[Diabetes-talk] A question

Mike Freeman k7uij at panix.com
Sun Dec 7 06:34:08 UTC 2008 

Dar:

You shoul IMO have someone reading your mail on a regular basis --  
someone you trust. It's necessary to function well in society.

Of course, I don't give a hoot who knows what my A1C (or anything else 
medical about me) is. To me, privacy these days is illusory at best, 
HIPPA notwithstanding! (grin)

Mike

----- Original Message ----- 
From: "dmgina" <dmgina at qwest.net>
To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
Sent: Saturday, December 06, 2008 2:27 PM
Subject: Re: [Diabetes-talk] A question


Mike,
They wont even send me print because it can be read at the office.
they decided this on their own.
this is what I am standing up for,
\is that I don't mind the print, but would like to find out from the 
office
first what is happening.
Because I feel that I need to know from there.
First.
Not have just anyone reading my mail tell me.
I will keep calling, because it is on my behalf and I know I have a rite 
to
know.
Others know about their results because they can read them,
it was embarrassing when I would get a mammogram report and Jim's friend
would read it to me.
I just didn't feel good about it.
Sure we laughed, but I felt as if my privacy was taken away.
gosh why not put it on the radio or TV if I can't have something for 
myself.
You know what I mean?
If the folks print it out, I am hoping that the scanner would read it.
that didn't happen before, but I would think it should now.
I don't know.

--Dar
www.mypowermall.com/biz/home/5779
Every saint has a past
every sinner has a future

----- Original Message ----- 
From: "Mike Freeman" <k7uij at panix.com>
To: <diabetes-talk at nfbnet.org>
Sent: Saturday, December 06, 2008 12:40 AM
Subject: Re: [Diabetes-talk] A question


