[Diabetes-talk] [SPAM] Re: insulin pumps

Wed Apr 8 13:05:00 UTC 2009

Mike,
There are different lengths of tubing, and the only injection I take is 
every 2 or 3 days when refilling the pump reservoir and inserting the main 
line into my belly.
It's not that bad Mike.
Di
----- Original Message ----- 
From: "Mike Freeman" <k7uij at panix.com>
To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
Sent: Tuesday, April 07, 2009 9:03 PM
Subject: Re: [Diabetes-talk] [SPAM] Re: insulin pumps


> Freedom from injecting? C'mon, guy! That's going too far. Turn about is
> fair play. By injecting, I have the freedom from being tethered to a
> machine, tangled in tubing 24/7! (grin)
>
> Let's have appropriately method-neutral language here! (grin)
>
> Mike
>
> ----- Original Message ----- 
> From: "David Anspach" <danspach at tampabay.rr.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Sent: Tuesday, April 07, 2009 7:00 PM
> Subject: Re: [Diabetes-talk] [SPAM] Re: insulin pumps
>
>
> Hi Kelly,
> I continue to say that it is so awesome knowing that DDI is undertaking
> the
> project of creating an accessible insulin pump so seriously as to
> consider
> announcing it's eventual addition to the market of insulin pumps
> currently
> available. I truly enjoy the freedom and flexibility of having an
> insulin
> pump as it does free you from the daily need to inject insulin and am
> hopeful that the new pump being created by DDI hits all of the marks we,
> as
> blind diabetics, will need to fully access the features and benefits a
> pump
> can bring to the management of diabetes. If there is ever anything I can
> do
> to help out, please don't ever hesitate to contact me.
>
> One final note, how about a program wherein you can get a discount off
> the
> new DDI accessible pump if you should decide to trade in your current
> pump
> for a new DDI pump?
>
> Just a thought <smile>.
>
> Dave
>
>
> -----Original Message-----
> From: diabetes-talk-bounces at nfbnet.org
> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Kelly Massaro
> Sent: Tuesday, April 07, 2009 10:22 AM
> To: Diabetes Talk for the Blind
> Cc: Jerry Munden
> Subject: Re: [Diabetes-talk] [SPAM] Re: insulin pumps
>
> Hello Eileen and David,
>
> I'd like to thank you both for your feedback regarding the pros and cons
> of
> pump usage as a blind diabetic.  Additionally, thank you for expressing
> your
> desire to help us with the design of the talking insulin pump.
>
> I have forwarded your feedback to our CEO and Vice President and will
> contact you when and if they would like you to participate.
>
> I'm excited about our new products in the pipeline.  We have a lot more
> to
> come after the insulin pump, so I'll keep everyone posted!
>
>
> Best Regards,
>
> Kelly Massaro
> Senior Marketing and Sales Account Representative Diagnostic Devices
> 9300
> Harris Corners Pkwy Suite 450 Charlotte NC  28269
> Direct: 704-285-6425
> Main: 800-366-5901
> kellym at prodigymeter.com
> www.prodigymeter.com
>
>
> PRIVILEGED AND CONFIDENTIAL: The information contained in this
> electronic
> message and any attachments are confidential property of the sender. The
> information is intended only for the use of the person to whom it was
> addressed and should not be used in any manner not authorized by the
> sender.
> Any other interception, copying, accessing, or disclosure of this
> information is prohibited. The sender takes no responsibility for any
> unauthorized reliance on this information. If you have received this
> message
> in error, please immediately notify the sender and purge the message you
> received. Do not forward this message without permission.
>
>
>
>
>
> -----Original Message-----
> From: diabetes-talk-bounces at nfbnet.org
> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani
> Sent: Tuesday, April 07, 2009 10:14 AM
> To: Diabetes Talk for the Blind
> Subject: Re: [Diabetes-talk] [SPAM] Re: insulin pumps
>
> David & Kelly:
>
> first to Dave -- I want to thank you for your very honest critique of
> using
> your insulin pump as a blind diabetic!  I'm tired of getting rave
> reviews
> about products from many in the blindness community about how wonderful
> certain diabetic devices are while at the same time, totally neglecting
> to
> state the problems and challenges they have encountered.  I am very glad
> you
> let the list know your experience with the pump.  As you know, I have
> been
> wanting to switch to a pump, but have been hesitant because of the lack
> of
> accessibility built into them. Reading your message below, I am glad I
> have
> held off and not been pushed into it.
>
> To Kelly --  Like David stated there was a mention a while back on this
> list
> about asking people for input into the development of a pump.  I did at
> that
> time also contact the person looking for participants.  If at all needed
> I
> am still more than willing to participate in any type of testing,
> questionnaires or studies as a person who is blind and has never used a
> pump, but is insulin dependant and administering one's own insulin
> injections and BG testing without any sighted assistance.
>
> Kelly, feel free to contact me if you or DI is looking for people to
> facilitate this type of work.
>
> Thank you both.
>
> Eileen
>
> ----- Original Message -----
