[Diabetes-talk] The Importance of Readers...

Alan Wheeler awheeler at neb.rr.com
Tue Mar 10 10:43:43 UTC 2009


I like your style, Bern!


In Christ,
Alan



+-+-+-

   He has made clear to you, O man, what is good; and what is desired from you by the Lord; only doing what is 
 right, and loving mercy, and walking without pride before your God. Micah 6:8
~~~
awheeler at neb.rr.com
IM me at: outlaw-cowboy at live.com
Skype: redwheel1

----- Original Message ----- 
From: "The Jacobs' Family" <bandbjacobs at verizon.net>
To: <diabetes-talk at nfbnet.org>
Sent: Monday, March 09, 2009 09:30
Subject: [Diabetes-talk] The Importance of Readers...


> Hey Dar:  I do agree with you Honey.  I truly am in your corner. 
> Unfortunately, honey, there are those in the medical profession who seem to 
> think it behooves them to hide their ignorance behind their arrogance and 
> they really believe that because of who they are that the rest of us are 
> gullible enough to sit up, shut up and take it???  Not this chick Honey!!! 
> And, of course, anyone who knows me knows I've been known to call a doctor 
> or two on just that...hiding ignorance behind arrogance.  Go for it girl!! 
> Get 'em!!  Call 'em on it honey!!  I didn't mean to imply anything against 
> you at all when I was talking about the importance of readers.  I don't 
> hesitate to call when my husband can't read or understand something either 
> and they should explain that to you, without having to wait three months for 
> the next appointment.  Let me tell ya Honey!!  They wouldn't wait!!!  And, 
> believe you me Honey!!  They'd be complaining about that too.  And Guess 
> what else Honey?  They're just as indispensable as anyone else.  There are 
> other doctors who really do give a rip and you can always find a way to get 
> hold of the actual doctor, lodge a complaint and boot those little "Hell's 
> Angels" right out on their ears.  You don't have to take that.  You, like 
> any of the rest of us deserve better than that Honey.  And, don't you forget 
> it!!!
> ----- Original Message ----- 
> From: <diabetes-talk-request at nfbnet.org>
> To: <diabetes-talk at nfbnet.org>
> Sent: Monday, March 09, 2009 1:00 PM
> Subject: Diabetes-talk Digest, Vol 20, Issue 10
> 
> 
>> Send Diabetes-talk mailing list submissions to
>> diabetes-talk at nfbnet.org
>>
>> To subscribe or unsubscribe via the World Wide Web, visit
>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> or, via email, send a message with subject or body 'help' to
>> diabetes-talk-request at nfbnet.org
>>
>> You can reach the person managing the list at
>> diabetes-talk-owner at nfbnet.org
>>
>> When replying, please edit your Subject line so it is more specific
>> than "Re: Contents of Diabetes-talk digest..."
>>
>>
>> Today's Topics:
>>
>>   1. o/t please read my comments that is published in the American
>>      Chronicle (cheryl echevarria)
>>   2. The Importance of Readers... (The Jacobs' Family)
>>   3. Re: The Importance of Readers... (d m gina)
>>
>>
>> ----------------------------------------------------------------------
>>
>> Message: 1
>> Date: Sun, 8 Mar 2009 14:37:00 -0400
>> From: "cheryl echevarria" <cherylandmaxx at hotmail.com>
>> Subject: [Diabetes-talk] o/t please read my comments that is published
>> in the American Chronicle
>> To: "cherylandmaxx" <cherylandmaxx at hotmail.com>
>> Message-ID: <BAY131-DS52B2909EFD4CD07439384A1A30 at phx.gbl>
>> Content-Type: text/plain; charset="iso-8859-1"
>>
>> A friend and a member of the NFB and Performing Arts Division, and Guide 
>> Dog
>> user writes for the American Chronicle and I was asked to give my input on
>> PETA (People for the Ethical Treatment of Animals) who have no idea on 
>> what
>> or how Guide dogs are trained and treated.  Myself and the President of
>> NAGDU (National Association of Guide Dog Users) Marion Gwizdala to which I
>> am a member of the National as well as the Local New York Division.
>>
>> Please read I am very proud.  Please see the link below, if anyone cannot
>> access the link please let me know and I will forward it by cut and 
>> pasting.
>>
>> Organizations like this one should ask before shooting mouths off or
>> sticking foot in mouth before writing articles.
>>
>> Cheryl Echevarria
>>
>>
>> ----- Original Message ----- 
>> From: "cheryl" <noreply at americanchronicle.com>
>> To: "cheryl" <cherylandmaxx at hotmail.com>
>> Sent: Sunday, March 08, 2009 2:14 PM
>> Subject: cheryl sent you a link on American Chronicle
>>
>>
>>> cheryl,
>>>
>>> cheryl had sent you a link on American Chronicle:
>>>
>>> Animal Advocate Calls Blind Guide Dog Users Cruel &unfit, PETA, Off-Base
>>> or Playing to Public Fear?
>>>
>>
>>
>>
>> ------------------------------
>>
>> Message: 2
>> Date: Sun, 8 Mar 2009 22:35:45 -0400
>> From: "The Jacobs' Family" <bandbjacobs at verizon.net>
>> Subject: [Diabetes-talk] The Importance of Readers...
>> To: <diabetes-talk at nfbnet.org>
>> Message-ID: <004901c9a05f$bff065b0$0301a8c0 at HOMENETWORK>
>> Content-Type: text/plain; format=flowed; charset="iso-8859-1";
>> reply-type=original
>>
>> Actually Guys, I concur with Mike.  Like Braille, I personally don't think
>> the use of a reader should become a lost art.  Technology has a lot of
>> usefulness.  However, if it crashes, one must still know the basics--how 
>> to
>> use hard copy print/Braille, note taking, and, also in our case, how to
>> proficiently use a reader if one has to.  It's kind of like the thing that
>> most all dog guide schools now require that blind/visually impaired 
>> students
>> who come to them also be proficient cane users.  If something should 
>> happen
>> to a dog while on travels, some horrific health issue like a seizure, 
>> heart
>> attack, or, even if the dog gets hit by a fast-moving vehicle while
>> leading..."  Heaven forbid!!!  Heaven knows I don't wish that on anyone.
