[Diabetes-talk] What can we do?

Sun Feb 15 12:25:32 UTC 2009

It is your diabetes not the doctors. I have kidney disease where I had to be 
on dialysis for 4 years and I had my transplant in 05 it is not the doctors 
responsibility to do anything I have to decide on back then whether to do 
dialysis or die is all my decisions.  They are doctors they cannot hold a 
gun to your head to be complient you have to do that.

Cheryl Echevarria

----- Original Message ----- 
From: "Diane" <dianefilipe at peoplepc.com>
To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
Sent: Saturday, February 14, 2009 8:00 PM
Subject: Re: [Diabetes-talk] What can we do?

> And Deb,
> You have to do the work.  The Dr. can't test and count your carbs for you.
> The suggestions Dr's make to us come from what they have learned about
> Diabetes.
> Di
> ----- Original Message ----- 
> From: "David Anspach" <danspach at tampabay.rr.com>
> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> Sent: Saturday, February 14, 2009 5:46 PM
> Subject: Re: [Diabetes-talk] What can we do?
>
>
> > Hi Debbie,
> > Isn't that what a doctor is supposed to do? What kind of things do you
> > want
> > them to do for you? All a doctor can do is to try and help guide you as
> > you
> > live with your disease. The doctor cannot take an insulin shot for you,
> > test
> > your blood sugar, keep you from over-eating and more. In the end, it is
> > totally up to you as to whether or not you want to put in the work that 
> > is
> > necessary to keep your diabetes in good control. The doctor cannot do 
> > that
> > for you.
> >
> > I guess I'm just not sure what you expect out of your doctor and/or
> > medical
> > team. Are you expecting them to perform some kind of miracle that will
> > cure
> > you of your diabetes? If that is truly the case, then you are definitely
> > in
> > for a huge disappointment.
> >
> > Dave
> >
> >
> > -----Original Message-----
> > From: diabetes-talk-bounces at nfbnet.org
> > [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of catdancing
> > Sent: Wednesday, February 11, 2009 9:33 AM
> > To: Diabetes Talk for the Blind
> > Subject: Re: [Diabetes-talk] What can we do?
> >
> > i guess you could say i am not a "medicaly friendly" person in the 42
> > years
> > i've had diabetes never once has anyone in the medical field done a 
> > thing
> > to
> > help with this disease all they have done is tell me what i need to do 
> > to
> > live wit it. i pay them but i do all the work that just seems very 
> > crooked
> > to me.
> > Debbie
> > ----- Original Message -----
> > From: "David Anspach" <danspach at tampabay.rr.com>
> > To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> > Sent: Tuesday, February 10, 2009 8:34 PM
> > Subject: Re: [Diabetes-talk] What can we do?
> >
> >
> >> Hi Debbie,
> >> My experience with the Voice has been just the opposite.  I was
> >> surprised to find that the Joslin center here in our area in Florida
> >> had copies of the Voice. They were very pleased with the publication
> >> and at the time, made sure that anyone  who was newly diagnosed, or,
> >> was needing any info regarding diabetes took a look at the Voice.
> >>
> >> So, I have to disagree with you in regard to the medical profession
> >> not wanting to have anything to do with something that won't make them
> >> a few extra dollars. I'm still amazed at how bitter you seem to be
> >> towards the medical profession as a whole. I know you have told us all
> >> why you feel as you do, but I have forgotten the exact reasons why.
> >>
> >> I have found several wonderful doctors here in Largo and have been
> >> very happy with their level of care.  They are in no way out to just
> >> make a buck.
> >> Instead, they show compassion and truly care about their patients. The
> >> folks that I have worked with at Minimed, the maker of my insulin
> >> pump, are much the same. Sure they are always discussing the new
> >> capabilities of the pump, but they take the time to listen to my
> >> concerns and are not out just for the all mighty dollar. In fact, they
> >> will be meeting with me at my next doctor's appointment to help me
> >> determine if I need to change basal rates and so forth to get my A1C
> >> back to the level it was before I ended up in the hospital.
> >>
> >> I just don't think it's fair to lump all people in the medical
> >> profession into one category simply based on your experiences with a
> >> few unscrupulous companies or doctors. I think there are far more
> >> people in the field that are truly concerned with the health of their
> >> patients instead of being out there just to make as much money as
> >> possible. For example, I think Anne Williams, who posts to this list
> >> on a regular basis, is a shining example of what I'm trying to say
