[Diabetes-talk] Fw: Good News?
Bridgit Kuenning-Pollpeter
bkpollpeter at gmail.com
Fri Sep 4 17:03:24 UTC 2015
First, I usually keep it close to an object I can hold onto if I need to orient myself. There's also a plastic lining around the outer edge, so if your feet feel the plastic, you know to step back or to the side. You can also purchase mini-tramps with hand rails attached. I have held onto my cane before also to keep orientated.
Bridgit
-----Original Message-----
From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On Behalf Of Danielle Ledet via Diabetes-talk
Sent: Friday, September 04, 2015 9:10 AM
To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
Cc: Danielle Ledet <singingmywayin at gmail.com>
Subject: Re: [Diabetes-talk] Fw: Good News?
Bridget How do you run on a mini trampoline without falling off?
On 9/4/15, Bernadette Jacobs via Diabetes-talk <diabetes-talk at nfbnet.org> wrote:
> Hey gang! Burn here! Yeah, I know. It's been a long time since I've posted.
> I have been reading things on and off, and have found this to be the
> most loving, relaxing, and informative. I too, for many years, have
> felt like my
> A-1 C was a forecaster of doom and gloom. I feel better, not worrying
> about that, quite so much. I have been started on Invokana at the
> beginning of the year. Since then, however, it's very seldom I see a
> 200 number. One of the things I do, it may sound crazy. However, it
> certainly indicates anything one way or another. When ever I feel
> unusually thirsty, tired, or just not right. No matter how many times I have tested throughout the day, I test.
> That, for me, is usually an indication that I need to take some action.
>
> Everett, I'm so thrilled for you. This is great. As for Veronica, and
> Bridget, and Mike, I feel like this is old – home week for me, once
> again, all of you, and your own way have reaffirmed my conviction. And
> that is, we must all take every advice for what we here, and some of
> it, needs to be taken with a grain of salt. What we must do, is really listen to our bodies.
> For it is we, who know our bodies best. Yes, there are some medical
> professionals with great expertise. However, they don't live with us.
> And they don't spend time in our bodies. We, here. Our our own
> experts. Not that we shouldn't listen to anyone else. But, we still
> know ourselves best. I thank you guys for being so wonderful. I
> appreciate everyone's candor. This is great. I, too have been on other
> lists. But I always come back to this one, when I need true, blue,
> advice, insight, and expertise. Thank you guys!! You are absolutely phantabulous!!!
>
> Bern.
>
> Sent from my iPhone
>
>> On Sep 3, 2015, at 10:40 PM, Veronica Elsea via Diabetes-talk
>> <diabetes-talk at nfbnet.org> wrote:
>>
>> I am really enjoying all of the kindness and wisdom on this list.
>> Very well stated, Bridgit. And after reading all of these posts,
>> hahahaha, let's see, I tried five times before dinner to do a stick
>> and get a number. No luck! But I knew I was running high because I
>> could feel it. No surprise though. Earlier today I was threading my
>> way through a bunch of obstacles on the sidewalk when this branch
>> just jumped out and clobbered me below my left eye. My prosthetic eye
>> flew out, hit a pole and I spent the next fifteen minutes crawling
>> around looking for it. My dog finally pointed it out with his nose. But boy tonight that eye is really hurting.
>> And I do find that pain above a certain level just makes my numbers crazy!
>> This is one thing diabetes did teach me. Stress hormones are not nice
>> to the system. Not at all! I now treat pain I might have tried to
>> tough out
>> 30 years ago because I can see the results of it when I test. Well,
>> that is, succeed at testing! Sheesh!
>> And Dar, even something like an increase in oxygen could help even
>> out your numbers. Please don't be afraid of taking care of that nice
>> body you have. <grin> Thanks again, all of you.
>> Veronica
>>
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now
>> available on iTunes, along with other music from her and from the
>> Guide Dog Glee Club.
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>> Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>>
>>
>>
>> -----Original Message-----
>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of Mark Tardif via Diabetes-talk
>> Sent: Thursday, September 03, 2015 6:05 PM
>> To: Diabetes Talk for the Blind
>> Cc: Mark Tardif
>> Subject: Re: [Diabetes-talk] Fw: Good News?
>>
>> Thank you, Bridgit. And I will certainly be seeking those resources
>> and I
>>
>> want to read the entire book, "Bridging the Gap." Thank you very
>> much, and this is very much what I need to be aware of.
>>
>>
>>
>> Mark Tardif
>> Nuclear arms will not hold you.
>> -----Original Message-----
>> From: Bridgit Kuenning-Pollpeter via Diabetes-talk
>> Sent: Thursday, September 03, 2015 9:01 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Bridgit Kuenning-Pollpeter
>> Subject: Re: [Diabetes-talk] Fw: Good News?
