[Diabetes-talk] Fw: Good News?

Fri Sep 4 14:09:53 UTC 2015

Bridget How do you run on a mini trampoline without falling off?

On 9/4/15, Bernadette Jacobs via Diabetes-talk <diabetes-talk at nfbnet.org> wrote:
> Hey gang! Burn here! Yeah, I know. It's been a long time since I've posted.
> I have been reading things on and off, and have found this to be the most
> loving, relaxing, and informative. I too, for many years, have felt like my
> A-1 C was a forecaster of doom and gloom. I feel better, not worrying about
> that, quite so much. I have been started on Invokana at the beginning of the
> year. Since then, however, it's very seldom I see a 200 number. One of the
> things I do, it may sound crazy. However, it certainly indicates anything
> one way or another. When ever I feel unusually thirsty, tired, or just not
> right. No matter how many times I have tested throughout the day, I test.
> That, for me, is usually an indication that I need to take some action.
>
> Everett, I'm so thrilled for you. This is great. As for Veronica, and
> Bridget, and Mike, I feel like this is old – home week for me, once again,
> all of you, and your own way have reaffirmed my conviction. And that is, we
> must all take every advice for what we here, and some of it, needs to be
> taken with a grain of salt. What we must do, is really listen to our bodies.
> For it is we, who know our bodies best. Yes, there are some medical
> professionals with great expertise. However, they don't live with us. And
> they don't spend time in our bodies. We, here. Our our own experts. Not that
> we shouldn't listen to anyone else. But, we still know ourselves best. I
> thank you guys for being so wonderful. I appreciate everyone's candor. This
> is great. I, too have been on other lists. But I always come back to this
> one, when I need true, blue, advice, insight, and expertise. Thank you
> guys!! You are absolutely phantabulous!!!
>
> Bern.
>
> Sent from my iPhone
>
>> On Sep 3, 2015, at 10:40 PM, Veronica Elsea via Diabetes-talk
>> <diabetes-talk at nfbnet.org> wrote:
>>
>> I am really enjoying all of the kindness and wisdom on this list. Very
>> well stated, Bridgit. And after reading all of these posts, hahahaha,
>> let's see, I tried five times before dinner to do a stick and get a
>> number. No luck! But I knew I was running high because I could feel it. No
>> surprise though. Earlier today I was threading my way through a bunch of
>> obstacles on the sidewalk when this branch just jumped out and clobbered
>> me below my left eye. My prosthetic eye flew out, hit a pole and I spent
>> the next fifteen minutes crawling around looking for it. My dog finally
>> pointed it out with his nose. But boy tonight that eye is really hurting.
>> And I do find that pain above a certain level just makes my numbers crazy!
>> This is one thing diabetes did teach me. Stress hormones are not nice to
>> the system. Not at all! I now treat pain I might have tried to tough out
>> 30 years ago because I can see the results of it when I test. Well, that
>> is, succeed at testing! Sheesh!
>> And Dar, even something like an increase in oxygen could help even out
>> your numbers. Please don't be afraid of taking care of that nice body you
>> have. <grin>
>> Thanks again, all of you.
>> Veronica
>>
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available
>> on iTunes, along with other music from her and from the Guide Dog Glee
>> Club.
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>                Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>>
>>
>>
>> -----Original Message-----
>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
>> Mark Tardif via Diabetes-talk
>> Sent: Thursday, September 03, 2015 6:05 PM
>> To: Diabetes Talk for the Blind
>> Cc: Mark Tardif
>> Subject: Re: [Diabetes-talk] Fw: Good News?
>>
>> Thank you, Bridgit.  And I will certainly be seeking those resources and I
>>
>> want to read the entire book, "Bridging the Gap."  Thank you very much,
>> and
>> this is very much what I need to be aware of.
>>
>>
>>
>> Mark Tardif
>> Nuclear arms will not hold you.
>> -----Original Message-----
>> From: Bridgit Kuenning-Pollpeter via Diabetes-talk
>> Sent: Thursday, September 03, 2015 9:01 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Bridgit Kuenning-Pollpeter
>> Subject: Re: [Diabetes-talk] Fw: Good News?
>>
>> There's a lot of great resources out there for diet and exercise, and by
>> diet, I mean meal plans, of the lifestyle variety, smile.
>>
>> Bridgit
>>
>> -----Original Message-----
>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
>>
>> Mark Tardif via Diabetes-talk
>> Sent: Thursday, September 03, 2015 7:58 PM
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Cc: Mark Tardif <markspark at roadrunner.com>
>> Subject: Re: [Diabetes-talk] Fw: Good News?
