[Ct-nfb] Foundation Fighting Blindness Launches #HowEyeSeeIt Campaign to Raise Awareness, Funds for Retinal

[Jim McCollum]

Hello, fellow Federationists! 
This #HowEyeSeeIt campaign is a potentially big problem for the blind. This is a press release from the Foundation Fighting Blindness promoting the fund raiser. I find it disturbing that at least two well-known blind  people are involved, according to the article. Notice that they're concluding the campaign in the middle of Meet the Blind Month. 
It's very important that the sighted public hear and see the truth. 

http://www.prnewswire.com/news-releases/foundation-fighting-blindness-launches-howeyeseeit-campaign-to-raise-awareness-funds-for-retinal-degenerative-disease-research-300316998.html

Foundation Fighting Blindness Launches #HowEyeSeeIt Campaign to Raise Awareness, Funds for Retinal Degenerative Disease Research
Celebrities Take the Blindfold Challenge to Fight for a Cure

COLUMBIA, Md., Aug. 23, 2016 /PRNewswire/ -- Campaign ambassadors – including some individuals with retinal degenerative diseases – and celebrities nationwide are joining the Foundation Fighting Blindness today for the launch of the #HowEyeSeeIt campaign, the first social media initiative aimed at elevating awareness and accelerating research funding for retinal degenerative diseases.

The Foundation has paired individuals who are affected by a retinal degenerative disease with celebrities, including Glee's Harry Shum Jr., Diane Guerrero of Orange is the New Black and Justin Baldoni of Jane the Virgin, to demonstrate the difficulty in performing everyday tasks with vision impairment or loss. Other campaign ambassadors will include NASCAR drivers Darrell Waltrip and Dale Earnhardt, Jr; former New York Governor David Patterson and basketball great Phil Ford.

More than 10 million Americans and millions more worldwide are affected by retinal degenerative diseases – those that cause vision loss – including age-related macular degeneration, retinitis pigmentosa and Usher syndrome. Yet blindness is far more broadly impactful – a recent study from JAMA Ophthalmology showed Americans rank losing eyesight as the worst thing that could happen to them when ranked against other conditions including loss of a limb, memory, hearing or speech.

"We're thrilled that so many leaders from the entertainment, sports and business community are joining us in taking the blindfold challenge," said Bill Schmidt, chief executive officer at Foundation Fighting Blindness. "We hope it will give people a better understanding of what it is like to live with a blinding disease and ultimately inspire them to join us in the fight to find a cure."

The public is encouraged to get involved by visiting https://www.howeyeseeit.org/ to learn more about retinal degenerative diseases and make a donation. Individuals can also take the #HowEyeSeeIt blindfold challenge by creating a short video of themselves participating in an activity they love while blindfolded and sharing on their social media channels with the campaign hashtag #HowEyeSeeIt, tagging three friends to participate as well. The campaign will conclude on World Sight Day, October 13, 2016.

"This campaign is personal for me and I am excited to be a part of it," said campaign ambassador Christine Ha, the first blind contestant of MasterChef and winner of its third season in 2012. "I hope by sharing my story and what I've been able to accomplish will not only raise awareness and erase stigmas about diseases causing vision loss, but also give hope to those who are affected."

Partners in the campaign include MSNBC, Huffington Post, BounceX, Athletes for Hope, Dose, Little Things, The Skimm, Outfront Media, Musical.ly and the U.S. Association of Blind Athletes.

About Foundation Fighting Blindness

The Foundation Fighting Blindness was established in 1971, when there were no clinical trials on treatments for inherited retinal diseases. Since that time, it has raised over $700 million to support research to prevent and treat blindness caused by retinal disease; and today, there are 20 clinical trials underway for emerging vision-saving therapies including gene, stem cell, medical and nutritional therapies.

Over 10 million Americans, and millions more worldwide, have vision loss due to retinal degeneration. Through its support of focused and innovative science, the Foundation drives the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa, macular degeneration, Usher syndrome and other inherited retinal diseases.

Contact:
Marianne Geiger
MARIANNE.GEIGER at edelman.com
312-297-7438

Logo - http://photos.prnewswire.com/prnh/20160412/354613LOGO

SOURCE Foundation Fighting Blindness

Related Links

https://www.howeyeseeit.org
http://www.blindness.org



Jim McCollum
Legislative Co-ordinator
National Federation of the Blind of Connecticut
j.mccollum64 at comcast.net
860-581-0430
Sent from my iPhone
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