[Diabetes-talk] A question

Sun Dec 7 15:33:11 UTC 2008

that's for sure.....
Debbie
----- Original Message ----- 
From: "Mike Freeman" <k7uij at panix.com>
To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
Sent: Sunday, December 07, 2008 12:34 AM
Subject: Re: [Diabetes-talk] A question


> Dar:
>
> You shoul IMO have someone reading your mail on a regular basis --
> someone you trust. It's necessary to function well in society.
>
> Of course, I don't give a hoot who knows what my A1C (or anything else
> medical about me) is. To me, privacy these days is illusory at best,
> HIPPA notwithstanding! (grin)
>
> Mike
>
> ----- Original Message ----- 
> From: "dmgina" <dmgina at qwest.net>
> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> Sent: Saturday, December 06, 2008 2:27 PM
> Subject: Re: [Diabetes-talk] A question
>
>
> Mike,
> They wont even send me print because it can be read at the office.
> they decided this on their own.
> this is what I am standing up for,
> \is that I don't mind the print, but would like to find out from the
> office
> first what is happening.
> Because I feel that I need to know from there.
> First.
> Not have just anyone reading my mail tell me.
> I will keep calling, because it is on my behalf and I know I have a rite
> to
> know.
> Others know about their results because they can read them,
> it was embarrassing when I would get a mammogram report and Jim's friend
> would read it to me.
> I just didn't feel good about it.
> Sure we laughed, but I felt as if my privacy was taken away.
> gosh why not put it on the radio or TV if I can't have something for
> myself.
> You know what I mean?
> If the folks print it out, I am hoping that the scanner would read it.
> that didn't happen before, but I would think it should now.
> I don't know.
>
> --Dar
> www.mypowermall.com/biz/home/5779
> Every saint has a past
> every sinner has a future
>
> ----- Original Message ----- 
> From: "Mike Freeman" <k7uij at panix.com>
> To: <diabetes-talk at nfbnet.org>
> Sent: Saturday, December 06, 2008 12:40 AM
> Subject: Re: [Diabetes-talk] A question
>
>
>> Dar:
>>
>> First, the Federal Government does not fall under the rhubric of the
>> ADA;
>> IT IS SUBJECT TO Section 504 of the Rehab Act. So while any ADA
>> REQUIREMENTS MANDATED BY THE COURTS OR THE Department of Justice might
>> serve as a model and a precedent for a suit under Section 504 (which,
>> I
>> presume, is the case here), it does not mean that such a suit will
>> ipso
>> facto succeed. The ADA IS INTERPRETED BY THE Department of Justice to
>> require that doctors (and thetheir offices) make information available
>> to
>> people with disabilities but this does not mean that the material is
>> mandated to be provided in alternative formats such as in braille,
>> computer disk or tape; the information could be read to the blind
>> patient
>> and this would fulfill the requirement. But the Federal Government is
>> under stricter requirements than is private industry and probably does
>> have to produce stuff in alternative formats.
>>
>> Nonetheless, I'm going to venture an opinion here which will probably
>> be
>> rather unpopular: isn't a suit alleging that recipients of SSI AND
>> SSDI
>> WHO ARE BLIND MISSED IMPORTANT NOTICES BECAUSE THEY DIDN'T GET THEM IN
>> BRAILLE OR LARGE PRINT OR ON TAPE SAYING, IN EFFECT, THAT WE, THE
>> BLIND
>> CAN'T HANDLE PRINTED MATERIAL AND THEREFORE SHOULDN'T BE EXPECTED TO
>> DO
>> SO? Does this line of thinking not contradict NFBs insistence that we
>> can
>> compete on terms of equality with the sighted (which, to my mind,
>> necessarily implies that we can and should deal with printed material
>> on
>> our own)? This was the very reason we objected to the currency suit in
>> that it alleged we were being discriminated against because we
>> couldn't
>> see the print!
>>
>> Balderdash and squashrot!
>>
>> Mike Freeman
>>
>> ----- Original Message -----
>> From: "dmgina" <dmgina at qwest.net>
>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>> Date: 2008/12/05 23:50:10
>> Subject: Re: [Diabetes-talk] A question
>>
>>>
>>>
>>> yes I sure appreciate that.
>>> I just think of something and then come back for more information.
>>> One of my thoughts was this,
>>> if the Social security has to put information into a format for us to
>>> read,
>>> then are not the doctors going against the ADA?
>>> Just some thoughts.
>>> and if this is correct, then shouldn't NFB START SOMETHING FOR ALL
>>> DOCTORS
>>> to put information into acceptable format?