>> But that actually did happen to a very close friend of mine back in WI 
>> about
>> 25 years ago.  He pulled a collapsible cane out of his back pack ;and
>> wala--could get help for his seriously-wounded dog who had actually been 
>> hit
>> by a moving vehicle...  Everyone around was quite traumatized by the whole
>> incident.  But, being a good cane user, he, himself wasn't disabled
>> completely out of commission because something happened to his poor dear
>> dog.  Most of us could do very little but simply BE THERE for our friend,
>> Bless his heart!!!  Bottom line here is, we MUST, (by all means), keep all
>> options open to us--as, unfortunately, we have so few to begin with.  We
>> can't put all our eggs in one basket.
>> ----- Original Message ----- 
>> From: <diabetes-talk-request at nfbnet.org>
>> To: <diabetes-talk at nfbnet.org>
>> Sent: Saturday, March 07, 2009 2:00 PM
>> Subject: Diabetes-talk Digest, Vol 20, Issue 9
>>
>>
>>> Send Diabetes-talk mailing list submissions to
>>> diabetes-talk at nfbnet.org
>>>
>>> To subscribe or unsubscribe via the World Wide Web, visit
>>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> or, via email, send a message with subject or body 'help' to
>>> diabetes-talk-request at nfbnet.org
>>>
>>> You can reach the person managing the list at
>>> diabetes-talk-owner at nfbnet.org
>>>
>>> When replying, please edit your Subject line so it is more specific
>>> than "Re: Contents of Diabetes-talk digest..."
>>>
>>>
>>> Today's Topics:
>>>
>>>   1. Re: information results (Paul & Paula Jordan)
>>>   2. Re: questions from a fairly new list subscriber (Ed Bryant)
>>>   3. Re: questions from a fairly new list subscriber (Ed Bryant)
>>>   4. Re: information results (Mike Freeman)
>>>   5. Re: information results (Donna Miller)
>>>   6. Re: information results (d m gina)
>>>   7. Re: information results (d m gina)
>>>   8. Re: information results (d m gina)
>>>   9. Re: information results (Donna Miller)
>>>  10. Re: information results (Donna Miller)
>>>  11. Re: information results (Mike Freeman)
>>>  12. Re: information results (d m gina)
>>>
>>>
>>> ----------------------------------------------------------------------
>>>
>>> Message: 1
>>> Date: Fri, 6 Mar 2009 13:57:39 -0500
>>> From: "Paul & Paula Jordan" <paujor at fuse.net>
>>> Subject: Re: [Diabetes-talk] information results
>>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>>> Message-ID: <005e01c99e8d$6bed7030$fdc8a8c0 at PaulJordan>
>>> Content-Type: text/plain; charset="us-ascii"
>>>
>>> This is truly interesting.  You get your info the same way I do, I think.
>>> When I was diagnosed as diabetic, I stumbled onto the result.  As a 
>>> matter
>>> of fact, it had been 2 weeks after my initial bloodwork had been done,
>>> and,
>>> I had to call and ask about it, otherwise I don't know when they would
>>> have
>>> gotten around to telling me.
>>> Don't give up in your struggle to get what you need to have, and I wish
>>> you
>>> well.
>>>
>>> Paul
>>>
>>> -----Original Message-----
>>> From: diabetes-talk-bounces at nfbnet.org
>>> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of d m gina
>>> Sent: Friday, March 06, 2009 10:40 AM
>>> To: diabetes-talk at nfbnet.org
>>> Subject: [Diabetes-talk] information results
>>>
>>> Good morning,
>>> I am under the understanding that if you call for your blood work
>>> results, you should be able to receive them by phone.
>>> Under the ADA.
>>> I was told yesterday, and this isn't the first time, that I could wait
>>> until I see my doctor before I learn any information.
>>> that it is waisting their time for them the Nurse Mary Jo to call me
>>> and give me any results.
>>> this is of my own tests, no one elses.
>>> I did learn about the a one c but the rest she said I could wait until
>>> I see the doctor.
>>> They don't send any print our way any more, because no one can read it to
>>> us.
>>> I shared our reader reads the mail, but how sad it is that I have to
>>> find out threw my reader my results.
>>> I know in Grate Falls Montana the nurses from  the doctor office calls
>>> and shares with the blind what is happening on their behalf.
>>> I don't know if we have a doctors association here in town or not.
>>> Before I give  them grief, I want to do the rite thing.
>>> I don't feel I am being treated with respect.
>>> I want to solve the problem so I am treated better.
>>> I don't know what the other blind do, except I kno what I want to do.
>>> Thanks,
>>>
>>> -- 
>>> --Dar
>>> every saint has a past
>>> every sinner has a future
>>>
>>> Email services provided by the System Access Mobile Network.  Visit
>>> www.serotek.com to learn more about accessibility anywhere.
>>>
>>> _______________________________________________
>>> Diabetes-talk mailing list
>>> Diabetes-talk at nfbnet.org
>>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-talk:
>>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/paujor%40fuse
>>> .net
>>> No virus found in this incoming message.
