[Diabetes-talk] The Importance of Readers...
The Jacobs' Family
bandbjacobs at verizon.net
Tue Mar 10 02:30:56 UTC 2009
Hey Dar: I do agree with you Honey. I truly am in your corner.
Unfortunately, honey, there are those in the medical profession who seem to
think it behooves them to hide their ignorance behind their arrogance and
they really believe that because of who they are that the rest of us are
gullible enough to sit up, shut up and take it??? Not this chick Honey!!!
And, of course, anyone who knows me knows I've been known to call a doctor
or two on just that...hiding ignorance behind arrogance. Go for it girl!!
Get 'em!! Call 'em on it honey!! I didn't mean to imply anything against
you at all when I was talking about the importance of readers. I don't
hesitate to call when my husband can't read or understand something either
and they should explain that to you, without having to wait three months for
the next appointment. Let me tell ya Honey!! They wouldn't wait!!! And,
believe you me Honey!! They'd be complaining about that too. And Guess
what else Honey? They're just as indispensable as anyone else. There are
other doctors who really do give a rip and you can always find a way to get
hold of the actual doctor, lodge a complaint and boot those little "Hell's
Angels" right out on their ears. You don't have to take that. You, like
any of the rest of us deserve better than that Honey. And, don't you forget
it!!!
----- Original Message -----
From: <diabetes-talk-request at nfbnet.org>
To: <diabetes-talk at nfbnet.org>
Sent: Monday, March 09, 2009 1:00 PM
Subject: Diabetes-talk Digest, Vol 20, Issue 10
> Send Diabetes-talk mailing list submissions to
> diabetes-talk at nfbnet.org
>
> To subscribe or unsubscribe via the World Wide Web, visit
> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
> or, via email, send a message with subject or body 'help' to
> diabetes-talk-request at nfbnet.org
>
> You can reach the person managing the list at
> diabetes-talk-owner at nfbnet.org
>
> When replying, please edit your Subject line so it is more specific
> than "Re: Contents of Diabetes-talk digest..."
>
>
> Today's Topics:
>
> 1. o/t please read my comments that is published in the American
> Chronicle (cheryl echevarria)
> 2. The Importance of Readers... (The Jacobs' Family)
> 3. Re: The Importance of Readers... (d m gina)
>
>
> ----------------------------------------------------------------------
>
> Message: 1
> Date: Sun, 8 Mar 2009 14:37:00 -0400
> From: "cheryl echevarria" <cherylandmaxx at hotmail.com>
> Subject: [Diabetes-talk] o/t please read my comments that is published
> in the American Chronicle
> To: "cherylandmaxx" <cherylandmaxx at hotmail.com>
> Message-ID: <BAY131-DS52B2909EFD4CD07439384A1A30 at phx.gbl>
> Content-Type: text/plain; charset="iso-8859-1"
>
> A friend and a member of the NFB and Performing Arts Division, and Guide
> Dog
> user writes for the American Chronicle and I was asked to give my input on
> PETA (People for the Ethical Treatment of Animals) who have no idea on
> what
> or how Guide dogs are trained and treated. Myself and the President of
> NAGDU (National Association of Guide Dog Users) Marion Gwizdala to which I
> am a member of the National as well as the Local New York Division.
>
> Please read I am very proud. Please see the link below, if anyone cannot
> access the link please let me know and I will forward it by cut and
> pasting.
>
> Organizations like this one should ask before shooting mouths off or
> sticking foot in mouth before writing articles.
>
> Cheryl Echevarria
>
>
> ----- Original Message -----
> From: "cheryl" <noreply at americanchronicle.com>
> To: "cheryl" <cherylandmaxx at hotmail.com>
> Sent: Sunday, March 08, 2009 2:14 PM
> Subject: cheryl sent you a link on American Chronicle
>
>
>> cheryl,
>>
>> cheryl had sent you a link on American Chronicle:
>>
>> Animal Advocate Calls Blind Guide Dog Users Cruel &unfit, PETA, Off-Base
>> or Playing to Public Fear?
>>
>
>
>
> ------------------------------
>
> Message: 2
> Date: Sun, 8 Mar 2009 22:35:45 -0400
> From: "The Jacobs' Family" <bandbjacobs at verizon.net>
> Subject: [Diabetes-talk] The Importance of Readers...
> To: <diabetes-talk at nfbnet.org>
> Message-ID: <004901c9a05f$bff065b0$0301a8c0 at HOMENETWORK>
> Content-Type: text/plain; format=flowed; charset="iso-8859-1";
> reply-type=original
>
> Actually Guys, I concur with Mike. Like Braille, I personally don't think
> the use of a reader should become a lost art. Technology has a lot of
> usefulness. However, if it crashes, one must still know the basics--how
> to
> use hard copy print/Braille, note taking, and, also in our case, how to
> proficiently use a reader if one has to. It's kind of like the thing that
> most all dog guide schools now require that blind/visually impaired
> students
> who come to them also be proficient cane users. If something should
> happen
> to a dog while on travels, some horrific health issue like a seizure,
> heart
> attack, or, even if the dog gets hit by a fast-moving vehicle while
> leading..." Heaven forbid!!! Heaven knows I don't wish that on anyone.
