[blParent] BlParent Digest, Vol 243, Issue 1

brittany scott daniellscott1 at gmail.com
Fri Dec 6 19:02:44 UTC 2024


Another solution is to convert the dosage into teaspoons or tablespoons and suck that up with a syringe. Like they say there’s more than one way to skin a cat. 
Sent from my iPhone

> On Dec 6, 2024, at 12:53 PM, Judy Jones via BlParent <blparent at nfbnet.org> wrote:
> 
> Hi, Clayton,
> 
> In raising our kids, whenever well-meaning people asked if we didn't have sighted help, I told them, "I have a better idea, is very easy," and would put them to work making a notch or scratch in the plunger at the right point.  They actually became excited about such a simple idea, and the way I look at it, I educated one more person, made a friend, and planted a seed.
> 
> I've had help from doctors, nurses, pharmacy personnel, and all with very positive results that would allow me to let them know there are so many common-sense ways that can be used without sight.
> 
> Judy
> 
> “Embrace each day with His mercies and blessings.”
> 
> -----Original Message-----
> From: BlParent <blparent-bounces at nfbnet.org> On Behalf Of Esoteric Quality via BlParent
> Sent: Friday, December 6, 2024 5:06 AM
> To: blparent at nfbnet.org
> Cc: Esoteric Quality <eqmusicofficial at gmail.com>
> Subject: Re: [blParent] BlParent Digest, Vol 243, Issue 1
> 
> As a blind parent who has had to measure out liquid medications via a
> syringe, I am beyond frustrated with the approach taken here. For one, we
> don't need another piece of adaptive equipment to make something accessible
> that the pharmaceutical companies should already be doing. For us. It is
> very easy to put tactile markings into a syringe but with the correct
> dosages. However, the pharmaceutical companies, who are very well aware of
> what the issues are when it comes to measuring. Medications, have refused
> to make this possible accessible to us as blind parents. To add insult to
> injury, when I request. Pharmacies to put tactile markings into the
> syringes, I am often met with. Don't you have someone who can see at home
> who can do this for you? When we have. Tactile measuring devices already.
> That can measure. The volume of something, it isn't that hard. To implement
> those same techniques into a syringe. This is more high-tech than what is
> needed and. I'm sure it will also have quite the price tag. Again, this is
> something that the national federation of the Blind should be doing and if
> necessary should be suing all of the pharmaceutical companies to require
> this.
> 
> Clayton Jacobs
> 
>> On Fri, Dec 6, 2024, 5:00 AM <blparent-request at nfbnet.org> wrote:
>> 
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>> 
>> Today's Topics:
>> 
>>   1. Latest Future Reflections (dandrews920 at comcast.net)
>>   2. Fwd: See-Rynge Information (Stacie Leap)
>>   3. Re: Fwd: See-Rynge Information (Judy Jones)
>>   4. Re: Fwd: See-Rynge Information (Judy Jones)
>> 
>> 
>> ----------------------------------------------------------------------
>> 
>> Message: 1
>> Date: Thu, 5 Dec 2024 12:13:23 -0600
>> From: <dandrews920 at comcast.net>
>> To: <nobe-l at nfbnet.org>, "'Blind Parents Mailing List'"
>>        <blparent at nfbnet.org>, <pibe-division at nfbnet.org>,
>>        <mn-parents at nfbnet.org>, <rehab at nfbnet.org>
>> Subject: [blParent] Latest Future Reflections
>> Message-ID: <000f01db4741$6d4e0e80$47ea2b80$@comcast.net>
>> Content-Type: text/plain;       charset="us-ascii"
>> 
>> 
>> 
>> The convention issue of Future Reflections is now available online. This
>> issue includes highlights from the NOPBC conference, presentations from
>> General Sessions, impressions of first-time convention attendees, and much
>> more, including a talk given by our own Denise Avant at the NOPBC board
>> meeting. You can find the convention issue at
>> https://nfb.org/images/nfb/publications/fr/fr43/4/fr4304.htm. Enjoy!
>> 
>> 
>> 
>> Debbie S.
>> 
>> 
>> 
>> 
>> 
>> 
>> 
>> --
>> This email has been checked for viruses by Avast antivirus software.
>> www.avast.com
>> _______________________________________________
>> 
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 2
>> Date: Fri, 6 Dec 2024 04:51:49 -0500
>> From: Stacie Leap <stacie.leap at gmail.com>
>> To: undisclosed-recipients:;
>> Subject: [blParent] Fwd: See-Rynge Information
>> Message-ID:
>>        <
>> CAERE8Vb+hfgSAV4S-zHe6e0SOA15ebRPHaLZ_0J2RiMdfEzD4g at mail.gmail.com>
>> Content-Type: text/plain; charset="UTF-8"
>> 
>> Hello everybody:
>> 
>> Please see below a forwarded email concerning how blind parents can measure
>> liquid medications for their children.  Chiadika presented her possible
>> medical device at our 2024 NFB of PA state convention. Please connect with
>> her if you need more information.
