[Diabetes-talk] {Disarmed} Fw:JoinArtificialPancreasPetitionToday
Bridgit Pollpeter
bpollpeter at hotmail.com
Fri Oct 21 23:35:21 UTC 2011
I was told he had a pump that, as a totally blind person, he was able to
access menus and adjust independently. They wanted me to use this pump,
but, as previously mentioned, it was no longer available. I never saw
this pump or actually spoke with this patient, but this is what I was
told.
Sincerely,
Bridgit Kuenning-Pollpeter
Read my blog at:
http://blogs.livewellnebraska.com/author/bpollpeter/
"History is not what happened; history is what was written down."
The Expected One- Kathleen McGowan
-----Original Message-----
From: diabetes-talk-bounces at nfbnet.org
[mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Mike Freeman
Sent: Friday, October 21, 2011 1:21 PM
To: diabetes-talk at nfbnet.org
Subject: Re: [Diabetes-talk] {Disarmed}
Fw:JoinArtificialPancreasPetitionToday
Are you sure it was *fully* accessible? Blind people have been using
pumps for 30 years. But note the ^jbleing - "using" as opposed to
"having full access to".
Mike
----- Original Message -----
From: Bridgit Pollpeter <bpollpeter at hotmail.com>
To: "'Diabetes Talk for the Bl'" <diabetes-talk at nfbnet.org>
Date: Thursday, Oct 20, 2011 23:13:27
Subject: Re: [Diabetes-talk] {Disarmed} FwccJoinArtificialPancreas
PetitionToday
>
>
> Seven, eight, years ago when I first started my pump, my doctor had
> another patient who was blind, and this patient had been using an
> accessible pump, but the FDA no longer was approving it. Don't
> remember what brand it was. Obviously they were deciding what pump
> would work best for me, and that was no longer an option. Anyone aware
> if Europe has an accessible pump on the market?
>
> Sincerely,
> Bridgit Kuenning-Pollpeter
> Read my blog at: http://blogs.livewellnebraska.com/author/bpollpeter/
>
> "History is not what happened; history is what was written down." The
> Expected One- Kathleen McGowan
>
>
> -----Original Message-----
> From: diabetes-talk-bounces at nfbnet.org
> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Mike Freeman
> Sent: Thursday, October 20, 2011 11:15 PM
> To: Diabetes Talk for the Blind
> Subject: Re: [Diabetes-talk] {Disarmed} FwccJoinArtificialPancreas
> PetitionToday
>
>
> Bridgit:
>
> Never heard of an accessible pump that's no longer made. I suspect
> it's right up there with cars that ran on water but were supposedly
> suppressed by Big Oil.
>
> Mike Freeman
> sent from my iPhone
>
>
> On Oct 20, 2011, at 21:05, Bridgit Pollpeter <bpollpeter at hotmail.com>
> wrote:
>
> > From what I understand, there use to be an accessible insulin pump,
> > but then the FDA stopped approving it, or something to that effect.
> > Obviously Prodigy believes it has a product meeting the needs of
blind
>
> > pump users, but has yet to release it, whatever the reasons may be.
> >
> > The question is always how do we get companies and businesses to
> > aggressively work towards accommodating a very small percentage of
the
>
> > population? Regardless of what intentions people have when starting
> > businesses, the point of business is to make money. Making up only
> > like, what is it, one percent of the population, as consumers who
are
> > blind, our voice is often over-looked because we're not the big
> > market. Not trying to push conspiracy theories or anything- just a
> > past business student who worked in business and know at the end of
> > the day, all that really matters are the dollars and cents. As
> > consumers, we have to find a way to make these companies and
suppliers
>
> > understand that, though a small group, our needs are equally
> > important
>
> > especially when in the realm of health and medicine.
> >
> > Sincerely,
> > Bridgit Kuenning-Pollpeter
> > Read my blog at:
> > http://blogs.livewellnebraska.com/author/bpollpeter/
> >
> > "History is not what happened; history is what was written down."
> > The
> > Expected One- Kathleen McGowan
> >
> >
> > -----Original Message-----
> > From: diabetes-talk-bounces at nfbnet.org
> > [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Tina Hansen
> > Sent: Thursday, October 20, 2011 7:53 PM
> > To: Diabetes Talk for the Blind
> > Subject: Re: [Diabetes-talk] {Disarmed} Fw: JoinArtificialPancreas
> > PetitionToday
> >
> >
> > I certainly agree that we could learn a lot from the toy industry.
> > The
>
> > big question, then, is what it will take to get the tech companies
> > to address this issue, and what it will take to ensure that this
> > issue stays on their
> > radar. Thanks.
> >
> >
> > _______________________________________________
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> > 40
> > hotmail.com
> >
> >
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