>>> Checked by AVG - www.avg.com
>>> Version: 8.0.237 / Virus Database: 270.11.7/1982 - Release Date: 03/05/09
>>> 07:54:00
>>>
>>>
>>>
>>>
>>> ------------------------------
>>>
>>> Message: 2
>>> Date: Fri, 6 Mar 2009 13:42:57 -0600
>>> From: "Ed Bryant" <ebryant at socket.net>
>>> Subject: Re: [Diabetes-talk] questions from a fairly new list
>>> subscriber
>>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>>> Message-ID: <000001c99e93$c02c4e40$4084eac0$@net>
>>> Content-Type: text/plain; charset="us-ascii"
>>>
>>> Hi Chanelle,
>>> WELCOME ABOARD!  We all work together to provide each other support
>>> and information.
>>> I suggest you contact Tom Ley with your insulin pump questions.  He
>>> is totally blind and has been on a pump for several years.  Tom lives in
>>> Baltimore and you can reach him at: RiveraLey at Verizon.net.
>>>
>>> Best Regards,
>>> Ed Bryant
>>>
>>> -----Original Message-----
>>> From: diabetes-talk-bounces at nfbnet.org
>>> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Chanelle Hill
>>> Sent: Wednesday, March 04, 2009 10:44 AM
>>> To: 'Diabetes Talk for the Blind'
>>> Subject: Re: [Diabetes-talk] questions from a fairly new list subscriber
>>>
>>> Dear Vince,
>>> Thanks for replying to my email. I am grateful for the many responses I
>>> have
>>> received from the list. I am still using the 512 but would like to 
>>> upgrade
>>> to the 522. How do you get your pump to deliver a square bolis? I use the
>>> easy bolis feature with the beeps, but I would like to use the other 
>>> bolis
>>> options--especially since they give a person even more control. Does the
>>> square wave bolis have to do with insulin being delivered over the course
>>> of
>>> a few hours? I am able to fill my pump on my own. I just have a sighted
>>> friend double check that there are no bubbles in my reservoirs. I have
>>> been
>>> on the pump since 2004, and I went to a diabetes center in 2007 where the
>>> nurses were willing to teach me how to draw up insulin. Before that, I
>>> thought filling reservoirs was impossible for a blind person.
>>> Thanks for checking on the Clever Check meter. The lady from Homecare
>>> Solutions with whom I spoke sounded vague about it. Thanks for the
>>> information about Advanced Diabetic Solutions! I really need that now
>>> since
>>> I haven't gotten anywhere with Homecare Solutions. If they have already
>>> shipped out the Clever Check today as they said they would, I will report
>>> to
>>> the list as to what it is like.
>>>
>>> Chanelle
>>>
>>> -----Original Message-----
>>> From: diabetes-talk-bounces at nfbnet.org
>>> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Vincent Chaney
>>> Sent: Tuesday, March 03, 2009 9:10 PM
>>> To: Diabetes Talk for the Blind
>>> Subject: Re: [Diabetes-talk] questions from a fairly new list subscriber
>>>
>>> Chanelle,
>>>
>>> Welcome to the list...
>>>
>>> I too am a pumper, an insulin pump user. I am using the Medtronic Minimed
>>> 712 but require my wife to fill it due to the inaccessible menu options.
>>> Once it is filled I work with the beeps to deliver the "Normal" or
>>> "Squared"
>>>
>>> bolis amounts as you probably do.
>>> Regarding the "Clever Check", I performed a "Google" search on this and
>>> found no indication it included any accessibility feature. The Blog I 
>>> also
>>> looked at noted it worked with only one button which could be used with a
>>> talking machine but very unlikely. I would recommend you to contact one 
>>> of
>>> the many suppliers noted on this list who carry the "Prodigy Voice Test
>>> Strips". The company I work with is "Advanced Diabetic Solutions" and 
>>> just
>>> received new strips about 10 days ago. Their Web Site is:
>>> http://www.advanceddiabeticsolutions.net/
>>> Their phone number is 1-888-377-6382. Tina Rockwell, Director of Patient
>>> Services, is whom has helped me and the members from the Diabetes 
>>> Division
>>> of the NFBNJ.
>>>
>>> Vince
>>>
>>>
>>> ----- Original Message ----- 
>>> From: "Chanelle Hill" <chanellemh at gmail.com>
>>> To: <diabetes-talk at nfbnet.org>
>>> Sent: Tuesday, March 03, 2009 4:27 PM
>>> Subject: [Diabetes-talk] questions from a fairly new list subscriber
>>>
>>>
>>> Dear List Members,
>>>
>>> I read an article about insulin pumps that someone from NFB wrote several
>>> years ago, and so I thought I would join this list to see if anyone has
>>> had
>>> improved accessibility with the pump and for other diabetes issues. I am 
>>> a
>>> Type I diabetic, and I have been using the Minimed Paradigm 512 insulin
>>> pump
>>> and the Prodigy Voice meter. I know that NFB is heavily involved in
>>> advocacy, but what has been done to inform insulin pump companies of the
>>> need for more accessible pumps? Is there any way to become involved in
>>> advocating for better accessibility? It would be wonderful to use the new
>>> Minimed Continuous Glucose Monitoring system, but the meter needed to
>>> calibrate the pump doesn't talk. It seems like that could easily be fixed
>>> since there are already talking glucometers. I spoke with a rep from
>>> Minimed
>>> about upgrading my pump and asked if Minimed was working on a pump that
>>> would be more accessible. She thought that the company was, but no one 
>>> has
>>> gotten back to me.
>>>
>>> It sounds like someone is having problems with the Prodigy Voice meter on
>>> this list? After calling and waiting a few weeks to get some more strips,
>>> I
>>> found out that Homecare Solutions is no longer carrying the strips for
>>> Prodigy Voice and that they are carrying a new meter that is supposedly
>>> like
>>> the Prodigy called the Clever Check. Have any of you heard of this new
>>> meter? Hopefully it has all of the audible features and more accessible
>>> software (that's almost too much to ask :-) ).