>> 
>> Thanks,
>> Stacie
>> 
>> *Stacie Leap*
>> stacie.leap at gmail.com | 215.776.6741
>> 
>> 
>> ---------- Forwarded message ---------
>> From: See-Rynge Team <seerynge at gmail.com>
>> Date: Fri, Nov 8, 2024 at 12:29?PM
>> Subject: See-Rynge Information
>> To: Stacie Leap <stacie.leap at gmail.com>
>> 
>> 
>> Hello Stacy,
>> 
>> This is Chiadika from See-Rynge. So sorry for missing today's meeting but I
>> would love it if you could share this short blurb with your constituents.
>> 
>> "Accurate liquid measurement can be a significant challenge for the blind
>> and low-vision community, particularly for blind parents who need to dose
>> their infants with liquid medication. In response to this issue, two
>> bioengineering alumni from the University of Pennsylvania are developing a
>> liquid measurement device designed specifically for individuals with low
>> vision. The device features automated liquid extraction, audio feedback,
>> tactile buttons, and an accessible mobile app, all aimed at reintroducing
>> independence in the liquid measurement process. Although originally
>> designed with medication dosing in mind, this device has significant
>> potential for use in various careers, home activities, and for other
>> disability groups.
>> 
>> If you are interested in this device, please indicate your interest through
>> their form here
>> <
>> https://docs.google.com/forms/d/e/1FAIpQLSenl3O15QQKmQMhU7Us-Gbm9OQ_UZ6kX-HW-p7LP6GqoSguGA/viewform?usp=send_form
>>> 
>> (
>> 
>> https://docs.google.com/forms/d/e/1FAIpQLSenl3O15QQKmQMhU7Us-Gbm9OQ_UZ6kX-HW-p7LP6GqoSguGA/viewform?usp=send_form
>> ),
>> and find more information on their website here
>> <https://seerynge.wixsite.com/seerynge> (
>> https://seerynge.wixsite.com/seerynge). For any questions or feedback,
>> feel
>> free to contact them at seerynge at gmail.com."
>> 
>> Best,
>> 
>> Chiadika
>> 
>> 
>> ------------------------------
>> 
>> Message: 3
>> Date: Fri, 6 Dec 2024 03:04:17 -0800 (PST)
>> From: Judy Jones <sonshines59 at gmail.com>
>> To: blparent at nfbnet.org
>> Subject: Re: [blParent] Fwd: See-Rynge Information
>> Message-ID: <212260374.0.1733483054653 at localhost>
>> Content-Type: text/plain;charset=utf-8
>> 
>> Hi, Stacie,
>> 
>> Do most blind parents know about the low-tech solution of having the
>> syringe notched by someone at the correct dose level?
>> 
>> You bring up the plunger, filling the syringe a bit past the notch made in
>> the shaft, then slowly lowering the plunger back down to the notch, making
>> the dosage exact with no air bubbles..
>> 
>> 
>> 
>> Judy
>> sent from the Selvas braille Android tablet
>> 
>> ----- Original Message -----
>> From: Stacie Leap via BlParent <blparent at nfbnet.org>
>> Date: Friday, December 06, 2024 02:01 AM
>> To:
>> CC: Stacie Leap <stacie.leap at gmail.com>
>> BCC: BlParent at nfbnet.org
>> Subject: [blParent] Fwd: See-Rynge Information
>> 
>> Hello everybody:
>> Please see below a forwarded email concerning how blind parents can measure
>> liquid medications for their children.  Chiadika presented her possible
>> medical device at our 2024 NFB of PA state convention. Please connect with
>> her if you need more information.
>> Thanks,
>> Stacie
>> *Stacie Leap*
>> stacie.leap at gmail.com | 215.776.6741
>> 
>> ---------- Forwarded message ---------
>> From: See-Rynge Team <seerynge at gmail.com>
>> Date: Fri, Nov 8, 2024 at 12:29?PM
>> Subject: See-Rynge Information
>> To: Stacie Leap <stacie.leap at gmail.com>
>> 
>> Hello Stacy,
>> This is Chiadika from See-Rynge. So sorry for missing today's meeting but I
>> would love it if you could share this short blurb with your constituents.
>> "Accurate liquid measurement can be a significant challenge for the blind
>> and low-vision community, particularly for blind parents who need to dose
>> their infants with liquid medication. In response to this issue, two
>> bioengineering alumni from the University of Pennsylvania are developing a
>> liquid measurement device designed specifically for individuals with low
>> vision. The device features automated liquid extraction, audio feedback,
>> tactile buttons, and an accessible mobile app, all aimed at reintroducing
>> independence in the liquid measurement process. Although originally
>> designed with medication dosing in mind, this device has significant
>> potential for use in various careers, home activities, and for other
>> disability groups.
