[Diabetes-talk] What can we do?

Sun Feb 15 14:42:01 UTC 2009

u r right about that doctors can't do anything about it diabetes that is. 
Including find a cure cause all they do is fail at it cause that's all they 
have ever done. i don't buy the "can't" i believe it's "won't" too much 
money in it for them
Debbie
----- Original Message ----- 
From: "cheryl echevarria" <cherylandmaxx at hotmail.com>
To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
Sent: Sunday, February 15, 2009 6:25 AM
Subject: Re: [Diabetes-talk] What can we do?


> It is your diabetes not the doctors. I have kidney disease where I had to 
> be on dialysis for 4 years and I had my transplant in 05 it is not the 
> doctors responsibility to do anything I have to decide on back then 
> whether to do dialysis or die is all my decisions.  They are doctors they 
> cannot hold a gun to your head to be complient you have to do that.
>
> Cheryl Echevarria
>
>
> ----- Original Message ----- 
> From: "Diane" <dianefilipe at peoplepc.com>
> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> Sent: Saturday, February 14, 2009 8:00 PM
> Subject: Re: [Diabetes-talk] What can we do?
>
>
>> And Deb,
>> You have to do the work.  The Dr. can't test and count your carbs for 
>> you.
>> The suggestions Dr's make to us come from what they have learned about
>> Diabetes.
>> Di
>> ----- Original Message ----- 
>> From: "David Anspach" <danspach at tampabay.rr.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Sent: Saturday, February 14, 2009 5:46 PM
>> Subject: Re: [Diabetes-talk] What can we do?
>>
>>
>> > Hi Debbie,
>> > Isn't that what a doctor is supposed to do? What kind of things do you
>> > want
>> > them to do for you? All a doctor can do is to try and help guide you as
>> > you
>> > live with your disease. The doctor cannot take an insulin shot for you,
>> > test
>> > your blood sugar, keep you from over-eating and more. In the end, it is
>> > totally up to you as to whether or not you want to put in the work that 
>> > is
>> > necessary to keep your diabetes in good control. The doctor cannot do 
>> > that
>> > for you.
>> >
>> > I guess I'm just not sure what you expect out of your doctor and/or
>> > medical
>> > team. Are you expecting them to perform some kind of miracle that will
>> > cure
>> > you of your diabetes? If that is truly the case, then you are 
>> > definitely
>> > in
>> > for a huge disappointment.
>> >
>> > Dave
>> >
>> >
>> > -----Original Message-----
>> > From: diabetes-talk-bounces at nfbnet.org
>> > [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of catdancing
>> > Sent: Wednesday, February 11, 2009 9:33 AM
>> > To: Diabetes Talk for the Blind
>> > Subject: Re: [Diabetes-talk] What can we do?
>> >
>> > i guess you could say i am not a "medicaly friendly" person in the 42
>> > years
>> > i've had diabetes never once has anyone in the medical field done a 
>> > thing
>> > to
>> > help with this disease all they have done is tell me what i need to do 
>> > to
>> > live wit it. i pay them but i do all the work that just seems very 
>> > crooked
>> > to me.
>> > Debbie
>> > ----- Original Message -----
>> > From: "David Anspach" <danspach at tampabay.rr.com>
>> > To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> > Sent: Tuesday, February 10, 2009 8:34 PM
>> > Subject: Re: [Diabetes-talk] What can we do?
>> >
>> >
>> >> Hi Debbie,
>> >> My experience with the Voice has been just the opposite.  I was
>> >> surprised to find that the Joslin center here in our area in Florida
>> >> had copies of the Voice. They were very pleased with the publication
>> >> and at the time, made sure that anyone  who was newly diagnosed, or,
>> >> was needing any info regarding diabetes took a look at the Voice.
>> >>
>> >> So, I have to disagree with you in regard to the medical profession
>> >> not wanting to have anything to do with something that won't make them
>> >> a few extra dollars. I'm still amazed at how bitter you seem to be
>> >> towards the medical profession as a whole. I know you have told us all
>> >> why you feel as you do, but I have forgotten the exact reasons why.
>> >>
>> >> I have found several wonderful doctors here in Largo and have been
>> >> very happy with their level of care.  They are in no way out to just
>> >> make a buck.
>> >> Instead, they show compassion and truly care about their patients. The
>> >> folks that I have worked with at Minimed, the maker of my insulin
>> >> pump, are much the same. Sure they are always discussing the new
>> >> capabilities of the pump, but they take the time to listen to my
>> >> concerns and are not out just for the all mighty dollar. In fact, they
>> >> will be meeting with me at my next doctor's appointment to help me
>> >> determine if I need to change basal rates and so forth to get my A1C
>> >> back to the level it was before I ended up in the hospital.
