[Diabetes-talk] My cure of Type 1 Diabetes!

Sally Maguire 1.sally at comcast.net
Sat Aug 22 18:24:35 UTC 2009 

There was no wait on the islet cell transplant.  When I put my name on the list, I was at the top.  There was no one on the list.  This is still considered a research program.  
They have done 15 in San Francisco in the past 3 years and all have been successful.  
I consider myself very, very fortunate.   

Sally




----- Original Message ----- 
From: "cheryl echevarria" <cherylandmaxx at hotmail.com>
To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
Sent: Saturday, August 22, 2009 3:53 AM
Subject: Re: [Diabetes-talk] My cure of Type 1 Diabetes!


> don't understand that one for being blind. I was blind when I got my 
> transplant and so was ed bryant, they also do these transplants I believe at 
> Columbia University Hospital here in NY.
> 
> There is going to be a new tv show this fall called three rivers all about 
> different stories of transplants.
> 
> also contact UNOS, this is the organ donor lists, and we as google 
> transplant and see all there is about them, as well as becoming organ 
> donors, there are over 100,000 people on waiting lists, and for someone who 
> is o+ we are the longest wait out there because we can only receive from o+, 
> we can donate to anyone but we can only receive from o+, in NY for a kidney 
> it is a 7-10 year wait for an organ unless a family members wants to donate 
> or a good friend.  The average wait for a kidney here in NY for other organs 
> it all depends.
> 
> Sally, Ed, and myself and for all others on this list who had gotten 
> transplants it is a gift from god.
> 
> Cheryl Echevarria
> 
> skype: angeldn3
> 
> 
> ----- Original Message ----- 
> From: "Rachel and Rhett" <serenityangel1983 at gmail.com>
> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> Sent: Friday, August 21, 2009 7:34 PM
> Subject: Re: [Diabetes-talk] My cure of Type 1 Diabetes!
> 
> 
>> Hi, Sally.
>>
>> The thing is, are you blind or visually impaired? A lot of the eyelet cell
>> transplants require no complications, as my husband who is diabetic looked
>> into it. He couldn't do it because he is blind, or so he was told.
>> Rachel
>> Rachel Krieg
>> Ameriplan Representative
>> Ameriplan USA
>> www.freedomathometeam.com/rkrieg/
>> www.mybenefitsplus.com/rkrieg/
>> ----- Original Message ----- 
>> From: "Sally Maguire" <1.sally at comcast.net>
>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>> Sent: Friday, August 21, 2009 4:29 PM
>> Subject: Re: [Diabetes-talk] My cure of Type 1 Diabetes!
>>
>>
>> > Hi Cheryl,
>> > Well, for me it is a cure.  Technically, it may be called a treatment, I
>> > don't know and I don't really care about the semantics here.  After 52
>> > years of living this life on a tightrope, taking insulin and the blood
>> > sugars you-yoing, , I call this a cure!  I understand there may be side
>> > effects from immune suppressants, but at least I do not expect more
>> > complications from the high and low blood sugars of the diabetes!
>> >
>> > My procedure was done in California and there are several universities
>> > conducting the same study right now.  I went to Minnesota to be approved
>> > for the study.  If anyone wants the contact info, let me know.
>> >
>> > Thank you all for the good wishes.
>> >
>> > Sally
>> >
>> >
>> >
>> > ----- Original Message ----- 
>> > From: "cheryl echevarria" <cherylandmaxx at hotmail.com>
>> > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>> > Sent: Friday, August 21, 2009 12:07 PM
>> > Subject: Re: [Diabetes-talk] My cure of Type 1 Diabetes!
>> >
>> >
>> >> again, I want to congratulate the person who got the transplant, and
>> >> hopefully it will last the rest of your life.
>> >>
>> >> Cheryl Echevarria
>> >>
>> >> skype: angeldn3
>> >>
>> >>
>> >> ----- Original Message ----- 
>> >> From: "Ed Bryant" <ebryant at socket.net>
>> >> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> >> Sent: Friday, August 21, 2009 2:22 PM
>> >> Subject: Re: [Diabetes-talk] My cure of Type 1 Diabetes!
>> >>
>> >>
>> >>> Hi Cheryl,
>> >>> I know of a man who had a transplanted kidney for 32 years.
>> >>> When he died he was in his eighties but he did not die from his kidney
