[Diabetes-talk] A question

Sun Dec 7 21:51:28 UTC 2008

Yes the lady who is reading the mail has been with us for four years.
They decided not to send it to me in the mail, and tell me when I get there.
I feel as a person I should decide how I wish my mail sent or what is sent.
I don't know if they do this with everyone, but I am sure they don't.
Except the blind.
Then my husband doesn't mind waiting.
Just the difference between the two of us.

--Dar
www.mypowermall.com/biz/home/5779
Every saint has a past
every sinner has a future

----- Original Message ----- 
From: "Mike Freeman" <k7uij at panix.com>
To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
Sent: Saturday, December 06, 2008 11:34 PM
Subject: Re: [Diabetes-talk] A question

> Dar:
>
> You shoul IMO have someone reading your mail on a regular basis --
> someone you trust. It's necessary to function well in society.
>
> Of course, I don't give a hoot who knows what my A1C (or anything else
> medical about me) is. To me, privacy these days is illusory at best,
> HIPPA notwithstanding! (grin)
>
> Mike
>
> ----- Original Message ----- 
> From: "dmgina" <dmgina at qwest.net>
> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> Sent: Saturday, December 06, 2008 2:27 PM
> Subject: Re: [Diabetes-talk] A question
>
>
> Mike,
> They wont even send me print because it can be read at the office.
> they decided this on their own.
> this is what I am standing up for,
> \is that I don't mind the print, but would like to find out from the
> office
> first what is happening.
> Because I feel that I need to know from there.
> First.
> Not have just anyone reading my mail tell me.
> I will keep calling, because it is on my behalf and I know I have a rite
> to
> know.
> Others know about their results because they can read them,
> it was embarrassing when I would get a mammogram report and Jim's friend
> would read it to me.
> I just didn't feel good about it.
> Sure we laughed, but I felt as if my privacy was taken away.
> gosh why not put it on the radio or TV if I can't have something for
> myself.
> You know what I mean?
> If the folks print it out, I am hoping that the scanner would read it.
> that didn't happen before, but I would think it should now.
> I don't know.
>
> --Dar
> www.mypowermall.com/biz/home/5779
> Every saint has a past
> every sinner has a future
>
> ----- Original Message ----- 
> From: "Mike Freeman" <k7uij at panix.com>
> To: <diabetes-talk at nfbnet.org>
> Sent: Saturday, December 06, 2008 12:40 AM
> Subject: Re: [Diabetes-talk] A question
>
>
>> Dar:
>>
>> First, the Federal Government does not fall under the rhubric of the
>> ADA;
>> IT IS SUBJECT TO Section 504 of the Rehab Act. So while any ADA
>> REQUIREMENTS MANDATED BY THE COURTS OR THE Department of Justice might
>> serve as a model and a precedent for a suit under Section 504 (which,
>> I
>> presume, is the case here), it does not mean that such a suit will
>> ipso
>> facto succeed. The ADA IS INTERPRETED BY THE Department of Justice to
>> require that doctors (and thetheir offices) make information available
>> to
>> people with disabilities but this does not mean that the material is
>> mandated to be provided in alternative formats such as in braille,
>> computer disk or tape; the information could be read to the blind
>> patient
>> and this would fulfill the requirement. But the Federal Government is
>> under stricter requirements than is private industry and probably does
>> have to produce stuff in alternative formats.
>>
>> Nonetheless, I'm going to venture an opinion here which will probably
>> be
>> rather unpopular: isn't a suit alleging that recipients of SSI AND
>> SSDI
>> WHO ARE BLIND MISSED IMPORTANT NOTICES BECAUSE THEY DIDN'T GET THEM IN
>> BRAILLE OR LARGE PRINT OR ON TAPE SAYING, IN EFFECT, THAT WE, THE
>> BLIND
>> CAN'T HANDLE PRINTED MATERIAL AND THEREFORE SHOULDN'T BE EXPECTED TO
>> DO
>> SO? Does this line of thinking not contradict NFBs insistence that we
>> can
>> compete on terms of equality with the sighted (which, to my mind,
>> necessarily implies that we can and should deal with printed material
>> on
>> our own)? This was the very reason we objected to the currency suit in
>> that it alleged we were being discriminated against because we
>> couldn't
>> see the print!