>>
>> And if it becomes necessary and my doctor recommends it, I will test 3 or
>> 4
>> times a day and become stricter about exercise and diet.  Actually, my
>> exercise routine is good, (a lot of walking, and in this neighborhood we
>> have a lot of hills,) but my food intake certainly needs modification.
>>
>>
>>
>> Mark Tardif
>> Nuclear arms will not hold you.
>> -----Original Message-----
>> From: Bridgit Kuenning-Pollpeter via Diabetes-talk
>> Sent: Thursday, September 03, 2015 8:50 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Bridgit Kuenning-Pollpeter
>> Subject: Re: [Diabetes-talk] Fw: Good News?
>>
>> Mark,
>>
>> That's one big difference between ones and twos: two's tend to remain more
>>
>> consistent than type one's, and that's why two's can usually test less
>> frequently. Personally, I think two's, regardless of A1-C's, should test
>> four times a day, but as long as you're managing things and are healthy,
>> what works for you is what works. One's have much more problems with
>> inconsistencies, and that's why it's important we test as frequently as
>> possible. At 200 and higher, I can definitely feel it, and I don't like
>> how
>> I feel in these ranges. Even if bolusing correctly, one's still tend to
>> have
>> more potential problems with inconsistencies.
>>
>> Bridgit
>>
>> -----Original Message-----
>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
>> Mark Tardif via Diabetes-talk
>> Sent: Thursday, September 03, 2015 6:51 PM
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Cc: Mark Tardif <markspark at roadrunner.com>
>> Subject: Re: [Diabetes-talk] Fw: Good News?
>>
>> I think what you said here is very important.  I have type two diabetes,
>> don't take insulin yet, just metformin, and my last A1C level was 5.9, and
>> I
>> felt perfectly fine and my doctor thought that was very appropriate in my
>> case.  Even though I like ice cream, my glucose readings rarely go above
>> 200, and I can test once or twice a day with no problem.
>>
>>
>>
>> Mark Tardif
>> Nuclear arms will not hold you.
>> -----Original Message-----
>> From: Bridgit Kuenning-Pollpeter via Diabetes-talk
>> Sent: Wednesday, September 02, 2015 11:53 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Bridgit Kuenning-Pollpeter
>> Subject: Re: [Diabetes-talk] Fw: Good News?
>>
>> Eileen,
>>
>> Diabetes is an individual disease, at the end of the day. Some regimines
>> work better for some, and not so much for others. So many variables go
>> into
>> the equation, and while there are some constants, so much more is
>> variable.
>>
>> What's an acceptable A1-C depends on a lot. For me, going below 7 means
>> I'm
>> running too low. For others, they can go below 7 and be totally fine. Type
>> two's can usually have lower A1-C's too. There are differences between
>> type
>> one and two, and people don't always understand that. My grandma is a type
>> two, and I'm a type one. She typically has A1-C's 6. 5 and lower. She
>> doesn't understand why I shouldn't have mine lower, but the difference
>> between one and two can be varied enough to create such differences.
>>
>> Like Veronica, I need to get my daily work-out in. As a teen and in my
>> early
>> 20's, I ran three to five miles a day, and I danced-- ballet, tap, jazz--
>> and while I still incorporate ballet barre exercises into my work-out, I
>> like to either power walk outside or use my elliptical at home for cardio.
>> I
>> do my ballet barre exercises and stretches afterwards. Sometimes I jog on
>> a
>> mini-trampoline too. In total, my work-outs last an hour to an
>> hour-and-a-half. I usually have to disconnect during cardio then hook back
>> up an hour afterwards. I test before working out then an hour-and-a-half
>> after the work-out. Have you tried exercising at the same time each day?
>> This can help with consistency, and you can usually judge what your sugars
>> will run before and after since doing it at the same time. You could also
>> do
>> it after a meal, adding a little more carbs to that meal. I have a
>> three-year-old, so I tend to work-out late at night, like between nine and
>> ten, since that's usually when I can get a lot done without distractions,
>> smile. I tend to run higher at night, mid to upper 100's, so this actually
>> works out. I also don't eat much during the day, mostly grabbing what I
>> can-- Greek yogurt, Clif bars, salads-- and I usually don't snack unless
>> low, so I try to make supper the one meal I sit down and have a full
>> course
>> with all the wonderful foods you are suppose to fit into each meal, smile.