>> >>> transplant.
>> >>> No one knows just how long a kidney transplant can last but with the 
>> >>> new
>> >>> anti-rejection therapies they may last a life time... We should all
>> >>> remember
>> >>> to "be positive--accentuate the positive."
>> >>>
>> >>> Regards,
>> >>> Ed Bryant
>> >>>
>> >>> -----Original Message-----
>> >>> From: diabetes-talk-bounces at nfbnet.org
>> >>> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of cheryl 
>> >>> echevarria
>> >>> Sent: Thursday, August 20, 2009 4:49 AM
>> >>> To: Diabetes Talk for the Blind
>> >>> Subject: Re: [Diabetes-talk] My cure of Type 1 Diabetes!
>> >>>
>> >>> For someone who is a kindey transplant patient as well as Ed Bryant, I
>> >>> want
>> >>> to wish you congratulation.  I also want to say that a transplant is
>> >>> just
>> >>> a
>> >>> treatment and may not last forever.  We are told as transplant 
>> >>> patients,
>> >>> that we can lose our organs if we do not take care of ourselves, I was
>> >>> evaluated for the same transplant with my kidney transplant back in 05
>> >>> and
>> >>> they couldn't do it because I my blood work showed I was not a typical
>> >>> type
>> >>> 1 and more of a type 2.
>> >>>
>> >>> You must stay to your meds, and you must keep your blood sugar in 
>> >>> normal
>> >>> range.   I am not curent of end stage renal disease, I just had a
>> >>> treatment
>> >>> for it and as long as my kidney is health and I take my medications
>> >>> hopefully I will never need another one. I have heard people's
>> >>> transplants
>> >>> lasting over 25 years if I am not mistaken and Ed Bryant can correct 
>> >>> me,
>> >>> he
>> >>> is even at the 25 year marker or longer. But they may or may stop
>> >>> working.
>> >>>
>> >>> Again, I want to congratulate you on this wonderful thing, but at the
>> >>> same
>> >>> time, it is not a cure.  You may need another one in the future.
>> >>> Transplant
>> >>>
>> >>> are covered by Medicare and insurance but not this particular one yet.
>> >>>
>> >>> God Bless.
>> >>>
>> >>> Cheryl Echevarria
>> >>>
>> >>> skype: angeldn3
>> >>>
>> >>>
>> >>> ----- Original Message ----- 
>> >>> From: "Mike Freeman" <k7uij at panix.com>
>> >>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>> >>> Sent: Thursday, August 20, 2009 12:14 AM
>> >>> Subject: Re: [Diabetes-talk] My cure of Type 1 Diabetes!
>> >>>
>> >>>
>> >>> > Congratulations! And good luck!
>> >>> >
>> >>> > Mike Freeman
>> >>> >
>> >>> > ----- Original Message ----- 
>> >>> > From: "Sally Maguire" <1.sally at comcast.net>
>> >>> > To: <Diabetes-talk at nfbnet.org>
>> >>> > Sent: Wednesday, August 19, 2009 11:31 AM
>> >>> > Subject: [Diabetes-talk] My cure of Type 1 Diabetes!
>> >>> >
>> >>> >
>> >>> >
>> >>> >
>> >>> >
>> >>> >
>> >>> > Hi everyone!
>> >>> > I am so excited to share with youabout my islet cell transplant.
>> >>> > After
>> >>> > living with Type 1 for 52 yearsI had an islet cell transplaant last
>> >>> > week.  My blood sugars are now in the normal range although it is
>> >>> > supposed to take 4 to 6 weeks for the cells to function normally. I
>> >>> > can't believe it!  The procedure is still considered experimental, 
>> >>> > so
>> >>> > there was no charge.  The study is funded by the Juvenile Diabetes
>> >>> > Foundation.  Am I grateful!!!There are several Universities 
>> >>> > conducting
>> >>> > the study right now.  I had mine done at UCSF.  I was in the 
>> >>> > hospital
>> >>> > for one week and the actual procedure, implanting the cells through 
>> >>> > a
>> >>> > catheter into the liver, only takes about 45 minutes.  I was sick 
>> >>> > from
>> >>> > the immune suppressants while I was in the hospital, but feel great
>> >>> > now!
>> >>> > I just knew God would let me experience part of life without 
>> >>> > diabetes!
>> >>> > Hurray, hurray, hurray!!!
>> >>> >
>> >>> > So, keep healthy everyone and avoid those complications for when 
>> >>> > there
>> >>> > is a cure for your kind of diabetes, you want to enjoy it!
>> >>> >
>> >>> > Sally Maguire
>> >>> >
>> >>> >
>> >>> >
>> >>> ----------------------------------------------------------------------------
>> >>> ----
>> >>> >
>> >>> >
>> >>> >
>> >>> >
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