[Diabetes-talk] My cure of Type 1 Diabetes!

Sat Aug 22 04:14:21 UTC 2009

Hi Rachael,
The thing is that you need to keep logs.  My husband is doing it for me.  I assured them before the transplant that I would be able to give them all this information.  Actually, they have put everything in email attachments, so I would have no trouble filling out all the information.  I seem to recall they  wanted you to have complications to be eligible for this study.  I had been applying for these islet transplants for about 10 years and was always turned down because of my kidneys.  This newer study is not using anything that  damages the kidneys.  My doctor really likes my guidedog and I think they have other people with guidedogs.  I think there are about 5 universities doing the same study.  If you want, I would be happy to send you the phone number of the coordinator in San Francisco.   I'm sure she can give you all the info you want.  Let me know.
How long has your husband had diabetes and is it type 1?

Sally

----- Original Message ----- 
From: "Rachel and Rhett" <serenityangel1983 at gmail.com>
To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
Sent: Friday, August 21, 2009 4:34 PM
Subject: Re: [Diabetes-talk] My cure of Type 1 Diabetes!

> Hi, Sally.
> 
> The thing is, are you blind or visually impaired? A lot of the eyelet cell 
> transplants require no complications, as my husband who is diabetic looked 
> into it. He couldn't do it because he is blind, or so he was told.
> Rachel
> Rachel Krieg
> Ameriplan Representative
> Ameriplan USA
> www.freedomathometeam.com/rkrieg/
> www.mybenefitsplus.com/rkrieg/
> ----- Original Message ----- 
> From: "Sally Maguire" <1.sally at comcast.net>
> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> Sent: Friday, August 21, 2009 4:29 PM
> Subject: Re: [Diabetes-talk] My cure of Type 1 Diabetes!
> 
> 
>> Hi Cheryl,
>> Well, for me it is a cure.  Technically, it may be called a treatment, I 
>> don't know and I don't really care about the semantics here.  After 52 
>> years of living this life on a tightrope, taking insulin and the blood 
>> sugars you-yoing, , I call this a cure!  I understand there may be side 
>> effects from immune suppressants, but at least I do not expect more 
>> complications from the high and low blood sugars of the diabetes!
>>
>> My procedure was done in California and there are several universities 
>> conducting the same study right now.  I went to Minnesota to be approved 
>> for the study.  If anyone wants the contact info, let me know.
>>
>> Thank you all for the good wishes.
>>
>> Sally
>>
>>
>>
>> ----- Original Message ----- 
>> From: "cheryl echevarria" <cherylandmaxx at hotmail.com>
>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>> Sent: Friday, August 21, 2009 12:07 PM
>> Subject: Re: [Diabetes-talk] My cure of Type 1 Diabetes!
>>
>>
>>> again, I want to congratulate the person who got the transplant, and
>>> hopefully it will last the rest of your life.
>>>
>>> Cheryl Echevarria
>>>
>>> skype: angeldn3
>>>
>>>
>>> ----- Original Message ----- 
>>> From: "Ed Bryant" <ebryant at socket.net>
>>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>>> Sent: Friday, August 21, 2009 2:22 PM
>>> Subject: Re: [Diabetes-talk] My cure of Type 1 Diabetes!
>>>
>>>
>>>> Hi Cheryl,
>>>> I know of a man who had a transplanted kidney for 32 years.
>>>> When he died he was in his eighties but he did not die from his kidney
>>>> transplant.
>>>> No one knows just how long a kidney transplant can last but with the new
>>>> anti-rejection therapies they may last a life time... We should all
>>>> remember
>>>> to "be positive--accentuate the positive."
>>>>
>>>> Regards,
>>>> Ed Bryant
>>>>
>>>> -----Original Message-----
>>>> From: diabetes-talk-bounces at nfbnet.org
>>>> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of cheryl echevarria
>>>> Sent: Thursday, August 20, 2009 4:49 AM
>>>> To: Diabetes Talk for the Blind
>>>> Subject: Re: [Diabetes-talk] My cure of Type 1 Diabetes!
>>>>
>>>> For someone who is a kindey transplant patient as well as Ed Bryant, I
>>>> want
>>>> to wish you congratulation.  I also want to say that a transplant is 
>>>> just
>>>> a
>>>> treatment and may not last forever.  We are told as transplant patients,
>>>> that we can lose our organs if we do not take care of ourselves, I was
>>>> evaluated for the same transplant with my kidney transplant back in 05 
>>>> and
>>>> they couldn't do it because I my blood work showed I was not a typical
>>>> type
>>>> 1 and more of a type 2.
>>>>
>>>> You must stay to your meds, and you must keep your blood sugar in normal
>>>> range.   I am not curent of end stage renal disease, I just had a
>>>> treatment
>>>> for it and as long as my kidney is health and I take my medications
>>>> hopefully I will never need another one. I have heard people's 
>>>> transplants
>>>> lasting over 25 years if I am not mistaken and Ed Bryant can correct me,
>>>> he
>>>> is even at the 25 year marker or longer. But they may or may stop 
>>>> working.
>>>>
>>>> Again, I want to congratulate you on this wonderful thing, but at the 
>>>> same
>>>> time, it is not a cure.  You may need another one in the future.
>>>> Transplant
>>>>
>>>> are covered by Medicare and insurance but not this particular one yet.
>>>>
>>>> God Bless.
>>>>
>>>> Cheryl Echevarria
>>>>
>>>> skype: angeldn3
>>>>
>>>>
>>>> ----- Original Message ----- 
>>>> From: "Mike Freeman" <k7uij at panix.com>
>>>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>>>> Sent: Thursday, August 20, 2009 12:14 AM
>>>> Subject: Re: [Diabetes-talk] My cure of Type 1 Diabetes!
>>>>
>>>>
>>>> > Congratulations! And good luck!
>>>> >
>>>> > Mike Freeman
>>>> >
>>>> > ----- Original Message ----- 
>>>> > From: "Sally Maguire" <1.sally at comcast.net>
>>>> > To: <Diabetes-talk at nfbnet.org>
>>>> > Sent: Wednesday, August 19, 2009 11:31 AM
>>>> > Subject: [Diabetes-talk] My cure of Type 1 Diabetes!
>>>> >
>>>> >
>>>> >
>>>> >
>>>> >
>>>> >
>>>> > Hi everyone!
>>>> > I am so excited to share with youabout my islet cell transplant. 
>>>> > After
>>>> > living with Type 1 for 52 yearsI had an islet cell transplaant last
>>>> > week.  My blood sugars are now in the normal range although it is
>>>> > supposed to take 4 to 6 weeks for the cells to function normally. I
>>>> > can't believe it!  The procedure is still considered experimental, so
>>>> > there was no charge.  The study is funded by the Juvenile Diabetes
>>>> > Foundation.  Am I grateful!!!There are several Universities conducting
>>>> > the study right now.  I had mine done at UCSF.  I was in the hospital
>>>> > for one week and the actual procedure, implanting the cells through a
>>>> > catheter into the liver, only takes about 45 minutes.  I was sick from
>>>> > the immune suppressants while I was in the hospital, but feel great 
>>>> > now!
>>>> > I just knew God would let me experience part of life without diabetes!
>>>> > Hurray, hurray, hurray!!!
>>>> >
>>>> > So, keep healthy everyone and avoid those complications for when there
>>>> > is a cure for your kind of diabetes, you want to enjoy it!
>>>> >
>>>> > Sally Maguire
>>>> >
>>>> >
>>>> >
>>>> ----------------------------------------------------------------------------
>>>> ----
>>>> >
>>>> >
>>>> >
>>>> >
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>>>
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>>
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