[Diabetes-talk] Wow!!! Guess everyone is awake now???

Tue Oct 25 19:10:33 UTC 2011

My brother in law just passed away Saturday from diabetes.
He was waiting for a kidney transplant.

Original message:
> Bridget
> Your story sounds like mine, though I have had diabetes for 34 years now,
> trying all those things you mentioned. The pain of the inserts was the main
> issue. I am considered severe because the diabetes is difficult to
> manage....drinking water makes my blood sugar rise to give you an example.

> Yes, we all need a different path.

> Denada on the invite
> Denise

> On Thu, Oct 20, 2011 at 12:18 PM, Bridgit Pollpeter
> <bpollpeter at hotmail.com>wrote:

>> Denise,

>> Diabetes has certain criteria that is across the board, but this disease
>> is very much an individual case type of disease. Different treatments
>> affect different people in various ways. And what works for some,
>> doesn't work for others.

>> Having no function of the pancreas isn't necessarily "severe" diabetes,
>> but it's type 1, and of course this means you will be insulin
>> independent. I've been type 1 for 27 years and on an insulin pump for
>> almost eight years now; about the same amount of time I've been blind.

>> As most of us, I've been on the gambit of insulin treatments. Before my
>> pump, I was on Lantis, and before that, I used NPH and a fast-acting
>> insulin. Some people, like me, love the pump and have had the best
>> regulation ever. The pump, though, isn't for everyone. How you describe
>> your insulin routine, though, is essentially how one uses an insulin
>> pump.

>> I'm not sensitive to bruising or pain with my pump, and I'm not
>> experiencing nueropathy either. If you experience this, a pump may not
>> be the best device, or you haven't used a pump that works for you. I
>> rarely, in eight years, have experienced issues with the tubing or
>> mechanics of my pump. And even when on other insulin routines, I
>> experienced lows and insulin reactions. In fact, since a child, I tend
>> to have lows and respond very quickly to insulin. This is one of the
>> reasons I like the pump because I can have certain rates that adjust
>> throughout the day. So during peak times when I tend to be low, my pump
>> has lower rates set.

>> Anyway, there are many ways to treat diabetes with insulin. We all have
>> to find what works best for us. Ultimately, it's about managing diabetes
>> the best we can.

>> Welcome.

>> Sincerely,
>> Bridgit Kuenning-Pollpeter
>> Read my blog at:
>> http://blogs.livewellnebraska.com/author/bpollpeter/

>> "History is not what happened; history is what was written down."
>> The Expected One- Kathleen McGowan

>> -----Original Message-----
>> From: diabetes-talk-bounces at nfbnet.org
>> [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Dr. Denise M
>> Robinson
>> Sent: Thursday, October 20, 2011 8:11 AM
>> To: Diabetes Talk for the Blind
>> Subject: Re: [Diabetes-talk] Wow!!! Guess everyone is awake now???

>> Just a quick note on pump using...They are painful to use and cause
>> brusing...at least on me and I have asked on others...so if you have a
>> tendency to be sensitive, well...you know. Yes the convenience is nice
>> to just pump insulin in at any time, but it needs to be working well all
>> the time and it does not.

>> If you have lots of neropathy, the pain of it might not bother you as
>> much, but here are some issues. The tubing, gets clogged or bubbles are
>> in the tube and it won't deliver the insulin well and thus your blood
>> sugar goes sky high. At night you can get severe lows...I have been down
>> to 30s and 40s, this happens during the day too even if I am a bit late
>> on eating--I experience more severe lows with the pump and many many too
>> many highs because of the delivery system issues. I had to go off it
>> because of these issues BUT, what I did learn is how to control my blood
>> sugar even better with needle injections...ok, I take about 7-10 shots a
>> day. I use lantus, long acting insulin in morning and small amount at
>> night to get me through the night to keep my blood sugar in check and
>> humlog for my fast acting...just lots of little shots throughout the day
>> to go with what I eat. My A1C is 6.5...I am considered a severe
>> diabetic...absolutely no function in the pancreas since I was 16.