>>>
>>> Finally my last question. I am checking out state rehabilitation centers
>>> in
>>> Minnesota-one of which is Blind Inc. On the CD that SSB sent me 
>>> containing
>>> a
>>> BLIND cyber brochure, a class for diabetes management was mentioned. Do
>>> you
>>> know if that is still taught? Apart from that, have any of you had
>>> experience with the training programs at Blind Inc.?
>>>
>>> Thanks in advance for answering my questions.
>>>
>>>
>>>
>>> Chanelle
>>>
>>> _______________________________________________
>>> Diabetes-talk mailing list
>>> Diabetes-talk at nfbnet.org
>>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-talk:
>>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/vgc732%40opto
>>> nline.net
>>>
>>>
>>>
>>> _______________________________________________
>>> Diabetes-talk mailing list
>>> Diabetes-talk at nfbnet.org
>>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-talk:
>>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/chanellemh%40
>>> gmail.com
>>>
>>>
>>> _______________________________________________
>>> Diabetes-talk mailing list
>>> Diabetes-talk at nfbnet.org
>>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-talk:
>>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/ebryant%40soc
>>> ket.net
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>> ------------------------------
>>>
>>> Message: 3
>>> Date: Fri, 6 Mar 2009 13:47:28 -0600
>>> From: "Ed Bryant" <ebryant at socket.net>
>>> Subject: Re: [Diabetes-talk] questions from a fairly new list
>>> subscriber
>>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>>> Message-ID: <000101c99e94$61bf86a0$253e93e0$@net>
>>> Content-Type: text/plain; charset="us-ascii"
>>>
>>> Hi Chanelle,
>>> I have extra copies of Voice of the Diabetic Volume 24 number 1,
>>> Winter 2009 and will gladly send you a print or tape version.  You can
>>> send
>>> me your address privately and the Voice will be on its way.
>>>
>>> Regards,
>>> Ed Bryant
>>> -----Original Message-----
>>> From: diabetes-talk-bounces at nfbnet.org
>>> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Chanelle Hill
>>> Sent: Wednesday, March 04, 2009 11:04 AM
>>> To: 'Diabetes Talk for the Blind'
>>> Subject: Re: [Diabetes-talk] questions from a fairly new list subscriber
>>>
>>> Dear Mike,
>>> Thanks for replying to my message. I will check out the Braille Monitor. 
>>> I
>>> subscribed to Voice of the Diabetic about a month ago and haven't 
>>> received
>>> an issue yet. I opted to receive the publication via email.
>>> The CD I received from Blind Inc., seems to be a few years old since some
>>> of
>>> the articles date back to 2004, 2001, and those reprinted from the 90's.
>>> I would like to get connected with diabetes educators who have had
>>> experience working with the blind.
>>> That would be great if Prodigy made a talking pump!
>>> Minimed pumps have software that allows one to make changes to basal
>>> rates,
>>> the increment for easy bolis, time and date, and other items that are set
>>> through the pump menus. It would be nice if one could also use the
>>> software
>>> to program a bolis that would be delivered as soon as the pump was
>>> disconnected from the computer. For example, I think that the pump has
>>> bolis
>>> wizzard--a feature to calculate insulin needed for carbs eaten and high
>>> blood sugars. These calculations can easily be made manually, but I think
>>> the pump also keeps track of active insulin.
>>> I will figure out who I could speak to at Minimed about this or pump
>>> accessibility. I appreciate your efforts to advocate accessibility with
>>> the
>>> insulin pump companies.
>>>
>>> Chanelle
>>> -----Original Message-----
>>> From: diabetes-talk-bounces at nfbnet.org
>>> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Mike Freeman
>>> Sent: Tuesday, March 03, 2009 9:58 PM
>>> To: Diabetes Talk for the Blind
>>> Subject: Re: [Diabetes-talk] questions from a fairly new list subscriber
>>>
>>> Chanelle:
>>>
>>> With respect to BLIND, Inc., it's a great rehab center. I know some of
>>> the personnel who teach there and they're great folks and know what
>>> they're about. If you go to http://www.nfb.org, thence to the
>>> "Publications" link and thence to "The Braile Monitor", you can read a
>>> review and description of the BLIND, Inc. program in a recent issue.
>>> Just do a search for "Blind, INC." and you'll find it or just peruse the
>>> tables of contents for the past few issues.
>>>
>>> BLIND, Inc. had someone who specialized in diabetes management but don't
>>> think there's one there now. However, there are a number of persons
>>> there who have diabetes and who can probably put you in touch with
>>> blindness-savvy CDEs. Additionally, there's a lot of practical expertise
>>> on this list.
>>>
>>> Insofar as pump accessibility is concerned, I and several others from
>>> the Diabetes Action Network are working on the problem. However, the
>>> situation isn't much different than that which you described from an
>>> article several years ago. Although at first blush it would seem that it
>>> would be easy to make an insulin pump talk, it isn't quite as simple as
>>> one might suppose. One has to determine what must be spoken when and in
>>> what form (for example, if one is using a pump with a CGMS system, often
>>> the information is graphically displayed, not numerically displayed and
>>> one must figure out how to convey this verbally). WE have had some
>>> communication with one pump manufacturer which has showed a bit of
>>> interest. However, if truth be told, despite what we might think, the
>>> blind (and yes, I mean the visually impaired also) are a pretty small
>>> segment of the market so pump manufacturers have to be shown a good
>>> reason for making the investment in access technology. AS I say, we're
>>> working on it. I doubt anything is in the immediate offing.
>>>
>>> AS to the Clevercheck, I've not seen one but suspect that it is like the
>>> Prodigy Autocode or the Advocate in that it would speak a bg reading --
>>> once -- but that all other functions would be inaccessible. But I
>>> emphasize that I'm going on a hunch, not on knowledge.
>>>
>>> We'll keep working on the pump problem, though!