> >> about the good people in the medical field. She truly cares about the
> >> patients she sees and it shows by the message she posts here on this
> >> list and in the articles she has written for the Voice.
> >>
> >> I know I won't be able to sway your opinion, but I always try to keep
> >> in mind that a positive attitude goes a long way in managing your
> > diabetes.
> >> It
> >> has worked for me over the years and has kept me out of the hospital
> >> and helped me manage my diabetes successfully and I won't trade a
> >> positive attitude, or view of the medical profession as a whole as
> >> being made up of good people, for anything. .
> >>
> >> Thanks for reading my rather lengthy post,
> >>
> >> Dave
> >>
> >> -----Original Message-----
> >> From: diabetes-talk-bounces at nfbnet.org
> >> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of catdancing
> >> Sent: Tuesday, February 10, 2009 6:46 PM
> >> To: Diabetes Talk for the Blind
> >> Subject: Re: [Diabetes-talk] What can we do?
> >>
> >> Eileen
> >> All i am saying is that if the medical field can't make money off of
> >> anything that concerns diabetes they will have nothing to do with it.
> >> i once asked a doctor i saw here anemdo if he would like to have the
> >> voice in his office.his response "i see no need for it?
> >> oh well!
> >> Debbie
> >> ----- Original Message -----
> >> From: "Eileen Scrivani" <etscrivani at verizon.net>
> >> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> >> Sent: Tuesday, February 10, 2009 12:10 PM
> >> Subject: Re: [Diabetes-talk] What can we do?
> >>
> >>
> >>> Debbie:
> >>>
> >>> This raises a few more questions.  I understand that people who are
> >>> blind are on limited incomes and may not be able to afford to pay for
> >>> a subscription to the Voice, but what about Doctor's, hospital's &
> >>> other medical professionals?  Certainly, they can afford to pay a
> >>> subscription fee.  Out of the circulation numbers, how many go to
> >>> people who are blind and may not be able to cover the cost of a
> >>> subscription & how many go to medical professionals?  Do doctor's
> >>> give away services for free?  I think not.
> >>>
> >>> And, why increase the cost of the publication with color pictures?
> >>> Isn't the mag primarily for those who are blind?  Perhaps the focus
> >>> has changed somewhere along the line from presenting good information
> >>> to the blind/vi community to trying to attract sighted readers?
> >>>
> >>> Eileen
> >>>
> >>> ----- Original Message -----
> >>> From: "catdancing" <catdancing at sbcglobal.net>
> >>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> >>> Sent: Tuesday, February 10, 2009 12:11 PM
> >>> Subject: Re: [Diabetes-talk] What can we do?
> >>>
> >>>
> >>>> this just seems to figure as far as diabetes and anything related to
> >>>> the disease that doesn't bring in a lot of money to support the
> >>>> disease. The Voice is a great magazine the reason it is being
> >>>> eliminated is because it is helpful and no one in the medical field
> >>>> is making a huge profit from it.
> >>>> Debbie
> >>>> ----- Original Message -----
> >>>> From: "Elizabeth Lunt " <boo.lunt at verizon.net>
> >>>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
> >>>> Sent: Monday, February 09, 2009 4:49 PM
> >>>> Subject: Re: [Diabetes-talk] What can we do?
> >>>>
> >>>>
> >>>>> Hello All,
> >>>>> I feel I must finally write in here. The cost of the Voice of the
> >>>>> Diabetic has not "skyrocketed" and I'm not sure where this
> >>>>> information is coming from. Even with the much-improved design and
> >>>>> full color, the costs were controlled, and money was coming in from
> >>>>> ads and sponsorships. However, it simply costs a lot to print and
> >>>>> ship so many copies -- our circulation for Voice of the Diabetic is
> >>>>> over 300 thousand copies per quarter. It was very popular among
> >>>>> readers and diabetes educators and demand was high.
> >>>>> Gathering
> >>>>> the information, selling advertisements and getting education
> >>>>> grants, and writing and editing the publication accounted for staff
> >>>>> members' time, as well as other diabetes advocacy activities such
> >>>>> as pushing for accessible diabetes technology. Dr. Maurer has made
> >>>>> a decision to cut the entire Diabetes Initiatives project, which
> >>>>> included publishing Voice of the Diabetic. He has said that some
> >>>>> diabetes activities will be folded into the duties of existing
> >>>>> staff at the NFB, but the rest of us have been let go. We did the
> >>>>> best we could to present up-to-date, helpful and inspiring
> >>>>> information about both diabetes and coping with diabetes with 
> >>>>> limited
> > or no vision.
> >>>>> There will not be another issue of the magazine, because Dr.
> >>>>> Maurer
> >>>>> made his decision after the Winter issue went out, and he is