>>>
>>> thanks,
>>>
>>> -comDar
>>> www.mypowermall.com/biz/home/5779
>>> Every saint has a past
>>> every sinner has a future
>>>
>>> ----- Original Message ----- 
>>> From: "Vincent Chaney" <vgc732 at optonline.net>
>>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>>> Sent: Tuesday, December 02, 2008 11:07 PM
>>> Subject: Re: [Diabetes-talk] A question
>>>
>>>
>>> > Dar,
>>> >
>>> > A very big hand and congratulations on achieving your A1C 5.4
>>> > level.
>>> > You
>>> > appear to be managing your food, insulin and activities very
>>> > tightly.
>>> > In
>>> > Central New Jersey, my doctor and the labs I have gone to, the
>>> > normal
>>> > range
>>> > is from 4.5 to 5.9 with my doctor having my goals to be in the
>>> > range of
>>> > 6.3
>>> > or lower. The lab I am currently using is Lab Core and as Mike I
>>> > believe
>>> > said, each lab can have a slightly different range.
>>> > The lowering of your blood sugar in the colder weather is not the
>>> > first
>>> > time
>>> > I've heard this. My wife and I have a friend who had said this
>>> > happened
>>> > to
>>> > him and he had learned it was due to the body burning up the sugar
>>> > to
>>> > keep
>>> > warm. He was sensitive enough that it would sometimes happen if he
>>> > went
>>> > into
>>> > a very cool to cold building or house in the summer as well with
>>> > air-conditioning.
>>> > I have purposely held the issue of your doctor's office to last. If
>>> > my
>>> > doctor's staff said it was "unnecessary to call" I would respond
>>> > with a
>>> > definite tone that either I needed to speak directly with the
>>> > doctor
>>> > and
>>> > not
>>> > stop until I had or do a quick answer that that was not a
>>> > satisfactory
>>> > answer for me in "my management of my diabetes". Personally if I
>>> > get an
>>> > answer at my next appointment, which is 3 months for me, old
>>> > information
>>> > would be out of date and would have lost time in my books and life
>>> > to
>>> > work
>>> > on my management of my diabetes. For our A1C as an example, if my
>>> > number
>>> > was
>>> > increasing I could review what I might be doing or may have caused
>>> > it
>>> > to
>>> > climb. I have had periods of very stressful times at work cause my
>>> > A1C
>>> > to
>>> > climb from 5.9 to 6.4. This would be understandable with the "fight
>>> > or
>>> > flight" of the body kicking up adrenalin and the release of stored
>>> > glycogen
>>> > to the glucose level.
>>> > I have had my number climb in the cold weather as I find this time
>>> > difficult
>>> > to get enough blood to test myself. I have found the "Prodigy
>>> > Voice" to
>>> > be
>>> > a
>>> > little easier with it needing less blood and hopefully with it not
>>> > as
>>> > frustrating I will not let my number of tests drop in how often I
>>> > do
>>> > them.
>>> > If I have let my sugar stay higher without testing I see the A1C
>>> > higher
>>> > and
>>> > can predict even before receiving the results. As I have been on
>>> > the
>>> > insulin
>>> > pump since September 1999, the more you test the better and easier
>>> > the
>>> > A1C
>>> > and current BGL CONTROLS ARE NOTICED. Fortunately I'm stubborn
>>> > enough
>>> > not
>>> > to
>>> > give up testing and have gone through multiples of strips to be
>>> > certain
>>> > of
>>> > the accuracy of my current BGL.
>>> >
>>> > Vince
>>> >
>>> > PS. I summarized a number of your responses into this one mailing.
>>> >
>>> >
>>> > ----- Original Message ----- 
>>> > From: "dmgina" <dmgina at qwest.net>
>>> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>>> > Sent: Tuesday, December 02, 2008 9:14 PM
>>> > Subject: Re: [Diabetes-talk] A question
>>> >
>>> >
>>> > If my doctor ever called me I would fall over.
>>> > but to have the nurses say this kind of thing is a different
>>> > matter.
>>> > Trust me I will keep calling.
>>> > I don't know if I should ask for the group to get more training on
>>> > behalf
>>> > of
>>> > the disabled?
>>> > Should I ask the Federation to step in?
>>> > This isn't the first time the building of folks has stepped out of
>>> > line.
>>> > My husband doesn't have this problem, because he would rather
>>> > ignore
>>> > matters
>>> > and just wait for the doctor to report.
>>> > I get excited and want to know.
>>> > I want time if I have questions to think about what I wish to ask.
>>> > So learning first helps.
>>> > At the same time doesn't.
>>> > Hope that makes since.
