[Diabetes-talk] [SPAM] Re: insulin pumps

Thu Apr 9 03:18:45 UTC 2009

Perhaps we have different tastes. I don't mind injections but would 
dislike being tethered to a machine or having to prime the tubing --  
damned ineficient if you ask me! Of course, this wouldn't be necessary 
with the Omnipod which fastens directly to the abdomen but then one must 
be certain that the device stays in place.

Besides, I don't trust machines. I'd much rather measure and inject 
myself, doing all the math myself rather than depending upon a machine 
to do it.

Different strokes etc.

Mike

----- Original Message ----- 
From: "Diane" <dianefilipe at peoplepc.com>
To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
Sent: Wednesday, April 08, 2009 6:05 AM
Subject: Re: [Diabetes-talk] [SPAM] Re: insulin pumps

Mike,
There are different lengths of tubing, and the only injection I take is
every 2 or 3 days when refilling the pump reservoir and inserting the 
main
line into my belly.
It's not that bad Mike.
Di
----- Original Message ----- 
From: "Mike Freeman" <k7uij at panix.com>
To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
Sent: Tuesday, April 07, 2009 9:03 PM
Subject: Re: [Diabetes-talk] [SPAM] Re: insulin pumps

> Freedom from injecting? C'mon, guy! That's going too far. Turn about 
> is
> fair play. By injecting, I have the freedom from being tethered to a
> machine, tangled in tubing 24/7! (grin)
>
> Let's have appropriately method-neutral language here! (grin)
>
> Mike
>
> ----- Original Message ----- 
> From: "David Anspach" <danspach at tampabay.rr.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Sent: Tuesday, April 07, 2009 7:00 PM
> Subject: Re: [Diabetes-talk] [SPAM] Re: insulin pumps
>
>
> Hi Kelly,
> I continue to say that it is so awesome knowing that DDI is 
> undertaking
> the
> project of creating an accessible insulin pump so seriously as to
> consider
> announcing it's eventual addition to the market of insulin pumps
> currently
> available. I truly enjoy the freedom and flexibility of having an
> insulin
> pump as it does free you from the daily need to inject insulin and am
> hopeful that the new pump being created by DDI hits all of the marks 
> we,
> as
> blind diabetics, will need to fully access the features and benefits a
> pump
> can bring to the management of diabetes. If there is ever anything I 
> can
> do
> to help out, please don't ever hesitate to contact me.
>
> One final note, how about a program wherein you can get a discount off
> the
> new DDI accessible pump if you should decide to trade in your current
> pump
> for a new DDI pump?
>
> Just a thought <smile>.
>
> Dave
>
>
> -----Original Message-----
> From: diabetes-talk-bounces at nfbnet.org
> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Kelly Massaro
> Sent: Tuesday, April 07, 2009 10:22 AM
> To: Diabetes Talk for the Blind
> Cc: Jerry Munden
> Subject: Re: [Diabetes-talk] [SPAM] Re: insulin pumps
>
> Hello Eileen and David,
>
> I'd like to thank you both for your feedback regarding the pros and 
> cons
> of
> pump usage as a blind diabetic.  Additionally, thank you for 
> expressing
> your
> desire to help us with the design of the talking insulin pump.
>
> I have forwarded your feedback to our CEO and Vice President and will
> contact you when and if they would like you to participate.
>
> I'm excited about our new products in the pipeline.  We have a lot 
> more
> to
> come after the insulin pump, so I'll keep everyone posted!
>
>
> Best Regards,
>
> Kelly Massaro
> Senior Marketing and Sales Account Representative Diagnostic Devices
> 9300
> Harris Corners Pkwy Suite 450 Charlotte NC  28269
> Direct: 704-285-6425
> Main: 800-366-5901
> kellym at prodigymeter.com
> www.prodigymeter.com
>
>
> PRIVILEGED AND CONFIDENTIAL: The information contained in this
> electronic
> message and any attachments are confidential property of the sender. 
> The
> information is intended only for the use of the person to whom it was
> addressed and should not be used in any manner not authorized by the
> sender.
> Any other interception, copying, accessing, or disclosure of this
> information is prohibited. The sender takes no responsibility for any
> unauthorized reliance on this information. If you have received this
> message
> in error, please immediately notify the sender and purge the message 
> you
> received. Do not forward this message without permission.
>
>
>
>
>
> -----Original Message-----
> From: diabetes-talk-bounces at nfbnet.org
> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Eileen Scrivani
> Sent: Tuesday, April 07, 2009 10:14 AM
> To: Diabetes Talk for the Blind
> Subject: Re: [Diabetes-talk] [SPAM] Re: insulin pumps
>
> David & Kelly:
>
> first to Dave -- I want to thank you for your very honest critique of
> using
> your insulin pump as a blind diabetic!  I'm tired of getting rave
> reviews
> about products from many in the blindness community about how 
> wonderful
> certain diabetic devices are while at the same time, totally 
> neglecting
> to
> state the problems and challenges they have encountered.  I am very 
> glad
> you
> let the list know your experience with the pump.  As you know, I have
> been
> wanting to switch to a pump, but have been hesitant because of the 
> lack
> of
> accessibility built into them. Reading your message below, I am glad I
> have
> held off and not been pushed into it.
>
> To Kelly --  Like David stated there was a mention a while back on 
> this
> list
> about asking people for input into the development of a pump.  I did 
> at
> that
> time also contact the person looking for participants.  If at all 
> needed
> I
> am still more than willing to participate in any type of testing,
> questionnaires or studies as a person who is blind and has never used 