> >>>>> folding the project now, before another would have gone out in the
> > spring.
> >>>>> Thank you for your support over the years. I have enjoyed working
> >>>>> on this publication. I hope you will get the full story, or try to,
> >>>>> before continuing this conversation with NFB leadership.
> >>>>> All the best,
> >>>>> Elizabeth Lunt
> >>>>> Editor, Voice of the Diabetic
> >>>>>
> >>>>> -----Original Message-----
> >>>>> From: diabetes-talk-bounces at nfbnet.org
> >>>>> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
> >>>>> Blindhands at aol.com
> >>>>> Sent: Monday, February 09, 2009 1:17 PM
> >>>>> To: diabetes-talk at nfbnet.org
> >>>>> Subject: [Diabetes-talk] What can we do?
> >>>>>
> >>>>> Diabetes is the number 1 cause of blindness in the USA.  It ranks
> >>>>> up there throughout the world.  What can we do to stop or have them
> >>>>> at least consider another  way of continuing the Voice of the
> >>>>> Diabetic publication.
> >>>>>
> >>>>> NFB is always asking us to contact our Senators and House of
> >>>>> Representative
> >>>>>
> >>>>> members, how about calling or emailing our President of NFB  to
> >>>>> "Voice"
> >>>>> our
> >>>>> opinion and thoughts on this?
> >>>>>
> >>>>> The blind depend on word of mouth to learn about things, that is
> >>>>> why we are
> >>>>>
> >>>>> encouraged to talk about NFB to everyone blind and sighted.
> >>>>>
> >>>>> I understand that the cost of the publication has sky rocketed, but
> >>>>> do we need color photos and the new look of the Voice?  I am sure
> >>>>> those are some of the reasons that caused the price  to soar.
> >>>>>
> >>>>> I am disappointed with this decision.  I do know that there has
> >>>>> been concerns in the past years about the  money going  out for
> >>>>> this publication and the
> >>>>> NFB covering the  cost.          the circulation of  this 
> >>>>> publication
> >>>>> is
> >>>>> over
> >>>>> three hundred thousand .
> >>>>>
> >>>>> Mike, do you know if there will be a notice put into the Voice and
> >>>>> will there be a final Voice sent out or is it just over like that ?
> >>>>>
> >>>>> Joyce
> >>>>> **************A Good Credit Score is 700 or Above. See yours in
> >>>>> just
> >>>>> 2 easy steps!
> >>>>> (http://pr.atwola.com/promoclk/100000075x1218550342x1201216770/aol?
> >>>>> r
> >>>>> edir=htt
> >>>>> p://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%
> >>>>> 2
> >>>>> 6bcd=fe
> >>>>> bemailfooterNO62)
> >>>>> _______________________________________________
> >>>>> Diabetes-talk mailing list
> >>>>> Diabetes-talk at nfbnet.org
> >>>>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>>>> To unsubscribe, change your list options or get your account info
> >>>>> for
> >>>>> Diabetes-talk:
> >>>>>
> >>
> > http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/editor%40nfb.
> >>>>> org
> >>>>>
> >>>>>
> >>>>>
> >>>>> _______________________________________________
> >>>>> Diabetes-talk mailing list
> >>>>> Diabetes-talk at nfbnet.org
> >>>>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> >>>>> To unsubscribe, change your list options or get your account info
> >>>>> for
> >>>>> Diabetes-talk:
> >>>>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/catd
> >>>>> a
> >>>>> ncing%40sbcglobal.net
> >>>>
> >>>>
> >>>> _______________________________________________
> >>>> Diabetes-talk mailing list
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> >>>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
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> >>>> for
> >>>> Diabetes-talk:
> >>>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/etscr
> >>>> i
> >>>> vani%40verizon.net
> >>>>
> >>>
> >>>
> >>> _______________________________________________
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> >>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
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> >>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/catdan
> >>> c
> >>> ing%40sbcglobal.net
> >>
> >>
> >> _______________________________________________
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> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/danspac
> >> h%40ta
> >> mpabay.rr.com
> >>
> >>
> >> _______________________________________________
> >> Diabetes-talk mailing list
> >> Diabetes-talk at nfbnet.org
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> >> Diabetes-talk:
> >> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/catdanc
> >> ing%40sbcglobal.net
> >
> >
> > _______________________________________________
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> > mpabay.rr.com
> >
> >
> > _______________________________________________
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>
>
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