[Diabetes-talk] help being blindisallrightbut being blindand diabetic is not good at all

Sally Maguire 1.sally at comcast.net
Tue Mar 18 01:23:50 UTC 2014 

Thanks, Joy.  Very strange eating only nuts, some meat and cheese.  Not worrying about cholesterol and arteries right now.  I can take only so much worry at one time! My doctor did not even want to check the cholesterol! 
It seems I am taking more insulin everyday

Thanks,

Sally

----- Original Message ----- 
From: "Joy Stigile" <joystigile at gmail.com>
To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
Sent: Monday, March 17, 2014 2:39 PM
Subject: Re: [Diabetes-talk] help being blindisallrightbut being blindand diabetic is not good at all


> Hi Sally,
> 
> I am so sorry to hear your news!  I wanted your islet cells to flourish! 
> Keep us posted,  it's ok.
> 
> Warmly, Joy
> 
> 
> ----- Original Message ----- 
> From: "Sally Maguire" <1.sally at comcast.net>
> To: "Diabetes Talk for the Blind" <diabetes-talk at nfbnet.org>
> Sent: Monday, March 17, 2014 1:29 PM
> Subject: Re: [Diabetes-talk] help being blind isallrightbut being blindand 
> diabetic is not good at all
> 
> 
>> Hi,
>>
>> Well, my transplant is failing, so I am back to taking insulin again.  No 
>> telling how fast or slowly these islet cells are dying off or failing, so 
>> taking insulin is a guess.
>>
>> I think the pens are far more accurate than I ever was with syringes.  I 
>> also read an article recently in Forecast that it is important that your 
>> insulin not go too deep.  You do not want it going into a muscle.  This is 
>> probably why the shorter needles.
>>
>> Yes, being blind and diabetic is HARD and I do not want it back!  Too bad. 
>> I don't get a choice!
>> I should just be very grateful for my reprieve of almost 5 years.  I am. 
>> I want it back!  I'm taking lots more immune suppressants with the hopes 
>> that the islet cells will begin working again.
>> The combination of high blood sugars and immune suppressants is making me 
>> feel sick.
>>
>> Thanks for letting me complain!
>>
>> Sally
>>
>> ----- Original Message ----- 
>> From: "Mike Freeman" <k7uij at panix.com>
>> To: "'Joy Stigile'" <joystigile at gmail.com>; "'Diabetes Talk for the 
>> Blind'" <diabetes-talk at nfbnet.org>
>> Sent: Sunday, March 16, 2014 2:47 PM
>> Subject: Re: [Diabetes-talk] help being blind is allrightbut being 
>> blindand diabetic is not good at all
>>
>>
>>>I understand. I run into it all the time with VoiceMate lovers.
>>>
>>> Mike
>>>
>>>
>>> -----Original Message-----
>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf 
>>> Of
>>> Joy Stigile
>>> Sent: Sunday, March 16, 2014 12:18 PM
>>> To: Diabetes Talk for the Blind
>>> Subject: Re: [Diabetes-talk] help being blind is all rightbut being 
>>> blindand
>>> diabetic is not good at all
>>>
>>> Hi Mike,
>>>
>>> Some of us are just stuck with old likes and can't give up their Insulin
>>> vials.
>>>
>>> Warmly, Joy
>>>
>>>
>>> ----- Original Message -----
>>> From: "Mike Freeman" <k7uij at panix.com>
>>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>>> Sent: Sunday, March 16, 2014 10:23 AM
>>> Subject: Re: [Diabetes-talk] help being blind is all rightbut being 
>>> blindand
>>> diabetic is not good at all
>>>
>>>
>>>> Bern:
>>>>
>>>> With respect: don't be so snooty! The demand for shorter needles comes
>>>> directly from patients. There's no bunch of omniscient Know-it-alls
>>>> that are making decrees about poor, defenseless diabetics. As with the
>>>> size of the special VoiceMate sound unit which contained an identifier
>>>> for Lilly insulin viles -- part of the reason it was so large -- it's
>>>> a case of "be careful what you wish for; you just might get it!". Most
>>>> people want shorter needles and while most of the consequences are
>>>> good (I don't have to pinch up the skin anymore before giving myself
>>>> an injection), it makes sense that there may be problems. Aside from
>>>> cost, why *anyone* uses viles anymore is beyond me.
>>>>
>>>> Cheers!
>>>>
>>>> Mike
>>>>
>>>>
>>>> -----Original Message-----
>>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>>> Behalf Of Bernadette Jacobs
>>>> Sent: Sunday, March 16, 2014 8:36 AM
>>>> To: Debbie Wunder; Diabetes Talk for the Blind
>>>> Subject: Re: [Diabetes-talk] help being blind is all rightbut being
>>>> blind and diabetic is not good at all
>>>>
>>>> Hey Gang:
>>>>
>>>> Hate to be the bearer of bad news.  But I think that if it isn't
>>>> already, the Count-A-Dose may be on its way out.  For one thing, many
>>>> of these outfits that make syringes are now making different plastic
>>>> casings for their syringes which, unfortunately, no longer fit
>>>> comfortably in the cradle of the Count-A-Dose.  If that isn't enough,
>>>> these find-and-dandy outfits have taken it upon themselves to shorten
>>>> the needle points from one-half inch to five-sixteenths inch so the
>>>> needle point no longer pierces the cork of the insulin vial.  They all
>>>> just assume that we patients want shorter needle points???  You know
