[Diabetes-talk] help being blind isallrightbut being blindand diabetic is not good at all

Mon Mar 17 21:39:10 UTC 2014

Hi Sally,

I am so sorry to hear your news!  I wanted your islet cells to flourish! 
Keep us posted,  it's ok.

Warmly, Joy

----- Original Message ----- 
From: "Sally Maguire" <1.sally at comcast.net>
To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
Sent: Monday, March 17, 2014 1:29 PM
Subject: Re: [Diabetes-talk] help being blind isallrightbut being blindand 
diabetic is not good at all

> Hi,
>
> Well, my transplant is failing, so I am back to taking insulin again.  No 
> telling how fast or slowly these islet cells are dying off or failing, so 
> taking insulin is a guess.
>
> I think the pens are far more accurate than I ever was with syringes.  I 
> also read an article recently in Forecast that it is important that your 
> insulin not go too deep.  You do not want it going into a muscle.  This is 
> probably why the shorter needles.
>
> Yes, being blind and diabetic is HARD and I do not want it back!  Too bad. 
> I don't get a choice!
> I should just be very grateful for my reprieve of almost 5 years.  I am. 
> I want it back!  I'm taking lots more immune suppressants with the hopes 
> that the islet cells will begin working again.
> The combination of high blood sugars and immune suppressants is making me 
> feel sick.
>
> Thanks for letting me complain!
>
> Sally
>
> ----- Original Message ----- 
> From: "Mike Freeman" <k7uij at panix.com>
> To: "'Joy Stigile'" <joystigile at gmail.com>; "'Diabetes Talk for the 
> Blind'" <diabetes-talk at nfbnet.org>
> Sent: Sunday, March 16, 2014 2:47 PM
> Subject: Re: [Diabetes-talk] help being blind is allrightbut being 
> blindand diabetic is not good at all
>
>
>>I understand. I run into it all the time with VoiceMate lovers.
>>
>> Mike
>>
>>
>> -----Original Message-----
>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf 
>> Of
>> Joy Stigile
>> Sent: Sunday, March 16, 2014 12:18 PM
>> To: Diabetes Talk for the Blind
>> Subject: Re: [Diabetes-talk] help being blind is all rightbut being 
>> blindand
>> diabetic is not good at all
>>
>> Hi Mike,
>>
>> Some of us are just stuck with old likes and can't give up their Insulin
>> vials.
>>
>> Warmly, Joy
>>
>>
>> ----- Original Message -----
>> From: "Mike Freeman" <k7uij at panix.com>
>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>> Sent: Sunday, March 16, 2014 10:23 AM
>> Subject: Re: [Diabetes-talk] help being blind is all rightbut being 
>> blindand
>> diabetic is not good at all
>>
>>
>>> Bern:
>>>
>>> With respect: don't be so snooty! The demand for shorter needles comes
>>> directly from patients. There's no bunch of omniscient Know-it-alls
>>> that are making decrees about poor, defenseless diabetics. As with the
>>> size of the special VoiceMate sound unit which contained an identifier
>>> for Lilly insulin viles -- part of the reason it was so large -- it's
>>> a case of "be careful what you wish for; you just might get it!". Most
>>> people want shorter needles and while most of the consequences are
>>> good (I don't have to pinch up the skin anymore before giving myself
>>> an injection), it makes sense that there may be problems. Aside from
>>> cost, why *anyone* uses viles anymore is beyond me.
>>>
>>> Cheers!
>>>
>>> Mike
>>>
>>>
>>> -----Original Message-----
>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>> Behalf Of Bernadette Jacobs
>>> Sent: Sunday, March 16, 2014 8:36 AM
>>> To: Debbie Wunder; Diabetes Talk for the Blind
>>> Subject: Re: [Diabetes-talk] help being blind is all rightbut being
>>> blind and diabetic is not good at all
>>>
>>> Hey Gang:
>>>
>>> Hate to be the bearer of bad news.  But I think that if it isn't
>>> already, the Count-A-Dose may be on its way out.  For one thing, many
>>> of these outfits that make syringes are now making different plastic
>>> casings for their syringes which, unfortunately, no longer fit
>>> comfortably in the cradle of the Count-A-Dose.  If that isn't enough,
>>> these find-and-dandy outfits have taken it upon themselves to shorten
>>> the needle points from one-half inch to five-sixteenths inch so the
>>> needle point no longer pierces the cork of the insulin vial.  They all
>>> just assume that we patients want shorter needle points???  You know
>>> what they say about assume.  "Assume makes an ass out of U-M-Me!!"
>>> Bern
>>>
>>> What is ILA?
>>>
>>> Sent from my iPhone
>>>
>>>> On Mar 16, 2014, at 8:01 AM, "Debbie Wunder"
>>>> <debbiewunder at centurytel.net>
>>> wrote:
>>>>
>>>> You can purchase one through ILA. It has been a while, but I think I
>>>> paid
>>> between $60 and $85 for the one I have.
>>>> ----- Original Message ----- From: "Mike Freeman" <k7uij at panix.com>