>>> >
>>> > -comDar
>>> > www.mypowermall.com/biz/home/5779
>>> > Every saint has a past
>>> > every sinner has a future
>>> >
>>> > ----- Original Message ----- 
>>> > From: "Knowledge C" <kcc86 at hotmail.com>
>>> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>>> > Sent: Monday, December 01, 2008 10:11 PM
>>> > Subject: Re: [Diabetes-talk] A question
>>> >
>>> >
>>> >ar Ok..  God knows I understand!  :were  Until I moved to
>>> >Indiana I'd
>>> >ar never hear from the Doctors, or Nurses unless there was something
>>> >bad
>>> >to
>>> >ar report.  You keep going on your own persistence!  It doesn't
>>> >matter
>>> >what
>>> >ar the numbers show.  You deserve to both understand, and come to
>>> >terms
>>> >with
>>> >ar them before you hang up the damn phone.  Take care of y..
>>> >ar
>>> >ar Kijuana
>>> >ar
>>> >ar
>>> >ar
>>> >ar
>>> >ar -- 
>>> >ar From: "dmgina" <dmgina at qwest.net>
>>> >ar To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>>> >ar Sent: Monday, December 01, 2008 9:39 PM
>>> >ar Subject: Re: [Diabetes-talk] A question
>>> >ar
>>> >ar
>>> >>> The nurse shared that calling me was a unnecessary call.
>>> >>> Because they could tell me the results when I see the doctor.
>>> >>> I shared, that until they give me the information in a format I
>>> >>> can
>>> >>> read
>>> >>> myself,
>>> >>> I was going to keep calling.
>>> >>> And it was necessary for them to call me back.
>>> >>> I wasn't going to wait for an appointment.
>>> >>>
>>> >>> -comDar
>>> >>> www.mypowermall.com/biz/home/5779
>>> >>> Every saint has a past
>>> >>> every sinner has a future
>>> >>>
>>> >>> ----- Original Message ----- 
>>> >>> From: "Knowledge C" <kcc86 at hotmail.com>
>>> >>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>>> >>> Sent: Monday, December 01, 2008 7:15 PM
>>> >>> Subject: Re: [Diabetes-talk] A question
>>> >>>
>>> >>>
>>> >>>> Hi, Dar, and everyone.  Dar, what question did you ask that your
>>> >>>> nurse
>>> >>>> wasn't cooperative on?  Congrads on your A1C.  :were  That's
>>> >>>> very
>>> >>>> hopeful
>>> >>>> for you.  I hope you continue to have great readings.
>>> >>>>
>>> >>>> Kijuana
>>> >>>>
>>> >>>>
>>> >>>> ----- Original Message ----- 
>>> >>>> From: "dmgina" <dmgina at qwest.net>
>>> >>>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>>> >>>> Sent: Monday, December 01, 2008 4:55 PM
>>> >>>> Subject: [Diabetes-talk] A question
>>> >>>>
>>> >>>>
>>> >>>>> Now I was polite,
>>> >>>>> I was told by the nurse the reason why they don't call me, is
>>> >>>>> because
>>> >>>>> it is considered a unnecessary call.
>>> >>>>> They can tell me all about it when I go to the appointment.
>>> >>>>> I shared no,
>>> >>>>> this wasn't unnecessary, unless a format is sent to me for me
>>> >>>>> to
>>> >>>>> read,
>>> >>>>> I will keep calling.
>>> >>>>> How would you have handled the matter.
>>> >>>>> Thanks,
>>> >>>>>
>>> >>>>> -comDar
>>> >>>>> www.mypowermall.com/biz/home/5779
>>> >>>>> Every saint has a past
>>> >>>>> every sinner has a future
>>> >>>>>
>>> >>>>>
>>> >>>>> _______________________________________________
>>> >>>>> Diabetes-talk mailing list
>>> >>>>> Diabetes-talk at nfbnet.org
>>> >>>>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> >>>>> To unsubscribe, change your list options or get your account
>>> >>>>> info
>>> >>>>> for
>>> >>>>> Diabetes-talk:
>>> >>>>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kcc86%40hotmail.com
>>> >>>>>
>>> >>>>
>>> >>>>
>>> >>>> _______________________________________________
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>>> >>>> for
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>>> >>>>
>>> >>>
>>> >>>
>>> >>> _______________________________________________
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>>> >>>
>>> >ar
>>> >ar
>>> >ar _______________________________________________
>>> >ar Diabetes-talk mailing list
>>> >ar Diabetes-talk at nfbnet.org
>>> >ar http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> >ar To unsubscribe, change your list options or get your account info
>>> >for
>>> >ar Diabetes-talk:
>>> >ar
>>> >http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40qwest.net
>>> >ar
>>> >
>>> >
>>> > _______________________________________________
>>> > Diabetes-talk mailing list
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>>> > for
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>>> >
>>> >
>>> >
>>> > _______________________________________________
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>>> >
>>>
>>>
>>> _______________________________________________
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>>
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>>
>
>
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