>>>
>>> Mike Freeman, President
>>> Diabetes Action Network
>>> National Federation of the Blind
>>>
>>> ----- Original Message ----- 
>>> From: "Chanelle Hill" <chanellemh at gmail.com>
>>> To: <diabetes-talk at nfbnet.org>
>>> Sent: Tuesday, March 03, 2009 1:27 PM
>>> Subject: [Diabetes-talk] questions from a fairly new list subscriber
>>>
>>>
>>> Dear List Members,
>>>
>>> I read an article about insulin pumps that someone from NFB wrote
>>> several
>>> years ago, and so I thought I would join this list to see if anyone has
>>> had
>>> improved accessibility with the pump and for other diabetes issues. I am
>>> a
>>> Type I diabetic, and I have been using the Minimed Paradigm 512 insulin
>>> pump
>>> and the Prodigy Voice meter. I know that NFB is heavily involved in
>>> advocacy, but what has been done to inform insulin pump companies of the
>>> need for more accessible pumps? Is there any way to become involved in
>>> advocating for better accessibility? It would be wonderful to use the
>>> new
>>> Minimed Continuous Glucose Monitoring system, but the meter needed to
>>> calibrate the pump doesn't talk. It seems like that could easily be
>>> fixed
>>> since there are already talking glucometers. I spoke with a rep from
>>> Minimed
>>> about upgrading my pump and asked if Minimed was working on a pump that
>>> would be more accessible. She thought that the company was, but no one
>>> has
>>> gotten back to me.
>>>
>>> It sounds like someone is having problems with the Prodigy Voice meter
>>> on
>>> this list? After calling and waiting a few weeks to get some more
>>> strips, I
>>> found out that Homecare Solutions is no longer carrying the strips for
>>> Prodigy Voice and that they are carrying a new meter that is supposedly
>>> like
>>> the Prodigy called the Clever Check. Have any of you heard of this new
>>> meter? Hopefully it has all of the audible features and more accessible
>>> software (that's almost too much to ask :-) ).
>>>
>>> Finally my last question. I am checking out state rehabilitation centers
>>> in
>>> Minnesota-one of which is Blind Inc. On the CD that SSB sent me
>>> containing a
>>> BLIND cyber brochure, a class for diabetes management was mentioned. Do
>>> you
>>> know if that is still taught? Apart from that, have any of you had
>>> experience with the training programs at Blind Inc.?
>>>
>>> Thanks in advance for answering my questions.
>>>
>>>
>>>
>>> Chanelle
>>>
>>> _______________________________________________
>>> Diabetes-talk mailing list
>>> Diabetes-talk at nfbnet.org
>>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-talk:
>>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix
>>> ..com
>>>
>>>
>>> _______________________________________________
>>> Diabetes-talk mailing list
>>> Diabetes-talk at nfbnet.org
>>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-talk:
>>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/chanellemh%40
>>> gmail.com
>>>
>>>
>>> _______________________________________________
>>> Diabetes-talk mailing list
>>> Diabetes-talk at nfbnet.org
>>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-talk:
>>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/ebryant%40soc
>>> ket.net
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>> ------------------------------
>>>
>>> Message: 4
>>> Date: Fri, 06 Mar 2009 13:47:34 -0800
>>> From: Mike Freeman <k7uij at panix.com>
>>> Subject: Re: [Diabetes-talk] information results
>>> To: diabetes-talk at nfbnet.org
>>> Message-ID: <20090306214734.k7uij at panix.com>
>>> Content-Type: text/plain; charset=US-ASCII
>>>
>>> Dar:
>>>
>>> If I recall correctly, your doctor's office must make some accommodation
>>> available to you to get your results other than print. This could be as
>>> simple as calling you with the results or as elaborate as having the
>>> results in braille or on the Internet or in some form of audio. While 
>>> your
>>> preference in format must be taken into account, the Department of 
>>> Justice
>>> does not require absolutely that the entity honor your choice.
>>>
>>> It would be interesting to see whether D.O.J. would consider your doctor
>>> visit such an accommodation. I could see it going either way. However, I
>>> suspect that you'd win were you to contend that doctor's visits weren't
>>> (or should not be considered as) an accccommodation.
>>>
>>> That said, I personally see absolutely nothing wrong with using a reader
>>> to get one's results. I wouldn't hire a reader I could not trust. But it
>>> must be admitted that I don't care who knows my results; I never quite
>>> followed why people were so all-fired sensitive about their results. In
>>> fact, I read of a diabetes website where people actually post their own
>>> results as an incentive to improve. (grin) I wouldn't go quite that far.
>>>
>>> But I do worry that as we use other means to access print, we will grow 
>>> to
>>> consider use of a reader as an inferior method when, in actuality, it is
>>> one of the best.
>>>
>>> Just my opinion.
>>>
>>> Mike
>>>
>>> ----- Original Message -----
>>> From: d m gina <dmgina at samobile.net>
>>> To: diabetes-talk at nfbnet.org
>>> Date: Friday, Mar 6, 2009 10:41:47
>>> Subject: [Diabetes-talk] information results
>>>
>>>>
>>>>
>>>> Good morning,
>>>> I am under the understanding that if you call for your blood work
>>>> results, you should be able to receive them by phone.
>>>> Under the ADA.
>>>> I was told yesterday, and this isn't the first time, that I could wait
>>>> until I see my doctor before I learn any information.
>>>> that it is waisting their time for them the Nurse Mary Jo to call me
>>>> and give me any results.
>>>> this is of my own tests, no one elses.
>>>> I did learn about the a one c but the rest she said I could wait until
>>>> I see the doctor.
>>>> They don't send any print our way any more, because no one can read it 
>>>> to
>>>> us.
>>>> I shared our reader reads the mail, but how sad it is that I have to
>>>> find out threw my reader my results.