> But that actually did happen to a very close friend of mine back in WI
> about
> 25 years ago. He pulled a collapsible cane out of his back pack ;and
> wala--could get help for his seriously-wounded dog who had actually been
> hit
> by a moving vehicle... Everyone around was quite traumatized by the whole
> incident. But, being a good cane user, he, himself wasn't disabled
> completely out of commission because something happened to his poor dear
> dog. Most of us could do very little but simply BE THERE for our friend,
> Bless his heart!!! Bottom line here is, we MUST, (by all means), keep all
> options open to us--as, unfortunately, we have so few to begin with. We
> can't put all our eggs in one basket.
> ----- Original Message -----
> From: <diabetes-talk-request at nfbnet.org>
> To: <diabetes-talk at nfbnet.org>
> Sent: Saturday, March 07, 2009 2:00 PM
> Subject: Diabetes-talk Digest, Vol 20, Issue 9
>
>
>> Send Diabetes-talk mailing list submissions to
>> diabetes-talk at nfbnet.org
>>
>> To subscribe or unsubscribe via the World Wide Web, visit
>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> or, via email, send a message with subject or body 'help' to
>> diabetes-talk-request at nfbnet.org
>>
>> You can reach the person managing the list at
>> diabetes-talk-owner at nfbnet.org
>>
>> When replying, please edit your Subject line so it is more specific
>> than "Re: Contents of Diabetes-talk digest..."
>>
>>
>> Today's Topics:
>>
>> 1. Re: information results (Paul & Paula Jordan)
>> 2. Re: questions from a fairly new list subscriber (Ed Bryant)
>> 3. Re: questions from a fairly new list subscriber (Ed Bryant)
>> 4. Re: information results (Mike Freeman)
>> 5. Re: information results (Donna Miller)
>> 6. Re: information results (d m gina)
>> 7. Re: information results (d m gina)
>> 8. Re: information results (d m gina)
>> 9. Re: information results (Donna Miller)
>> 10. Re: information results (Donna Miller)
>> 11. Re: information results (Mike Freeman)
>> 12. Re: information results (d m gina)
>>
>>
>> ----------------------------------------------------------------------
>>
>> Message: 1
>> Date: Fri, 6 Mar 2009 13:57:39 -0500
>> From: "Paul & Paula Jordan" <paujor at fuse.net>
>> Subject: Re: [Diabetes-talk] information results
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Message-ID: <005e01c99e8d$6bed7030$fdc8a8c0 at PaulJordan>
>> Content-Type: text/plain; charset="us-ascii"
>>
>> This is truly interesting. You get your info the same way I do, I think.
>> When I was diagnosed as diabetic, I stumbled onto the result. As a
>> matter
>> of fact, it had been 2 weeks after my initial bloodwork had been done,
>> and,
>> I had to call and ask about it, otherwise I don't know when they would
>> have
>> gotten around to telling me.
>> Don't give up in your struggle to get what you need to have, and I wish
>> you
>> well.
>>
>> Paul
>>
>> -----Original Message-----
>> From: diabetes-talk-bounces at nfbnet.org
>> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of d m gina
>> Sent: Friday, March 06, 2009 10:40 AM
>> To: diabetes-talk at nfbnet.org
>> Subject: [Diabetes-talk] information results
>>
>> Good morning,
>> I am under the understanding that if you call for your blood work
>> results, you should be able to receive them by phone.
>> Under the ADA.
>> I was told yesterday, and this isn't the first time, that I could wait
>> until I see my doctor before I learn any information.
>> that it is waisting their time for them the Nurse Mary Jo to call me
>> and give me any results.
>> this is of my own tests, no one elses.
>> I did learn about the a one c but the rest she said I could wait until
>> I see the doctor.
>> They don't send any print our way any more, because no one can read it to
>> us.
>> I shared our reader reads the mail, but how sad it is that I have to
>> find out threw my reader my results.
>> I know in Grate Falls Montana the nurses from the doctor office calls
>> and shares with the blind what is happening on their behalf.
>> I don't know if we have a doctors association here in town or not.
>> Before I give them grief, I want to do the rite thing.
>> I don't feel I am being treated with respect.
>> I want to solve the problem so I am treated better.
>> I don't know what the other blind do, except I kno what I want to do.
>> Thanks,
>>
>> --
>> --Dar
>> every saint has a past
>> every sinner has a future
>>
>> Email services provided by the System Access Mobile Network. Visit
>> www.serotek.com to learn more about accessibility anywhere.
>>
>> _______________________________________________
>> Diabetes-talk mailing list
>> Diabetes-talk at nfbnet.org
>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-talk:
>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/paujor%40fuse
>> .net
>> No virus found in this incoming message.
>> Checked by AVG - www.avg.com
>> Version: 8.0.237 / Virus Database: 270.11.7/1982 - Release Date: 03/05/09
>> 07:54:00
>>
>>
>>
>>
>> ------------------------------
>>
>> Message: 2
>> Date: Fri, 6 Mar 2009 13:42:57 -0600
>> From: "Ed Bryant" <ebryant at socket.net>
>> Subject: Re: [Diabetes-talk] questions from a fairly new list
>> subscriber
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Message-ID: <000001c99e93$c02c4e40$4084eac0$@net>
>> Content-Type: text/plain; charset="us-ascii"
>>
>> Hi Chanelle,
>> WELCOME ABOARD! We all work together to provide each other support
>> and information.
