[Diabetes-talk] Wow!!! Guess everyone is awake now???
cheryl echevarria
cherylandmaxx at hotmail.com
Thu Oct 20 13:40:09 UTC 2011
Dr. Robinson:
Are you an endocrinologist?
I have had Type 1 since I was a child, and in 2001 lost my vision, as an adult.
My question to you is, there are many of us on the pump here, and we know the ups and downs, and that is why you need to work with your diabetic educators and physicians more closely when you pump or not pump.
I have lost 10 pounds since being on the pump.
Have had a kidney transplant in 2005 from losing my eyesight and kidneys to diabetes, the doctors had fought for me to get the pump, as of Feb 2011 I have been on it, they only thing dear hubby helps with is filling of the part that takes the insulin.
Have had no issues with the tubing, and I put it in a little pocket that I wear in my bra so the tubing is out of the way.
My sugars have gone down from being over 300 when I wake up in the morning to, 160 in the morning, yes sometimes I have lows, but so do many who are using the syringes or pens.
No bruising no pains, I have neropathy, in my hands and feet so it doesn't bother me when I attach it to my stomach area, I don't use my thighs, I tried that but it kept coming off.
Plenty of room on my abdomen area
Leading the Way in Independent Travel!
Cheryl Echevarria
http://www.echevarriatravel.com<http://www.echevarriatravel.com/>
631-456-5394
reservations at echevarriatravel.com<mailto:reservations at echevarriatravel.com>
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----- Original Message -----
From: Dr. Denise M Robinson<mailto:deniserob at gmail.com>
To: Diabetes Talk for the Blind<mailto:diabetes-talk at nfbnet.org>
Sent: Thursday, October 20, 2011 9:11 AM
Subject: Re: [Diabetes-talk] Wow!!! Guess everyone is awake now???
Just a quick note on pump using...They are painful to use and cause
brusing...at least on me and I have asked on others...so if you have a
tendency to be sensitive, well...you know. Yes the convenience is nice to
just pump insulin in at any time, but it needs to be working well all the
time and it does not.
If you have lots of neropathy, the pain of it might not bother you as much,
but here are some issues. The tubing, gets clogged or bubbles are in the
tube and it won't deliver the insulin well and thus your blood sugar goes
sky high. At night you can get severe lows...I have been down to 30s and
40s, this happens during the day too even if I am a bit late on eating--I
experience more severe lows with the pump and many many too many highs
because of the delivery system issues. I had to go off it because of these
issues BUT, what I did learn is how to control my blood sugar even better
with needle injections...ok, I take about 7-10 shots a day. I use lantus,
long acting insulin in morning and small amount at night to get me through
the night to keep my blood sugar in check and humlog for my fast
acting...just lots of little shots throughout the day to go with what I eat.
My A1C is 6.5...I am considered a severe diabetic...absolutely no function
in the pancreas since I was 16.
I actually load my needle for the whole day. I am a 15 cc unit user for 1
day--I can't eat much, so it is easy to keep track. I know exactly how much
2 cc units of delivery is so injection is easy and that is about how much
food I eat at a time, due to stomach cancer issues and almost no stomach
now. So it is easy to do delivery and I have the best A1C I have ever had.
So if you know how much you take for the day, load that needle and it is
easy to keep track of what is going on. At first you have to be VERY
deligent in checking blood sugar to go with how much insulin you gave, but
you get very good it this.
Anyway...some side notes--Oh yes, just joined you all...HI
Denise Robinson
On Thu, Oct 20, 2011 at 5:28 AM, William and Bernadette Jacobs <
bandbjacobs at verizon.net<mailto:bandbjacobs at verizon.net>> wrote:
> Greetings Veronica!
>
> So glad to hear from you! Thank you also for your perception/comment here!
> Great contribution to this!! We've all got something here in that no matter
> what Prodigy might or might not be guilty of, there are a whole lot of hands
> in this charade: Prodigy, solo, Roch, all the other meter/pump makers out
> there, all under the rule of the "almighty" FDA??? And unfortunately, we
> still don't have a pump that we were promised from any of them. Yet, they
> don't seem to give a rip because they aren't the consumers waiting for it.
> We're the ones chomping at the bit for it. I, myself am not a pumper but
> I'm not sure I wouldn't be if there wasn't something out there worth my time
> and energy.
>
> At this point Gang, I'd really like to take this time to thank you again.
> I've learned so much from all of you; pumpers/non-pumpers alike. I have
> really enjoyed the comradory here from everyone! Guess that's why I
> consider us family here!
>
> Have a great day gang!
>
> Bern
> ----- Original Message ----- From: "Veronica Elsea" <
> veronica at laurelcreekmusic.com<mailto:veronica at laurelcreekmusic.com>**>
> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org<mailto:diabetes-talk at nfbnet.org>>
> Sent: Wednesday, October 19, 2011 11:31 PM
> Subject: Re: [Diabetes-talk] VoiceRx is Prodigy
>
>
> Well, I have no connection to Prodigy or anyone else, but from the
>> conversations I had in August with Prodigy, other pump companies who were
>> also held up, and the FDA representative, at this point I do believe that
>> the FDA backlog is playing a part in the delay. There are several stages in
>> which the FDA comes into play, some very early on in the pre-marketing
>> approval. And given that nothing new is appearing anywhere right now, I'm
>> willing to cut them some slack until I learn something different.
>> But I'm not in the inner circle, just waiting like the rest of you.
>> <grin.>
>>
>> Veronica
>> We Woof You A Merry Christmas! Diabetes Melodious! And more!
>> Music CDs that will impact and entertain you forever!
>> http://www.laurelcreekmusic.**com<http://www.laurelcreekmusic.**com/> <http://www.laurelcreekmusic.com<http://www.laurelcreekmusic.com/>>
>> Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> 877-607-6407
>>
>>
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>>
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>
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>
--
Denise
Denise M. Robinson, TVI, Ph.D.
CEO, TechVision
Specialist in blind technology/teaching/training
Email: yourtechvision at gmail.com<mailto:yourtechvision at gmail.com> <deniserob at gmail.com<mailto:deniserob at gmail.com>>
Website with hundreds of lessons: yourtechvision.com
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