[Ct-nfb] DORS-BESB Parent Education Program -- Planning for the Future -- Saturday, April 5, 2014
Carol Lemieux
bustero at mail.com
Thu Mar 13 17:26:10 UTC 2014
Justin has a great and very valid point. NFB needs to ask for an invitation to be on the agenda. This is a great opportunity to advocate and make ourselves known to a group of parents. --Carol Lemieux
Sent from my iPhone
> On Mar 13, 2014, at 12:28 PM, Justin Salisbury <PRESIDENT at alumni.ecu.edu> wrote:
>
> Colleagues:
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>
>
> It’s terribly disappointing that we don’t have Federationists presenting (NOPBC, CT Association of Blind Students, or NFBCT) and furthermore have NAPVI presenting.
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> Was anyone in our affiliate contacted to present?
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> I would try to invite myself as a presenter but am presenting that same day in Chicago at an event that will actually empower blind youth.
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> It is important to point out that I think this event is well-intended, as are most of the events and people whose misperceptions about blindness disempower the blind, but we must respectfully resist.
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> If anyone can avail themselves, I think we ought to reach in. It’s disgraceful when events like this occur but the most valuable presenters left out. Reading through the presenter list, I suffer heartbreak for those children and their parents. I really do. Nobody intends the damnation, but they cause it nonetheless.
>
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> Justin
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> From: Ct-nfb [mailto:ct-nfb-bounces at nfbnet.org] On Behalf Of Elizabeth Rival
> Sent: Thursday, March 13, 2014 11:05 AM
> To: 'NFB of Connecticut Mailing List'
> Subject: [Ct-nfb] FW: DORS-BESB Parent Education Program -- Planning for the Future -- Saturday, April 5, 2014
> Importance: High
>
>
>
>
>
>
> From: Sigman, Brian [mailto:Brian.Sigman at ct.gov]
> Sent: Thursday, March 13, 2014 11:01 AM
> To: Sylvestre, Alan; 'brucewoodie at msn.com'; 'chrisb274 at gmail.com'; 'e.g.akers at sbcglobal.net'; 'Darcy.Jones at cga.ct.gov'; 'mcdodd3020 at sbcglobal.net'; 'pjohnson18 at snet.net'; 'bdemaio at newbritainct.gov'; 'randa.utter at cga.ct.gov'; 'ckuell at comcast.net'; 'fairbanks at ldeo.columbia.edu'; 'iancrickard11 at gmail.com'; 'llee at nfbct.org'; 'jaykronfeld at sbcglobal.net'; 'famigliettis at ciboakhill.org'; 'info at nfbct.org'; 'kathybmorgan at yahoo.com'; 'erival at comcast.net'; 'carolyn.messier at aol.com'; 'piggottd at ciboakhill.org'; Smith, Robert C; Krengel, Erich; 'cindy.paluch at asd-1817.org'; 'optometric.assoc01 at snet.net'; 'Eyecare at inclima.net'; 'epinnod at aol.com'; 'Dr.george.adrian at snet.net'; 'Westendeyecare at snet.net'; 'ks at drkimstevens.com'; 'Rkinkade at optonline.net'; 'rstrand at eyecarect.com'; 'optometric.assoc01 at snet.net'; 'Drswsm at yahoo.com'; 'bboogie at snet.net'; 'davidparke at comcast.net'; 'larrykline at bigplanet.com'; 'enfield-eyecare at cox.net'; 'mgenlot at snet.net'; 'r.h.tyler at sbcglobal.net'; 'lighthouse63 at gmail.com'; White, Dee A.; Gerundo-Murkette, Margaret A.; 'ks at drkimstevens.com'; 'steve.perreault at hknc.org'; Blewett, Kathleen K.; 'rjcloonan at comcast.net'; 'jbperacchio at gmail.com'; Thal, Stephen; 'funnytomkaren at gmail.com'; 'dawgmawm at gmail.com'; 'charlie at visiondynamics.com'; Cunnane, Brian; Dombrowski, Stephen; 'c.rafala at snet.net'; 'clow at independenceunlimited.org'; 'sbaecker at crisradio.org'; 'jbperacchio at gmail.com'; 'dgregoire at liberty-bank.com'; 'sarah.bowman1 at va.gov'; 'stovallb at ciboakhill.org'; '5040psbs at cox.net'; 'c.ford3 at sbcglobal.net'; 'alfredthompsonjr at yahoo.com'; 'lewis_andrews at sbcglobal.net'; 'mvlagocki at aol.com'; 'dave.figley at snet.net'; 'famigliettis at ciboakhill.org'; 'ajackson212 at att.net'; 'junerose at startsimply.com'; 'eileen.healy at independencenorthwest.org'; 'cconway at drcfc.org'; 'marcanthony at cdr-ct.org'; 'ferrycathy at yahoo.com'; 'magallucci at aol.com'; 'momforch at yahoo.com'; 'cheleot at comcast.net'; 'Rachriste1 at cs.com'; 'diana200561 at yahoo.com'; 'f_roberts at comcast.net'; 'joenerney at charter.net'; 'Raymo at Intergate.com'; DeCordova, Marisel; 'marysilverfox at gmail.com'; 'Rb8876 at aol.com'; 'khaley18 at comcast.net'; 'pvlandis at ncc.commnet.edu'; 'Barbara.blejewski at sbcglobal.net'; 'dwdunne at crisradio.org'; Miles, Sandra; 'connecticutcounciloftheblind at gmail.com'; 'lbphtom at gmail.com'; 'futureeyecare2020 at gmail.com'; Friedman, Sharon; 'nyemapinkney at comcast.net'; 'carlnoll at sbcglobal.net'; 'AlbanB at aol.com'; 'emtelk at optonline.net'; 'diannmurray1 at gmail.com'; 'emmbee4 at yahoo.com'; 'e.email at snet.net'; 'daria at ctsilc.org'; 'centeroftheblind at sbcglobal.net'; Reddick, Gordon; 'bob.gorman at independencenorthwest.org'; Hayles, Colleen; 'f_roberts at ymail.com'; 'khaley18 at comcast.net'; 'pvlandis at ncc.commnet.edu'; 'ResQbeest at aol.com'; Hayles, Colleen; Nunez, Alicia; DORS-DL BESB; Porter, Amy L.
