[Diabetes-talk] Guidance on talking glucose monitor

Sat Apr 3 13:23:34 UTC 2010

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----- Original Message ----- 
From: "Tamera" <fidano at comcast.net>
To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
Sent: Friday, April 02, 2010 11:09 PM
Subject: Re: [Diabetes-talk] Guidance on talking glucose monitor

> Amen again!  I left this list 2 years ago because of  egotitistical
> opinionated response and the reason I came back inquiring about an update 
> on
> the PV, is exactly  my  complaint when it first came out and was 
> proposed...
> there were strip issues then and the  eject strip mechanism I felt was a
> problem, if not already... on waiting to happen.
>  Now, Kelly was responsive in getting me updated meters, but I still have 
> to
> wonder and  have had some confirmation on the accuracy of the test results
> from the PV. I have seen plenty of  people who did not  like the
> accucheck/voice mate, but in all God's truth... my a1C's were  never in 
> the
> range I get now with the PV, and  according to it my testing's average is
> way off the A1C.
>  Well, sure there can be operator  issues but I am alone much of the time
> and I have to base my results  on  just that the meter, and the results 
> are
> how I dose.
>
>  What might be nice is if  a president  got some social skill training, I
> don't donate to the DAN,  but  won't either based on the  posts from 2 
> years
> ago and now. It might be a good idea for those who are  members to 
> seriously
> consider a network for diabetics is that of those who stay informed but 
> also
> know how to respond without putting you down and degrading you and a human
> being... afterall, isn't that what the NFb is supposed to stand for
>  So when is the next election for the DAN officers?
>  no 1 diabetic is the same, we all have various levels of experiences with
> our disease and it varies  as much with our singular lifestyles. 
> therefore..
> there is no one resolution for us all... but sure would be nice to be
> responded to as credible  human beings and  get some better 
> responsiveness,
> especially from our president?
>
> to developing a meter that  not only is accessible but once again... is
> accurate as  one might hopefully expect!!!!
>  Tamera
> ----- Original Message ----- 
> From: "eileen scrivani" <etscrivani at verizon.net>
> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> Sent: Friday, April 02, 2010 7:03 AM
> Subject: Re: [Diabetes-talk] Guidance on talking glucose monitor
>
>
> > Mike:
> > I will address 2 of your messages in this one reply.
> >
> > First, the PV was promoted all over this list as having the NFB's input
> > into the design and development of it if I am recalling correctly.  DDI,
> > if I am not mistaken, also were given some kind of acknowledgement/award
> > at a national NFB convention.  I did not say the NFB was given any form 
> > of
> > funding or monies by DDI, but if the NFB is promoting themselves as 
> > having
> > played a large part in the PV's development, doesn't it set up in the
> > minds of many people how wonderful the NFB is and that they  do so much
> > good?  It does work as an excellent public relations promotion and image
> > builder for NFB.
> > I would think, since you've been the one to bring up the subject, the 
> > two
> > images I stated could possibly prompt people to make more donations to 
> > NFB
> > chapters/divisions and that's okay because that's good smart business 
> > for
> > either a for profit corporation or a non-profit charity like the NFB. 
> > Any
> > company/organization will play these things to the utmost for their own
> > benefit & promotion.  That is, however, a very different thing than 
> > being
> > given money by the company developing the meter and I never, never said
> > that happened!  I did say it makes the NFB look good and it does.
> >
> > ACB, Huh?  What does that have to do with anything in this conversation?
> > Did I mention the ACB in any of my emails?  Do you have some kind of 
> > issue
> > with me that I am not aware of?
> >
> > Going back to some of your other remarks , you seem to have issues with
> > the new Solo meter, because it wasn't done "under your watch!"  Are you
> > the only blind diabetic??  I think not.  From what I have read here both
> > Cheryl and Vinny have had contact with ADS and would think that both 
> > these
> > people with long-term diabetes would have some excellent input on the 
> > Solo
> > meter's design/development.  They too are not the only other blind
> > diabetics, but seem to be open to giving encouragement to companies that
> > want to bring new accessible meters to us.
> >
> > Isn't it possible that other blindness organizations have had input into
> > the development of the Solo.  There are medical providers that have 
> > blind
> > patients and could have also had some good input into the development of
> > this meter.  The NFB does not know all that has gone into the design of
> > the Solo.  Frankly, so long as I have an accessible glucose meter that 
> > is
> > both accurate and easy to use I could not care less how it came about. 
> > Do
> > you know for a fact if the Solometer company has blind/vi/disabled
> > employees? Does it really matter if a blind or sighted person programmed
> > the meter? What is important is that we, the end-users of the product 
> > have
> > a quality device that does not impact our health negatively.  It would 
> > be
> > a good thing to have some say into how a meter works or what it does, 
> > but
> > I have the impression that ADS & Solo are open to input from people who
> > are using the new meter.  What more can we expect with any accessible
> > meter?
> >
> > Oh, excuse me, but since I am only a mere mortal and not an NFB Division
> > President, I'm only a diabetic of 41, almost 42, years, I can't know as
> > much as you about these issues and the frustrations a blind diabetic 
> > faces
> > in living with the disease as a blind person for the past 29 years, 
> > right?
> > And, yes, it is my personal opinion that it is a very great disgrace 
> > that
> > the number of accessible meters to blind diabetics has in the time I've
> > been blind remained at negligible numbers.  Again, diabetes is more 
> > often
> > than not promoted in numerous studies, advertisements, and articles as
> > being the leading cause of blindness.  Taking that into consideration, 
> > it
> > remains shocking to me that there's only 2, maybe 3 companies taking 
> > this
> > into account when developing meter after meter.  Sighted diabetics even
> > have choices into what color they want there glucose meter to be.  In
> > today's business world, both economic consciousness and  political
> > correctness are driving factors in what companies do and how they act.
> > Decisions to make a product that may not have high market demand,in a 
> > case
> > like this is just "good business" practice.  An accessible meter would
> > help blind diabetics to maintain good health, & reduce further
> > complications.  Thus, costs to insurance companies, medicare and tax
> > payers would also be reduced.
> >
> > Eileen
> >
> >
> > _______________________________________________
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>
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