[Diabetes-talk] My cure of Type 1 Diabetes!

Sat Aug 22 04:24:44 UTC 2009

Hi Eileen,
No, not personal at all.  A cadaver.  I just know that he died suddenly, was healthy and a large person because I got 690,000 islets which is a very large amount.  Some people only get half that amount.  They think that is why I am doing so well.   I had been on the waiting list since February of this year.  Any pancreas will not due-it has to have a certain amount of islets and they need to be in the right condition.  Eileen, I don't  know what area you are in.  I met the woman that does dogs 4 diabetics today who had  an islet cell transplant almost a year ago.  She is doing great.  She doesn't need a dog anymore and neither do I-for my blood sugar that is!  I sent you  an email message a while ago about the study they are doing in Chicago.  Did you get it?
Are you OK?  I was worried when I didn't hear from you.  

Sally

----- Original Message ----- 
From: "Eileen Scrivani" <etscrivani at verizon.net>
To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
Sent: Friday, August 21, 2009 7:03 PM
Subject: Re: [Diabetes-talk] My cure of Type 1 Diabetes!

Sally:

I hope this isn't to personal a question, but I was wondering if for the 
type of transplant you have had, do the cells come from a live donor, or 
does it have to be through a cadavour?  Just wondering if any of the 
donating for these cells has changed.

Thanks.

Eileen

----- Original Message ----- 
From: "Sally Maguire" <1.sally at comcast.net>
To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
Sent: Friday, August 21, 2009 7:17 PM
Subject: Re: [Diabetes-talk] My cure of Type 1 Diabetes!

Hi Cheryl,
Many of the medications have already been decreased.  Here is what I am 
taking now:
      Sirolimus (Rapamune®)

      Belatacept

      Atovaquone

      Valganciclovir (Valcyte®) through month 6

Belatacept Is a new drug for this protocol and has not yet been approved by 
the FDA.  I am having weekly labs and they are quite willing to alter the 
meds if there is anything that does not agree with me.  I was nauseous the 
first week, but all that has gone.  I feel very good.  Although Type 1 is 
not life threatening in and of itself as is kidney failure, the quality of 
my life is drastically improved.  Type 1's lead not only a disciplined life, 
but it needs to be regimented.  For the first time in my life, i have the 
freedom to exercise whenever I want and for as long as I want to.  Type 1's 
really do weigh their food so that they can get an accurate measurement of 
carbohydrates to inject the proper amount of insulin.  No more ambulance 
rides wit paramedics for low blood sugars!  I know that diet and exercise 
are the best treatment for Type 2.  ...not just a little bit 
important...very, very important!

I am very happy with my decision to get a transplant and would do it again 
if at any time it is necessary.  I could not have lived for 52 years with 
diabetes if I did not follow the rules, and I certainly intend to follow all 
instructions now.  I have just received the greatest gift!  I am very 
grateful to the donor, researchers and doctors.  I need to keep a log on 
everything and my husband has been helping me with all of it.

Take care,

Sally

----- Original Message ----- 
From: "cheryl echevarria" <cherylandmaxx at hotmail.com>
To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
Sent: Thursday, August 20, 2009 2:50 AM
Subject: Re: [Diabetes-talk] My cure of Type 1 Diabetes!

> Question what kind of medications are you on, cellcept, myfortic, prograf,
> predisone, are you on any antijections medications.  Becareful with these 
> as
> well, willing to give knowledge of these as well.
>
> Cheryl Echevarria
>
> skype: angeldn3
>
>
> ----- Original Message ----- 
> From: "Mike Freeman" <k7uij at panix.com>
> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> Sent: Thursday, August 20, 2009 12:14 AM
> Subject: Re: [Diabetes-talk] My cure of Type 1 Diabetes!
>
>
>> Congratulations! And good luck!
>>
>> Mike Freeman
>>
>> ----- Original Message ----- 
>> From: "Sally Maguire" <1.sally at comcast.net>
>> To: <Diabetes-talk at nfbnet.org>
>> Sent: Wednesday, August 19, 2009 11:31 AM
>> Subject: [Diabetes-talk] My cure of Type 1 Diabetes!
>>
>>
>>
>>
>>
>>
>> Hi everyone!
>> I am so excited to share with youabout my islet cell transplant.  After
>> living with Type 1 for 52 yearsI had an islet cell transplaant last
>> week.  My blood sugars are now in the normal range although it is
>> supposed to take 4 to 6 weeks for the cells to function normally. I
>> can't believe it!  The procedure is still considered experimental, so
>> there was no charge.  The study is funded by the Juvenile Diabetes
>> Foundation.  Am I grateful!!!There are several Universities conducting
>> the study right now.  I had mine done at UCSF.  I was in the hospital
>> for one week and the actual procedure, implanting the cells through a
>> catheter into the liver, only takes about 45 minutes.  I was sick from
>> the immune suppressants while I was in the hospital, but feel great now!
>> I just knew God would let me experience part of life without diabetes!
>> Hurray, hurray, hurray!!!
>>
>> So, keep healthy everyone and avoid those complications for when there
>> is a cure for your kind of diabetes, you want to enjoy it!
>>
>> Sally Maguire
>>
>>
>> --------------------------------------------------------------------------------
>>
>>
>>
>>
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>
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