>> If you are interested in this device, please indicate your interest through
>> their form here
>> <
>> https://docs.google.com/forms/d/e/1FAIpQLSenl3O15QQKmQMhU7Us-Gbm9OQ_UZ6kX-HW-p7LP6GqoSguGA/viewform?usp=send_form
>>> 
>> (
>> 
>> https://docs.google.com/forms/d/e/1FAIpQLSenl3O15QQKmQMhU7Us-Gbm9OQ_UZ6kX-HW-p7LP6GqoSguGA/viewform?usp=send_form
>> ),
>> and find more information on their website here
>> <https://seerynge.wixsite.com/seerynge> (
>> https://seerynge.wixsite.com/seerynge). For any questions or feedback,
>> feel
>> free to contact them at seerynge at gmail.com."
>> Best,
>> Chiadika
>> _______________________________________________
>> BlParent mailing list
>> BlParent at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/blparent_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> BlParent:
>> 
>> http://nfbnet.org/mailman/options/blparent_nfbnet.org/sonshines59%40gmail.com
>> 
>> 
>> 
>> ------------------------------
>> 
>> Message: 4
>> Date: Fri, 6 Dec 2024 03:04:17 -0800 (PST)
>> From: Judy Jones <sonshines59 at gmail.com>
>> To: blparent at nfbnet.org
>> Subject: Re: [blParent] Fwd: See-Rynge Information
>> Message-ID: <212260374.0.1733483054653 at localhost>
>> Content-Type: text/plain;charset=utf-8
>> 
>> Hi, Stacie,
>> 
>> Do most blind parents know about the low-tech solution of having the
>> syringe notched by someone at the correct dose level?
>> 
>> You bring up the plunger, filling the syringe a bit past the notch made in
>> the shaft, then slowly lowering the plunger back down to the notch, making
>> the dosage exact with no air bubbles..
>> 
>> 
>> 
>> Judy
>> sent from the Selvas braille Android tablet
>> 
>> ----- Original Message -----
>> From: Stacie Leap via BlParent <blparent at nfbnet.org>
>> Date: Friday, December 06, 2024 02:01 AM
>> To:
>> CC: Stacie Leap <stacie.leap at gmail.com>
>> BCC: BlParent at nfbnet.org
>> Subject: [blParent] Fwd: See-Rynge Information
>> 
>> Hello everybody:
>> Please see below a forwarded email concerning how blind parents can measure
>> liquid medications for their children.  Chiadika presented her possible
>> medical device at our 2024 NFB of PA state convention. Please connect with
>> her if you need more information.
>> Thanks,
>> Stacie
>> *Stacie Leap*
>> stacie.leap at gmail.com | 215.776.6741
>> 
>> ---------- Forwarded message ---------
>> From: See-Rynge Team <seerynge at gmail.com>
>> Date: Fri, Nov 8, 2024 at 12:29?PM
>> Subject: See-Rynge Information
>> To: Stacie Leap <stacie.leap at gmail.com>
>> 
>> Hello Stacy,
>> This is Chiadika from See-Rynge. So sorry for missing today's meeting but I
>> would love it if you could share this short blurb with your constituents.
>> "Accurate liquid measurement can be a significant challenge for the blind
>> and low-vision community, particularly for blind parents who need to dose
>> their infants with liquid medication. In response to this issue, two
>> bioengineering alumni from the University of Pennsylvania are developing a
>> liquid measurement device designed specifically for individuals with low
>> vision. The device features automated liquid extraction, audio feedback,
>> tactile buttons, and an accessible mobile app, all aimed at reintroducing
>> independence in the liquid measurement process. Although originally
>> designed with medication dosing in mind, this device has significant
>> potential for use in various careers, home activities, and for other
>> disability groups.
>> If you are interested in this device, please indicate your interest through
>> their form here
>> <
>> https://docs.google.com/forms/d/e/1FAIpQLSenl3O15QQKmQMhU7Us-Gbm9OQ_UZ6kX-HW-p7LP6GqoSguGA/viewform?usp=send_form
>>> 
>> (
>> 
>> https://docs.google.com/forms/d/e/1FAIpQLSenl3O15QQKmQMhU7Us-Gbm9OQ_UZ6kX-HW-p7LP6GqoSguGA/viewform?usp=send_form
>> ),
>> and find more information on their website here
>> <https://seerynge.wixsite.com/seerynge> (
>> https://seerynge.wixsite.com/seerynge). For any questions or feedback,
>> feel
>> free to contact them at seerynge at gmail.com."
>> Best,
>> Chiadika
>> _______________________________________________
>> BlParent mailing list
>> BlParent at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/blparent_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> BlParent:
>> 
>> http://nfbnet.org/mailman/options/blparent_nfbnet.org/sonshines59%40gmail.com
>> 
>> 
>> 
>> ------------------------------
>> 
>> Subject: Digest Footer
>> 
>> _______________________________________________
>> BlParent mailing list
>> BlParent at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/blparent_nfbnet.org
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>> 
>> ------------------------------
>> 
>> End of BlParent Digest, Vol 243, Issue 1
>> ****************************************
>> 
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