>> I suggest you contact Tom Ley with your insulin pump questions. He
>> is totally blind and has been on a pump for several years. Tom lives in
>> Baltimore and you can reach him at: RiveraLey at Verizon.net.
>>
>> Best Regards,
>> Ed Bryant
>>
>> -----Original Message-----
>> From: diabetes-talk-bounces at nfbnet.org
>> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Chanelle Hill
>> Sent: Wednesday, March 04, 2009 10:44 AM
>> To: 'Diabetes Talk for the Blind'
>> Subject: Re: [Diabetes-talk] questions from a fairly new list subscriber
>>
>> Dear Vince,
>> Thanks for replying to my email. I am grateful for the many responses I
>> have
>> received from the list. I am still using the 512 but would like to
>> upgrade
>> to the 522. How do you get your pump to deliver a square bolis? I use the
>> easy bolis feature with the beeps, but I would like to use the other
>> bolis
>> options--especially since they give a person even more control. Does the
>> square wave bolis have to do with insulin being delivered over the course
>> of
>> a few hours? I am able to fill my pump on my own. I just have a sighted
>> friend double check that there are no bubbles in my reservoirs. I have
>> been
>> on the pump since 2004, and I went to a diabetes center in 2007 where the
>> nurses were willing to teach me how to draw up insulin. Before that, I
>> thought filling reservoirs was impossible for a blind person.
>> Thanks for checking on the Clever Check meter. The lady from Homecare
>> Solutions with whom I spoke sounded vague about it. Thanks for the
>> information about Advanced Diabetic Solutions! I really need that now
>> since
>> I haven't gotten anywhere with Homecare Solutions. If they have already
>> shipped out the Clever Check today as they said they would, I will report
>> to
>> the list as to what it is like.
>>
>> Chanelle
>>
>> -----Original Message-----
>> From: diabetes-talk-bounces at nfbnet.org
>> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Vincent Chaney
>> Sent: Tuesday, March 03, 2009 9:10 PM
>> To: Diabetes Talk for the Blind
>> Subject: Re: [Diabetes-talk] questions from a fairly new list subscriber
>>
>> Chanelle,
>>
>> Welcome to the list...
>>
>> I too am a pumper, an insulin pump user. I am using the Medtronic Minimed
>> 712 but require my wife to fill it due to the inaccessible menu options.
>> Once it is filled I work with the beeps to deliver the "Normal" or
>> "Squared"
>>
>> bolis amounts as you probably do.
>> Regarding the "Clever Check", I performed a "Google" search on this and
>> found no indication it included any accessibility feature. The Blog I
>> also
>> looked at noted it worked with only one button which could be used with a
>> talking machine but very unlikely. I would recommend you to contact one
>> of
>> the many suppliers noted on this list who carry the "Prodigy Voice Test
>> Strips". The company I work with is "Advanced Diabetic Solutions" and
>> just
>> received new strips about 10 days ago. Their Web Site is:
>> http://www.advanceddiabeticsolutions.net/
>> Their phone number is 1-888-377-6382. Tina Rockwell, Director of Patient
>> Services, is whom has helped me and the members from the Diabetes
>> Division
>> of the NFBNJ.
>>
>> Vince
>>
>>
>> ----- Original Message -----
>> From: "Chanelle Hill" <chanellemh at gmail.com>
>> To: <diabetes-talk at nfbnet.org>
>> Sent: Tuesday, March 03, 2009 4:27 PM
>> Subject: [Diabetes-talk] questions from a fairly new list subscriber
>>
>>
>> Dear List Members,
>>
>> I read an article about insulin pumps that someone from NFB wrote several
>> years ago, and so I thought I would join this list to see if anyone has
>> had
>> improved accessibility with the pump and for other diabetes issues. I am
>> a
>> Type I diabetic, and I have been using the Minimed Paradigm 512 insulin
>> pump
>> and the Prodigy Voice meter. I know that NFB is heavily involved in
>> advocacy, but what has been done to inform insulin pump companies of the
>> need for more accessible pumps? Is there any way to become involved in
>> advocating for better accessibility? It would be wonderful to use the new
>> Minimed Continuous Glucose Monitoring system, but the meter needed to
>> calibrate the pump doesn't talk. It seems like that could easily be fixed
>> since there are already talking glucometers. I spoke with a rep from
>> Minimed
>> about upgrading my pump and asked if Minimed was working on a pump that
>> would be more accessible. She thought that the company was, but no one
>> has
>> gotten back to me.
>>
>> It sounds like someone is having problems with the Prodigy Voice meter on
>> this list? After calling and waiting a few weeks to get some more strips,
>> I
>> found out that Homecare Solutions is no longer carrying the strips for
>> Prodigy Voice and that they are carrying a new meter that is supposedly
>> like
>> the Prodigy called the Clever Check. Have any of you heard of this new
>> meter? Hopefully it has all of the audible features and more accessible
>> software (that's almost too much to ask :-) ).
>>
>> Finally my last question. I am checking out state rehabilitation centers
>> in
>> Minnesota-one of which is Blind Inc. On the CD that SSB sent me
>> containing
>> a
>> BLIND cyber brochure, a class for diabetes management was mentioned. Do
>> you
>> know if that is still taught? Apart from that, have any of you had
>> experience with the training programs at Blind Inc.?