>>>> what they say about assume.  "Assume makes an ass out of U-M-Me!!"
>>>> Bern
>>>>
>>>> What is ILA?
>>>>
>>>> Sent from my iPhone
>>>>
>>>>> On Mar 16, 2014, at 8:01 AM, "Debbie Wunder"
>>>>> <debbiewunder at centurytel.net>
>>>> wrote:
>>>>>
>>>>> You can purchase one through ILA. It has been a while, but I think I
>>>>> paid
>>>> between $60 and $85 for the one I have.
>>>>> ----- Original Message ----- From: "Mike Freeman" <k7uij at panix.com>
>>>>> To: "'Diabetes Talk for the Blind'" <diabetes-talk at nfbnet.org>
>>>>> Sent: Saturday, March 15, 2014 9:59 PM
>>>>> Subject: Re: [Diabetes-talk] help being blind is all rightbut being
>>>>> blind
>>>> and diabetic is not good at all
>>>>>
>>>>>
>>>>>> I got one at Wallgreen's a few years ago -- $60 or so, I think.
>>>>>>
>>>>>> Also, NFB's Independence Market (which you can get to from the NFB
>>>> website)
>>>>>> has talking BP systems.
>>>>>>
>>>>>> Mike Freeman
>>>>>>
>>>>>>
>>>>>> -----Original Message-----
>>>>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>>>>> Behalf
>>>> Of
>>>>>> sayegh.mary at gmail.com
>>>>>> Sent: Saturday, March 15, 2014 6:13 PM
>>>>>> To: Colleen Roth; Diabetes Talk for the Blind
>>>>>> Subject: Re: [Diabetes-talk] help being blind is all right but being
>>>> blind
>>>>>> and diabetic is not good at all
>>>>>>
>>>>>> Where can I get this talking blood pressure monitor and how much is 
>>>>>> it?
>>>>>> Mary
>>>>>>
>>>>>> Sent from my iPhone
>>>>>>
>>>>>>> On Mar 15, 2014, at 4:06 PM, Colleen Roth <n8tnv at att.net> wrote:
>>>>>>>
>>>>>>> Hi Mike,
>>>>>>> The Talking Blood Pressure Monitor my husband has is exactly the
>>>>>>> same as the doctor uses.
>>>>>>> As a matter of fact, ours is the newer version of the one in our
>>>> doctor's
>>>>>> office.
>>>>>>> Colleen Roth
>>>>>>> On Fri, 14 Mar 2014 15:28:25 -0700, Mike Freeman wrote:
>>>>>>>
>>>>>>>
>>>>>>>> I thought a CD came with the count-a-dose.
>>>>>>>>
>>>>>>>> As for BP machines, I'm not sure *any* home machine is as good as
>>>>>>>> that which one finds in a doctor's office.
>>>>>>>>
>>>>>>>> Mike
>>>>>>>>
>>>>>>>>
>>>>>>>> -----Original Message-----
>>>>>>>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>>>>>>>> Behalf Of Fidano
>>>>>>>> Sent: Friday, March 14, 2014 2:58 PM
>>>>>>>> To: Diabetes Talk for the Blind
>>>>>>>> Subject: Re: [Diabetes-talk] help being blind is all right but
>>>>>>>> being blind and diabetic is not good at all
>>>>>>>>
>>>>>>>> I've not used the count a dose, but doesn't the NFB store  offer 
>>>>>>>> this?
>>>>>>>> thought maybe they would have  some  info available for using it
>>>>>>>> in Braille or electronic format?
>>>>>>>> But am curious about the BP cuff.. its audible? and Did she tell
>>>>>>>> you how well it worked compared to what she might use?..
>>>>>>>> Tamera
>>>>>>>>
>>>>>>>> --------------------------------------------------
>>>>>>>> From: "Dawn" <dlanting at bex.net>
>>>>>>>> Sent: Friday, March 14, 2014 1:08 PM
>>>>>>>> To: <diabetes-talk at nfbnet.org>
>>>>>>>> Subject: [Diabetes-talk] help being blind is all right but being
>>>>>>>> blind and adiabetic is not good at all
>>>>>>>>
>>>>>>>>> Hello  well I got a count a dose in the mail today  I had a
>>>>>>>>> visiting nurse out here to take my blood pressure with my new
>>>>>>>>> talking blood pressure cuff she showed me how to use it  but when
>>>>>>>>> it came to the count a dose she had no clue  the doctor had no
>>>>>>>>> clue it came with a disk  but it is one that my computer can not
>>>>>>>>> read  I take two different insulins  I take one hundred units
>>>>>>>>> twice aday of ythe Lantus then I take a short acting insulin
>>>>>>>>> three times a day  forty five units I can use the ccount a dose
>>>>>>>>> thing with that because it goes up to fifty units  but no one can
>>>>>>>>> tell me how to work it I have a friend draw up my needles  but I
>>>>>>>>> need to be able to do ythis myself I want to be independent  but
>>>>>>>>> it don't seem possible  I take a total of five shots a day  plus
>>>>>>>>> one more shot once a week the mmedicne  that works with insulin
>>>>>>>>> anyone have anyclue  what I am to do??? Thanks so much and have a
>>>>>>>>> great day
>>>>>>>>>
>>>>>>>>> _______________________________________________
>>>>>>>>> Diabetes-talk mailing list
>>>>>>>>> Diabetes-talk at nfbnet.org
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>>>>>>>>> Diabetes-talk:
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>>>>>>>>> %40
>>>>>>>>> co
>>>>>>>>> mcast.net
>>>>>>>>
>>>>>>>>
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>>>>>>>> 0pa
>>>>>>>> nix.com
>>>>>>>>
>>>>>>>>
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>>>>>>
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>>>>>>
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>>>>>
>>>>>
>>>>> _______________________________________________
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>>
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> 
> 
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