>> >>
>> >> I just don't think it's fair to lump all people in the medical
>> >> profession into one category simply based on your experiences with a
>> >> few unscrupulous companies or doctors. I think there are far more
>> >> people in the field that are truly concerned with the health of their
>> >> patients instead of being out there just to make as much money as
>> >> possible. For example, I think Anne Williams, who posts to this list
>> >> on a regular basis, is a shining example of what I'm trying to say
>> >> about the good people in the medical field. She truly cares about the
>> >> patients she sees and it shows by the message she posts here on this
>> >> list and in the articles she has written for the Voice.
>> >>
>> >> I know I won't be able to sway your opinion, but I always try to keep
>> >> in mind that a positive attitude goes a long way in managing your
>> > diabetes.
>> >> It
>> >> has worked for me over the years and has kept me out of the hospital
>> >> and helped me manage my diabetes successfully and I won't trade a
>> >> positive attitude, or view of the medical profession as a whole as
>> >> being made up of good people, for anything. .
>> >>
>> >> Thanks for reading my rather lengthy post,
>> >>
>> >> Dave
>> >>
>> >> -----Original Message-----
>> >> From: diabetes-talk-bounces at nfbnet.org
>> >> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of catdancing
>> >> Sent: Tuesday, February 10, 2009 6:46 PM
>> >> To: Diabetes Talk for the Blind
>> >> Subject: Re: [Diabetes-talk] What can we do?
>> >>
>> >> Eileen
>> >> All i am saying is that if the medical field can't make money off of
>> >> anything that concerns diabetes they will have nothing to do with it.
>> >> i once asked a doctor i saw here anemdo if he would like to have the
>> >> voice in his office.his response "i see no need for it?
>> >> oh well!
>> >> Debbie
>> >> ----- Original Message -----
>> >> From: "Eileen Scrivani" <etscrivani at verizon.net>
>> >> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>> >> Sent: Tuesday, February 10, 2009 12:10 PM
>> >> Subject: Re: [Diabetes-talk] What can we do?
>> >>
>> >>
>> >>> Debbie:
>> >>>
>> >>> This raises a few more questions.  I understand that people who are
>> >>> blind are on limited incomes and may not be able to afford to pay for
>> >>> a subscription to the Voice, but what about Doctor's, hospital's &
>> >>> other medical professionals?  Certainly, they can afford to pay a
>> >>> subscription fee.  Out of the circulation numbers, how many go to
>> >>> people who are blind and may not be able to cover the cost of a
>> >>> subscription & how many go to medical professionals?  Do doctor's
>> >>> give away services for free?  I think not.
>> >>>
>> >>> And, why increase the cost of the publication with color pictures?
>> >>> Isn't the mag primarily for those who are blind?  Perhaps the focus
>> >>> has changed somewhere along the line from presenting good information
>> >>> to the blind/vi community to trying to attract sighted readers?
>> >>>
>> >>> Eileen
>> >>>
>> >>> ----- Original Message -----
>> >>> From: "catdancing" <catdancing at sbcglobal.net>
>> >>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>> >>> Sent: Tuesday, February 10, 2009 12:11 PM
>> >>> Subject: Re: [Diabetes-talk] What can we do?
>> >>>
>> >>>
>> >>>> this just seems to figure as far as diabetes and anything related to
>> >>>> the disease that doesn't bring in a lot of money to support the
>> >>>> disease. The Voice is a great magazine the reason it is being
>> >>>> eliminated is because it is helpful and no one in the medical field
>> >>>> is making a huge profit from it.
>> >>>> Debbie
>> >>>> ----- Original Message -----
>> >>>> From: "Elizabeth Lunt " <boo.lunt at verizon.net>
>> >>>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> >>>> Sent: Monday, February 09, 2009 4:49 PM
>> >>>> Subject: Re: [Diabetes-talk] What can we do?
>> >>>>
>> >>>>
>> >>>>> Hello All,
>> >>>>> I feel I must finally write in here. The cost of the Voice of the
>> >>>>> Diabetic has not "skyrocketed" and I'm not sure where this
>> >>>>> information is coming from. Even with the much-improved design and
>> >>>>> full color, the costs were controlled, and money was coming in from
>> >>>>> ads and sponsorships. However, it simply costs a lot to print and
>> >>>>> ship so many copies -- our circulation for Voice of the Diabetic is
>> >>>>> over 300 thousand copies per quarter. It was very popular among
>> >>>>> readers and diabetes educators and demand was high.