> Dar:
>
> First, the Federal Government does not fall under the rhubric of the 
> ADA;
> IT IS SUBJECT TO Section 504 of the Rehab Act. So while any ADA
> REQUIREMENTS MANDATED BY THE COURTS OR THE Department of Justice might
> serve as a model and a precedent for a suit under Section 504 (which, 
> I
> presume, is the case here), it does not mean that such a suit will 
> ipso
> facto succeed. The ADA IS INTERPRETED BY THE Department of Justice to
> require that doctors (and thetheir offices) make information available 
> to
> people with disabilities but this does not mean that the material is
> mandated to be provided in alternative formats such as in braille,
> computer disk or tape; the information could be read to the blind 
> patient
> and this would fulfill the requirement. But the Federal Government is
> under stricter requirements than is private industry and probably does
> have to produce stuff in alternative formats.
>
> Nonetheless, I'm going to venture an opinion here which will probably 
> be
> rather unpopular: isn't a suit alleging that recipients of SSI AND 
> SSDI
> WHO ARE BLIND MISSED IMPORTANT NOTICES BECAUSE THEY DIDN'T GET THEM IN
> BRAILLE OR LARGE PRINT OR ON TAPE SAYING, IN EFFECT, THAT WE, THE 
> BLIND
> CAN'T HANDLE PRINTED MATERIAL AND THEREFORE SHOULDN'T BE EXPECTED TO 
> DO
> SO? Does this line of thinking not contradict NFBs insistence that we 
> can
> compete on terms of equality with the sighted (which, to my mind,
> necessarily implies that we can and should deal with printed material 
> on
> our own)? This was the very reason we objected to the currency suit in
> that it alleged we were being discriminated against because we 
> couldn't
> see the print!
>
> Balderdash and squashrot!
>
> Mike Freeman
>
> ----- Original Message -----
> From: "dmgina" <dmgina at qwest.net>
> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> Date: 2008/12/05 23:50:10
> Subject: Re: [Diabetes-talk] A question
>
>>
>>
>> yes I sure appreciate that.
>> I just think of something and then come back for more information.
>> One of my thoughts was this,
>> if the Social security has to put information into a format for us to
>> read,
>> then are not the doctors going against the ADA?
>> Just some thoughts.
>> and if this is correct, then shouldn't NFB START SOMETHING FOR ALL
>> DOCTORS
>> to put information into acceptable format?
>>
>> thanks,
>>
>> -comDar
>> www.mypowermall.com/biz/home/5779
>> Every saint has a past
>> every sinner has a future
>>
>> ----- Original Message ----- 
>> From: "Vincent Chaney" <vgc732 at optonline.net>
>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>> Sent: Tuesday, December 02, 2008 11:07 PM
>> Subject: Re: [Diabetes-talk] A question
>>
>>
>> > Dar,
>> >
>> > A very big hand and congratulations on achieving your A1C 5.4 
>> > level.
>> > You
>> > appear to be managing your food, insulin and activities very 
>> > tightly.
>> > In
>> > Central New Jersey, my doctor and the labs I have gone to, the 
>> > normal
>> > range
>> > is from 4.5 to 5.9 with my doctor having my goals to be in the 
>> > range of
>> > 6.3
>> > or lower. The lab I am currently using is Lab Core and as Mike I
>> > believe
>> > said, each lab can have a slightly different range.
>> > The lowering of your blood sugar in the colder weather is not the 
>> > first
>> > time
>> > I've heard this. My wife and I have a friend who had said this 
>> > happened
>> > to
>> > him and he had learned it was due to the body burning up the sugar 
>> > to
>> > keep
>> > warm. He was sensitive enough that it would sometimes happen if he 
>> > went
>> > into
>> > a very cool to cold building or house in the summer as well with
>> > air-conditioning.
>> > I have purposely held the issue of your doctor's office to last. If 
>> > my
>> > doctor's staff said it was "unnecessary to call" I would respond 
>> > with a
>> > definite tone that either I needed to speak directly with the 
>> > doctor
>> > and
>> > not
>> > stop until I had or do a quick answer that that was not a 
>> > satisfactory
>> > answer for me in "my management of my diabetes". Personally if I 
>> > get an
>> > answer at my next appointment, which is 3 months for me, old
>> > information
>> > would be out of date and would have lost time in my books and life 
>> > to
>> > work
>> > on my management of my diabetes. For our A1C as an example, if my
>> > number
>> > was
>> > increasing I could review what I might be doing or may have caused 
>> > it
>> > to
>> > climb. I have had periods of very stressful times at work cause my 
>> > A1C
>> > to
>> > climb from 5.9 to 6.4. This would be understandable with the "fight 
>> > or
>> > flight" of the body kicking up adrenalin and the release of stored
>> > glycogen
>> > to the glucose level.
>> > I have had my number climb in the cold weather as I find this time
>> > difficult
>> > to get enough blood to test myself. I have found the "Prodigy 
>> > Voice" to
>> > be
>> > a
>> > little easier with it needing less blood and hopefully with it not 
>> > as
>> > frustrating I will not let my number of tests drop in how often I 
>> > do
>> > them.
>> > If I have let my sugar stay higher without testing I see the A1C 
>> > higher
>> > and
>> > can predict even before receiving the results. As I have been on 
>> > the
>> > insulin
>> > pump since September 1999, the more you test the better and easier 
>> > the
>> > A1C
>> > and current BGL CONTROLS ARE NOTICED. Fortunately I'm stubborn 
>> > enough
>> > not
>> > to
>> > give up testing and have gone through multiples of strips to be 
>> > certain
>> > of