>>
>> There's a lot of great resources out there for diet and exercise, and
>> by diet, I mean meal plans, of the lifestyle variety, smile.
>>
>> Bridgit
>>
>> -----Original Message-----
>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of
>>
>> Mark Tardif via Diabetes-talk
>> Sent: Thursday, September 03, 2015 7:58 PM
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Cc: Mark Tardif <markspark at roadrunner.com>
>> Subject: Re: [Diabetes-talk] Fw: Good News?
>>
>> And if it becomes necessary and my doctor recommends it, I will test
>> 3 or
>> 4
>> times a day and become stricter about exercise and diet. Actually,
>> my exercise routine is good, (a lot of walking, and in this
>> neighborhood we have a lot of hills,) but my food intake certainly needs modification.
>>
>>
>>
>> Mark Tardif
>> Nuclear arms will not hold you.
>> -----Original Message-----
>> From: Bridgit Kuenning-Pollpeter via Diabetes-talk
>> Sent: Thursday, September 03, 2015 8:50 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Bridgit Kuenning-Pollpeter
>> Subject: Re: [Diabetes-talk] Fw: Good News?
>>
>> Mark,
>>
>> That's one big difference between ones and twos: two's tend to remain
>> more
>>
>> consistent than type one's, and that's why two's can usually test
>> less frequently. Personally, I think two's, regardless of A1-C's,
>> should test four times a day, but as long as you're managing things
>> and are healthy, what works for you is what works. One's have much
>> more problems with inconsistencies, and that's why it's important we
>> test as frequently as possible. At 200 and higher, I can definitely
>> feel it, and I don't like how I feel in these ranges. Even if
>> bolusing correctly, one's still tend to have more potential problems
>> with inconsistencies.
>>
>> Bridgit
>>
>> -----Original Message-----
>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of Mark Tardif via Diabetes-talk
>> Sent: Thursday, September 03, 2015 6:51 PM
>> To: Diabetes Talk for the Blind <diabetes-talk at nfbnet.org>
>> Cc: Mark Tardif <markspark at roadrunner.com>
>> Subject: Re: [Diabetes-talk] Fw: Good News?
>>
>> I think what you said here is very important. I have type two
>> diabetes, don't take insulin yet, just metformin, and my last A1C
>> level was 5.9, and I felt perfectly fine and my doctor thought that
>> was very appropriate in my case. Even though I like ice cream, my
>> glucose readings rarely go above 200, and I can test once or twice a
>> day with no problem.
>>
>>
>>
>> Mark Tardif
>> Nuclear arms will not hold you.
>> -----Original Message-----
>> From: Bridgit Kuenning-Pollpeter via Diabetes-talk
>> Sent: Wednesday, September 02, 2015 11:53 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Bridgit Kuenning-Pollpeter
>> Subject: Re: [Diabetes-talk] Fw: Good News?
>>
>> Eileen,
>>
>> Diabetes is an individual disease, at the end of the day. Some
>> regimines work better for some, and not so much for others. So many
>> variables go into the equation, and while there are some constants,
>> so much more is variable.
>>
>> What's an acceptable A1-C depends on a lot. For me, going below 7
>> means I'm running too low. For others, they can go below 7 and be
>> totally fine. Type two's can usually have lower A1-C's too. There are
>> differences between type one and two, and people don't always
>> understand that. My grandma is a type two, and I'm a type one. She
>> typically has A1-C's 6. 5 and lower. She doesn't understand why I
>> shouldn't have mine lower, but the difference between one and two can
>> be varied enough to create such differences.
>>
>> Like Veronica, I need to get my daily work-out in. As a teen and in
>> my early 20's, I ran three to five miles a day, and I danced--
>> ballet, tap, jazz-- and while I still incorporate ballet barre
>> exercises into my work-out, I like to either power walk outside or
>> use my elliptical at home for cardio.
>> I
>> do my ballet barre exercises and stretches afterwards. Sometimes I
>> jog on a mini-trampoline too. In total, my work-outs last an hour to
>> an hour-and-a-half. I usually have to disconnect during cardio then
>> hook back up an hour afterwards. I test before working out then an
>> hour-and-a-half after the work-out. Have you tried exercising at the
>> same time each day?
>> This can help with consistency, and you can usually judge what your
>> sugars will run before and after since doing it at the same time. You
>> could also do it after a meal, adding a little more carbs to that
>> meal. I have a three-year-old, so I tend to work-out late at night,
>> like between nine and ten, since that's usually when I can get a lot
>> done without distractions, smile. I tend to run higher at night, mid
>> to upper 100's, so this actually works out. I also don't eat much
>> during the day, mostly grabbing what I
>> can-- Greek yogurt, Clif bars, salads-- and I usually don't snack
>> unless low, so I try to make supper the one meal I sit down and have
>> a full course with all the wonderful foods you are suppose to fit
>> into each meal, smile.