>>
>> Thanks in advance for answering my questions.
>>
>>
>>
>> Chanelle
>>
>> _______________________________________________
>> Diabetes-talk mailing list
>> Diabetes-talk at nfbnet.org
>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-talk:
>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/vgc732%40opto
>> nline.net
>>
>>
>>
>> _______________________________________________
>> Diabetes-talk mailing list
>> Diabetes-talk at nfbnet.org
>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-talk:
>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/chanellemh%40
>> gmail.com
>>
>>
>> _______________________________________________
>> Diabetes-talk mailing list
>> Diabetes-talk at nfbnet.org
>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-talk:
>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/ebryant%40soc
>> ket.net
>>
>>
>>
>>
>>
>>
>>
>>
>> ------------------------------
>>
>> Message: 3
>> Date: Fri, 6 Mar 2009 13:47:28 -0600
>> From: "Ed Bryant" <ebryant at socket.net>
>> Subject: Re: [Diabetes-talk] questions from a fairly new list
>> subscriber
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Message-ID: <000101c99e94$61bf86a0$253e93e0$@net>
>> Content-Type: text/plain; charset="us-ascii"
>>
>> Hi Chanelle,
>> I have extra copies of Voice of the Diabetic Volume 24 number 1,
>> Winter 2009 and will gladly send you a print or tape version. You can
>> send
>> me your address privately and the Voice will be on its way.
>>
>> Regards,
>> Ed Bryant
>> -----Original Message-----
>> From: diabetes-talk-bounces at nfbnet.org
>> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Chanelle Hill
>> Sent: Wednesday, March 04, 2009 11:04 AM
>> To: 'Diabetes Talk for the Blind'
>> Subject: Re: [Diabetes-talk] questions from a fairly new list subscriber
>>
>> Dear Mike,
>> Thanks for replying to my message. I will check out the Braille Monitor.
>> I
>> subscribed to Voice of the Diabetic about a month ago and haven't
>> received
>> an issue yet. I opted to receive the publication via email.
>> The CD I received from Blind Inc., seems to be a few years old since some
>> of
>> the articles date back to 2004, 2001, and those reprinted from the 90's.
>> I would like to get connected with diabetes educators who have had
>> experience working with the blind.
>> That would be great if Prodigy made a talking pump!
>> Minimed pumps have software that allows one to make changes to basal
>> rates,
>> the increment for easy bolis, time and date, and other items that are set
>> through the pump menus. It would be nice if one could also use the
>> software
>> to program a bolis that would be delivered as soon as the pump was
>> disconnected from the computer. For example, I think that the pump has
>> bolis
>> wizzard--a feature to calculate insulin needed for carbs eaten and high
>> blood sugars. These calculations can easily be made manually, but I think
>> the pump also keeps track of active insulin.
>> I will figure out who I could speak to at Minimed about this or pump
>> accessibility. I appreciate your efforts to advocate accessibility with
>> the
>> insulin pump companies.
>>
>> Chanelle
>> -----Original Message-----
>> From: diabetes-talk-bounces at nfbnet.org
>> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Mike Freeman
>> Sent: Tuesday, March 03, 2009 9:58 PM
>> To: Diabetes Talk for the Blind
>> Subject: Re: [Diabetes-talk] questions from a fairly new list subscriber
>>
>> Chanelle:
>>
>> With respect to BLIND, Inc., it's a great rehab center. I know some of
>> the personnel who teach there and they're great folks and know what
>> they're about. If you go to http://www.nfb.org, thence to the
>> "Publications" link and thence to "The Braile Monitor", you can read a
>> review and description of the BLIND, Inc. program in a recent issue.
>> Just do a search for "Blind, INC." and you'll find it or just peruse the
>> tables of contents for the past few issues.
>>
>> BLIND, Inc. had someone who specialized in diabetes management but don't
>> think there's one there now. However, there are a number of persons
>> there who have diabetes and who can probably put you in touch with
>> blindness-savvy CDEs. Additionally, there's a lot of practical expertise
>> on this list.
>>
>> Insofar as pump accessibility is concerned, I and several others from
>> the Diabetes Action Network are working on the problem. However, the
>> situation isn't much different than that which you described from an
>> article several years ago. Although at first blush it would seem that it
>> would be easy to make an insulin pump talk, it isn't quite as simple as
>> one might suppose. One has to determine what must be spoken when and in
>> what form (for example, if one is using a pump with a CGMS system, often
>> the information is graphically displayed, not numerically displayed and
>> one must figure out how to convey this verbally). WE have had some
>> communication with one pump manufacturer which has showed a bit of
>> interest. However, if truth be told, despite what we might think, the
>> blind (and yes, I mean the visually impaired also) are a pretty small
>> segment of the market so pump manufacturers have to be shown a good
>> reason for making the investment in access technology. AS I say, we're
>> working on it. I doubt anything is in the immediate offing.
>>
>> AS to the Clevercheck, I've not seen one but suspect that it is like the
>> Prodigy Autocode or the Advocate in that it would speak a bg reading --
>> once -- but that all other functions would be inaccessible. But I
>> emphasize that I'm going on a hunch, not on knowledge.
>>
>> We'll keep working on the pump problem, though!
