[Diabetes-talk] My cure of Type 1 Diabetes!

Sat Aug 22 04:43:10 UTC 2009

Hi, Sally.

I'm glad they like the guide dog, as both my husband and I have one.. My 
husband has had type 1 for 31 years. Take care.
Rachel and Rhett
Rachel Krieg
Ameriplan Representative
Ameriplan USA
www.freedomathometeam.com/rkrieg/
www.mybenefitsplus.com/rkrieg/
----- Original Message ----- 
From: "Sally Maguire" <1.sally at comcast.net>
To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
Sent: Friday, August 21, 2009 9:14 PM
Subject: Re: [Diabetes-talk] My cure of Type 1 Diabetes!

> Hi Rachael,
> The thing is that you need to keep logs.  My husband is doing it for me. 
> I assured them before the transplant that I would be able to give them all 
> this information.  Actually, they have put everything in email 
> attachments, so I would have no trouble filling out all the information. 
> I seem to recall they  wanted you to have complications to be eligible for 
> this study.  I had been applying for these islet transplants for about 10 
> years and was always turned down because of my kidneys.  This newer study 
> is not using anything that  damages the kidneys.  My doctor really likes 
> my guidedog and I think they have other people with guidedogs.  I think 
> there are about 5 universities doing the same study.  If you want, I would 
> be happy to send you the phone number of the coordinator in San Francisco. 
> I'm sure she can give you all the info you want.  Let me know.
> How long has your husband had diabetes and is it type 1?
>
> Sally
>
>
>
>
>
> ----- Original Message ----- 
> From: "Rachel and Rhett" <serenityangel1983 at gmail.com>
> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> Sent: Friday, August 21, 2009 4:34 PM
> Subject: Re: [Diabetes-talk] My cure of Type 1 Diabetes!
>
>
>> Hi, Sally.
>>
>> The thing is, are you blind or visually impaired? A lot of the eyelet 
>> cell
>> transplants require no complications, as my husband who is diabetic 
>> looked
>> into it. He couldn't do it because he is blind, or so he was told.
>> Rachel
>> Rachel Krieg
>> Ameriplan Representative
>> Ameriplan USA
>> www.freedomathometeam.com/rkrieg/
>> www.mybenefitsplus.com/rkrieg/
>> ----- Original Message ----- 
>> From: "Sally Maguire" <1.sally at comcast.net>
>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>> Sent: Friday, August 21, 2009 4:29 PM
>> Subject: Re: [Diabetes-talk] My cure of Type 1 Diabetes!
>>
>>
>>> Hi Cheryl,
>>> Well, for me it is a cure.  Technically, it may be called a treatment, I
>>> don't know and I don't really care about the semantics here.  After 52
>>> years of living this life on a tightrope, taking insulin and the blood
>>> sugars you-yoing, , I call this a cure!  I understand there may be side
>>> effects from immune suppressants, but at least I do not expect more
>>> complications from the high and low blood sugars of the diabetes!
>>>
>>> My procedure was done in California and there are several universities
>>> conducting the same study right now.  I went to Minnesota to be approved
>>> for the study.  If anyone wants the contact info, let me know.
>>>
>>> Thank you all for the good wishes.
>>>
>>> Sally
>>>
>>>
>>>
>>> ----- Original Message ----- 
>>> From: "cheryl echevarria" <cherylandmaxx at hotmail.com>
>>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>>> Sent: Friday, August 21, 2009 12:07 PM
>>> Subject: Re: [Diabetes-talk] My cure of Type 1 Diabetes!
>>>
>>>
>>>> again, I want to congratulate the person who got the transplant, and
>>>> hopefully it will last the rest of your life.
>>>>
>>>> Cheryl Echevarria
>>>>
>>>> skype: angeldn3
>>>>
>>>>
>>>> ----- Original Message ----- 
>>>> From: "Ed Bryant" <ebryant at socket.net>
>>>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>>>> Sent: Friday, August 21, 2009 2:22 PM
>>>> Subject: Re: [Diabetes-talk] My cure of Type 1 Diabetes!
>>>>
>>>>
>>>>> Hi Cheryl,
>>>>> I know of a man who had a transplanted kidney for 32 years.
>>>>> When he died he was in his eighties but he did not die from his kidney
>>>>> transplant.
>>>>> No one knows just how long a kidney transplant can last but with the 
>>>>> new
>>>>> anti-rejection therapies they may last a life time... We should all
>>>>> remember
>>>>> to "be positive--accentuate the positive."
>>>>>
>>>>> Regards,
>>>>> Ed Bryant
>>>>>
>>>>> -----Original Message-----
>>>>> From: diabetes-talk-bounces at nfbnet.org