> a
> pump, but is insulin dependant and administering one's own insulin
> injections and BG testing without any sighted assistance.
>
> Kelly, feel free to contact me if you or DI is looking for people to
> facilitate this type of work.
>
> Thank you both.
>
> Eileen
>
> ----- Original Message -----
> From: "David Anspach" <danspach at tampabay.rr.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Sent: Monday, April 06, 2009 8:50 PM
> Subject: [SPAM] Re: [Diabetes-talk] insulin pumps
>
>
>> Hello Kelly,
>> As a long-time and perhaps long-suffering insulin pump user, this is
>> definitely great news!  I am a long-time Minimed Paradigm insulin 
>> pump
>
>> user.
>> While using a pump definitely has great advantages over taking 
>> insulin
> via
>> injection, it is nearly impossible as a blind diabetic to use a pump
>> without
>> someone to act as a sighted backup. Sure I can change out the pump
> i.e.
>> change the reservoir and tubing plus insert the canula into a new
> site,
>> but
>> there is just no way that I can, as a blind diabetic, take full
> advantage
>> of
>> all of the features of my pump. About all I can do is take a bolus
> before
>> each meal and any time I want to eat a snack. I've been a person in
> the
>> past
>> who really would rather be in total control of my diabetes. But with
> this
>> pump, I'm afraid I simply cannot. I can't change the most simplest of
>> things, such as my own basal rates, as I simply cannot access the
> pump. I
>> have to wait for someone who is familiar with my pump to come to my
> house
>> or
>> my employer and help me adjust it then.
>>
>> It is probably the most frustrating thing I have ever faced as a 
>> blind
>> diabetic. In fact, I have considered time and time again just 
>> throwing
> my
>> pump into the trash and going back to taking insulin via an 
>> injection.
> I
>> know that we here in the NFB have written about how using a pump as a
>> blind
>> person is possible. But I just go back to the same issue, you must
> have
>> someone sighted who can help you adjust the more complex settings on
> your
>> pump such as basal rates. I know there are some who have managed to 
>> do
>
>> some
>> of the more complex things such as setting a temporary basal rate, 
>> but
> I
>> honestly don't trust not being able to see the screen to ensure I 
>> have
>
>> done
>> the right thing or pressed the various buttons the correct amount of
> times
>> to get to the setting I want to change.
>>
>> Sometime ago, there was a call to anyone interested in taking part in
>> helping develop an accessible insulin pump to respond via this very
> e-mail
>> list. At that time, the folks at DDI were going to be producing the
> pump,
>> as
>> you have now shown in your message below. But, I volunteered and 
>> never
>> really heard much more. So, are you actively seeking anyone who can
> lend
>> advice etc. to the development of such a pump? If so, then I am
> definitely
>> very interested in contributing in any way I can. I would love to 
>> have
> the
>> ability of at least offering my input into such a pump and its 
>> design.
>>
>> Thanks for reading my rather lengthy e-mail message :). If you would
> like
>> to
>> talk with me further, please don't hesitate to write to me at:
>> danspach at tampabay.rr.com
>> Or at work via:
>> DavidA at FreedomScientific.com
>>
>> Have a great evening,
>>
>> Dave
>>
>> -----Original Message-----
>> From: diabetes-talk-bounces at nfbnet.org
>> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Kelly Massaro
>> Sent: Monday, April 06, 2009 1:43 PM
>> To: Diabetes Talk for the Blind
>> Subject: Re: [Diabetes-talk] insulin pumps
>>
>> Currently there are no pumps on the market for the visually impaired
>> however
>> DDI has a talking insulin pump in the pipeline that should be 
>> released
>> within a year.
>>
>> Best Regards,
>>
>> Kelly Massaro
>> Senior Marketing and Sales Account Representative Diagnostic Devices
> 9300
>> Harris Corners Pkwy Suite 450 Charlotte NC  28269
>> Direct: 704-285-6425
>> Main: 800-366-5901
>> kellym at prodigymeter.com
>> www.prodigymeter.com
>>
>>
>> PRIVILEGED AND CONFIDENTIAL: The information contained in this
> electronic
>> message and any attachments are confidential property of the sender.
> The
>> information is intended only for the use of the person to whom it was
>> addressed and should not be used in any manner not authorized by the
>> sender.
>> Any other interception, copying, accessing, or disclosure of this
>> information is prohibited. The sender takes no responsibility for any
>> unauthorized reliance on this information. If you have received this
>> message
>> in error, please immediately notify the sender and purge the message
> you
>> received. Do not forward this message without permission.
>>
>>
>>
>>
>>
>> -----Original Message-----
>> From: diabetes-talk-bounces at nfbnet.org
>> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of cheryl
> echevarria
>> Sent: Monday, April 06, 2009 1:38 PM
>> To: Diabetes Talk for the Blind
>> Subject: Re: [Diabetes-talk] insulin pumps
>>
>> there aren't any.
>>
>> Cheryl Echevarria
>>  ----- Original Message -----
>>  From: catdancing<mailto:catdancing at sbcglobal.net>
>>  To: Diabetes Talk for the Blind<mailto:diabetes-talk at nfbnet.org>
>>  Sent: Monday, April 06, 2009 10:29 AM
>>  Subject: [Diabetes-talk] insulin pumps
>>
>>
>>  has anyone on here ever heard of an insulin pump for the visually
>> impaired? if so could u let me know what it is and where to find it.
>>  a friend of mine also a type 1 said a place called ammis. com made
> them
>> but i couldn't find any such item on their web page.
>>  has anyone any ideas?
>>  Debbie
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