>>
>> Balderdash and squashrot!
>>
>> Mike Freeman
>>
>> ----- Original Message -----
>> From: "dmgina" <dmgina at qwest.net>
>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>> Date: 2008/12/05 23:50:10
>> Subject: Re: [Diabetes-talk] A question
>>
>>>
>>>
>>> yes I sure appreciate that.
>>> I just think of something and then come back for more information.
>>> One of my thoughts was this,
>>> if the Social security has to put information into a format for us to
>>> read,
>>> then are not the doctors going against the ADA?
>>> Just some thoughts.
>>> and if this is correct, then shouldn't NFB START SOMETHING FOR ALL
>>> DOCTORS
>>> to put information into acceptable format?
>>>
>>> thanks,
>>>
>>> -comDar
>>> www.mypowermall.com/biz/home/5779
>>> Every saint has a past
>>> every sinner has a future
>>>
>>> ----- Original Message ----- 
>>> From: "Vincent Chaney" <vgc732 at optonline.net>
>>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>>> Sent: Tuesday, December 02, 2008 11:07 PM
>>> Subject: Re: [Diabetes-talk] A question
>>>
>>>
>>> > Dar,
>>> >
>>> > A very big hand and congratulations on achieving your A1C 5.4
>>> > level.
>>> > You
>>> > appear to be managing your food, insulin and activities very
>>> > tightly.
>>> > In
>>> > Central New Jersey, my doctor and the labs I have gone to, the
>>> > normal
>>> > range
>>> > is from 4.5 to 5.9 with my doctor having my goals to be in the
>>> > range of
>>> > 6.3
>>> > or lower. The lab I am currently using is Lab Core and as Mike I
>>> > believe
>>> > said, each lab can have a slightly different range.
>>> > The lowering of your blood sugar in the colder weather is not the
>>> > first
>>> > time
>>> > I've heard this. My wife and I have a friend who had said this
>>> > happened
>>> > to
>>> > him and he had learned it was due to the body burning up the sugar
>>> > to
>>> > keep
>>> > warm. He was sensitive enough that it would sometimes happen if he
>>> > went
>>> > into
>>> > a very cool to cold building or house in the summer as well with
>>> > air-conditioning.
>>> > I have purposely held the issue of your doctor's office to last. If
>>> > my
>>> > doctor's staff said it was "unnecessary to call" I would respond
>>> > with a
>>> > definite tone that either I needed to speak directly with the
>>> > doctor
>>> > and
>>> > not
>>> > stop until I had or do a quick answer that that was not a
>>> > satisfactory
>>> > answer for me in "my management of my diabetes". Personally if I
>>> > get an
>>> > answer at my next appointment, which is 3 months for me, old
>>> > information
>>> > would be out of date and would have lost time in my books and life
>>> > to
>>> > work
>>> > on my management of my diabetes. For our A1C as an example, if my
>>> > number
>>> > was
>>> > increasing I could review what I might be doing or may have caused
>>> > it
>>> > to
>>> > climb. I have had periods of very stressful times at work cause my
>>> > A1C
>>> > to
>>> > climb from 5.9 to 6.4. This would be understandable with the "fight
>>> > or
>>> > flight" of the body kicking up adrenalin and the release of stored
>>> > glycogen
>>> > to the glucose level.
>>> > I have had my number climb in the cold weather as I find this time
>>> > difficult
>>> > to get enough blood to test myself. I have found the "Prodigy
>>> > Voice" to
>>> > be
>>> > a
>>> > little easier with it needing less blood and hopefully with it not
>>> > as
>>> > frustrating I will not let my number of tests drop in how often I
>>> > do
>>> > them.
