[Diabetes-talk] Wow!!! Guess everyone is awake now???

Dr. Denise M Robinson deniserob at gmail.com
Thu Oct 20 14:22:02 UTC 2011 

Cheryl

I believe I am just one of those very sensitive people and there is/was
nothing that could be done about the damage the pump inserts were doing to
my body (my abs looked like I was in a perpetual car accident due to all the
bruising--had been switched to different inserts also..nothing worked)...we
are all unique and I think silly in my own silly body issues. Just points to
be aware of. I did love the convenience of it but that did not overcome the
incredible pain of wearing it.
Denise

On Thu, Oct 20, 2011 at 6:40 AM, cheryl echevarria <
cherylandmaxx at hotmail.com> wrote:

> Dr. Robinson:
>
> Are you an endocrinologist?
>
> I have had Type 1 since I was a child, and in 2001 lost my vision, as an
> adult.
>
>
> My question to you is, there are many of us on the pump here, and we know
> the ups and downs, and that is why you need to work with your diabetic
> educators and physicians more closely when you pump or not pump.
>
> I have lost 10 pounds since being on the pump.
>
> Have had a kidney transplant in 2005 from losing my eyesight and kidneys to
> diabetes, the doctors had fought for me to get the pump, as of Feb 2011 I
> have been on it, they only thing dear hubby helps with is filling of the
> part that takes the insulin.
>
> Have had no issues with the tubing, and I put it in a little pocket that I
> wear in my bra so the tubing is out of the way.
>
> My sugars have gone down from being over 300 when I wake up in the morning
> to, 160 in the morning, yes sometimes I have lows, but so do many who are
> using the syringes or pens.
>
> No bruising no pains, I have neropathy, in my hands and feet so it doesn't
> bother me when I attach it to my stomach area, I don't use my thighs, I
> tried that but it kept coming off.
>
> Plenty of room on my abdomen area
> Leading the Way in Independent Travel!
>
> Cheryl Echevarria
> http://www.echevarriatravel.com<http://www.echevarriatravel.com/>
> 631-456-5394
> reservations at echevarriatravel.com<mailto:reservations at echevarriatravel.com
> >
>
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> Baldwin, NY. www.superiortravel.com<http://www.superiortravel.com/>
>
>
>  ----- Original Message -----
>  From: Dr. Denise M Robinson<mailto:deniserob at gmail.com>
>  To: Diabetes Talk for the Blind<mailto:diabetes-talk at nfbnet.org>
>  Sent: Thursday, October 20, 2011 9:11 AM
>  Subject: Re: [Diabetes-talk] Wow!!! Guess everyone is awake now???
>
>
>  Just a quick note on pump using...They are painful to use and cause
>  brusing...at least on me and I have asked on others...so if you have a
>  tendency to be sensitive, well...you know. Yes the convenience is nice to
>  just pump insulin in at any time, but it needs to be working well all the
>  time and it does not.
>
>  If you have lots of neropathy, the pain of it might not bother you as
> much,
>  but here are some issues. The tubing, gets clogged or bubbles are in the
>  tube and it won't deliver the insulin well and thus your blood sugar goes
>  sky high. At night you can get severe lows...I have been down to 30s and
>  40s, this happens during the day too even if I am a bit late on eating--I
>  experience more severe lows with the pump and many many too many highs
>  because of the delivery system issues. I had to go off it because of these
>  issues BUT, what I did learn is how to control my blood sugar even better
>  with needle injections...ok, I take about 7-10 shots a day. I use lantus,
>  long acting insulin in morning and small amount at night to get me through
>  the night to keep my blood sugar in check and humlog for my fast
>  acting...just lots of little shots throughout the day to go with what I
> eat.
>  My A1C is 6.5...I am considered a severe diabetic...absolutely no function
>  in the pancreas since I was 16.
>
>  I actually load my needle for the whole day. I am a 15 cc unit user for 1
>  day--I can't eat much, so it is easy to keep track. I know exactly how