> From: "David Anspach" <danspach at tampabay.rr.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Sent: Monday, April 06, 2009 8:50 PM
> Subject: [SPAM] Re: [Diabetes-talk] insulin pumps
>
>
>> Hello Kelly,
>> As a long-time and perhaps long-suffering insulin pump user, this is
>> definitely great news!  I am a long-time Minimed Paradigm insulin pump
>
>> user.
>> While using a pump definitely has great advantages over taking insulin
> via
>> injection, it is nearly impossible as a blind diabetic to use a pump
>> without
>> someone to act as a sighted backup. Sure I can change out the pump
> i.e.
>> change the reservoir and tubing plus insert the canula into a new
> site,
>> but
>> there is just no way that I can, as a blind diabetic, take full
> advantage
>> of
>> all of the features of my pump. About all I can do is take a bolus
> before
>> each meal and any time I want to eat a snack. I've been a person in
> the
>> past
>> who really would rather be in total control of my diabetes. But with
> this
>> pump, I'm afraid I simply cannot. I can't change the most simplest of
>> things, such as my own basal rates, as I simply cannot access the
> pump. I
>> have to wait for someone who is familiar with my pump to come to my
> house
>> or
>> my employer and help me adjust it then.
>>
>> It is probably the most frustrating thing I have ever faced as a blind
>> diabetic. In fact, I have considered time and time again just throwing
> my
>> pump into the trash and going back to taking insulin via an injection.
> I
>> know that we here in the NFB have written about how using a pump as a
>> blind
>> person is possible. But I just go back to the same issue, you must
> have
>> someone sighted who can help you adjust the more complex settings on
> your
>> pump such as basal rates. I know there are some who have managed to do
>
>> some
>> of the more complex things such as setting a temporary basal rate, but
> I
>> honestly don't trust not being able to see the screen to ensure I have
>
>> done
>> the right thing or pressed the various buttons the correct amount of
> times
>> to get to the setting I want to change.
>>
>> Sometime ago, there was a call to anyone interested in taking part in
>> helping develop an accessible insulin pump to respond via this very
> e-mail
>> list. At that time, the folks at DDI were going to be producing the
> pump,
>> as
>> you have now shown in your message below. But, I volunteered and never
>> really heard much more. So, are you actively seeking anyone who can
> lend
>> advice etc. to the development of such a pump? If so, then I am
> definitely
>> very interested in contributing in any way I can. I would love to have
> the
>> ability of at least offering my input into such a pump and its design.
>>
>> Thanks for reading my rather lengthy e-mail message :). If you would
> like
>> to
>> talk with me further, please don't hesitate to write to me at:
>> danspach at tampabay.rr.com
>> Or at work via:
>> DavidA at FreedomScientific.com
>>
>> Have a great evening,
>>
>> Dave
>>
>> -----Original Message-----
>> From: diabetes-talk-bounces at nfbnet.org
>> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Kelly Massaro
>> Sent: Monday, April 06, 2009 1:43 PM
>> To: Diabetes Talk for the Blind
>> Subject: Re: [Diabetes-talk] insulin pumps
>>
>> Currently there are no pumps on the market for the visually impaired
>> however
>> DDI has a talking insulin pump in the pipeline that should be released
>> within a year.
>>
>> Best Regards,
>>
>> Kelly Massaro
>> Senior Marketing and Sales Account Representative Diagnostic Devices
> 9300
>> Harris Corners Pkwy Suite 450 Charlotte NC  28269
>> Direct: 704-285-6425
>> Main: 800-366-5901
>> kellym at prodigymeter.com
>> www.prodigymeter.com
>>
>>
>> PRIVILEGED AND CONFIDENTIAL: The information contained in this
> electronic
>> message and any attachments are confidential property of the sender.
> The
>> information is intended only for the use of the person to whom it was
>> addressed and should not be used in any manner not authorized by the
>> sender.
>> Any other interception, copying, accessing, or disclosure of this
>> information is prohibited. The sender takes no responsibility for any
>> unauthorized reliance on this information. If you have received this
>> message
>> in error, please immediately notify the sender and purge the message
> you
>> received. Do not forward this message without permission.
>>
>>
>>
>>
>>
>> -----Original Message-----
>> From: diabetes-talk-bounces at nfbnet.org
>> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of cheryl
> echevarria
>> Sent: Monday, April 06, 2009 1:38 PM
>> To: Diabetes Talk for the Blind
>> Subject: Re: [Diabetes-talk] insulin pumps
>>
>> there aren't any.
>>
>> Cheryl Echevarria
>>  ----- Original Message -----
>>  From: catdancing<mailto:catdancing at sbcglobal.net>
>>  To: Diabetes Talk for the Blind<mailto:diabetes-talk at nfbnet.org>
>>  Sent: Monday, April 06, 2009 10:29 AM
>>  Subject: [Diabetes-talk] insulin pumps
>>
>>
>>  has anyone on here ever heard of an insulin pump for the visually
>> impaired? if so could u let me know what it is and where to find it.
>>  a friend of mine also a type 1 said a place called ammis. com made
> them
>> but i couldn't find any such item on their web page.
>>  has anyone any ideas?
>>  Debbie
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