>> I actually load my needle for the whole day. I am a 15 cc unit user for
>> 1 day--I can't eat much, so it is easy to keep track. I know exactly how
>> much 2 cc units of delivery is so injection is easy and that is about
>> how much food I eat at a time, due to stomach cancer issues and almost
>> no stomach now. So it is easy to do delivery and I have the best A1C I
>> have ever had. So if you know how much you take for the day, load that
>> needle and it is easy to keep track of what is going on. At first you
>> have to be VERY deligent in checking blood sugar to go with how much
>> insulin you gave, but you get very good it this. Anyway...some side
>> notes--Oh yes, just joined you all...HI Denise Robinson

>> On Thu, Oct 20, 2011 at 5:28 AM, William and Bernadette Jacobs <
>> bandbjacobs at verizon.net> wrote:

>>> Greetings Veronica!

>>> So glad to hear from you!  Thank you also for your perception/comment
>>> here! Great contribution to this!!  We've all got something here in
>>> that no matter what Prodigy might or might not be guilty of, there are

>>> a whole lot of hands in this charade:  Prodigy, solo, Roch, all the
>>> other meter/pump  makers out there, all under the rule of the
>>> "almighty" FDA???  And unfortunately, we still don't have a pump that
>>> we were promised from any of them.  Yet, they don't seem to give a rip

>>> because they aren't the consumers waiting for it. We're the ones
>>> chomping at the bit for it.  I, myself am not a pumper but I'm not
>>> sure I wouldn't be if there wasn't something out there worth my time
>>> and energy.

>>> At this point Gang, I'd really like to take this time to thank you
>>> again. I've learned so much from all of you; pumpers/non-pumpers
>>> alike.  I have really enjoyed the comradory here from everyone!  Guess

>>> that's why I consider us family here!

>>> Have a great day gang!

>>> Bern
>>> ----- Original Message ----- From: "Veronica Elsea" <
>>> veronica at laurelcreekmusic.com**>
>>> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
>>> Sent: Wednesday, October 19, 2011 11:31 PM
>>> Subject: Re: [Diabetes-talk] VoiceRx is Prodigy

>>>  Well, I have no connection to Prodigy or anyone else, but from the
>>>> conversations I had in August with Prodigy, other pump companies who
>>>> were also held up, and the FDA representative, at this point I do
>>>> believe that the FDA backlog is playing a part in the delay. There
>>>> are several stages in which the FDA comes into play, some very early
>>>> on in the pre-marketing approval. And given that nothing new is
>>>> appearing anywhere right now, I'm willing to cut them some slack
>>>> until I learn something different. But I'm not in the inner circle,
>>>> just waiting like the rest of you. <grin.>

>>>> Veronica
>>>> We Woof You A Merry Christmas! Diabetes Melodious! And more! Music
>>>> CDs that will impact and entertain you forever!
>>>> http://www.laurelcreekmusic.**com <http://www.laurelcreekmusic.com>
>>>> Veronica Elsea, Owner Laurel Creek Music Designs
>>>> Santa Cruz, California
>>>> 877-607-6407

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>> org/bandbjacobs%40verizon.net<http://nfbnet.org/mailman/options/diabetes
>> -talk_nfbnet.org/bandbjacobs%40verizon.net<http://nfbnet.org/mailman/options/diabetes%0A-talk_nfbnet.org/bandbjacobs%40verizon.net>

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>> org/deniserob%40gmail.com<http://nfbnet.org/mailman/options/diabetes-tal
>> k_nfbnet.org/deniserob%40gmail.com>

>> --
>> Denise

>> Denise M. Robinson, TVI, Ph.D.
>> CEO, TechVision
>> Specialist in blind technology/teaching/training
>> Email:  yourtechvision at gmail.com <deniserob at gmail.com>
>> Website with hundreds of lessons: yourtechvision.com
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> --
> Denise

> Denise M. Robinson, TVI, Ph.D.
> CEO, TechVision
> Specialist in blind technology/teaching/training
> Email:  yourtechvision at gmail.com <deniserob at gmail.com>
> Website with hundreds of lessons: yourtechvision.com
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every saint has a past
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