>>
>> Mike Freeman, President
>> Diabetes Action Network
>> National Federation of the Blind
>>
>> ----- Original Message -----
>> From: "Chanelle Hill" <chanellemh at gmail.com>
>> To: <diabetes-talk at nfbnet.org>
>> Sent: Tuesday, March 03, 2009 1:27 PM
>> Subject: [Diabetes-talk] questions from a fairly new list subscriber
>>
>>
>> Dear List Members,
>>
>> I read an article about insulin pumps that someone from NFB wrote
>> several
>> years ago, and so I thought I would join this list to see if anyone has
>> had
>> improved accessibility with the pump and for other diabetes issues. I am
>> a
>> Type I diabetic, and I have been using the Minimed Paradigm 512 insulin
>> pump
>> and the Prodigy Voice meter. I know that NFB is heavily involved in
>> advocacy, but what has been done to inform insulin pump companies of the
>> need for more accessible pumps? Is there any way to become involved in
>> advocating for better accessibility? It would be wonderful to use the
>> new
>> Minimed Continuous Glucose Monitoring system, but the meter needed to
>> calibrate the pump doesn't talk. It seems like that could easily be
>> fixed
>> since there are already talking glucometers. I spoke with a rep from
>> Minimed
>> about upgrading my pump and asked if Minimed was working on a pump that
>> would be more accessible. She thought that the company was, but no one
>> has
>> gotten back to me.
>>
>> It sounds like someone is having problems with the Prodigy Voice meter
>> on
>> this list? After calling and waiting a few weeks to get some more
>> strips, I
>> found out that Homecare Solutions is no longer carrying the strips for
>> Prodigy Voice and that they are carrying a new meter that is supposedly
>> like
>> the Prodigy called the Clever Check. Have any of you heard of this new
>> meter? Hopefully it has all of the audible features and more accessible
>> software (that's almost too much to ask :-) ).
>>
>> Finally my last question. I am checking out state rehabilitation centers
>> in
>> Minnesota-one of which is Blind Inc. On the CD that SSB sent me
>> containing a
>> BLIND cyber brochure, a class for diabetes management was mentioned. Do
>> you
>> know if that is still taught? Apart from that, have any of you had
>> experience with the training programs at Blind Inc.?
>>
>> Thanks in advance for answering my questions.
>>
>>
>>
>> Chanelle
>>
>> _______________________________________________
>> Diabetes-talk mailing list
>> Diabetes-talk at nfbnet.org
>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-talk:
>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix
>> ..com
>>
>>
>> _______________________________________________
>> Diabetes-talk mailing list
>> Diabetes-talk at nfbnet.org
>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-talk:
>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/chanellemh%40
>> gmail.com
>>
>>
>> _______________________________________________
>> Diabetes-talk mailing list
>> Diabetes-talk at nfbnet.org
>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-talk:
>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/ebryant%40soc
>> ket.net
>>
>>
>>
>>
>>
>>
>>
>>
>> ------------------------------
>>
>> Message: 4
>> Date: Fri, 06 Mar 2009 13:47:34 -0800
>> From: Mike Freeman <k7uij at panix.com>
>> Subject: Re: [Diabetes-talk] information results
>> To: diabetes-talk at nfbnet.org
>> Message-ID: <20090306214734.k7uij at panix.com>
>> Content-Type: text/plain; charset=US-ASCII
>>
>> Dar:
>>
>> If I recall correctly, your doctor's office must make some accommodation
>> available to you to get your results other than print. This could be as
>> simple as calling you with the results or as elaborate as having the
>> results in braille or on the Internet or in some form of audio. While
>> your
>> preference in format must be taken into account, the Department of
>> Justice
>> does not require absolutely that the entity honor your choice.
>>
>> It would be interesting to see whether D.O.J. would consider your doctor
>> visit such an accommodation. I could see it going either way. However, I
>> suspect that you'd win were you to contend that doctor's visits weren't
>> (or should not be considered as) an accccommodation.
>>
>> That said, I personally see absolutely nothing wrong with using a reader
>> to get one's results. I wouldn't hire a reader I could not trust. But it
>> must be admitted that I don't care who knows my results; I never quite
>> followed why people were so all-fired sensitive about their results. In
>> fact, I read of a diabetes website where people actually post their own
>> results as an incentive to improve. (grin) I wouldn't go quite that far.
>>
>> But I do worry that as we use other means to access print, we will grow
>> to
>> consider use of a reader as an inferior method when, in actuality, it is
>> one of the best.
>>
>> Just my opinion.
>>
>> Mike
>>
>> ----- Original Message -----
>> From: d m gina <dmgina at samobile.net>
>> To: diabetes-talk at nfbnet.org
>> Date: Friday, Mar 6, 2009 10:41:47
>> Subject: [Diabetes-talk] information results
>>
>>>
>>>
>>> Good morning,
>>> I am under the understanding that if you call for your blood work
>>> results, you should be able to receive them by phone.
>>> Under the ADA.
>>> I was told yesterday, and this isn't the first time, that I could wait
>>> until I see my doctor before I learn any information.
>>> that it is waisting their time for them the Nurse Mary Jo to call me
>>> and give me any results.
>>> this is of my own tests, no one elses.
>>> I did learn about the a one c but the rest she said I could wait until
>>> I see the doctor.
>>> They don't send any print our way any more, because no one can read it
>>> to
>>> us.