>>>> I know in Grate Falls Montana the nurses from  the doctor office calls
>>>> and shares with the blind what is happening on their behalf.
>>>> I don't know if we have a doctors association here in town or not.
>>>> Before I give  them grief, I want to do the rite thing.
>>>> I don't feel I am being treated with respect.
>>>> I want to solve the problem so I am treated better.
>>>> I don't know what the other blind do, except I kno what I want to do.
>>>> Thanks,
>>>>
>>>> -- 
>>>> -comDar
>>>> every saint has a past
>>>> every sinner has a future
>>>>
>>>> Email services provided by the System Access Mobile Network.  Visit
>>>> www.serotek.com to learn more about accessibility anywhere.
>>>>
>>>> _______________________________________________
>>>> Diabetes-talk mailing list
>>>> Diabetes-talk at nfbnet.org
>>>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-talk:
>>>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix.com
>>>
>>>
>>>
>>> ------------------------------
>>>
>>> Message: 5
>>> Date: Fri, 6 Mar 2009 17:29:08 -0600
>>> From: "Donna Miller" <dmiller64 at tx.rr.com>
>>> Subject: Re: [Diabetes-talk] information results
>>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>>> Message-ID: <8EE0D3316AC947109C85BF6FF39F9A4F at DONNA>
>>> Content-Type: text/plain; format=flowed; charset="iso-8859-1";
>>> reply-type=response
>>>
>>> Dar, one thing you need to do is take a copy of the ADA law to the
>>> doctor's
>>> office.
>>>
>>> It's not fair you are not getting the result reports you want. I don't
>>> understand that because I have no trouble getting mine.
>>>
>>> --If you ever see a turtle on a fence post, remember he didn't get there
>>> by
>>> himself.
>>>
>>> Donna Miller and Leader Dog Abe
>>>
>>> dmiller64 at tx.rr.com
>>>
>>> ddm2651 at hotmail.com
>>>
>>> You're invited to join my lovable-labs-l and you can sign up at:
>>>
>>> lovable-labs-l-subscribe at yahoogroups.com
>>>
>>> ----- Original Message ----- 
>>> From: "d m gina" <dmgina at samobile.net>
>>> To: <diabetes-talk at nfbnet.org>
>>> Sent: Friday, March 06, 2009 9:40 AM
>>> Subject: [Diabetes-talk] information results
>>>
>>>
>>>> Good morning,
>>>> I am under the understanding that if you call for your blood work
>>>> results,
>>>> you should be able to receive them by phone.
>>>> Under the ADA.
>>>> I was told yesterday, and this isn't the first time, that I could wait
>>>> until I see my doctor before I learn any information.
>>>> that it is waisting their time for them the Nurse Mary Jo to call me and
>>>> give me any results.
>>>> this is of my own tests, no one elses.
>>>> I did learn about the a one c but the rest she said I could wait until I
>>>> see the doctor.
>>>> They don't send any print our way any more, because no one can read it 
>>>> to
>>>> us.
>>>> I shared our reader reads the mail, but how sad it is that I have to 
>>>> find
>>>> out threw my reader my results.
>>>> I know in Grate Falls Montana the nurses from  the doctor office calls
>>>> and
>>>> shares with the blind what is happening on their behalf.
>>>> I don't know if we have a doctors association here in town or not.
>>>> Before I give  them grief, I want to do the rite thing.
>>>> I don't feel I am being treated with respect.
>>>> I want to solve the problem so I am treated better.
>>>> I don't know what the other blind do, except I kno what I want to do.
>>>> Thanks,
>>>>
>>>> -- 
>>>> --Dar
>>>> every saint has a past
>>>> every sinner has a future
>>>>
>>>> Email services provided by the System Access Mobile Network.  Visit
>>>> www.serotek.com to learn more about accessibility anywhere.
>>>>
>>>> _______________________________________________
>>>> Diabetes-talk mailing list
>>>> Diabetes-talk at nfbnet.org
>>>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-talk:
>>>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmiller64%40tx.rr.com
>>>
>>>
>>>
>>>
>>> ------------------------------
>>>
>>> Message: 6
>>> Date: Fri, 06 Mar 2009 20:15:57 -0500
>>> From: d m gina <dmgina at samobile.net>
>>> Subject: Re: [Diabetes-talk] information results
>>> To: diabetes-talk at nfbnet.org
>>> Message-ID: <20090307011557.25032.6144 at web1.serotek.com>
>>> Content-Type: text/plain; charset="us-ascii"; format="flowed"
>>>
>>> I am not thrilled with this at all.
>>> I feel I need to be respected better than this.
>>> I just want to cover myself first.
>>> Now all of the folks don't do this, I can call and speak with my
>>> diabetic educator with no problem.
>>> Even if it is for a short time.
>>>
>>> It is the nurses that carry a feather or a bee in their bonnet.
>>>
>>> -- 
>>> --Dar
>>> every saint has a past
>>> every sinner has a future
>>>
>>> Email services provided by the System Access Mobile Network.  Visit
>>> www.serotek.com to learn more about accessibility anywhere.
>>>
>>>
>>>
>>> ------------------------------
>>>
>>> Message: 7
>>> Date: Fri, 06 Mar 2009 20:23:47 -0500
>>> From: d m gina <dmgina at samobile.net>
>>> Subject: Re: [Diabetes-talk] information results
>>> To: diabetes-talk at nfbnet.org
>>> Message-ID: <20090307012347.20938.78670 at web3.serotek.com>
>>> Content-Type: text/plain; charset="us-ascii"; format="flowed"
>>>
>>> Ok so I shouldn't ask them to call me?
>>> I said it was sad that I had to find out from my reader, that they
>>> didn't take interest on behalf of the blind.
>>> I don't know if it is the nurse who has this problem or if it is the
>>> whole staff.