> much
>  2 cc units of delivery is so injection is easy and that is about how much
>  food I eat at a time, due to stomach cancer issues and almost no stomach
>  now. So it is easy to do delivery and I have the best A1C I have ever had.
>  So if you know how much you take for the day, load that needle and it is
>  easy to keep track of what is going on. At first you have to be VERY
>  deligent in checking blood sugar to go with how much insulin you gave, but
>  you get very good it this.
>  Anyway...some side notes--Oh yes, just joined you all...HI
>  Denise Robinson
>
>
>  On Thu, Oct 20, 2011 at 5:28 AM, William and Bernadette Jacobs <
>  bandbjacobs at verizon.net<mailto:bandbjacobs at verizon.net>> wrote:
>
>  > Greetings Veronica!
>  >
>  > So glad to hear from you!  Thank you also for your perception/comment
> here!
>  > Great contribution to this!!  We've all got something here in that no
> matter
>  > what Prodigy might or might not be guilty of, there are a whole lot of
> hands
>  > in this charade:  Prodigy, solo, Roch, all the other meter/pump  makers
> out
>  > there, all under the rule of the "almighty" FDA???  And unfortunately,
> we
>  > still don't have a pump that we were promised from any of them.  Yet,
> they
>  > don't seem to give a rip because they aren't the consumers waiting for
> it.
>  > We're the ones chomping at the bit for it.  I, myself am not a pumper
> but
>  > I'm not sure I wouldn't be if there wasn't something out there worth my
> time
>  > and energy.
>  >
>  > At this point Gang, I'd really like to take this time to thank you
> again.
>  > I've learned so much from all of you; pumpers/non-pumpers alike.  I have
>  > really enjoyed the comradory here from everyone!  Guess that's why I
>  > consider us family here!
>  >
>  > Have a great day gang!
>  >
>  > Bern
>  > ----- Original Message ----- From: "Veronica Elsea" <
>  > veronica at laurelcreekmusic.com<mailto:veronica at laurelcreekmusic.com>**>
>  > To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org<mailto:
> diabetes-talk at nfbnet.org>>
>  > Sent: Wednesday, October 19, 2011 11:31 PM
>  > Subject: Re: [Diabetes-talk] VoiceRx is Prodigy
>  >
>  >
>  >  Well, I have no connection to Prodigy or anyone else, but from the
>  >> conversations I had in August with Prodigy, other pump companies who
> were
>  >> also held up, and the FDA representative, at this point I do believe
> that
>  >> the FDA backlog is playing a part in the delay. There are several
> stages in
>  >> which the FDA comes into play, some very early on in the pre-marketing
>  >> approval. And given that nothing new is appearing anywhere right now,
> I'm
>  >> willing to cut them some slack until I learn something different.
>  >> But I'm not in the inner circle, just waiting like the rest of you.
>  >> <grin.>
>  >>
>  >> Veronica
>  >> We Woof You A Merry Christmas! Diabetes Melodious! And more!
>  >> Music CDs that will impact and entertain you forever!
>  >> http://www.laurelcreekmusic.**com<http://www.laurelcreekmusic.**com/>
> <http://www.laurelcreekmusic.com<http://www.laurelcreekmusic.com/>>
>  >> Veronica Elsea, Owner
>  >> Laurel Creek Music Designs
>  >> Santa Cruz, California
>  >> 877-607-6407
>  >>
>  >>
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>  >>
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>  >
>
>
>
>  --
>  Denise
>
>  Denise M. Robinson, TVI, Ph.D.
>  CEO, TechVision
>  Specialist in blind technology/teaching/training
>  Email:  yourtechvision at gmail.com<mailto:yourtechvision at gmail.com> <
> deniserob at gmail.com<mailto:deniserob at gmail.com>>
>  Website with hundreds of lessons: yourtechvision.com
>  _______________________________________________
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-- 
Denise

Denise M. Robinson, TVI, Ph.D.
CEO, TechVision
Specialist in blind technology/teaching/training
Email:  yourtechvision at gmail.com <deniserob at gmail.com>
Website with hundreds of lessons: yourtechvision.com

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