>>>>> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of cheryl 
>>>>> echevarria
>>>>> Sent: Thursday, August 20, 2009 4:49 AM
>>>>> To: Diabetes Talk for the Blind
>>>>> Subject: Re: [Diabetes-talk] My cure of Type 1 Diabetes!
>>>>>
>>>>> For someone who is a kindey transplant patient as well as Ed Bryant, I
>>>>> want
>>>>> to wish you congratulation.  I also want to say that a transplant is
>>>>> just
>>>>> a
>>>>> treatment and may not last forever.  We are told as transplant 
>>>>> patients,
>>>>> that we can lose our organs if we do not take care of ourselves, I was
>>>>> evaluated for the same transplant with my kidney transplant back in 05
>>>>> and
>>>>> they couldn't do it because I my blood work showed I was not a typical
>>>>> type
>>>>> 1 and more of a type 2.
>>>>>
>>>>> You must stay to your meds, and you must keep your blood sugar in 
>>>>> normal
>>>>> range.   I am not curent of end stage renal disease, I just had a
>>>>> treatment
>>>>> for it and as long as my kidney is health and I take my medications
>>>>> hopefully I will never need another one. I have heard people's
>>>>> transplants
>>>>> lasting over 25 years if I am not mistaken and Ed Bryant can correct 
>>>>> me,
>>>>> he
>>>>> is even at the 25 year marker or longer. But they may or may stop
>>>>> working.
>>>>>
>>>>> Again, I want to congratulate you on this wonderful thing, but at the
>>>>> same
>>>>> time, it is not a cure.  You may need another one in the future.
>>>>> Transplant
>>>>>
>>>>> are covered by Medicare and insurance but not this particular one yet.
>>>>>
>>>>> God Bless.
>>>>>
>>>>> Cheryl Echevarria
>>>>>
>>>>> skype: angeldn3
>>>>>
>>>>>
>>>>> ----- Original Message ----- 
>>>>> From: "Mike Freeman" <k7uij at panix.com>
>>>>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>>>>> Sent: Thursday, August 20, 2009 12:14 AM
>>>>> Subject: Re: [Diabetes-talk] My cure of Type 1 Diabetes!
>>>>>
>>>>>
>>>>> > Congratulations! And good luck!
>>>>> >
>>>>> > Mike Freeman
>>>>> >
>>>>> > ----- Original Message ----- 
>>>>> > From: "Sally Maguire" <1.sally at comcast.net>
>>>>> > To: <Diabetes-talk at nfbnet.org>
>>>>> > Sent: Wednesday, August 19, 2009 11:31 AM
>>>>> > Subject: [Diabetes-talk] My cure of Type 1 Diabetes!
>>>>> >
>>>>> >
>>>>> >
>>>>> >
>>>>> >
>>>>> >
>>>>> > Hi everyone!
>>>>> > I am so excited to share with youabout my islet cell transplant.
>>>>> > After
>>>>> > living with Type 1 for 52 yearsI had an islet cell transplaant last
>>>>> > week.  My blood sugars are now in the normal range although it is
>>>>> > supposed to take 4 to 6 weeks for the cells to function normally. I
>>>>> > can't believe it!  The procedure is still considered experimental, 
>>>>> > so
>>>>> > there was no charge.  The study is funded by the Juvenile Diabetes
>>>>> > Foundation.  Am I grateful!!!There are several Universities 
>>>>> > conducting
>>>>> > the study right now.  I had mine done at UCSF.  I was in the 
>>>>> > hospital
>>>>> > for one week and the actual procedure, implanting the cells through 
>>>>> > a
>>>>> > catheter into the liver, only takes about 45 minutes.  I was sick 
>>>>> > from
>>>>> > the immune suppressants while I was in the hospital, but feel great
>>>>> > now!
>>>>> > I just knew God would let me experience part of life without 
>>>>> > diabetes!
>>>>> > Hurray, hurray, hurray!!!
>>>>> >
>>>>> > So, keep healthy everyone and avoid those complications for when 
>>>>> > there
>>>>> > is a cure for your kind of diabetes, you want to enjoy it!
>>>>> >
>>>>> > Sally Maguire
>>>>> >
>>>>> >
>>>>> >
>>>>> ----------------------------------------------------------------------------
>>>>> ----
>>>>> >
>>>>> >
>>>>> >
>>>>> >
>>>>> > _______________________________________________
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>>>>> >
>>>>> >
>>>>> > _______________________________________________
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>>>>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/cherylandmaxx
>>>>> %40hotmail.com
>>>>> >
>>>>>
>>>>> _______________________________________________
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>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>> _______________________________________________
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>>>>
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>>
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