>>> why do other doctor offices take interest in the blind to help us out.
>>> and this office, is out for nothing I feel but their money no matter
>>> how they get it.
>>> I think even my scanner could read my results.
>>> I don't get them in the mail any more.
>>> I feel I am a number not a patient.
>>> Now Jim doesn't have many health issues so he isn't up against this at
>>> all.
>>> He will wait for his blood work.
>>> I just like to know so if i have questions I don't have to think hard
>>> in ten minutes then havee to wait another three months for answers if I
>>> come up with more questions.
>>>
>>> -- 
>>> --Dar
>>> every saint has a past
>>> every sinner has a future
>>>
>>> Email services provided by the System Access Mobile Network.  Visit
>>> www.serotek.com to learn more about accessibility anywhere.
>>>
>>>
>>>
>>> ------------------------------
>>>
>>> Message: 8
>>> Date: Fri, 06 Mar 2009 20:26:25 -0500
>>> From: d m gina <dmgina at samobile.net>
>>> Subject: Re: [Diabetes-talk] information results
>>> To: diabetes-talk at nfbnet.org
>>> Message-ID: <20090307012625.20944.66911 at web3.serotek.com>
>>> Content-Type: text/plain; charset="us-ascii"; format="flowed"
>>>
>>> How can I get this in writing.
>>> I can't print it out myself, since my computer doesn't like my printer.
>>> I would like to show them where they are not doing their part well.
>>>
>>> I would like a phone call, that is why I call them.
>>> so they know the request came from me.
>>>
>>> -- 
>>> --Dar
>>> every saint has a past
>>> every sinner has a future
>>>
>>> Email services provided by the System Access Mobile Network.  Visit
>>> www.serotek.com to learn more about accessibility anywhere.
>>>
>>>
>>>
>>> ------------------------------
>>>
>>> Message: 9
>>> Date: Fri, 6 Mar 2009 22:09:53 -0600
>>> From: "Donna Miller" <dmiller64 at tx.rr.com>
>>> Subject: Re: [Diabetes-talk] information results
>>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>>> Message-ID: <FFBB5DA496B6423BB45E57FEE8A74364 at DONNA>
>>> Content-Type: text/plain; format=flowed; charset="iso-8859-1";
>>> reply-type=response
>>>
>>> the NFB or the ACB are two sources. If Jim has any kind of office in the
>>> NFB
>>> he should be able to get it for you.
>>>
>>> I don't know that I've ever seen it before, but it must be so because
>>> we're
>>> supposed to have access to information. I don't know how far that goes
>>> though.
>>>
>>> --If you ever see a turtle on a fence post, remember he didn't get there
>>> by
>>> himself.
>>>
>>> Donna Miller and Leader Dog Abe
>>>
>>> dmiller64 at tx.rr.com
>>>
>>> ddm2651 at hotmail.com
>>>
>>> You're invited to join my lovable-labs-l and you can sign up at:
>>>
>>> lovable-labs-l-subscribe at yahoogroups.com
>>>
>>> ----- Original Message ----- 
>>> From: "d m gina" <dmgina at samobile.net>
>>> To: <diabetes-talk at nfbnet.org>
>>> Sent: Friday, March 06, 2009 7:26 PM
>>> Subject: Re: [Diabetes-talk] information results
>>>
>>>
>>>> How can I get this in writing.
>>>> I can't print it out myself, since my computer doesn't like my printer.
>>>> I would like to show them where they are not doing their part well.
>>>>
>>>> I would like a phone call, that is why I call them.
>>>> so they know the request came from me.
>>>>
>>>> -- 
>>>> --Dar
>>>> every saint has a past
>>>> every sinner has a future
>>>>
>>>> Email services provided by the System Access Mobile Network.  Visit
>>>> www.serotek.com to learn more about accessibility anywhere.
>>>>
>>>> _______________________________________________
>>>> Diabetes-talk mailing list
>>>> Diabetes-talk at nfbnet.org
>>>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-talk:
>>>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmiller64%40tx.rr.com
>>>
>>>
>>>
>>>
>>> ------------------------------
>>>
>>> Message: 10
>>> Date: Fri, 6 Mar 2009 22:16:08 -0600
>>> From: "Donna Miller" <dmiller64 at tx.rr.com>
>>> Subject: Re: [Diabetes-talk] information results
>>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>>> Message-ID: <309781557E78488A894D7BB6C58FDDC2 at DONNA>
>>> Content-Type: text/plain; format=flowed; charset="iso-8859-1";
>>> reply-type=response
>>>
>>> With my doctor's office, it's not a blind issue. They do this for all
>>> their
>>> patients.
>>>
>>> They are really good to me. They filled the Leader Dog medical 
>>> information
>>> out the same afternoon I sent it to them and Leader had it the next
>>> morning.
>>>
>>> They do the same with my diabetic questions and anything I need.
>>>
>>>
>>> --If you ever see a turtle on a fence post, remember he didn't get there
>>> by
>>> himself.
>>>
>>> Donna Miller and Leader Dog Abe
>>>
>>> dmiller64 at tx.rr.com
>>>
>>> ddm2651 at hotmail.com
>>>
>>> You're invited to join my lovable-labs-l and you can sign up at:
>>>
>>> lovable-labs-l-subscribe at yahoogroups.com
>>>
>>> ----- Original Message ----- 
>>> From: "d m gina" <dmgina at samobile.net>
>>> To: <diabetes-talk at nfbnet.org>
>>> Sent: Friday, March 06, 2009 7:23 PM
>>> Subject: Re: [Diabetes-talk] information results
>>>
>>>
>>>> Ok so I shouldn't ask them to call me?
>>>> I said it was sad that I had to find out from my reader, that they 
>>>> didn't
>>>> take interest on behalf of the blind.