>>> I shared our reader reads the mail, but how sad it is that I have to
>>> find out threw my reader my results.
>>> I know in Grate Falls Montana the nurses from the doctor office calls
>>> and shares with the blind what is happening on their behalf.
>>> I don't know if we have a doctors association here in town or not.
>>> Before I give them grief, I want to do the rite thing.
>>> I don't feel I am being treated with respect.
>>> I want to solve the problem so I am treated better.
>>> I don't know what the other blind do, except I kno what I want to do.
>>> Thanks,
>>>
>>> --
>>> -comDar
>>> every saint has a past
>>> every sinner has a future
>>>
>>> Email services provided by the System Access Mobile Network. Visit
>>> www.serotek.com to learn more about accessibility anywhere.
>>>
>>> _______________________________________________
>>> Diabetes-talk mailing list
>>> Diabetes-talk at nfbnet.org
>>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-talk:
>>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix.com
>>
>>
>>
>> ------------------------------
>>
>> Message: 5
>> Date: Fri, 6 Mar 2009 17:29:08 -0600
>> From: "Donna Miller" <dmiller64 at tx.rr.com>
>> Subject: Re: [Diabetes-talk] information results
>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>> Message-ID: <8EE0D3316AC947109C85BF6FF39F9A4F at DONNA>
>> Content-Type: text/plain; format=flowed; charset="iso-8859-1";
>> reply-type=response
>>
>> Dar, one thing you need to do is take a copy of the ADA law to the
>> doctor's
>> office.
>>
>> It's not fair you are not getting the result reports you want. I don't
>> understand that because I have no trouble getting mine.
>>
>> --If you ever see a turtle on a fence post, remember he didn't get there
>> by
>> himself.
>>
>> Donna Miller and Leader Dog Abe
>>
>> dmiller64 at tx.rr.com
>>
>> ddm2651 at hotmail.com
>>
>> You're invited to join my lovable-labs-l and you can sign up at:
>>
>> lovable-labs-l-subscribe at yahoogroups.com
>>
>> ----- Original Message -----
>> From: "d m gina" <dmgina at samobile.net>
>> To: <diabetes-talk at nfbnet.org>
>> Sent: Friday, March 06, 2009 9:40 AM
>> Subject: [Diabetes-talk] information results
>>
>>
>>> Good morning,
>>> I am under the understanding that if you call for your blood work
>>> results,
>>> you should be able to receive them by phone.
>>> Under the ADA.
>>> I was told yesterday, and this isn't the first time, that I could wait
>>> until I see my doctor before I learn any information.
>>> that it is waisting their time for them the Nurse Mary Jo to call me and
>>> give me any results.
>>> this is of my own tests, no one elses.
>>> I did learn about the a one c but the rest she said I could wait until I
>>> see the doctor.
>>> They don't send any print our way any more, because no one can read it
>>> to
>>> us.
>>> I shared our reader reads the mail, but how sad it is that I have to
>>> find
>>> out threw my reader my results.
>>> I know in Grate Falls Montana the nurses from the doctor office calls
>>> and
>>> shares with the blind what is happening on their behalf.
>>> I don't know if we have a doctors association here in town or not.
>>> Before I give them grief, I want to do the rite thing.
>>> I don't feel I am being treated with respect.
>>> I want to solve the problem so I am treated better.
>>> I don't know what the other blind do, except I kno what I want to do.
>>> Thanks,
>>>
>>> --
>>> --Dar
>>> every saint has a past
>>> every sinner has a future
>>>
>>> Email services provided by the System Access Mobile Network. Visit
>>> www.serotek.com to learn more about accessibility anywhere.
>>>
>>> _______________________________________________
>>> Diabetes-talk mailing list
>>> Diabetes-talk at nfbnet.org
>>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-talk:
>>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmiller64%40tx.rr.com
>>
>>
>>
>>
>> ------------------------------
>>
>> Message: 6
>> Date: Fri, 06 Mar 2009 20:15:57 -0500
>> From: d m gina <dmgina at samobile.net>
>> Subject: Re: [Diabetes-talk] information results
>> To: diabetes-talk at nfbnet.org
>> Message-ID: <20090307011557.25032.6144 at web1.serotek.com>
>> Content-Type: text/plain; charset="us-ascii"; format="flowed"
>>
>> I am not thrilled with this at all.
>> I feel I need to be respected better than this.
>> I just want to cover myself first.
>> Now all of the folks don't do this, I can call and speak with my
>> diabetic educator with no problem.
>> Even if it is for a short time.
>>
>> It is the nurses that carry a feather or a bee in their bonnet.
>>
>> --
>> --Dar
>> every saint has a past
>> every sinner has a future
>>
>> Email services provided by the System Access Mobile Network. Visit
>> www.serotek.com to learn more about accessibility anywhere.
>>
>>
>>
>> ------------------------------
>>
>> Message: 7
>> Date: Fri, 06 Mar 2009 20:23:47 -0500
>> From: d m gina <dmgina at samobile.net>
>> Subject: Re: [Diabetes-talk] information results
>> To: diabetes-talk at nfbnet.org
>> Message-ID: <20090307012347.20938.78670 at web3.serotek.com>
>> Content-Type: text/plain; charset="us-ascii"; format="flowed"
>>
>> Ok so I shouldn't ask them to call me?
>> I said it was sad that I had to find out from my reader, that they
>> didn't take interest on behalf of the blind.