> Subject: FW: DORS-BESB Parent Education Program -- Planning for the Future -- Saturday, April 5, 2014
> Importance: High
>
>
> DORS-BESB Parent Education Program
>
> Planning for the Future:
>
> Setting Up Lifelong Supports for your Child
>
> Saturday, April 5, 2014 10:00 a.m. - 3:30 p.m.
>
> Location: DORS-BESB
>
> 184 Windsor Ave., Windsor, CT 06095
>
> · A parent program on creating lifetime supports for your child. Presented by individuals with expertise in this field.
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>
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> · Topics include: guardianship, financial planning, special needs trusts, wills, Medicaid, sibling involvement and social security.
>
> RSVP:
>
> To attend please mail, email or fax the registration form below to Cheryl Brown.
>
> Directions:
>
> · From the south: I-91 North to exit 34. At the exit ramp proceed straight ahead into the DORS-BESB parking lot.
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> · From the north: I-91 to exit 34. At the exit ramp turn left onto North Main Street (Hartford). Go under the highway underpass, straight through the traffic light, pass the gas station, and take a right into BESB’s parking lot.
>
> This is for parents and guardians only.
> Lunch will be provided.
> Childcare is NOT available.
>
>
>
> Presenters:
>
> Anne Burnham, Esq.
> · Anne is an attorney at Jaconetta, Burnham & Wimer, LLC, in Glastonbury, whose practice areas focus on estate planning, estate and trust administration, probate matters and elder law.
> · Anne has over 16 years of experience as a trust and estate attorney.
>
> Hillary Dunn, Esq.
> · Hillary is an attorney at the Special Needs and Elder Law Practice Group at Fletcher Tilton PC in Massachusetts.
> · She previously worked at the Disability Law Center in Boston and also served as the chairperson of the Massachusetts DDS Human Rights Advisory Committee.
> · Hillary has an older brother with Angelman Syndrome, and, as a result of this experience, she has devoted her career to assisting individuals with disabilities and their families. She is on the board of the Massachusetts Sibling Support Network.
>
> Cynthia Haddad, Certified Financial Planner
> · Cynthia is a Certified Financial Planner® and a Director of Special Needs Planning, a division of Shepherd Financial Partners.
> · She has an adult brother with special needs. Cynthia is in charge of educational initiatives at the Massachusetts Sibling Support Network.
> · Cynthia is the co-author of The Special Needs Planning Guide: How to Prepare for Every Stage of Your Child’s Life (Brookes Publishing).
>
> Susan LaVenture, Executive Director of the National Association for Parents of
> Children with Visual Impairments (NAPVI)
> · Susan is an advocate for parents of children who are blind, visually impaired, including those with multiple disabilities. She has worked in this field for over 20 years.
>
> · She initially became involved in advocacy when her youngest son, Alex, was diagnosed with retinoblastoma, a rare form of infant eye cancer.
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> · Susan is the Co-Director of www.familyconnect.org a website for parents of children with visual impairments.
>
> Janette Peracchio, Family Specialist
> · Janette was a family specialist at New England Consortium of Deafblind Projects, where she worked since 2002.
>
> · Janette worked at the Cornelia de Lange Syndrome Foundation in Avon for 7 years, helping families nationally who have children with CdLS acquire needed services.
>
> · Janette is the parent of three children. Her daughter Sara had Cornelia de Lange Syndrome and passed away in 2004 at the age of 23.
>
> Sonu Rangnekar, Consultant
> · Sonu has diverse experience in international development in the areas of community development, livelihood improvement, public health, child welfare and enterprise development programs in Asia, Africa and Latin America.
>
> · Her work has included United States Agency for International Development (USAID), Aid to Artisans, Save the Children, and Population Services International.
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> · Sonu is the parent of a 17 year old student with special needs.
>
>
>
> Registration Form
> DORS-BESB Parent Education Program
>
> Planning for the Future:
> Setting Up Lifelong Supports for your Child
>
> Saturday, April 5, 2014
>
> Childcare will NOT be provided for this event
>
>
>
> Attending Parent/Guardian’s name(s):
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>
>
> ____
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> Contact information:
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> Address:
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> Phone number:
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> Child’s name:
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> TVI working with your child:
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> E-mail:
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> Best way to reach you if we have a weather cancellation:
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>
>
> Please mail, e-mail or fax the completed form by March 20th to:
>
> Mail: Cheryl Brown, DORS-BESB, 184 Windsor Ave., Windsor, CT 06095
>
> E-mail: Cheryl.brown at ct.gov
>
> Fax: 860-602-4030 attention: Cheryl Brown
>
>
>
>
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