>>>> I don't know if it is the nurse who has this problem or if it is the
>>>> whole
>>>> staff.
>>>> why do other doctor offices take interest in the blind to help us out.
>>>> and this office, is out for nothing I feel but their money no matter how
>>>> they get it.
>>>> I think even my scanner could read my results.
>>>> I don't get them in the mail any more.
>>>> I feel I am a number not a patient.
>>>> Now Jim doesn't have many health issues so he isn't up against this at
>>>> all.
>>>> He will wait for his blood work.
>>>> I just like to know so if i have questions I don't have to think hard in
>>>> ten minutes then havee to wait another three months for answers if I 
>>>> come
>>>> up with more questions.
>>>>
>>>> -- 
>>>> --Dar
>>>> every saint has a past
>>>> every sinner has a future
>>>>
>>>> Email services provided by the System Access Mobile Network.  Visit
>>>> www.serotek.com to learn more about accessibility anywhere.
>>>>
>>>> _______________________________________________
>>>> Diabetes-talk mailing list
>>>> Diabetes-talk at nfbnet.org
>>>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>> To unsubscribe, change your list options or get your account info for
>>>> Diabetes-talk:
>>>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmiller64%40tx.rr.com
>>>
>>>
>>>
>>>
>>> ------------------------------
>>>
>>> Message: 11
>>> Date: Fri, 6 Mar 2009 20:27:29 -0800
>>> From: "Mike Freeman" <k7uij at panix.com>
>>> Subject: Re: [Diabetes-talk] information results
>>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>>> Message-ID: <CC7FC302FCF543F7B21CB65D94A61F65 at owner96190708e>
>>> Content-Type: text/plain; charset="iso-8859-1"
>>>
>>> Talk with Dan Burke, your affiliate president.
>>>
>>> Mike
>>>
>>> ----- Original Message ----- 
>>> From: "d m gina" <dmgina at samobile.net>
>>> To: <diabetes-talk at nfbnet.org>
>>> Sent: Friday, March 06, 2009 5:26 PM
>>> Subject: Re: [Diabetes-talk] information results
>>>
>>>
>>> How can I get this in writing.
>>> I can't print it out myself, since my computer doesn't like my printer.
>>> I would like to show them where they are not doing their part well.
>>>
>>> I would like a phone call, that is why I call them.
>>> so they know the request came from me.
>>>
>>> -- 
>>> --Dar
>>> every saint has a past
>>> every sinner has a future
>>>
>>> Email services provided by the System Access Mobile Network.  Visit
>>> www.serotek.com to learn more about accessibility anywhere.
>>>
>>> _______________________________________________
>>> Diabetes-talk mailing list
>>> Diabetes-talk at nfbnet.org
>>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-talk:
>>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix.com
>>>
>>>
>>>
>>>
>>> ------------------------------
>>>
>>> Message: 12
>>> Date: Fri, 06 Mar 2009 23:41:45 -0500
>>> From: d m gina <dmgina at samobile.net>
>>> Subject: Re: [Diabetes-talk] information results
>>> To: diabetes-talk at nfbnet.org
>>> Message-ID: <20090307044145.24807.85035 at web3.serotek.com>
>>> Content-Type: text/plain; charset="us-ascii"; format="flowed"
>>>
>>> Mike I will do just that.
>>> Thanks so much.
>>>
>>> -- 
>>> --Dar
>>> every saint has a past
>>> every sinner has a future
>>>
>>> Email services provided by the System Access Mobile Network.  Visit
>>> www.serotek.com to learn more about accessibility anywhere.
>>>
>>>
>>>
>>> ------------------------------
>>>
>>> _______________________________________________
>>> Diabetes-talk mailing list
>>> Diabetes-talk at nfbnet.org
>>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>>
>>>
>>> End of Diabetes-talk Digest, Vol 20, Issue 9
>>> ********************************************
>>
>>
>>
>>
>> ------------------------------
>>
>> Message: 3
>> Date: Mon, 09 Mar 2009 11:44:51 -0400
>> From: d m gina <dmgina at samobile.net>
>> Subject: Re: [Diabetes-talk] The Importance of Readers...
>> To: diabetes-talk at nfbnet.org
>> Message-ID: <20090309154451.26842.33652 at web2.serotek.com>
>> Content-Type: text/plain; charset="us-ascii"; format="flowed"
>>
>> If it is importatn to take the blood work as they say it is,
>> then it should be up to them to let me know the results, not waiting
>> until I get to the office for a ten minute chat.
>> I need time to think over what was said to me to ask questions.
>> The sad thing is, after ten minutes I have to wait three months before
>> I can ask another question to my doctor.
>> Excuse me, if I can talk to God on a daily bases,
>> then the doctor needs to lower his standards.
>> I don't even get the print any more, because they decided that since I
>> couldn't read it, they didn't have to send it to me.
>>
>> -- 
>> --Dar
>> every saint has a past
>> every sinner has a future
>>
>> Email services provided by the System Access Mobile Network.  Visit
>> www.serotek.com to learn more about accessibility anywhere.
>>
>>
>>
>> ------------------------------
>>
>> _______________________________________________
>> Diabetes-talk mailing list
>> Diabetes-talk at nfbnet.org
>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>
>>
>> End of Diabetes-talk Digest, Vol 20, Issue 10
>> ********************************************* 
> 
> 
> _______________________________________________
> Diabetes-talk mailing list
> Diabetes-talk at nfbnet.org
> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> To unsubscribe, change your list options or get your account info for Diabetes-talk:
> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/awheeler%40neb.rr.com


--------------------------------------------------------------------------------



No virus found in this incoming message.
Checked by AVG - www.avg.com 
Version: 8.0.237 / Virus Database: 270.11.9/1992 - Release Date: 03/09/09 19:20:00




More information about the Diabetes-Talk mailing list