>> I don't know if it is the nurse who has this problem or if it is the
>> whole staff.
>> why do other doctor offices take interest in the blind to help us out.
>> and this office, is out for nothing I feel but their money no matter
>> how they get it.
>> I think even my scanner could read my results.
>> I don't get them in the mail any more.
>> I feel I am a number not a patient.
>> Now Jim doesn't have many health issues so he isn't up against this at
>> all.
>> He will wait for his blood work.
>> I just like to know so if i have questions I don't have to think hard
>> in ten minutes then havee to wait another three months for answers if I
>> come up with more questions.
>>
>> --
>> --Dar
>> every saint has a past
>> every sinner has a future
>>
>> Email services provided by the System Access Mobile Network. Visit
>> www.serotek.com to learn more about accessibility anywhere.
>>
>>
>>
>> ------------------------------
>>
>> Message: 8
>> Date: Fri, 06 Mar 2009 20:26:25 -0500
>> From: d m gina <dmgina at samobile.net>
>> Subject: Re: [Diabetes-talk] information results
>> To: diabetes-talk at nfbnet.org
>> Message-ID: <20090307012625.20944.66911 at web3.serotek.com>
>> Content-Type: text/plain; charset="us-ascii"; format="flowed"
>>
>> How can I get this in writing.
>> I can't print it out myself, since my computer doesn't like my printer.
>> I would like to show them where they are not doing their part well.
>>
>> I would like a phone call, that is why I call them.
>> so they know the request came from me.
>>
>> --
>> --Dar
>> every saint has a past
>> every sinner has a future
>>
>> Email services provided by the System Access Mobile Network. Visit
>> www.serotek.com to learn more about accessibility anywhere.
>>
>>
>>
>> ------------------------------
>>
>> Message: 9
>> Date: Fri, 6 Mar 2009 22:09:53 -0600
>> From: "Donna Miller" <dmiller64 at tx.rr.com>
>> Subject: Re: [Diabetes-talk] information results
>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>> Message-ID: <FFBB5DA496B6423BB45E57FEE8A74364 at DONNA>
>> Content-Type: text/plain; format=flowed; charset="iso-8859-1";
>> reply-type=response
>>
>> the NFB or the ACB are two sources. If Jim has any kind of office in the
>> NFB
>> he should be able to get it for you.
>>
>> I don't know that I've ever seen it before, but it must be so because
>> we're
>> supposed to have access to information. I don't know how far that goes
>> though.
>>
>> --If you ever see a turtle on a fence post, remember he didn't get there
>> by
>> himself.
>>
>> Donna Miller and Leader Dog Abe
>>
>> dmiller64 at tx.rr.com
>>
>> ddm2651 at hotmail.com
>>
>> You're invited to join my lovable-labs-l and you can sign up at:
>>
>> lovable-labs-l-subscribe at yahoogroups.com
>>
>> ----- Original Message -----
>> From: "d m gina" <dmgina at samobile.net>
>> To: <diabetes-talk at nfbnet.org>
>> Sent: Friday, March 06, 2009 7:26 PM
>> Subject: Re: [Diabetes-talk] information results
>>
>>
>>> How can I get this in writing.
>>> I can't print it out myself, since my computer doesn't like my printer.
>>> I would like to show them where they are not doing their part well.
>>>
>>> I would like a phone call, that is why I call them.
>>> so they know the request came from me.
>>>
>>> --
>>> --Dar
>>> every saint has a past
>>> every sinner has a future
>>>
>>> Email services provided by the System Access Mobile Network. Visit
>>> www.serotek.com to learn more about accessibility anywhere.
>>>
>>> _______________________________________________
>>> Diabetes-talk mailing list
>>> Diabetes-talk at nfbnet.org
>>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-talk:
>>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmiller64%40tx.rr.com
>>
>>
>>
>>
>> ------------------------------
>>
>> Message: 10
>> Date: Fri, 6 Mar 2009 22:16:08 -0600
>> From: "Donna Miller" <dmiller64 at tx.rr.com>
>> Subject: Re: [Diabetes-talk] information results
>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>> Message-ID: <309781557E78488A894D7BB6C58FDDC2 at DONNA>
>> Content-Type: text/plain; format=flowed; charset="iso-8859-1";
>> reply-type=response
>>
>> With my doctor's office, it's not a blind issue. They do this for all
>> their
>> patients.
>>
>> They are really good to me. They filled the Leader Dog medical
>> information
>> out the same afternoon I sent it to them and Leader had it the next
>> morning.
>>
>> They do the same with my diabetic questions and anything I need.
>>
>>
>> --If you ever see a turtle on a fence post, remember he didn't get there
>> by
>> himself.
>>
>> Donna Miller and Leader Dog Abe
>>
>> dmiller64 at tx.rr.com
>>
>> ddm2651 at hotmail.com
>>
>> You're invited to join my lovable-labs-l and you can sign up at:
>>
>> lovable-labs-l-subscribe at yahoogroups.com
>>
>> ----- Original Message -----
>> From: "d m gina" <dmgina at samobile.net>
>> To: <diabetes-talk at nfbnet.org>
>> Sent: Friday, March 06, 2009 7:23 PM
>> Subject: Re: [Diabetes-talk] information results
>>
>>
>>> Ok so I shouldn't ask them to call me?