>> >>>>> Gathering
>> >>>>> the information, selling advertisements and getting education
>> >>>>> grants, and writing and editing the publication accounted for staff
>> >>>>> members' time, as well as other diabetes advocacy activities such
>> >>>>> as pushing for accessible diabetes technology. Dr. Maurer has made
>> >>>>> a decision to cut the entire Diabetes Initiatives project, which
>> >>>>> included publishing Voice of the Diabetic. He has said that some
>> >>>>> diabetes activities will be folded into the duties of existing
>> >>>>> staff at the NFB, but the rest of us have been let go. We did the
>> >>>>> best we could to present up-to-date, helpful and inspiring
>> >>>>> information about both diabetes and coping with diabetes with 
>> >>>>> limited
>> > or no vision.
>> >>>>> There will not be another issue of the magazine, because Dr.
>> >>>>> Maurer
>> >>>>> made his decision after the Winter issue went out, and he is
>> >>>>> folding the project now, before another would have gone out in the
>> > spring.
>> >>>>> Thank you for your support over the years. I have enjoyed working
>> >>>>> on this publication. I hope you will get the full story, or try to,
>> >>>>> before continuing this conversation with NFB leadership.
>> >>>>> All the best,
>> >>>>> Elizabeth Lunt
>> >>>>> Editor, Voice of the Diabetic
>> >>>>>
>> >>>>> -----Original Message-----
>> >>>>> From: diabetes-talk-bounces at nfbnet.org
>> >>>>> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
>> >>>>> Blindhands at aol.com
>> >>>>> Sent: Monday, February 09, 2009 1:17 PM
>> >>>>> To: diabetes-talk at nfbnet.org
>> >>>>> Subject: [Diabetes-talk] What can we do?
>> >>>>>
>> >>>>> Diabetes is the number 1 cause of blindness in the USA.  It ranks
>> >>>>> up there throughout the world.  What can we do to stop or have them
>> >>>>> at least consider another  way of continuing the Voice of the
>> >>>>> Diabetic publication.
>> >>>>>
>> >>>>> NFB is always asking us to contact our Senators and House of
>> >>>>> Representative
>> >>>>>
>> >>>>> members, how about calling or emailing our President of NFB  to
>> >>>>> "Voice"
>> >>>>> our
>> >>>>> opinion and thoughts on this?
>> >>>>>
>> >>>>> The blind depend on word of mouth to learn about things, that is
>> >>>>> why we are
>> >>>>>
>> >>>>> encouraged to talk about NFB to everyone blind and sighted.
>> >>>>>
>> >>>>> I understand that the cost of the publication has sky rocketed, but
>> >>>>> do we need color photos and the new look of the Voice?  I am sure
>> >>>>> those are some of the reasons that caused the price  to soar.
>> >>>>>
>> >>>>> I am disappointed with this decision.  I do know that there has
>> >>>>> been concerns in the past years about the  money going  out for
>> >>>>> this publication and the
>> >>>>> NFB covering the  cost.          the circulation of  this 
>> >>>>> publication
>> >>>>> is
>> >>>>> over
>> >>>>> three hundred thousand .
>> >>>>>
>> >>>>> Mike, do you know if there will be a notice put into the Voice and
>> >>>>> will there be a final Voice sent out or is it just over like that ?
>> >>>>>
>> >>>>> Joyce
>> >>>>> **************A Good Credit Score is 700 or Above. See yours in
>> >>>>> just
>> >>>>> 2 easy steps!
>> >>>>> (http://pr.atwola.com/promoclk/100000075x1218550342x1201216770/aol?
>> >>>>> r
>> >>>>> edir=htt
>> >>>>> p://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%
>> >>>>> 2
>> >>>>> 6bcd=fe
>> >>>>> bemailfooterNO62)
>> >>>>> _______________________________________________
>> >>>>> Diabetes-talk mailing list
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>> >>>>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> >>>>> To unsubscribe, change your list options or get your account info
>> >>>>> for
>> >>>>> Diabetes-talk:
>> >>>>>
>> >>
>> > http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/editor%40nfb.
>> >>>>> org
>> >>>>>
>> >>>>>
>> >>>>>
>> >>>>> _______________________________________________
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>> >>>>> a
>> >>>>> ncing%40sbcglobal.net
>> >>>>
>> >>>>
>> >>>> _______________________________________________
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>> >>>>
>> >>>
>> >>>
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>> >>
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>> >> mpabay.rr.com
>> >>
>> >>
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>> >
>> >
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>> >
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>>
>>
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>
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