap at gmail.com>
> To: undisclosed-recipients:;
> Subject: [blParent] Fwd: See-Rynge Information
> Message-ID:
>         <
> CAERE8Vb+hfgSAV4S-zHe6e0SOA15ebRPHaLZ_0J2RiMdfEzD4g at mail.gmail.com>
> Content-Type: text/plain; charset="UTF-8"
>
> Hello everybody:
>
> Please see below a forwarded email concerning how blind parents can measure
> liquid medications for their children.  Chiadika presented her possible
> medical device at our 2024 NFB of PA state convention. Please connect with
> her if you need more information.
>
> Thanks,
> Stacie
>
> *Stacie Leap*
> stacie.leap at gmail.com | 215.776.6741
>
>
> ---------- Forwarded message ---------
> From: See-Rynge Team <seerynge at gmail.com>
> Date: Fri, Nov 8, 2024 at 12:29?PM
> Subject: See-Rynge Information
> To: Stacie Leap <stacie.leap at gmail.com>
>
>
> Hello Stacy,
>
> This is Chiadika from See-Rynge. So sorry for missing today's meeting but I
> would love it if you could share this short blurb with your constituents.
>
> "Accurate liquid measurement can be a significant challenge for the blind
> and low-vision community, particularly for blind parents who need to dose
> their infants with liquid medication. In response to this issue, two
> bioengineering alumni from the University of Pennsylvania are developing a
> liquid measurement device designed specifically for individuals with low
> vision. The device features automated liquid extraction, audio feedback,
> tactile buttons, and an accessible mobile app, all aimed at reintroducing
> independence in the liquid measurement process. Although originally
> designed with medication dosing in mind, this device has significant
> potential for use in various careers, home activities, and for other
> disability groups.
>
> If you are interested in this device, please indicate your interest through
> their form here
> <
> https://docs.google.com/forms/d/e/1FAIpQLSenl3O15QQKmQMhU7Us-Gbm9OQ_UZ6kX-HW-p7LP6GqoSguGA/viewform?usp=send_form
> >
>  (
>
> https://docs.google.com/forms/d/e/1FAIpQLSenl3O15QQKmQMhU7Us-Gbm9OQ_UZ6kX-HW-p7LP6GqoSguGA/viewform?usp=send_form
> ),
> and find more information on their website here
> <https://seerynge.wixsite.com/seerynge> (
> https://seerynge.wixsite.com/seerynge). For any questions or feedback,
> feel
> free to contact them at seerynge at gmail.com."
>
> Best,
>
> Chiadika
>
>
> ------------------------------
>
> Message: 3
> Date: Fri, 6 Dec 2024 03:04:17 -0800 (PST)
> From: Judy Jones <sonshines59 at gmail.com>
> To: blparent at nfbnet.org
> Subject: Re: [blParent] Fwd: See-Rynge Information
> Message-ID: <212260374.0.1733483054653 at localhost>
> Content-Type: text/plain;charset=utf-8
>
> Hi, Stacie,
>
> Do most blind parents know about the low-tech solution of having the
> syringe notched by someone at the correct dose level?
>
> You bring up the plunger, filling the syringe a bit past the notch made in
> the shaft, then slowly lowering the plunger back down to the notch, making
> the dosage exact with no air bubbles..
>
>
>
> Judy
> sent from the Selvas braille Android tablet
>
> ----- Original Message -----
> From: Stacie Leap via BlParent <blparent at nfbnet.org>
> Date: Friday, December 06, 2024 02:01 AM
> To:
> CC: Stacie Leap <stacie.leap at gmail.com>
> BCC: BlParent at nfbnet.org
> Subject: [blParent] Fwd: See-Rynge Information
>
> Hello everybody:
> Please see below a forwarded email concerning how blind parents can measure
> liquid medications for their children.  Chiadika presented her possible
> medical device at our 2024 NFB of PA state convention. Please connect with
> her if you need more information.
> Thanks,
> Stacie
> *Stacie Leap*
> stacie.leap at gmail.com | 215.776.6741
>
> ---------- Forwarded message ---------
> From: See-Rynge Team <seerynge at gmail.com>
> Date: Fri, Nov 8, 2024 at 12:29?PM
> Subject: See-Rynge Information
> To: Stacie Leap <stacie.leap at gmail.com>
>
> Hello Stacy,
> This is Chiadika from See-Rynge. So sorry for missing today's meeting but I
> would love it if you could share this short blurb with your constituents.