>>
>> But it's really individually based. You can't always judge your treatment
>> and effects of by how others are treated and their results. I can eat a
>> candy bar, bolus and remain at 120, while a friend of mine will eat candy,
>> bolus and have crazy, inconsistent sugars all the rest of the day. If I do
>> run high, say 300 or higher, which happens during my lady time, when I
>> correct, I can drop in an hour. The same friend will take all day to come
>> down from a high sugar. For breakfast and lunch, my carb/insulin ratio is
>> one per 22, while at supper, it's one per 15. And this ratio can also
>> change
>> depending on the carb I'm eating. Like if pasta, no matter the time of
>> day,
>> I usually do one per 15, though I eat pasta sparingly. My friend always
>> needs to do one per 10, regardless of time of day or carb.
>>
>> So what works for one, doesn't always work for another person. Do what
>> works
>> for you and what your doctors recommend, and as long as you achieve
>> results
>> you're happy with, it's okay. And if you want to try to get your A1-C
>> below
>> 7, try. If you start running low frequently, then you likely are good
>> staying in the 7 to 8 range.
>>
>> Bridgit
>>
>> -----Original Message-----
>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
>> Eileen Scrivani via Diabetes-talk
>> Sent: Wednesday, September 02, 2015 6:40 PM
>> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
>> Cc: Eileen Scrivani <etscrivani at verizon.net>
>> Subject: [Diabetes-talk] Fw: Good News?
>>
>>
>> Hi Veronica and all:
>>
>> This for me has been a really interesting topic.
>>
>> I too have been using a pump for a year and a half now.  While my numbers
>> are certainly better than what I had been experiencing, they are in my
>> mind,
>> still not perfect or the perfect I’d like them to be.  I’ve found that
>> getting rid of the long acting Lantus in my insulin regiment has totally
>> eliminated extreme highs.  That’s not to say I don’t have highs & lows,
>> but
>> the highs are at least contained to being no more than the high 200’s
>> which
>> I can live with and fix.
>>
>> Usually, when I go high  its due to poor estimating of my carb
>> intake/insulin ratio.  I’ve been a diabetic since I was 5, and I have had
>> good control with really good A1C’s.  However, weird things started
>> happening to my control in my 40’s.  When I was using Lantus I would see
>> BG
>> numbers that could be in the 300’s, 400’s and even higher!  I found it
>> really stressful and was constantly fretting over the numbers.  Its not
>> like
>> I wasn’t watching my diet or not exercising.  .  .  Making the change to
>> the
>> pump and only having Novolog in my system has made a big difference and
>> leveled out the numbers.  The only thing I have been left questioning has
>> been my A1C results.  I’ve pretty much been around 7.4 to 7.8.  Last year
>> when I first started the pump I did get the A1C down to 6.3, but that’s
>> because I was having far too many lows while adjusting insulin rates.  My
>> doctor and Diabetic Educator have told me over and over that the numbers
>> I’m
>> running are fine and they don’t want me down around 6.something because
>> that
>> would leave me having too many low BGs and could be damaging to the heart
>> and heart function.
>>
>> I’ve been questioning the advice, because I’ve heard other diabetics
>> always
>> insisting that the closer to a 6 you can get the A1C the better your
>> control
>> and the less the chance of complications.  This just has left me feeling
>> like I was doing something, somewhere so wrong by having a 7.whatever A1C
>> number.
>>
>> So, bottom line is I feel a lot better after reading the posts by Bridget,
>> yourself & everet today.
>>
>> As for exercising for a full hour – I wish I could! Even after a short
>> workout of 20 or 30 minutes my BG level crashes.  I disconnect the pump
>> during and then leave it off for another half hour to a full hour.  Still,
>> I
>> can sometimes have horrible lows.  I wish I could get a better handle on
>> getting that leveled out so I could exercise with a bit less worry.
>>
>> Thanks for the great topic today and we’ll all just keep striving together
>> to improve control.
>>
>> Eileen
>>
>>
>> From: Veronica Elsea via Diabetes-talk
>> Sent: Wednesday, September 2, 2015 5:22 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Veronica Elsea
>> Subject: Re: [Diabetes-talk] Good News?
>>
>> Hi Everett!
>> Oh how I loved reading your post. Congrats and bravo for you. When I was
>> first diagnosed at age 34, for the first couple of years my A1C ran
>> between
>> 13 and 16 no matter what I seemed to do. NPH insulin just didn't obsorb
>> consistently and no amount of fiddling seemed to sort me out. Within two
>> months on a pump, I had my A1C down to 7 to 8 range, where I seem to spend
>> a
>> lot of time. I seem to go from being really on top of things to phases of
>> burn out, then back at it again, then burn out. So what I really like here
>> is that ability to be, well, human, knowing that sometimes it's okay to
>> ride
>> the ups and downs with a supportive group. The sanity for me is exercise.