>>>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>>>> Sent: Saturday, March 15, 2014 9:59 PM
>>>> Subject: Re: [Diabetes-talk] help being blind is all rightbut being
>>>> blind
>>> and diabetic is not good at all
>>>>
>>>>
>>>>> I got one at Wallgreen's a few years ago -- $60 or so, I think.
>>>>>
>>>>> Also, NFB's Independence Market (which you can get to from the NFB
>>> website)
>>>>> has talking BP systems.
>>>>>
>>>>> Mike Freeman
>>>>>
>>>>>
>>>>> -----Original Message-----
>>>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>>>> Behalf
>>> Of
>>>>> sayegh.mary at gmail.com
>>>>> Sent: Saturday, March 15, 2014 6:13 PM
>>>>> To: Colleen Roth; Diabetes Talk for the Blind
>>>>> Subject: Re: [Diabetes-talk] help being blind is all right but being
>>> blind
>>>>> and diabetic is not good at all
>>>>>
>>>>> Where can I get this talking blood pressure monitor and how much is 
>>>>> it?
>>>>> Mary
>>>>>
>>>>> Sent from my iPhone
>>>>>
>>>>>> On Mar 15, 2014, at 4:06 PM, Colleen Roth <n8tnv at att.net> wrote:
>>>>>>
>>>>>> Hi Mike,
>>>>>> The Talking Blood Pressure Monitor my husband has is exactly the
>>>>>> same as the doctor uses.
>>>>>> As a matter of fact, ours is the newer version of the one in our
>>> doctor's
>>>>> office.
>>>>>> Colleen Roth
>>>>>> On Fri, 14 Mar 2014 15:28:25 -0700, Mike Freeman wrote:
>>>>>>
>>>>>>
>>>>>>> I thought a CD came with the count-a-dose.
>>>>>>>
>>>>>>> As for BP machines, I'm not sure *any* home machine is as good as
>>>>>>> that which one finds in a doctor's office.
>>>>>>>
>>>>>>> Mike
>>>>>>>
>>>>>>>
>>>>>>> -----Original Message-----
>>>>>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>>>>>> Behalf Of Fidano
>>>>>>> Sent: Friday, March 14, 2014 2:58 PM
>>>>>>> To: Diabetes Talk for the Blind
>>>>>>> Subject: Re: [Diabetes-talk] help being blind is all right but
>>>>>>> being blind and diabetic is not good at all
>>>>>>>
>>>>>>> I've not used the count a dose, but doesn't the NFB store  offer 
>>>>>>> this?
>>>>>>> thought maybe they would have  some  info available for using it
>>>>>>> in Braille or electronic format?
>>>>>>> But am curious about the BP cuff.. its audible? and Did she tell
>>>>>>> you how well it worked compared to what she might use?..
>>>>>>> Tamera
>>>>>>>
>>>>>>> --------------------------------------------------
>>>>>>> From: "Dawn" <dlanting at bex.net>
>>>>>>> Sent: Friday, March 14, 2014 1:08 PM
>>>>>>> To: <diabetes-talk at nfbnet.org>
>>>>>>> Subject: [Diabetes-talk] help being blind is all right but being
>>>>>>> blind and adiabetic is not good at all
>>>>>>>
>>>>>>>> Hello  well I got a count a dose in the mail today  I had a
>>>>>>>> visiting nurse out here to take my blood pressure with my new
>>>>>>>> talking blood pressure cuff she showed me how to use it  but when
>>>>>>>> it came to the count a dose she had no clue  the doctor had no
>>>>>>>> clue it came with a disk  but it is one that my computer can not
>>>>>>>> read  I take two different insulins  I take one hundred units
>>>>>>>> twice aday of ythe Lantus then I take a short acting insulin
>>>>>>>> three times a day  forty five units I can use the ccount a dose
>>>>>>>> thing with that because it goes up to fifty units  but no one can
>>>>>>>> tell me how to work it I have a friend draw up my needles  but I
>>>>>>>> need to be able to do ythis myself I want to be independent  but
>>>>>>>> it don't seem possible  I take a total of five shots a day  plus
>>>>>>>> one more shot once a week the mmedicne  that works with insulin
>>>>>>>> anyone have anyclue  what I am to do??? Thanks so much and have a
>>>>>>>> great day
>>>>>>>>
>>>>>>>> _______________________________________________
>>>>>>>> Diabetes-talk mailing list
>>>>>>>> Diabetes-talk at nfbnet.org
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>>>>>>>> Diabetes-talk:
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>>>>>>>> %40
>>>>>>>> co
>>>>>>>> mcast.net
>>>>>>>
>>>>>>>
>>>>>>> _______________________________________________
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>>>>>>> nix.com
>>>>>>>
>>>>>>>
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>>>>>>> t.net
>>>>>> _______________________________________________
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>>>>>> ary
>>>>>> %40gmail.com
>>>>>
>>>>> _______________________________________________
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>>>>>
>>>>>
>>>>> _______________________________________________
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>>> r%40ce
>>> nturytel.net
>>>>
>>>>
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>>> %40gma
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>>
>>
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>
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