>>> > If I have let my sugar stay higher without testing I see the A1C
>>> > higher
>>> > and
>>> > can predict even before receiving the results. As I have been on
>>> > the
>>> > insulin
>>> > pump since September 1999, the more you test the better and easier
>>> > the
>>> > A1C
>>> > and current BGL CONTROLS ARE NOTICED. Fortunately I'm stubborn
>>> > enough
>>> > not
>>> > to
>>> > give up testing and have gone through multiples of strips to be
>>> > certain
>>> > of
>>> > the accuracy of my current BGL.
>>> >
>>> > Vince
>>> >
>>> > PS. I summarized a number of your responses into this one mailing.
>>> >
>>> >
>>> > ----- Original Message ----- 
>>> > From: "dmgina" <dmgina at qwest.net>
>>> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>>> > Sent: Tuesday, December 02, 2008 9:14 PM
>>> > Subject: Re: [Diabetes-talk] A question
>>> >
>>> >
>>> > If my doctor ever called me I would fall over.
>>> > but to have the nurses say this kind of thing is a different
>>> > matter.
>>> > Trust me I will keep calling.
>>> > I don't know if I should ask for the group to get more training on
>>> > behalf
>>> > of
>>> > the disabled?
>>> > Should I ask the Federation to step in?
>>> > This isn't the first time the building of folks has stepped out of
>>> > line.
>>> > My husband doesn't have this problem, because he would rather
>>> > ignore
>>> > matters
>>> > and just wait for the doctor to report.
>>> > I get excited and want to know.
>>> > I want time if I have questions to think about what I wish to ask.
>>> > So learning first helps.
>>> > At the same time doesn't.
>>> > Hope that makes since.
>>> >
>>> > -comDar
>>> > www.mypowermall.com/biz/home/5779
>>> > Every saint has a past
>>> > every sinner has a future
>>> >
>>> > ----- Original Message ----- 
>>> > From: "Knowledge C" <kcc86 at hotmail.com>
>>> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>>> > Sent: Monday, December 01, 2008 10:11 PM
>>> > Subject: Re: [Diabetes-talk] A question
>>> >
>>> >
>>> >ar Ok..  God knows I understand!  :were  Until I moved to
>>> >Indiana I'd
>>> >ar never hear from the Doctors, or Nurses unless there was something
>>> >bad
>>> >to
>>> >ar report.  You keep going on your own persistence!  It doesn't
>>> >matter
>>> >what
>>> >ar the numbers show.  You deserve to both understand, and come to
>>> >terms
>>> >with
>>> >ar them before you hang up the damn phone.  Take care of y..
>>> >ar
>>> >ar Kijuana
>>> >ar
>>> >ar
>>> >ar
>>> >ar
>>> >ar -- 
>>> >ar From: "dmgina" <dmgina at qwest.net>
>>> >ar To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>>> >ar Sent: Monday, December 01, 2008 9:39 PM
>>> >ar Subject: Re: [Diabetes-talk] A question
>>> >ar
>>> >ar
>>> >>> The nurse shared that calling me was a unnecessary call.
>>> >>> Because they could tell me the results when I see the doctor.
>>> >>> I shared, that until they give me the information in a format I
>>> >>> can
>>> >>> read
>>> >>> myself,
>>> >>> I was going to keep calling.
>>> >>> And it was necessary for them to call me back.
>>> >>> I wasn't going to wait for an appointment.