>> I
>> feel really weird if I don't walk at least an hour a day.
>> My biggest struggle right now is blood testing. My callouses are really a
>> problem and the swollen fingers from rheumatoid arthritis don't help much.
>> But as you said, just keep swimming. Just keep swimming. <grin> Oh wait!
>> Striving! <laughing!
>> So go for it, all of us!
>> Veronica
>>
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now available
>> on
>> iTunes, along with other music from her and from the Guide Dog Glee Club.
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>>                Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>>
>>
>>
>> -----Original Message-----
>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
>> Mike Freeman via Diabetes-talk
>> Sent: Wednesday, September 02, 2015 12:55 PM
>> To: 'Everett Gavel'; 'Diabetes Talk for the Blind'
>> Cc: Mike Freeman
>> Subject: Re: [Diabetes-talk] Good News?
>>
>> Hey Everett! Bravo, my man! Glad your attitude adjustment is working! Keep
>> it up!
>>
>> Mike
>>
>>
>> -----Original Message-----
>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of
>> Everett Gavel via Diabetes-talk
>> Sent: Wednesday, September 02, 2015 11:56 AM
>> To: diabetes-talk at nfbnet.org
>> Cc: Everett Gavel
>> Subject: [Diabetes-talk] Good News?
>>
>> Hello All,
>>
>> I just realized that, while I've recently begun sharing a little more
>> about
>> my personal situation with my diabetes publicly on some 'blind diabetic'
>> lists, I've yet to share it here on my original and most favorite, most
>> read, bestest list of them all for blind diabetics. Please forgive me for
>> that.
>>
>> I do have some good news to share. Good for me, at least. A week or two
>> ago,
>> my doc told me my a1c was 8.0. Now, that may not be all that great, but
>> try
>> to understand, I'm pretty sure it's not been that low, personally, since I
>> was a young teenager, and possibly even before that.
>>
>> I got diabetes when I was 10, and all through my teens and 20's, and I'll
>> admit, even into my 30's truly, I was as stupid, er, stubborn as they
>> come.
>> At least in regards to my diabetes. I pretty much ignored it as much as I
>> could without bringing on a quick death. About all I did for the first
>> couple of decades (I'm 45 now) was to take my insulin once and for a while
>> twice a day. That's it.
>>
>> I never cared what my a1c was on those 3-month appointments I sometimes
>> kept
>> with my docs. But a few years ago I started smartening up a bit.
>> Little by little I tried taking better care of my diabetes. I finally gave
>> in and got a Medtronic pump about 1.5 years ago.
>>
>> Today, I can say I finally made the mental switch and gave into the need,
>> the smarter choice, to actually monitor my glucose levels regularly.
>> Nowadays, if I don't test at least 4 times a day, I feel wierd. Maybe it's
>> some kind of guilt or something, I don't know. But I *like* that it feels
>> wrong to not test at least 4 times a day, these days.
>>
>> So, all that being rambled on about, while I realize it may be along the
>> lines of too little too late, I'm hoping for the other cliche to be more
>> true, where it says, better late than never.
>> ;-)
>>
>> So my BS levels are 8.0. Well, okay, my 'BS' (and
>> sarcasm) levels are often far higher than that, but, my blood sugar levels
>> are now most often under 200, and for me, that's great. For decades, my
>> average has been between 300 & 400 when I'd test it. I've been clocked
>> more
>> times than I can count, back in the day when the Joslin Diabetes Center
>> was
>> where I went for my 3-month check ups as a teen, at over 700. These days,
>> I
>> can't seem to find a monitor that doesn't quit counting around 599 or 600,
>> seems like. But I don't test em out like that too much anymore either, so
>> who knows? I'm glad I can say I don't know that for sure, actually.
>>
>> Anyway, I'm newly inspired by my 8.0 a1c. In 3 months, my new goal is 7.0.
>> I'm not just counting carbs and taking insulin to cover, now. It's a
>> challenge, and I love a good challenge. So I'm actually (gasp) paying
>> attention to what I'm eating, and not just counting carbs. I'm actually
>> focusing on, go figure, EATING BETTER.
>>
>> So, I just wanted to share my small bit of good news and new inspiration.
>> You all, here, have been inspiring to me over the years, and I truly
>> appreciate all that you share.
>>
>>
>> Strive On!
>> Everett
>> In Colorado Springs, USA
>>
>>
>>
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-- 
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