> "Accurate liquid measurement can be a significant challenge for the blind
> and low-vision community, particularly for blind parents who need to dose
> their infants with liquid medication. In response to this issue, two
> bioengineering alumni from the University of Pennsylvania are developing a
> liquid measurement device designed specifically for individuals with low
> vision. The device features automated liquid extraction, audio feedback,
> tactile buttons, and an accessible mobile app, all aimed at reintroducing
> independence in the liquid measurement process. Although originally
> designed with medication dosing in mind, this device has significant
> potential for use in various careers, home activities, and for other
> disability groups.
> If you are interested in this device, please indicate your interest through
> their form here
> <
> https://docs.google.com/forms/d/e/1FAIpQLSenl3O15QQKmQMhU7Us-Gbm9OQ_UZ6kX-HW-p7LP6GqoSguGA/viewform?usp=send_form
> >
>  (
>
> https://docs.google.com/forms/d/e/1FAIpQLSenl3O15QQKmQMhU7Us-Gbm9OQ_UZ6kX-HW-p7LP6GqoSguGA/viewform?usp=send_form
> ),
> and find more information on their website here
> <https://seerynge.wixsite.com/seerynge> (
> https://seerynge.wixsite.com/seerynge). For any questions or feedback,
> feel
> free to contact them at seerynge at gmail.com."
> Best,
> Chiadika
> _______________________________________________
> BlParent mailing list
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> To unsubscribe, change your list options or get your account info for
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>
>
> ------------------------------
>
> Message: 4
> Date: Fri, 6 Dec 2024 03:04:17 -0800 (PST)
> From: Judy Jones <sonshines59 at gmail.com>
> To: blparent at nfbnet.org
> Subject: Re: [blParent] Fwd: See-Rynge Information
> Message-ID: <212260374.0.1733483054653 at localhost>
> Content-Type: text/plain;charset=utf-8
>
> Hi, Stacie,
>
> Do most blind parents know about the low-tech solution of having the
> syringe notched by someone at the correct dose level?
>
> You bring up the plunger, filling the syringe a bit past the notch made in
> the shaft, then slowly lowering the plunger back down to the notch, making
> the dosage exact with no air bubbles..
>
>
>
> Judy
> sent from the Selvas braille Android tablet
>
> ----- Original Message -----
> From: Stacie Leap via BlParent <blparent at nfbnet.org>
> Date: Friday, December 06, 2024 02:01 AM
> To:
> CC: Stacie Leap <stacie.leap at gmail.com>
> BCC: BlParent at nfbnet.org
> Subject: [blParent] Fwd: See-Rynge Information
>
> Hello everybody:
> Please see below a forwarded email concerning how blind parents can measure
> liquid medications for their children.  Chiadika presented her possible
> medical device at our 2024 NFB of PA state convention. Please connect with
> her if you need more information.
> Thanks,
> Stacie
> *Stacie Leap*
> stacie.leap at gmail.com | 215.776.6741
>
> ---------- Forwarded message ---------
> From: See-Rynge Team <seerynge at gmail.com>
> Date: Fri, Nov 8, 2024 at 12:29?PM
> Subject: See-Rynge Information
> To: Stacie Leap <stacie.leap at gmail.com>
>
> Hello Stacy,
> This is Chiadika from See-Rynge. So sorry for missing today's meeting but I
> would love it if you could share this short blurb with your constituents.
> "Accurate liquid measurement can be a significant challenge for the blind
> and low-vision community, particularly for blind parents who need to dose
> their infants with liquid medication. In response to this issue, two
> bioengineering alumni from the University of Pennsylvania are developing a
> liquid measurement device designed specifically for individuals with low
> vision. The device features automated liquid extraction, audio feedback,
> tactile buttons, and an accessible mobile app, all aimed at reintroducing
> independence in the liquid measurement process. Although originally
> designed with medication dosing in mind, this device has significant
> potential for use in various careers, home activities, and for other
> disability groups.
> If you are interested in this device, please indicate your interest through
> their form here
> <
> https://docs.google.com/forms/d/e/1FAIpQLSenl3O15QQKmQMhU7Us-Gbm9OQ_UZ6kX-HW-p7LP6GqoSguGA/viewform?usp=send_form
> >
>  (
>
> https://docs.google.com/forms/d/e/1FAIpQLSenl3O15QQKmQMhU7Us-Gbm9OQ_UZ6kX-HW-p7LP6GqoSguGA/viewform?usp=send_form
> ),
> and find more information on their website here
> <https://seerynge.wixsite.com/seerynge> (
> https://seerynge.wixsite.com/seerynge). For any questions or feedback,
> feel
> free to contact them at seerynge at gmail.com."
> Best,
> Chiadika
> _______________________________________________
> BlParent mailing list
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> To unsubscribe, change your list options or get your account info for
> BlParent:
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>
>
>
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>
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> ------------------------------
>
> End of BlParent Digest, Vol 243, Issue 1
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