>> > the accuracy of my current BGL.
>> >
>> > Vince
>> >
>> > PS. I summarized a number of your responses into this one mailing.
>> >
>> >
>> > ----- Original Message ----- 
>> > From: "dmgina" <dmgina at qwest.net>
>> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>> > Sent: Tuesday, December 02, 2008 9:14 PM
>> > Subject: Re: [Diabetes-talk] A question
>> >
>> >
>> > If my doctor ever called me I would fall over.
>> > but to have the nurses say this kind of thing is a different 
>> > matter.
>> > Trust me I will keep calling.
>> > I don't know if I should ask for the group to get more training on
>> > behalf
>> > of
>> > the disabled?
>> > Should I ask the Federation to step in?
>> > This isn't the first time the building of folks has stepped out of
>> > line.
>> > My husband doesn't have this problem, because he would rather 
>> > ignore
>> > matters
>> > and just wait for the doctor to report.
>> > I get excited and want to know.
>> > I want time if I have questions to think about what I wish to ask.
>> > So learning first helps.
>> > At the same time doesn't.
>> > Hope that makes since.
>> >
>> > -comDar
>> > www.mypowermall.com/biz/home/5779
>> > Every saint has a past
>> > every sinner has a future
>> >
>> > ----- Original Message ----- 
>> > From: "Knowledge C" <kcc86 at hotmail.com>
>> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>> > Sent: Monday, December 01, 2008 10:11 PM
>> > Subject: Re: [Diabetes-talk] A question
>> >
>> >
>> >ar Ok..  God knows I understand!  :were  Until I moved to
>> >Indiana I'd
>> >ar never hear from the Doctors, or Nurses unless there was something 
>> >bad
>> >to
>> >ar report.  You keep going on your own persistence!  It doesn't 
>> >matter
>> >what
>> >ar the numbers show.  You deserve to both understand, and come to 
>> >terms
>> >with
>> >ar them before you hang up the damn phone.  Take care of y..
>> >ar
>> >ar Kijuana
>> >ar
>> >ar
>> >ar
>> >ar
>> >ar -- 
>> >ar From: "dmgina" <dmgina at qwest.net>
>> >ar To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>> >ar Sent: Monday, December 01, 2008 9:39 PM
>> >ar Subject: Re: [Diabetes-talk] A question
>> >ar
>> >ar
>> >>> The nurse shared that calling me was a unnecessary call.
>> >>> Because they could tell me the results when I see the doctor.
>> >>> I shared, that until they give me the information in a format I 
>> >>> can
>> >>> read
>> >>> myself,
>> >>> I was going to keep calling.
>> >>> And it was necessary for them to call me back.
>> >>> I wasn't going to wait for an appointment.
>> >>>
>> >>> -comDar
>> >>> www.mypowermall.com/biz/home/5779
>> >>> Every saint has a past
>> >>> every sinner has a future
>> >>>
>> >>> ----- Original Message ----- 
>> >>> From: "Knowledge C" <kcc86 at hotmail.com>
>> >>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>> >>> Sent: Monday, December 01, 2008 7:15 PM
>> >>> Subject: Re: [Diabetes-talk] A question
>> >>>
>> >>>
>> >>>> Hi, Dar, and everyone.  Dar, what question did you ask that your
>> >>>> nurse
>> >>>> wasn't cooperative on?  Congrads on your A1C.  :were  That's 
>> >>>> very
>> >>>> hopeful
>> >>>> for you.  I hope you continue to have great readings.
>> >>>>
>> >>>> Kijuana
>> >>>>
>> >>>>
>> >>>> ----- Original Message ----- 
>> >>>> From: "dmgina" <dmgina at qwest.net>
>> >>>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>> >>>> Sent: Monday, December 01, 2008 4:55 PM
>> >>>> Subject: [Diabetes-talk] A question
>> >>>>
>> >>>>
>> >>>>> Now I was polite,
>> >>>>> I was told by the nurse the reason why they don't call me, is
>> >>>>> because
>> >>>>> it is considered a unnecessary call.
>> >>>>> They can tell me all about it when I go to the appointment.
>> >>>>> I shared no,
>> >>>>> this wasn't unnecessary, unless a format is sent to me for me 
>> >>>>> to
>> >>>>> read,
>> >>>>> I will keep calling.
>> >>>>> How would you have handled the matter.
>> >>>>> Thanks,
>> >>>>>
>> >>>>> -comDar
>> >>>>> www.mypowermall.com/biz/home/5779
>> >>>>> Every saint has a past
>> >>>>> every sinner has a future
>> >>>>>
>> >>>>>
>> >>>>> _______________________________________________
>> >>>>> Diabetes-talk mailing list
>> >>>>> Diabetes-talk at nfbnet.org
>> >>>>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
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>> >>>>> info
>> >>>>> for
>> >>>>> Diabetes-talk:
>> >>>>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kcc86%40hotmail.com
>> >>>>>
>> >>>>
>> >>>>
>> >>>> _______________________________________________
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>> >>>>
>> >>>
>> >>>
>> >>> _______________________________________________
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>> >>>
>> >ar
>> >ar
>> >ar _______________________________________________
>> >ar Diabetes-talk mailing list
>> >ar Diabetes-talk at nfbnet.org
>> >ar http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> >ar To unsubscribe, change your list options or get your account info 
>> >for
>> >ar Diabetes-talk:
>> >ar
>> >http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40qwest.net
>> >ar
>> >
>> >
>> > _______________________________________________
>> > Diabetes-talk mailing list
>> > Diabetes-talk at nfbnet.org
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>> > for
>> > Diabetes-talk:
>> > http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/vgc732%40optonline.net
>> >
>> >
>> >
>> > _______________________________________________
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>> >
>>
>>
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>
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