>>> I said it was sad that I had to find out from my reader, that they
>>> didn't
>>> take interest on behalf of the blind.
>>> I don't know if it is the nurse who has this problem or if it is the
>>> whole
>>> staff.
>>> why do other doctor offices take interest in the blind to help us out.
>>> and this office, is out for nothing I feel but their money no matter how
>>> they get it.
>>> I think even my scanner could read my results.
>>> I don't get them in the mail any more.
>>> I feel I am a number not a patient.
>>> Now Jim doesn't have many health issues so he isn't up against this at
>>> all.
>>> He will wait for his blood work.
>>> I just like to know so if i have questions I don't have to think hard in
>>> ten minutes then havee to wait another three months for answers if I
>>> come
>>> up with more questions.
>>>
>>> --
>>> --Dar
>>> every saint has a past
>>> every sinner has a future
>>>
>>> Email services provided by the System Access Mobile Network. Visit
>>> www.serotek.com to learn more about accessibility anywhere.
>>>
>>> _______________________________________________
>>> Diabetes-talk mailing list
>>> Diabetes-talk at nfbnet.org
>>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>> To unsubscribe, change your list options or get your account info for
>>> Diabetes-talk:
>>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/dmiller64%40tx.rr.com
>>
>>
>>
>>
>> ------------------------------
>>
>> Message: 11
>> Date: Fri, 6 Mar 2009 20:27:29 -0800
>> From: "Mike Freeman" <k7uij at panix.com>
>> Subject: Re: [Diabetes-talk] information results
>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>> Message-ID: <CC7FC302FCF543F7B21CB65D94A61F65 at owner96190708e>
>> Content-Type: text/plain; charset="iso-8859-1"
>>
>> Talk with Dan Burke, your affiliate president.
>>
>> Mike
>>
>> ----- Original Message -----
>> From: "d m gina" <dmgina at samobile.net>
>> To: <diabetes-talk at nfbnet.org>
>> Sent: Friday, March 06, 2009 5:26 PM
>> Subject: Re: [Diabetes-talk] information results
>>
>>
>> How can I get this in writing.
>> I can't print it out myself, since my computer doesn't like my printer.
>> I would like to show them where they are not doing their part well.
>>
>> I would like a phone call, that is why I call them.
>> so they know the request came from me.
>>
>> --
>> --Dar
>> every saint has a past
>> every sinner has a future
>>
>> Email services provided by the System Access Mobile Network. Visit
>> www.serotek.com to learn more about accessibility anywhere.
>>
>> _______________________________________________
>> Diabetes-talk mailing list
>> Diabetes-talk at nfbnet.org
>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>> To unsubscribe, change your list options or get your account info for
>> Diabetes-talk:
>> http://www.nfbnet.org/mailman/options/diabetes-talk_nfbnet.org/k7uij%40panix.com
>>
>>
>>
>>
>> ------------------------------
>>
>> Message: 12
>> Date: Fri, 06 Mar 2009 23:41:45 -0500
>> From: d m gina <dmgina at samobile.net>
>> Subject: Re: [Diabetes-talk] information results
>> To: diabetes-talk at nfbnet.org
>> Message-ID: <20090307044145.24807.85035 at web3.serotek.com>
>> Content-Type: text/plain; charset="us-ascii"; format="flowed"
>>
>> Mike I will do just that.
>> Thanks so much.
>>
>> --
>> --Dar
>> every saint has a past
>> every sinner has a future
>>
>> Email services provided by the System Access Mobile Network. Visit
>> www.serotek.com to learn more about accessibility anywhere.
>>
>>
>>
>> ------------------------------
>>
>> _______________________________________________
>> Diabetes-talk mailing list
>> Diabetes-talk at nfbnet.org
>> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>>
>>
>> End of Diabetes-talk Digest, Vol 20, Issue 9
>> ********************************************
>
>
>
>
> ------------------------------
>
> Message: 3
> Date: Mon, 09 Mar 2009 11:44:51 -0400
> From: d m gina <dmgina at samobile.net>
> Subject: Re: [Diabetes-talk] The Importance of Readers...
> To: diabetes-talk at nfbnet.org
> Message-ID: <20090309154451.26842.33652 at web2.serotek.com>
> Content-Type: text/plain; charset="us-ascii"; format="flowed"
>
> If it is importatn to take the blood work as they say it is,
> then it should be up to them to let me know the results, not waiting
> until I get to the office for a ten minute chat.
> I need time to think over what was said to me to ask questions.
> The sad thing is, after ten minutes I have to wait three months before
> I can ask another question to my doctor.
> Excuse me, if I can talk to God on a daily bases,
> then the doctor needs to lower his standards.
> I don't even get the print any more, because they decided that since I
> couldn't read it, they didn't have to send it to me.
>
> --
> --Dar
> every saint has a past
> every sinner has a future
>
> Email services provided by the System Access Mobile Network. Visit
> www.serotek.com to learn more about accessibility anywhere.
>
>
>
> ------------------------------
>
> _______________________________________________
> Diabetes-talk mailing list
> Diabetes-talk at nfbnet.org
> http://www.nfbnet.org/mailman/listinfo/diabetes-talk_nfbnet.org
>
>
> End of Diabetes-talk Digest, Vol 20, Issue 10
> *********************************************
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