>>
>> But it's really individually based. You can't always judge your
>> treatment and effects of by how others are treated and their results.
>> I can eat a candy bar, bolus and remain at 120, while a friend of
>> mine will eat candy, bolus and have crazy, inconsistent sugars all
>> the rest of the day. If I do run high, say 300 or higher, which
>> happens during my lady time, when I correct, I can drop in an hour.
>> The same friend will take all day to come down from a high sugar. For
>> breakfast and lunch, my carb/insulin ratio is one per 22, while at
>> supper, it's one per 15. And this ratio can also change depending on
>> the carb I'm eating. Like if pasta, no matter the time of day, I
>> usually do one per 15, though I eat pasta sparingly. My friend always
>> needs to do one per 10, regardless of time of day or carb.
>>
>> So what works for one, doesn't always work for another person. Do
>> what works for you and what your doctors recommend, and as long as
>> you achieve results you're happy with, it's okay. And if you want to
>> try to get your A1-C below 7, try. If you start running low
>> frequently, then you likely are good staying in the 7 to 8 range.
>>
>> Bridgit
>>
>> -----Original Message-----
>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of Eileen Scrivani via Diabetes-talk
>> Sent: Wednesday, September 02, 2015 6:40 PM
>> To: NFB Diabetes Talk <diabetes-talk at nfbnet.org>
>> Cc: Eileen Scrivani <etscrivani at verizon.net>
>> Subject: [Diabetes-talk] Fw: Good News?
>>
>>
>> Hi Veronica and all:
>>
>> This for me has been a really interesting topic.
>>
>> I too have been using a pump for a year and a half now. While my
>> numbers are certainly better than what I had been experiencing, they
>> are in my mind, still not perfect or the perfect I’d like them to be.
>> I’ve found that getting rid of the long acting Lantus in my insulin
>> regiment has totally eliminated extreme highs. That’s not to say I
>> don’t have highs & lows, but the highs are at least contained to
>> being no more than the high 200’s which I can live with and fix.
>>
>> Usually, when I go high its due to poor estimating of my carb
>> intake/insulin ratio. I’ve been a diabetic since I was 5, and I have
>> had good control with really good A1C’s. However, weird things
>> started happening to my control in my 40’s. When I was using Lantus
>> I would see BG numbers that could be in the 300’s, 400’s and even
>> higher! I found it really stressful and was constantly fretting over
>> the numbers. Its not like I wasn’t watching my diet or not
>> exercising. . . Making the change to the pump and only having
>> Novolog in my system has made a big difference and leveled out the
>> numbers. The only thing I have been left questioning has been my A1C
>> results. I’ve pretty much been around 7.4 to 7.8. Last year when I
>> first started the pump I did get the A1C down to 6.3, but that’s
>> because I was having far too many lows while adjusting insulin rates.
>> My doctor and Diabetic Educator have told me over and over that the
>> numbers I’m running are fine and they don’t want me down around
>> 6.something because that would leave me having too many low BGs and
>> could be damaging to the heart and heart function.
>>
>> I’ve been questioning the advice, because I’ve heard other diabetics
>> always insisting that the closer to a 6 you can get the A1C the
>> better your control and the less the chance of complications. This
>> just has left me feeling like I was doing something, somewhere so
>> wrong by having a 7.whatever A1C number.
>>
>> So, bottom line is I feel a lot better after reading the posts by
>> Bridget, yourself & everet today.
>>
>> As for exercising for a full hour – I wish I could! Even after a
>> short workout of 20 or 30 minutes my BG level crashes. I disconnect
>> the pump during and then leave it off for another half hour to a full
>> hour. Still, I can sometimes have horrible lows. I wish I could get
>> a better handle on getting that leveled out so I could exercise with
>> a bit less worry.
>>
>> Thanks for the great topic today and we’ll all just keep striving
>> together to improve control.
>>
>> Eileen
>>
>>
>> From: Veronica Elsea via Diabetes-talk
>> Sent: Wednesday, September 2, 2015 5:22 PM
>> To: 'Diabetes Talk for the Blind'
>> Cc: Veronica Elsea
>> Subject: Re: [Diabetes-talk] Good News?
>>
>> Hi Everett!
>> Oh how I loved reading your post. Congrats and bravo for you. When I
>> was first diagnosed at age 34, for the first couple of years my A1C
>> ran between
>> 13 and 16 no matter what I seemed to do. NPH insulin just didn't
>> obsorb consistently and no amount of fiddling seemed to sort me out.
>> Within two months on a pump, I had my A1C down to 7 to 8 range, where
>> I seem to spend a lot of time. I seem to go from being really on top
>> of things to phases of burn out, then back at it again, then burn
>> out. So what I really like here is that ability to be, well, human,
>> knowing that sometimes it's okay to ride the ups and downs with a
>> supportive group. The sanity for me is exercise.