>>> >>>
>>> >>> -comDar
>>> >>> www.mypowermall.com/biz/home/5779
>>> >>> Every saint has a past
>>> >>> every sinner has a future
>>> >>>
>>> >>> ----- Original Message ----- 
>>> >>> From: "Knowledge C" <kcc86 at hotmail.com>
>>> >>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>>> >>> Sent: Monday, December 01, 2008 7:15 PM
>>> >>> Subject: Re: [Diabetes-talk] A question
>>> >>>
>>> >>>
>>> >>>> Hi, Dar, and everyone.  Dar, what question did you ask that your
>>> >>>> nurse
>>> >>>> wasn't cooperative on?  Congrads on your A1C.  :were  That's
>>> >>>> very
>>> >>>> hopeful
>>> >>>> for you.  I hope you continue to have great readings.
>>> >>>>
>>> >>>> Kijuana
>>> >>>>
>>> >>>>
>>> >>>> ----- Original Message ----- 
>>> >>>> From: "dmgina" <dmgina at qwest.net>
>>> >>>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>>> >>>> Sent: Monday, December 01, 2008 4:55 PM
>>> >>>> Subject: [Diabetes-talk] A question
>>> >>>>
>>> >>>>
>>> >>>>> Now I was polite,
>>> >>>>> I was told by the nurse the reason why they don't call me, is
>>> >>>>> because
>>> >>>>> it is considered a unnecessary call.
>>> >>>>> They can tell me all about it when I go to the appointment.
>>> >>>>> I shared no,
>>> >>>>> this wasn't unnecessary, unless a format is sent to me for me
>>> >>>>> to
>>> >>>>> read,
>>> >>>>> I will keep calling.
>>> >>>>> How would you have handled the matter.
>>> >>>>> Thanks,
>>> >>>>>
>>> >>>>> -comDar
>>> >>>>> www.mypowermall.com/biz/home/5779
>>> >>>>> Every saint has a past
>>> >>>>> every sinner has a future
>>> >>>>>
>>> >>>>>
>>> >>>>> _______________________________________________
>>> >>>>> Diabetes-talk mailing list
>>> >>>>> Diabetes-talk at nfbnet.org
>>> >>>>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> >>>>> To unsubscribe, change your list options or get your account
>>> >>>>> info
>>> >>>>> for
>>> >>>>> Diabetes-talk:
>>> >>>>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/kcc86%40hotmail.com
>>> >>>>>
>>> >>>>
>>> >>>>
>>> >>>> _______________________________________________
>>> >>>> Diabetes-talk mailing list
>>> >>>> Diabetes-talk at nfbnet.org
>>> >>>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> >>>> To unsubscribe, change your list options or get your account
>>> >>>> info
>>> >>>> for
>>> >>>> Diabetes-talk:
>>> >>>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40qwest.net
>>> >>>>
>>> >>>
>>> >>>
>>> >>> _______________________________________________
>>> >>> Diabetes-talk mailing list
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>>> >>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> >>> To unsubscribe, change your list options or get your account info
>>> >>> for
>>> >>> Diabetes-talk:
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>>> >>>
>>> >ar
>>> >ar
>>> >ar _______________________________________________
>>> >ar Diabetes-talk mailing list
>>> >ar Diabetes-talk at nfbnet.org
>>> >ar http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> >ar To unsubscribe, change your list options or get your account info
>>> >for
>>> >ar Diabetes-talk:
>>> >ar
>>> >http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmgina%40qwest.net
>>> >ar
>>> >
>>> >
>>> > _______________________________________________
>>> > Diabetes-talk mailing list
>>> > Diabetes-talk at nfbnet.org
>>> > http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> > To unsubscribe, change your list options or get your account info
>>> > for
>>> > Diabetes-talk:
>>> > http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/vgc732%40optonline.net
>>> >
>>> >
>>> >
>>> > _______________________________________________
>>> > Diabetes-talk mailing list
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>>> > http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> > To unsubscribe, change your list options or get your account info
>>> > for
>>> > Diabetes-talk:
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>>> >
>>>
>>>
>>> _______________________________________________
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>>> To unsubscribe, change your list options or get your account info for
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>>
>> _______________________________________________
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>>
>
>
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>
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> 