>> I
>> feel really weird if I don't walk at least an hour a day.
>> My biggest struggle right now is blood testing. My callouses are
>> really a problem and the swollen fingers from rheumatoid arthritis don't help much.
>> But as you said, just keep swimming. Just keep swimming. <grin> Oh wait!
>> Striving! <laughing!
>> So go for it, all of us!
>> Veronica
>>
>> "Guide Dogs, First Hand", Veronica Elsea's classic album is now
>> available on iTunes, along with other music from her and from the
>> Guide Dog Glee Club.
>> To learn more, visit:
>> http://www.laurelcreekmusic.com
>> Veronica Elsea, Owner
>> Laurel Creek Music Designs
>> Santa Cruz, California
>> Phone: 831-429-6407
>>
>>
>>
>> -----Original Message-----
>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of Mike Freeman via Diabetes-talk
>> Sent: Wednesday, September 02, 2015 12:55 PM
>> To: 'Everett Gavel'; 'Diabetes Talk for the Blind'
>> Cc: Mike Freeman
>> Subject: Re: [Diabetes-talk] Good News?
>>
>> Hey Everett! Bravo, my man! Glad your attitude adjustment is working!
>> Keep it up!
>>
>> Mike
>>
>>
>> -----Original Message-----
>> From: Diabetes-talk [mailto:diabetes-talk-bounces at nfbnet.org] On
>> Behalf Of Everett Gavel via Diabetes-talk
>> Sent: Wednesday, September 02, 2015 11:56 AM
>> To: diabetes-talk at nfbnet.org
>> Cc: Everett Gavel
>> Subject: [Diabetes-talk] Good News?
>>
>> Hello All,
>>
>> I just realized that, while I've recently begun sharing a little more
>> about my personal situation with my diabetes publicly on some 'blind
>> diabetic'
>> lists, I've yet to share it here on my original and most favorite,
>> most read, bestest list of them all for blind diabetics. Please
>> forgive me for that.
>>
>> I do have some good news to share. Good for me, at least. A week or
>> two ago, my doc told me my a1c was 8.0. Now, that may not be all that
>> great, but try to understand, I'm pretty sure it's not been that low,
>> personally, since I was a young teenager, and possibly even before
>> that.
>>
>> I got diabetes when I was 10, and all through my teens and 20's, and
>> I'll admit, even into my 30's truly, I was as stupid, er, stubborn as
>> they come.
>> At least in regards to my diabetes. I pretty much ignored it as much
>> as I could without bringing on a quick death. About all I did for the
>> first couple of decades (I'm 45 now) was to take my insulin once and
>> for a while twice a day. That's it.
>>
>> I never cared what my a1c was on those 3-month appointments I
>> sometimes kept with my docs. But a few years ago I started smartening
>> up a bit.
>> Little by little I tried taking better care of my diabetes. I finally
>> gave in and got a Medtronic pump about 1.5 years ago.
>>
>> Today, I can say I finally made the mental switch and gave into the
>> need, the smarter choice, to actually monitor my glucose levels regularly.
>> Nowadays, if I don't test at least 4 times a day, I feel wierd. Maybe
>> it's some kind of guilt or something, I don't know. But I *like* that
>> it feels wrong to not test at least 4 times a day, these days.
>>
>> So, all that being rambled on about, while I realize it may be along
>> the lines of too little too late, I'm hoping for the other cliche to
>> be more true, where it says, better late than never.
>> ;-)
>>
>> So my BS levels are 8.0. Well, okay, my 'BS' (and
>> sarcasm) levels are often far higher than that, but, my blood sugar
>> levels are now most often under 200, and for me, that's great. For
>> decades, my average has been between 300 & 400 when I'd test it. I've
>> been clocked more times than I can count, back in the day when the
>> Joslin Diabetes Center was where I went for my 3-month check ups as a
>> teen, at over 700. These days, I can't seem to find a monitor that
>> doesn't quit counting around 599 or 600, seems like. But I don't test
>> em out like that too much anymore either, so who knows? I'm glad I
>> can say I don't know that for sure, actually.
>>
>> Anyway, I'm newly inspired by my 8.0 a1c. In 3 months, my new goal is 7.0.
>> I'm not just counting carbs and taking insulin to cover, now. It's a
>> challenge, and I love a good challenge. So I'm actually (gasp) paying
>> attention to what I'm eating, and not just counting carbs. I'm
>> actually focusing on, go figure, EATING BETTER.
>>
>> So, I just wanted to share my small bit of good news and new inspiration.
>> You all, here, have been inspiring to me over the years, and I truly
>> appreciate all that you share.
>>
>>
>> Strive On!
>> Everett
>> In Colorado Springs, USA
>>
>>
>>
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>>
>>
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--
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Email: singingmywayin at gmail.com
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